Search
Search
About
Log in
Join
Experiences with
Sjogren-Larsson syndrome
Posts
Communities
3,193 public posts
Filter results
Dry eyes? Help from LupusUK
https://www.lupusuk.org.uk/dry-eyes-and-dry-mouth/ Every month the wonderful LupusUK publishes a Topic of the Month. This month it is about dryness of eyes and mouth - which have been subjects for a few posts recently. Hope the link is useful - and there are links to Sjogren's sites too just in case
https://www.lupusuk.org.uk/dry-eyes-and-dry-mouth/ Every month the wonderful LupusUK publishes a Topic of the Month. This month it is about dryness of eyes and mouth - which have been subjects for a few posts recently. Hope the link is useful - and there are links to Sjogren's sites too just in case
PMRpro
Ambassador
in
PMRGCAuk
6 years ago
Just so you can all be jealous...UPDATE...THUNDERSNOW!!!!
I'm working from home today in my jammies on the couch, watching the second Nor'easter of the week develop into a major snow storm about to dump a foot of snow in NYC. I could tell yesterday, even without the weatherman, that something wicked this way comes. I was achey and irritable all day, and was
I'm working from home today in my jammies on the couch, watching the second Nor'easter of the week develop into a major snow storm about to dump a foot of snow in NYC. I could tell yesterday, even without the weatherman, that something wicked this way comes. I was achey and irritable all day, and was
GOOD_GRIEF
in
PMRGCAuk
6 years ago
CBD oil
Have just started taking Holland and Barrett CBD oil 2.5%, mainly as I barely sleep at all. RLS not bad at the moment so unsure if it’s helping this. I took about 4 drops the last couple of nights and an hour and a half later I was fallen no asleep in front of the TV. I went to bed and didn’t fall asleep
Have just started taking Holland and Barrett CBD oil 2.5%, mainly as I barely sleep at all. RLS not bad at the moment so unsure if it’s helping this. I took about 4 drops the last couple of nights and an hour and a half later I was fallen no asleep in front of the TV. I went to bed and didn’t fall asleep
Mum007
in
Restless Legs Syndrome
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Reduce joint pain immediately
Advice, please anyone with joint pain stop eating sugar and you might be surprised at the aches in joints reducing.It really helps for joint pain
Advice, please anyone with joint pain stop eating sugar and you might be surprised at the aches in joints reducing.It really helps for joint pain
Topbananamac
in
Fibromyalgia Action UK
6 years ago
Advice please...should I induce a bleed before going for FET? (mild ivf)
Hello lovely ladies, I'm looking for a bit of advice...I'm doing mild ivf as I've got really low AMH but seeing as I've not got any follicle this cycle, dr has said I could go ahead with our frozen embie. He said normally we would start taking tablets to boost my lining after a bleed, but since my ovaries
Hello lovely ladies, I'm looking for a bit of advice...I'm doing mild ivf as I've got really low AMH but seeing as I've not got any follicle this cycle, dr has said I could go ahead with our frozen embie. He said normally we would start taking tablets to boost my lining after a bleed, but since my ovaries
Mannjj43
in
Fertility Network UK
6 years ago
Let it Snow... Let it Snow... Let it Snow!!!
Glad to see all of you in the UK are surviving your freak storm... Here in Calgary we are quite used to it and probably 90% of us have 4WD/AWD vehicles. Unfortunately 90% of them think snow tyres aren't necessary.... 😬! I don't post very often, but I read everything from our special club everyday...
Glad to see all of you in the UK are surviving your freak storm... Here in Calgary we are quite used to it and probably 90% of us have 4WD/AWD vehicles. Unfortunately 90% of them think snow tyres aren't necessary.... 😬! I don't post very often, but I read everything from our special club everyday...
Scotte
in
PMRGCAuk
6 years ago
Withdrawal story. Lyrica.Help!
