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Sjogren-Larsson syndrome
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Madopar - does anyone take it?
I was on Pergolide for 18 years. Wonderful. Cured my restless legs until they took it off the market. Now my neurosurgeon has given me Madopar which doesn’t touch the problem. Help!
I was on Pergolide for 18 years. Wonderful. Cured my restless legs until they took it off the market. Now my neurosurgeon has given me Madopar which doesn’t touch the problem. Help!
Jeverleybane
in
Restless Legs Syndrome
5 years ago
A New Thyroid Subset For Chronic Fatigue Syndrome (ME/CFS)? The Low T3 Syndrome Group by Cort Johnson www.prohealth.com
Do problems with the gas pedal of the body – the thyroid – play more of a role in ME/CFS than most doctors think? By Cort Johnson • www.ProHealth.com. March 13, 2019 I found this to be a really interesting well written article referencing other aspects of low T3. https://www.prohealth.com/library/new-thyroid-subset-chronic-fatigue-syndrome-cfs-low-t3
Do problems with the gas pedal of the body – the thyroid – play more of a role in ME/CFS than most doctors think? By Cort Johnson • www.ProHealth.com. March 13, 2019 I found this to be a really interesting well written article referencing other aspects of low T3. https://www.prohealth.com/library/new-thyroid-subset-chronic-fatigue-syndrome-cfs-low-t3
mourneadventurer
in
Thyroid UK
5 years ago
Short femur at 20 week scan
Hi everyone We had our 20-week scan today. Everything was fine except femur length which was below the 3rd centile. We were sent up to the FMU and a midwife said we will need to go back for another scan with a consultant so baby can be measured again. They’ve also taken some bloods. She said it could
Hi everyone We had our 20-week scan today. Everything was fine except femur length which was below the 3rd centile. We were sent up to the FMU and a midwife said we will need to go back for another scan with a consultant so baby can be measured again. They’ve also taken some bloods. She said it could
Star15
in
Pregnancy and Parenting Support
5 years ago
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Diagnosis and support
Hello I am diagnosed with Behcet’s Syndrome and ‘primary hyper mobility syndrome’. I have excellent care and support from a specialist centre for Behcet’s but don’t know it understand hyper mobility that well despite having the diagnosis for over 7 years. The rheumatologist who diagnosed retired after
Hello I am diagnosed with Behcet’s Syndrome and ‘primary hyper mobility syndrome’. I have excellent care and support from a specialist centre for Behcet’s but don’t know it understand hyper mobility that well despite having the diagnosis for over 7 years. The rheumatologist who diagnosed retired after
VickiOliver
in
Ehlers-Danlos Support UK
5 years ago
My 5 Documentary
I'm writing this after seeing the documentary today and felt heart sorry for John, sema and Terry, I have suffered from restless legs for about 20 years and GPs have always been clueless about the condition. My legs got so bad recently they were jumping so mentioned again about the condition to a different
I'm writing this after seeing the documentary today and felt heart sorry for John, sema and Terry, I have suffered from restless legs for about 20 years and GPs have always been clueless about the condition. My legs got so bad recently they were jumping so mentioned again about the condition to a different
Bengal5
in
Restless Legs Syndrome
5 years ago
Maraijuana / Cannabis ?
Has anybody out there tried taking CBD oil for RLS? It has had very good reviews for a whole bunch of other problems. There is a drug called Epidiolex that is prescribed for Epilepsy which is cannabis based. Also available in Holland there is CBD oil containing THC which might be more effective. Availability
Has anybody out there tried taking CBD oil for RLS? It has had very good reviews for a whole bunch of other problems. There is a drug called Epidiolex that is prescribed for Epilepsy which is cannabis based. Also available in Holland there is CBD oil containing THC which might be more effective. Availability
Barnaby97
in
Restless Legs Syndrome
5 years ago
Headache pills have caffeine.
I use excedrin for tension headache daily and at least 4 of them. They are loaded with caffeine but the ones without caffeine really don’t work. Is the caffeine a major problem here. I am going to try curcumin.
I use excedrin for tension headache daily and at least 4 of them. They are loaded with caffeine but the ones without caffeine really don’t work. Is the caffeine a major problem here. I am going to try curcumin.
