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Hello from Clair in the Hill Country of Texas
Hello everyone, I am new to the group but have gotten so much valuable information and I thank you. I had a mastectomy in June of 2017 and felt like I was almost to 5 years. A new oncologist started in my practice and we had a great initial meeting where she asked lots of questions. She asked if I had
Hello everyone, I am new to the group but have gotten so much valuable information and I thank you. I had a mastectomy in June of 2017 and felt like I was almost to 5 years. A new oncologist started in my practice and we had a great initial meeting where she asked lots of questions. She asked if I had
Brooks225
in
SHARE Metastatic Breast Cancer
3 years ago
Ibs flare up or something else?
Hi, for the last 2 weeks my stomach issues have re-emerged: excessive wind (belching & flatulence), lots of gurgling in stomach, diarrhoea, gnawing pain around lower ribs, intestinal aches&cramps, and generally feeling wiped out. Have been gluten free for years due to being moderately intolerant, and
Hi, for the last 2 weeks my stomach issues have re-emerged: excessive wind (belching & flatulence), lots of gurgling in stomach, diarrhoea, gnawing pain around lower ribs, intestinal aches&cramps, and generally feeling wiped out. Have been gluten free for years due to being moderately intolerant, and
Hel66
in
IBS Network
3 years ago
Conversion disorder
Hi my partner has been diagnosed with conversion and admitted to hospital over a year ago now, we have gone through every possible symptom going a more. Its been horrific I'm forever the optimistic however loosing it little by little. We are currently waiting for a emergency bed at facility. Can anyone
Hi my partner has been diagnosed with conversion and admitted to hospital over a year ago now, we have gone through every possible symptom going a more. Its been horrific I'm forever the optimistic however loosing it little by little. We are currently waiting for a emergency bed at facility. Can anyone
-132
in
Functional Neurological Disorder - FND Hope
3 years ago
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Started eating fava beans again, feeling much better!
I recently found a way to get these tasty peeled and steamed beans directly from Melissa’s Produce since local supermarkets no longer carried them. I eat them every day, cold, in a salad or smoothie, and I’m noticing less extreme off times and fatigue. C/L medication remains at 25-100 three times daily
I recently found a way to get these tasty peeled and steamed beans directly from Melissa’s Produce since local supermarkets no longer carried them. I eat them every day, cold, in a salad or smoothie, and I’m noticing less extreme off times and fatigue. C/L medication remains at 25-100 three times daily
Lionore
in
Cure Parkinson's
3 years ago
Superdrug one a night sleep aid
Taking 50mg of diphenhydramine hydrochloride every night to help me sleep. This is an over the counter med. Have been taking it for nearly two months. Have tried sleeping without it and I am awake for hours because of the tinnitus. Mine is a high pitched squealing in both ears. Just wanted to know if
Taking 50mg of diphenhydramine hydrochloride every night to help me sleep. This is an over the counter med. Have been taking it for nearly two months. Have tried sleeping without it and I am awake for hours because of the tinnitus. Mine is a high pitched squealing in both ears. Just wanted to know if
Catlioness41
in
British Tinnitus Association
3 years ago
lab results for tsh, t3 and t4
Hello my friends, I got my labs back and TSH -- .063 ( 0.045 to 4.5 UL) T3 -- 3.1 (2.0 to 4.4 pg/ml) T4 -- .89 (.82 to 1.77 ng/dl I take 15 mcg Liothyrorine and 50 mcg of Unithroid every day Before the test, I took 5 mcg Lio 8 hours before the test, and took unithroid 24 hrs before the test
Hello my friends, I got my labs back and TSH -- .063 ( 0.045 to 4.5 UL) T3 -- 3.1 (2.0 to 4.4 pg/ml) T4 -- .89 (.82 to 1.77 ng/dl I take 15 mcg Liothyrorine and 50 mcg of Unithroid every day Before the test, I took 5 mcg Lio 8 hours before the test, and took unithroid 24 hrs before the test
jeanie245
in
Thyroid UK
3 years ago
Worried