Hi everyone! After suffering from rls from a very long time i finally found a doctor who knew about augmentation and suggested to cut down on pram.(All the other suggested to upper the dose.)He made me stop pram in 3 days!I got mad with legs jerking and no sleep!He put me back on pram and never answered
Hi everyone! After suffering from rls from a very long time i finally found a doctor who knew about augmentation and suggested to cut down on pram.(All the other suggested to upper the dose.)He made me stop pram in 3 days!I got mad with legs jerking and no sleep!He put me back on pram and never answered
Katerina22
in
Restless Legs Syndrome
6 years ago
The Good, the Bad & the Ugly
Good: Travelled to Humberside to see my great-grandson (Jaxon) in person (3 weeks old now). Went back to hotel just before the main snow arrived and cut off the village. Bad: Roads all blocked on Wednesday so confined to hotel room (Aah!! Stir crazy!!). Slipped in bath (support rails in Accessible Room
Good: Travelled to Humberside to see my great-grandson (Jaxon) in person (3 weeks old now). Went back to hotel just before the main snow arrived and cut off the village. Bad: Roads all blocked on Wednesday so confined to hotel room (Aah!! Stir crazy!!). Slipped in bath (support rails in Accessible Room
violetsnowdrop
in
PMRGCAuk
6 years ago
Feeling dreadful-no one listening
Hi, i was diagnosed with severe me.cfs five years ago and have been housebound since then. Last year i was also diagnosed with fibromyalgia (not sure if i agree) and Connective Tissue disease. Ive been on hydroxychloroquine for two years but it doesnt seem to have made a difference to my symptoms. I
Hi, i was diagnosed with severe me.cfs five years ago and have been housebound since then. Last year i was also diagnosed with fibromyalgia (not sure if i agree) and Connective Tissue disease. Ive been on hydroxychloroquine for two years but it doesnt seem to have made a difference to my symptoms. I
Kate16
in
LUPUS UK
6 years ago
Indigestion and pantoprazole
Have been suffering with terrible acid indigestion and I have just given in to taking a ppi. Is this safe with pbc. I am also on 4 x 250 ursofalk per day.
Have been suffering with terrible acid indigestion and I have just given in to taking a ppi. Is this safe with pbc. I am also on 4 x 250 ursofalk per day.
mel16
in
British Liver Trust
6 years ago
Restless Leg Medication
Can Mirapex and Requip for restless leg be taken together. Example: Mirapex .05 in the morning and Requip 1 at nite ??
Can Mirapex and Requip for restless leg be taken together. Example: Mirapex .05 in the morning and Requip 1 at nite ??
Mmayo
in
Restless Legs Syndrome
6 years ago
Travel help (taking meds to US)
Hi, I’ve ducked in looking for advice regarding taking some medication to Florida (changing in Texas en route). My 10 yo has fairly severe CF, and as there’s no community on here just for that, I figured you lovely people on the BLF might be the best people to ask. Although I used to be a seasoned traveller
Hi, I’ve ducked in looking for advice regarding taking some medication to Florida (changing in Texas en route). My 10 yo has fairly severe CF, and as there’s no community on here just for that, I figured you lovely people on the BLF might be the best people to ask. Although I used to be a seasoned traveller
Hidden
in
Lung Conditions Community Forum
6 years ago
The jurys still out in diagnosis of PMR
Hi all I saw Dr Khan at WHH Ashford, private wing on 14 Feb. He was on the fence over whether I have PMR or my OA and Stenosis of lumbar spine causes my pain in back and pelvis. After taking letter from Dr Campbell, I saw privately on 30 Jan. who gave me 7 days trial on 15 mg Pred. and said if it made
Hi all I saw Dr Khan at WHH Ashford, private wing on 14 Feb. He was on the fence over whether I have PMR or my OA and Stenosis of lumbar spine causes my pain in back and pelvis. After taking letter from Dr Campbell, I saw privately on 30 Jan. who gave me 7 days trial on 15 mg Pred. and said if it made
Hidden
in
PMRGCAuk
6 years ago
Uterine lining.
