I was diagnosed with EDS Hypermobility a few years ago. I have a partial subluxation in my neck, lordosis and generally wobbly joints.
Only problem is, I've recently been told I likely have Rheumatic Fever. I'm waiting to see an infectious disease specialist and cardiologist.
The thing is, I never know what is EDS pain and what is RF pain. Rheumatic Fever causes proper swelling joints, red hot and extremely painful and causes heart damage. Also, RF causes a condition called Syndenham's Chorea, which damages the muscles and causes weakness and joint laxity.
The EDS pain is like the pain I have in my neck from the subluxation. It's more of a grinding, sharp pain.
My neurologist also suspects I have Adddinsons Disease, which also causes pain, especially hip and back pain.
I have to watch out for any sudden onset of pain, especially in my knees, as that's a sign of Rheumatic Fever.
But because he EDS causes chronic pain, I don't know what's causing what! Also, I've developed a high pain tolerance over the years so I didn't complain that I was in agony- and when I did I was told it was all in my head.
So anyone else with multiple diagnosis/ suspected conditions that cause pain?