Search
Search
About
Log in
Join
Experiences with
Sjogren-Larsson syndrome
Posts
Communities
3,208 public posts
Filter results
Magnesium Lotion Works
I could almost feel the pain and twinges go away immediately. Thanks for the tip whoever posted that.
I could almost feel the pain and twinges go away immediately. Thanks for the tip whoever posted that.
tealsea
in
Restless Legs Syndrome
6 years ago
Rls relentless
Hi I had rls over 20 years but recently it's become so bad I've barely slept in 6 nights can't sleep daytime as rls is relentless atm. I'm at my wits end . Can anyone help I've tried gabapentin tramadol morphine but no help
Hi I had rls over 20 years but recently it's become so bad I've barely slept in 6 nights can't sleep daytime as rls is relentless atm. I'm at my wits end . Can anyone help I've tried gabapentin tramadol morphine but no help
Brummygirl
in
Restless Legs Syndrome
6 years ago
Umbilical Hernia
Things seem to going from bad to worse, Peeps, my husband’s Ascites has enlarged so hugely to the point his belly button has herniated. He saw his surgeon last Tuesday and he quadrupled his diuretics - Tamsulosin and Frumil - and he passes a reasonable amount of water in the mornings but that’s about
Things seem to going from bad to worse, Peeps, my husband’s Ascites has enlarged so hugely to the point his belly button has herniated. He saw his surgeon last Tuesday and he quadrupled his diuretics - Tamsulosin and Frumil - and he passes a reasonable amount of water in the mornings but that’s about
Peeps7
in
British Liver Trust
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Feeling frustrated and I feel lazy
Hi all, I feel I am being so lazy. I can't stay awake in the day. I try and try to stay awake but nod off. I don't get dressed until the afternoon and feel I am being lazy. I have no energy whatsoever. When I do feel a bit more lively, I go for a walk to a park with my friend but suffer afterwards. I
Hi all, I feel I am being so lazy. I can't stay awake in the day. I try and try to stay awake but nod off. I don't get dressed until the afternoon and feel I am being lazy. I have no energy whatsoever. When I do feel a bit more lively, I go for a walk to a park with my friend but suffer afterwards. I
Mandypandy1969
in
Fibromyalgia Action UK
6 years ago
RLS
I’ve had rls all my life. it got to a point that I had to ask my dr to prescribe pramipexol a few years ago, it worked well at first then slowly I had to increase the dose, now I have augmentation, I started a few days ago taking magnesium-citrate along with my medication and felt rotten with bad tummy
I’ve had rls all my life. it got to a point that I had to ask my dr to prescribe pramipexol a few years ago, it worked well at first then slowly I had to increase the dose, now I have augmentation, I started a few days ago taking magnesium-citrate along with my medication and felt rotten with bad tummy
Hidden
in
Restless Legs Syndrome
6 years ago
Some really good info...
I thought I would post some info on glutamate/glutamine and its (supposed to happen) conversion to GABA (which is problematic in RLS people.) Glutamate is excitatory and GABA is inhibitory. Glutamate is what keeps one awake and stimulated, while GABA is what helps one relax and sleep. These are some
I thought I would post some info on glutamate/glutamine and its (supposed to happen) conversion to GABA (which is problematic in RLS people.) Glutamate is excitatory and GABA is inhibitory. Glutamate is what keeps one awake and stimulated, while GABA is what helps one relax and sleep. These are some
lauraflora
in
Restless Legs Syndrome
6 years ago
Knee replacement surgery under 30?
I’m 28 and facing a knee replacement operation. Has anyone on here had a total knee replacement under the age of 30? Been suffering since I was 16 and my right knee is now very worn down - consultant says knee op is only option left. I’m wondering how much it will improve my quality of life and how long
I’m 28 and facing a knee replacement operation. Has anyone on here had a total knee replacement under the age of 30? Been suffering since I was 16 and my right knee is now very worn down - consultant says knee op is only option left. I’m wondering how much it will improve my quality of life and how long
jessmonk
in
NRAS
6 years ago
Laparoscopy - Is it worth husband coming with?