Hi ladies today I had my day 9 scan to check the lining thickness, I have been taking progynova, folic acid and vitamin E. The lining measured 11mm!! So full steam ahead for our FET on 27th - I'm so shocked after so much heartache maybe we're actually getting somewhere xx
Hi ladies today I had my day 9 scan to check the lining thickness, I have been taking progynova, folic acid and vitamin E. The lining measured 11mm!! So full steam ahead for our FET on 27th - I'm so shocked after so much heartache maybe we're actually getting somewhere xx
CJ104
in
Fertility Network UK
6 years ago
Cytoplan - 100% Gluten free Vitamin supplements including ingredients derived from gluten
Hey guys Just in case someone has been struggling like me to find supplements that are 100% gluten free (as in no gluten derived ingredients) as very sensitive like myself to things such as maltodextrin. I tried cytoplan and haven't reacted at all to any of theirs and they have very few fillers or extras
Hey guys Just in case someone has been struggling like me to find supplements that are 100% gluten free (as in no gluten derived ingredients) as very sensitive like myself to things such as maltodextrin. I tried cytoplan and haven't reacted at all to any of theirs and they have very few fillers or extras
Saggyuk
in
Thyroid UK
6 years ago
IVF ICSI with PGD update - still in the game!
So our Valentine’s Day treat was a phone call from the embryologist to tell us that, of our four frozen embies, we have a “normal” one (it may have normal chromosomes or it may have a balanced translocation like my hubbie- both count as normal). Huge sigh of relief that we *should* have something to
So our Valentine’s Day treat was a phone call from the embryologist to tell us that, of our four frozen embies, we have a “normal” one (it may have normal chromosomes or it may have a balanced translocation like my hubbie- both count as normal). Huge sigh of relief that we *should* have something to
Lizzielizzielizzie
in
Fertility Network UK
6 years ago
Exercise rescues SCA1 mice.
So I came across this study years ago and forgot about it. Long before I got to where I am today in terms of a complex regimen I was already exercising regularly because I had read this report. Today I happened across this information once again so I thought I would share the info. Putting this together
So I came across this study years ago and forgot about it. Long before I got to where I am today in terms of a complex regimen I was already exercising regularly because I had read this report. Today I happened across this information once again so I thought I would share the info. Putting this together
sunvox
in
Ataxia UK
6 years ago
Episode?
I am one of the lucky ones, my Afib episodes have been minor compared to most. I have recently come off Nebivolol and been given Flecainide as a PIP. Last night the minute I lay down in bed my heart started a rumba which lasted most of the night. However, my hr was 79 at the highest. Am I likely to
I am one of the lucky ones, my Afib episodes have been minor compared to most. I have recently come off Nebivolol and been given Flecainide as a PIP. Last night the minute I lay down in bed my heart started a rumba which lasted most of the night. However, my hr was 79 at the highest. Am I likely to
Hidden
in
AF Association
6 years ago
Any success stories?
Has anybody any success stories with having pcos and low sperm, getting pregnant naturally? Ive been taking lots of vitamins, inositol, coQ10 and many more. Was wondering if it is actually helpful?. Thank you
Has anybody any success stories with having pcos and low sperm, getting pregnant naturally? Ive been taking lots of vitamins, inositol, coQ10 and many more. Was wondering if it is actually helpful?. Thank you
Gailmx
in
Fertility Network UK
6 years ago
Has anyone had side effects soon after starting Fostair? I’ve had oral thrush, joint pain, and flu like symptoms and a very dry mouth!
Has anyone had problems with FOSTAIR? In hospital 10 days with asthma/chest infection and SERETIDE was replaced by FOSTAIR. Had oral thrush, have VERY DRY mouth, joints aching, and flu like symptoms which I didn’t experience on SERETIDE! Many thanks for your help.
Has anyone had problems with FOSTAIR? In hospital 10 days with asthma/chest infection and SERETIDE was replaced by FOSTAIR. Had oral thrush, have VERY DRY mouth, joints aching, and flu like symptoms which I didn’t experience on SERETIDE! Many thanks for your help.
Dietrech
in
Lung Conditions Community Forum
6 years ago
1
...
99
100
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1376 results
Fertility Network UK
356 results
PMRGCAuk
131 results
View top 10 communities
Sort by
Most Relevant
Newest