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Sjogren-Larsson syndrome
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getting no sleep after stopping miripex
now I understand why so many of my friends here said an opiate of some kind was a necessity. As I weaned off of miripex, each time I lowered the dose I had a couple of days of trouble. But now that i'm off it altogether, my symptoms are bad in legs and arms. Baths are no longer helping. Any idea
now I understand why so many of my friends here said an opiate of some kind was a necessity. As I weaned off of miripex, each time I lowered the dose I had a couple of days of trouble. But now that i'm off it altogether, my symptoms are bad in legs and arms. Baths are no longer helping. Any idea
Belsheart
in
Restless Legs Syndrome
6 years ago
Blood test
Hi all. Good morning, just wondering if any of you have had blood results of Connective Tissue Disease & what did your consultants say about the findings? My docs think Sjogren's & Lupus disease, but it's early days. Look forward to hearing from you x
Hi all. Good morning, just wondering if any of you have had blood results of Connective Tissue Disease & what did your consultants say about the findings? My docs think Sjogren's & Lupus disease, but it's early days. Look forward to hearing from you x
Angellealea1
in
LUPUS UK
6 years ago
Odd occasion for the 'sperm test'
Okay so yesterday who'd have thought it, was an extremely stressful day.. we had to do the sperm test which was advanced... My annoyance flowed when 1) he made it all about him not liking any type of doctor treatments/involvement with doctors. 2) on the drive down which took an hour, I could see he wasn't
Okay so yesterday who'd have thought it, was an extremely stressful day.. we had to do the sperm test which was advanced... My annoyance flowed when 1) he made it all about him not liking any type of doctor treatments/involvement with doctors. 2) on the drive down which took an hour, I could see he wasn't
DanniJones
in
Fertility Network UK
6 years ago
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Sleep, Anyone? Anyone?
Have any of you suffered from hyper insomnia, then changed meds and had some good sleep at last? At very long last? I am still on a small-ish dose of pramipexole, ready to wean with the help of methadone. Benzos make no difference to sleep, sadly. Nor do all the whacked out remedies, magnesium and
Have any of you suffered from hyper insomnia, then changed meds and had some good sleep at last? At very long last? I am still on a small-ish dose of pramipexole, ready to wean with the help of methadone. Benzos make no difference to sleep, sadly. Nor do all the whacked out remedies, magnesium and
Parminter
in
Restless Legs Syndrome
6 years ago
Relapsing polychondritis
Hello, everyone. I was diagnosed with MPA ten years ago and have recently had a nasty flare which has been treated with Rituximab but this time does not seem to be working too well. I have had a very inflamed outer ear ( the pinna) which has been itchy and developed nodules along the edge of it. Did
Hello, everyone. I was diagnosed with MPA ten years ago and have recently had a nasty flare which has been treated with Rituximab but this time does not seem to be working too well. I have had a very inflamed outer ear ( the pinna) which has been itchy and developed nodules along the edge of it. Did
trebar
in
Vasculitis UK
6 years ago
Hepatic Encepalopathy medications (Lactulose and Rifamixin OR L-ornithine and L-aspartate)
Which medication would be better to treat HE. The doctor is giving my mom L-ornithine and L-aspartate. My mom has HE and is suffering from delusions which are getting worse. I told my sister that Lactulose is a common medication to treat HE as I have read on the internet and told her to ask the doctor
Which medication would be better to treat HE. The doctor is giving my mom L-ornithine and L-aspartate. My mom has HE and is suffering from delusions which are getting worse. I told my sister that Lactulose is a common medication to treat HE as I have read on the internet and told her to ask the doctor
Dagmara
in
British Liver Trust
6 years ago
PLMD ?