I am newly diagnosed and also suffered a small pleural effusion . My worry is my inflammatory markers are still high crf is 200 and esr 70 . On 15mg of prednisone but wake up at 4.30am every night in pain with shoulders. Still hurting to take a deep breath . Back to GP today to see what he suggests
I am newly diagnosed and also suffered a small pleural effusion . My worry is my inflammatory markers are still high crf is 200 and esr 70 . On 15mg of prednisone but wake up at 4.30am every night in pain with shoulders. Still hurting to take a deep breath . Back to GP today to see what he suggests
Bev61
in
PMRGCAuk
3 years ago
RLS and now apnea
I've had RLS for over 5 decades now, and have survived by changing drugs when each one has become ineffective. The latest drug--a semi-opioid called buprenorphine--has been the best! However, I now have central sleep apnea greatly interfering with sleep. I wake up tired and am tired throughout the day
I've had RLS for over 5 decades now, and have survived by changing drugs when each one has become ineffective. The latest drug--a semi-opioid called buprenorphine--has been the best! However, I now have central sleep apnea greatly interfering with sleep. I wake up tired and am tired throughout the day
grandpianoman
in
Restless Legs Syndrome
3 years ago
ANXIETY SUFFERER ALONG WITH LUPUS
Hi All, is anyone suffering with Anxiety?(that's probably a dumb question.most of us have it. I has diagnosed late in life about five years ago. My problem is that I suffer ANXIETY big time. Which I can't sleep without an Aid.Even before I has diagnosed with Panniculitus. I didn't't sleep without a
Hi All, is anyone suffering with Anxiety?(that's probably a dumb question.most of us have it. I has diagnosed late in life about five years ago. My problem is that I suffer ANXIETY big time. Which I can't sleep without an Aid.Even before I has diagnosed with Panniculitus. I didn't't sleep without a
Goinglong10
in
LUPUS UK
3 years ago
Negative HPT after 40.88 Beta hcg is it negative ?
Hi somebody please suggest me i had beta hcg 40.88 2 days before and test need to be repeated after 3 days as per ivf lab.Today i did UPT but it was negative can i consider it a negative pregnancy?
Hi somebody please suggest me i had beta hcg 40.88 2 days before and test need to be repeated after 3 days as per ivf lab.Today i did UPT but it was negative can i consider it a negative pregnancy?
Arya1234
in
Fertility Network UK
3 years ago
Leg Pain while on Lupron and Zynga
I was diagnosed with PC in 2011, prostatectomy, 4 rounds of radiation, and ADT. In January there were met in my hips and spine. I'm taking the ADT medications Lupron and Zynga. Over the last ten days, I have been experiencing leg pain in both legs. I take calcium, vitamin D, aspirin, turmeric, and Aleve
I was diagnosed with PC in 2011, prostatectomy, 4 rounds of radiation, and ADT. In January there were met in my hips and spine. I'm taking the ADT medications Lupron and Zynga. Over the last ten days, I have been experiencing leg pain in both legs. I take calcium, vitamin D, aspirin, turmeric, and Aleve
de-luke
in
Advanced Prostate Cancer
3 years ago
2007 3x Survior Loves Animals
Hi I’m on my post treatment for bc. I had single mastectomy 2007 Tamoxifen 5 yrs. 2017 came back in mastectomy boob had surgery I needed a job- unemployment ran out so I refused chemotherapy and radiation I needed to find $$$ a job to pay rent n health insurance. 2019 it came back. Had surgery n
Hi I’m on my post treatment for bc. I had single mastectomy 2007 Tamoxifen 5 yrs. 2017 came back in mastectomy boob had surgery I needed a job- unemployment ran out so I refused chemotherapy and radiation I needed to find $$$ a job to pay rent n health insurance. 2019 it came back. Had surgery n
ScoutnFlower
in
SHARE Breast Cancer Support
3 years ago
Tirosint 50 microgrammi/1 ml a day
Hi everyone, I was diagnosed in 2018 with Hypothyroid Hashimoto and have been taking 50 microgrammi a day. Last week I did my blood test and my TSH is high 5.56. I will have to go to my endocrinologist and see what she will do. I feel very anxious and jittery. Is this normal?
Hi everyone, I was diagnosed in 2018 with Hypothyroid Hashimoto and have been taking 50 microgrammi a day. Last week I did my blood test and my TSH is high 5.56. I will have to go to my endocrinologist and see what she will do. I feel very anxious and jittery. Is this normal?