Hi all. I'm due to have a diagnostic Laparoscopy tomorrow. It does say that I can have some one with me but is it worth my husband coming or just coming to fetch me following? Not had any day surgery before and not sure what would be best?? Thanks
Hi all. I'm due to have a diagnostic Laparoscopy tomorrow. It does say that I can have some one with me but is it worth my husband coming or just coming to fetch me following? Not had any day surgery before and not sure what would be best?? Thanks
ejr1981
in
Fertility Network UK
6 years ago
Restless leg syndrome - any specialists in the Manchester area?
Hello I'm John and have suffered rls for about 10 years. It has got gradually worse and now affects my arms and shoulders. I also suffer from severe body ache at night so my sleep is not good. I currently take 0.7 mg of pramipexole at night supplemented by quinine sulphate and amitryptolene. The medications
Hello I'm John and have suffered rls for about 10 years. It has got gradually worse and now affects my arms and shoulders. I also suffer from severe body ache at night so my sleep is not good. I currently take 0.7 mg of pramipexole at night supplemented by quinine sulphate and amitryptolene. The medications
J296
in
Restless Legs Syndrome
6 years ago
Dr Marty Hinz amino acid protocol
Hi, has anyone tried amino acids for their restless leg syndrome? Or Dr. Hinz amino acid protocol? I have my son on some of his suggestions already but not all (Eg l dopa), but I’m interested in the urine testing he does for this Thanks!
Hi, has anyone tried amino acids for their restless leg syndrome? Or Dr. Hinz amino acid protocol? I have my son on some of his suggestions already but not all (Eg l dopa), but I’m interested in the urine testing he does for this Thanks!
Elizab32
in
Restless Legs Syndrome
6 years ago
Plastic surgery
15 years ago I had a breast augmentation. I had never even heard of Hughes back then or worried about my health. I was young healthy etc. I am now petrified as I know my implants need to be replaced ( they only have a certain shelf life). Has anyone on here had a surgical procedure done? I know it shouldn
15 years ago I had a breast augmentation. I had never even heard of Hughes back then or worried about my health. I was young healthy etc. I am now petrified as I know my implants need to be replaced ( they only have a certain shelf life). Has anyone on here had a surgical procedure done? I know it shouldn
Kittybaker
in
Hughes Syndrome APS Forum
6 years ago
biopsy said early stage, elastography says stage four which is cirrhosis?
Has anyone else been diagnosed by biopsy as early stage pbc then only a year later had elastography say stage four which is cirrhosis? My bloods are barely out of the normal range but I feel awful most of the time, extremely dry eyes, mouth, bad fatigue and right sided pain and tummy problems.. My gp
Has anyone else been diagnosed by biopsy as early stage pbc then only a year later had elastography say stage four which is cirrhosis? My bloods are barely out of the normal range but I feel awful most of the time, extremely dry eyes, mouth, bad fatigue and right sided pain and tummy problems.. My gp
Aussielouise
in
PBC Foundation
6 years ago
Swollen glands
Hi Have been on roactemra for 18 months no side effects besides can't lose weight. I have swollen neck glands with 4 months and now swollen gland by collar bone.Has anyone gotten this as a side effect?thanks
Hi Have been on roactemra for 18 months no side effects besides can't lose weight. I have swollen neck glands with 4 months and now swollen gland by collar bone.Has anyone gotten this as a side effect?thanks
Trace1974
in
NRAS
6 years ago
Hypothyroid b12 deficienct !!
Am 29 unmarried hypothyroid and on eltroxin 50 mcg , and my b12 blood report My value is 220 Normal : 211 - 911 pg/ml Doctor prescribed this tablet , Can it be taken ? Should I after food or before food ??? It's mentioned as shell contains parabens , am afraid pls reply...