Hi everyone, My Rls has been much better in the evening but now I can't sleep at night because my leg, first my right and then my left, start jerking up from the bed and sometimes my whole body jerks, I don't know if this is RLS or PLMD but whichever it is, its making me exhausted. I stopped pramipexole
Hi everyone, My Rls has been much better in the evening but now I can't sleep at night because my leg, first my right and then my left, start jerking up from the bed and sometimes my whole body jerks, I don't know if this is RLS or PLMD but whichever it is, its making me exhausted. I stopped pramipexole
gobojo
in
Restless Legs Syndrome
6 years ago
Sjorgens symptoms
Hi Im awaiting a lip biopsy testing for Sjorgen’s. I have all of the symptoms but blood test negative . I had a period of feeling well for about 10-12 days recently and noticed that my dry also improved (unfortunately this didn’t last and I’m feel unwell again and all symptoms have returned ) I suppose
Hi Im awaiting a lip biopsy testing for Sjorgen’s. I have all of the symptoms but blood test negative . I had a period of feeling well for about 10-12 days recently and noticed that my dry also improved (unfortunately this didn’t last and I’m feel unwell again and all symptoms have returned ) I suppose
Angelamarston1963
in
LUPUS UK
6 years ago
Period after withdrawal bleed???
So I had failed ivf in April, had my withdrawal bleed, which lasted 12 days, then my "normal" period came on Sunday, usually it's 5 days and done, yesterday which was day 5 there was nothing at all, then today I'm bleeding again. Anyone else had ne thing similar?? Xx
So I had failed ivf in April, had my withdrawal bleed, which lasted 12 days, then my "normal" period came on Sunday, usually it's 5 days and done, yesterday which was day 5 there was nothing at all, then today I'm bleeding again. Anyone else had ne thing similar?? Xx
Jojo1812
in
Fertility Network UK
6 years ago
Coccyx pain..?
Hi everyone, I hope you’re all doing as ok as possible. I’m not yet diagnosed but have most of the symptoms, I’m awaiting test results etc from the GP. So, this last 4 days my coccyx has been really hurting! This is a totally new pain/symptom to me and was just wandering if it’s something anyone else
Hi everyone, I hope you’re all doing as ok as possible. I’m not yet diagnosed but have most of the symptoms, I’m awaiting test results etc from the GP. So, this last 4 days my coccyx has been really hurting! This is a totally new pain/symptom to me and was just wandering if it’s something anyone else
Lynzhoppy1
in
Fibromyalgia Action UK
6 years ago
Restless Legs
Hi I am new, have had RLS for 19 years and was on pramipexole which gave me augmentation, I am now on Madopar and only 1 week into it, still not getting a lot of sleep. Any Ideas?
Hi I am new, have had RLS for 19 years and was on pramipexole which gave me augmentation, I am now on Madopar and only 1 week into it, still not getting a lot of sleep. Any Ideas?
fishodave
in
Restless Legs Syndrome
6 years ago
Duloxetine no no....!
Well, I tried it and really didn't realise how depressed and anxious it made me until my husband mentioned it! I stuck with it for 3 weeks and that was it. I phoned the hospital and they noted yet another medication I've had a bad reaction to. The trouble is that the anxiety has hung on to the point
Well, I tried it and really didn't realise how depressed and anxious it made me until my husband mentioned it! I stuck with it for 3 weeks and that was it. I phoned the hospital and they noted yet another medication I've had a bad reaction to. The trouble is that the anxiety has hung on to the point
Blackwitch
in
Fibromyalgia Action UK
6 years ago
How longs a piece of string ?
Hi I’m sure many of you have been in the position I find my self in . Back in December I started with joint pain , fatigue etc - I’ve had fibro for many years and this just felt different . By Jan I couldn’t work more than 4/5 hrs a day and was making mistakes in my work . I’ve been off work ever since
Hi I’m sure many of you have been in the position I find my self in . Back in December I started with joint pain , fatigue etc - I’ve had fibro for many years and this just felt different . By Jan I couldn’t work more than 4/5 hrs a day and was making mistakes in my work . I’ve been off work ever since
Angelamarston1963
in
LUPUS UK
6 years ago
Should I mentally prepare for the possibility..?