Hamster18
in
Thyroid UK
3 years ago
Gabapentine + Clonazepam Star
Hi all. So the pain infusions didn't work so consultant referred me to see a neurologist. I had the app this morning. He did some basis neurological tests which he said were fine. As Fibro is not his area of expertise he did his best. He has prescribed me some new tablets to try. Clonazepam to help with
Hi all. So the pain infusions didn't work so consultant referred me to see a neurologist. I had the app this morning. He did some basis neurological tests which he said were fine. As Fibro is not his area of expertise he did his best. He has prescribed me some new tablets to try. Clonazepam to help with
QUEENIE74
in
Fibromyalgia Action UK
3 years ago
Prayer Warriors... Put June 11 on your calendar
My SSDI case (3rd appeal) is on June 11 with a judge! I was diagnosed with FND on 4/26 on tope of the brain cancer (Feb 2020), depression (1982) and narcolepsy (1993)! FUNCTIONING IS NOT EASY! So please, prayers requested (even if just "wind, please fill the sales on Julie's boat and blow here to a
My SSDI case (3rd appeal) is on June 11 with a judge! I was diagnosed with FND on 4/26 on tope of the brain cancer (Feb 2020), depression (1982) and narcolepsy (1993)! FUNCTIONING IS NOT EASY! So please, prayers requested (even if just "wind, please fill the sales on Julie's boat and blow here to a
Julie729
in
Functional Neurological Disorder - FND Hope
3 years ago
HIPEC
Has anyone here had, or knows of someone, that has had HIPEC for metastasised stomach cancer? My husband has one metastatic tumour 4 yrs after his gastrectomy. It is in an awkward position and 6 months of standard chemo has had little effect and they’ve had to lower the dose of radiotherapy for fear
Has anyone here had, or knows of someone, that has had HIPEC for metastasised stomach cancer? My husband has one metastatic tumour 4 yrs after his gastrectomy. It is in an awkward position and 6 months of standard chemo has had little effect and they’ve had to lower the dose of radiotherapy for fear
HerIndoors
in
Oesophageal & Gastric Cancer
3 years ago
meningitis vaccine
Do CLL patients who have never had meningitis vaccine need two doses? I am asking about the meningitis vaccine for strains ACWY, such as Menactra, not the Hib/MenC vaccine. It looks like two doses are recommended based on google search but my Dr did not mention getting a second dose.
Do CLL patients who have never had meningitis vaccine need two doses? I am asking about the meningitis vaccine for strains ACWY, such as Menactra, not the Hib/MenC vaccine. It looks like two doses are recommended based on google search but my Dr did not mention getting a second dose.
pth123
in
CLL Support
3 years ago
Sleep Apnea and ET/Jak2+
Does anyone else suffer with Sleep Apnea that has ET/Jak+? I have been diagnosed with sleep apnea and been prescribed a CPAP machine and I am resisting using it but wonder now if it is necessary. I have been experiencing great fatigue lately and wonder if the sleep apnea could be the culprit:/
Does anyone else suffer with Sleep Apnea that has ET/Jak+? I have been diagnosed with sleep apnea and been prescribed a CPAP machine and I am resisting using it but wonder now if it is necessary. I have been experiencing great fatigue lately and wonder if the sleep apnea could be the culprit:/
MiltonBradley
in
MPN Voice
3 years ago
Alternative to Duloxetine
Been on it over 2 months and apart from improving my mood dropouts Im not sure it suits me. My issue is mood drops and fatigue with minor fibro symptoms. What with the lump in my throat feeling off, more tired etc. There is def some positives but I cant live with this lump in throat and trapped
Been on it over 2 months and apart from improving my mood dropouts Im not sure it suits me. My issue is mood drops and fatigue with minor fibro symptoms. What with the lump in my throat feeling off, more tired etc. There is def some positives but I cant live with this lump in throat and trapped
Floppy99
in
Fibromyalgia Action UK
3 years ago
New to the community
Thanks for the referral to Dr. Claire Weekes' book & YouTube videos from several of you. I hope to get some guidance about dealing with this (new to me) anxiety, racing heart & panic attacks following the recent death of my husband of 50 years. I have better luck dealing with these symptoms during
Thanks for the referral to Dr. Claire Weekes' book & YouTube videos from several of you. I hope to get some guidance about dealing with this (new to me) anxiety, racing heart & panic attacks following the recent death of my husband of 50 years. I have better luck dealing with these symptoms during
GautGirl
in
Anxiety and Depression Support
3 years ago
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