Am 29 unmarried hypothyroid and on eltroxin 50 mcg , and my b12 blood report My value is 220 Normal : 211 - 911 pg/ml Doctor prescribed this tablet , Can it be taken ? Should I after food or before food ??? It's mentioned as shell contains parabens , am afraid pls reply...
Hidden
in
Pernicious Anaemia Society
6 years ago
Lip biopsy
Has anyone had a lip biopsy to do with saliva glands etc? I was diagnosed for certain with fibromialgia but Rheumy also thinks I may have an autoimmune problem too due to my dry mouth.
Has anyone had a lip biopsy to do with saliva glands etc? I was diagnosed for certain with fibromialgia but Rheumy also thinks I may have an autoimmune problem too due to my dry mouth.
Mandypandy1969
in
Fibromyalgia Action UK
6 years ago
God is good
Hi everyone i have other question I got good news about my father. We got a call from his doctor just the other day. Said good news your father is fully up and he is fully up he responds to me doctor asks him can u please move your Left hand and he did so doctor said good move your right hand and he
Hi everyone i have other question I got good news about my father. We got a call from his doctor just the other day. Said good news your father is fully up and he is fully up he responds to me doctor asks him can u please move your Left hand and he did so doctor said good move your right hand and he
Needgodshelp
in
ICUsteps
6 years ago
Eye fatigue
Does anyone else get heavy, fatigued eyes when not mediated correctly? It’s more than just dry eye, but heavy, sore, extremely fatigued and achy eyes that sometimes make you feel headachey? When they’re really bad they actually make me feel quite unwell. I’ve trief all the drops- natural etc to no avail
Does anyone else get heavy, fatigued eyes when not mediated correctly? It’s more than just dry eye, but heavy, sore, extremely fatigued and achy eyes that sometimes make you feel headachey? When they’re really bad they actually make me feel quite unwell. I’ve trief all the drops- natural etc to no avail
Dee8686
in
Thyroid UK
6 years ago
Worried and uncertain
Hi all. As some of u may know I am expecting to miscarry soon. I am heart broken but starting to come to terms with it ish. Def lot of ok and downs. What struggling with is the not knowing when it or if it may happen naturally. No signs at mo. Going away today too and so scared it may happen on journey
Hi all. As some of u may know I am expecting to miscarry soon. I am heart broken but starting to come to terms with it ish. Def lot of ok and downs. What struggling with is the not knowing when it or if it may happen naturally. No signs at mo. Going away today too and so scared it may happen on journey
Dreamingofbaby
in
Fertility Network UK
6 years ago
Interproximal gaps in teeth..side effect of dopamine drug?
Hi, I haven't been on the site for a while because the RLS is better. However I have interproximal gaps at the top of and in-between my teeth. Does anyone know if this is a side effect ? I'm on Ropinerole, metoprolol, Xanax, Bupropion, Levothyroxine.Is it a side effect from a drug, overbite,grinding
Hi, I haven't been on the site for a while because the RLS is better. However I have interproximal gaps at the top of and in-between my teeth. Does anyone know if this is a side effect ? I'm on Ropinerole, metoprolol, Xanax, Bupropion, Levothyroxine.Is it a side effect from a drug, overbite,grinding
Tazmania1
in
Restless Legs Syndrome
6 years ago
I did it!
Having seen ep and being told to stop Nebivolol and being given 100 of Flecainide as a PIP, I immediately started having several episodes of AF at night. I was anxious about taking the Flecainide as nobody had said have the first tablet monitored. Last night AF started again and no point going to A
Having seen ep and being told to stop Nebivolol and being given 100 of Flecainide as a PIP, I immediately started having several episodes of AF at night. I was anxious about taking the Flecainide as nobody had said have the first tablet monitored. Last night AF started again and no point going to A
Hidden
in
AF Association
6 years ago
1
...
98
99
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1388 results
Fertility Network UK
357 results
PMRGCAuk
132 results
View top 10 communities
Sort by
Most Relevant
Newest