Hello all. I’ve had elevated liver enzymes for some time together with some numb pain on my right side. When hungry especially. Since I’ve never had a family doctor, doctors just seem to raise their eyebrows at my results but then move right along to whatever reason I was there for (I’ve never gone for
Hello all. I’ve had elevated liver enzymes for some time together with some numb pain on my right side. When hungry especially. Since I’ve never had a family doctor, doctors just seem to raise their eyebrows at my results but then move right along to whatever reason I was there for (I’ve never gone for
MeN18
in
PBC Foundation
6 years ago
Leg jerks
Has anybody experienced leg jerks or torso jerks while being on lyrica? I have constant almost unstoppable jerks which make me mad!It feels like an electrode is hitting me!These jerks give me pain at my lower left leg.I could also describe them as tics.
Has anybody experienced leg jerks or torso jerks while being on lyrica? I have constant almost unstoppable jerks which make me mad!It feels like an electrode is hitting me!These jerks give me pain at my lower left leg.I could also describe them as tics.
Katerina22
in
Restless Legs Syndrome
6 years ago
Sertraline,Tibilone Decapeptyl
Hi all I’m currently on my 6th month of decapeptyl and have been taking Tibilone alongside it for 3 months. My Dr has agreed to give me it for a year while I’m on the waiting list for surgery (triple discipline bowel,bladder and gynae so long wait list) and my pain is much improved however my mood
Hi all I’m currently on my 6th month of decapeptyl and have been taking Tibilone alongside it for 3 months. My Dr has agreed to give me it for a year while I’m on the waiting list for surgery (triple discipline bowel,bladder and gynae so long wait list) and my pain is much improved however my mood
GemParki
in
Endometriosis UK
6 years ago
Desperately needing advice please
Following down reg on buserelin I went for a scan today. It’s day 2 of my period and I was expecting them to say that my lining is nice and thin and I’m ready to start stimulation. Instead I was confronted with a huge black blob on the screen. They have found a cyst on my right side. It was so big that
Following down reg on buserelin I went for a scan today. It’s day 2 of my period and I was expecting them to say that my lining is nice and thin and I’m ready to start stimulation. Instead I was confronted with a huge black blob on the screen. They have found a cyst on my right side. It was so big that
Rainbowhope
in
Fertility Network UK
6 years ago
Spotting during pregnancy
I am currently 7 weeks pregnant and last week I started spotting. The spotting increases after a bowel movement. I went to the doctor thinking a miscarriage, but the baby showed a heartbeat. They put me on bedrest until I return to the doctor this Wednesday. The spotting still continues. It’s a dark
I am currently 7 weeks pregnant and last week I started spotting. The spotting increases after a bowel movement. I went to the doctor thinking a miscarriage, but the baby showed a heartbeat. They put me on bedrest until I return to the doctor this Wednesday. The spotting still continues. It’s a dark
Mandeelee19
in
Pregnancy and Parenting Support
6 years ago
Update on my twin pregnancy
Not sure if anyone remembers but in November I was lucky enough to find out I was pregnant after my 5th ivf attempt, with twins. On the 14th February I found out they were both boys. Which would mean that I would have 3 gorgeous boys. In April I went into early labour at only 26 weeks pregnant. The
Not sure if anyone remembers but in November I was lucky enough to find out I was pregnant after my 5th ivf attempt, with twins. On the 14th February I found out they were both boys. Which would mean that I would have 3 gorgeous boys. In April I went into early labour at only 26 weeks pregnant. The
Bobenhams3
in
Fertility Network UK
6 years ago
W4 done! Undecided about how glad I am about that.
Hot day today.  Mark it in your diary folks...a bank holiday without rain. So I got up really early to get my final week 4 run done before the heat of the day. Bleary eyed, I turned off my 10am alarm (that is early for a bank holiday right?), donned my shorts, running bra and calf stockings. And headed
Hot day today.  Mark it in your diary folks...a bank holiday without rain. So I got up really early to get my final week 4 run done before the heat of the day. Bleary eyed, I turned off my 10am alarm (that is early for a bank holiday right?), donned my shorts, running bra and calf stockings. And headed
Marvo69
Graduate
in
Couch to 5K
6 years ago
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