Aleish
in
PMRGCAuk
5 years ago
Medication for RLS
I have suffered with restless leg syndrome for 25 years. It took the doctor to diagnose it over 6 years of suffering. I was asked if I wanted to trial a tablet called pramipexole (more common use for Parkinsons disease) now have a nights sleep through taking pramipexole with 2 co-dydramol and a low
I have suffered with restless leg syndrome for 25 years. It took the doctor to diagnose it over 6 years of suffering. I was asked if I wanted to trial a tablet called pramipexole (more common use for Parkinsons disease) now have a nights sleep through taking pramipexole with 2 co-dydramol and a low
Christine09
in
Restless Legs Syndrome
5 years ago
Restless leg syndrome
I was diagnosed with RLS when I was 20. And I've had the extreme version of it which was also in my arms and neck. I'm now 40 and do not suffer from it any more because of a tablet called subutex which is used for heroin withdrawal in addicts. I started taking them 3 years ago and am currently taking
I was diagnosed with RLS when I was 20. And I've had the extreme version of it which was also in my arms and neck. I'm now 40 and do not suffer from it any more because of a tablet called subutex which is used for heroin withdrawal in addicts. I started taking them 3 years ago and am currently taking
davidofqwerty
in
Restless Legs Syndrome
5 years ago
Article linking ME/CFS to Thyroid issues
Anyone seen this? I was particularly interested in the HHV-6 virus, which I haven't heard about before. I'm also interested in a possible link between ME/CFS as 3 of my kid's friends have it. It makes me so cross that none of them are getting any better after years! A New Thyroid Subset For Chronic
Anyone seen this? I was particularly interested in the HHV-6 virus, which I haven't heard about before. I'm also interested in a possible link between ME/CFS as 3 of my kid's friends have it. It makes me so cross that none of them are getting any better after years! A New Thyroid Subset For Chronic
Winegum2
in
Thyroid UK
5 years ago
Go programme
Several people have mentioned the programme which touched on RLS. I Have just watched on catch up Ms was quite shocked. The gp had to look up RLS then immediately put the patient on Gapapentin but the poor patient had just been taken off dihydrocodeine and another heavy painkiller. I don't think she
Several people have mentioned the programme which touched on RLS. I Have just watched on catch up Ms was quite shocked. The gp had to look up RLS then immediately put the patient on Gapapentin but the poor patient had just been taken off dihydrocodeine and another heavy painkiller. I don't think she
Daisy2408
in
Restless Legs Syndrome
5 years ago
Living Hell and Hopeless
My husband now 79 is a the edge of not wanting to live anymore. His RLS is 30 years plus old, for years just after falling asleep for about 30 minutes and a slight twinge every minute that did not wake him. I use to count between the twitches which always found my leg like it was seeking something
My husband now 79 is a the edge of not wanting to live anymore. His RLS is 30 years plus old, for years just after falling asleep for about 30 minutes and a slight twinge every minute that did not wake him. I use to count between the twitches which always found my leg like it was seeking something
TinkandBobby
in
Restless Legs Syndrome
5 years ago
Lactulose
Anyone taking Lactulose for constipation? I was prescribed it after not having a bowel movement for 10 days and no relief. Now today I called my dr. and they doubled the dose for me to take. If I don't go by tommorow I have to go in and have them take exrays. This is so embarresing especially if they
Anyone taking Lactulose for constipation? I was prescribed it after not having a bowel movement for 10 days and no relief. Now today I called my dr. and they doubled the dose for me to take. If I don't go by tommorow I have to go in and have them take exrays. This is so embarresing especially if they
lauriefontaine67
in
British Liver Trust
5 years ago
PMR/GCA 'STRESSES' AND THE COMPLEX 'REALITIES' OF OUR OWN WORLDS
There has been plenty of discussion on HU lately about what is or is not 'appropriate' in terms of what we might post here. I have always been described as 'opinionated' and have never had a problem with that as I think it is fine to express a point of view - but generally I have most respect for those
There has been plenty of discussion on HU lately about what is or is not 'appropriate' in terms of what we might post here. I have always been described as 'opinionated' and have never had a problem with that as I think it is fine to express a point of view - but generally I have most respect for those
Rimmy
in
PMRGCAuk
5 years ago
How I cope now with RLS
Hi I have suffered with RLS since I was 11 years old I have it in my legs arms and back! Only my feet and hands are free from the suffering, as a child I was often told by the doctor it was growing pains eventually 30 the doctor diagnosed RLS! There is no one in my family past or present who suffer
Hi I have suffered with RLS since I was 11 years old I have it in my legs arms and back! Only my feet and hands are free from the suffering, as a child I was often told by the doctor it was growing pains eventually 30 the doctor diagnosed RLS! There is no one in my family past or present who suffer
Silax20110
in
Restless Legs Syndrome
5 years ago
Methadone treatment?
Have any one of you folks been able to try Methadone as a treatment for your RLS? I am currently on morphine and requip with limited success. I see it is successful for some but my doctors won't prescribe it unless they decide I am a full blown addict which I am not. Sure would like to get a break
Have any one of you folks been able to try Methadone as a treatment for your RLS? I am currently on morphine and requip with limited success. I see it is successful for some but my doctors won't prescribe it unless they decide I am a full blown addict which I am not. Sure would like to get a break
Merster
in
Restless Legs Syndrome
5 years ago
End of ropinerole
Just thought I would mention this see a copy of the article below On Dec. 19 the U.S. Food and Drug Administration announced the forthcoming discontinuation of all dosage strengths of ropinirole hydrochloride (Requip) tablets as well as the 2-mg extended release (Requip XL) tablets. The anticipated final
Just thought I would mention this see a copy of the article below On Dec. 19 the U.S. Food and Drug Administration announced the forthcoming discontinuation of all dosage strengths of ropinirole hydrochloride (Requip) tablets as well as the 2-mg extended release (Requip XL) tablets. The anticipated final
Tscrutton
in
Restless Legs Syndrome
5 years ago
Cannabis research.
This is the main conclusion from a recent meta study on medicinal cannabis. This has been a recurring question on this forum. "Despite the conventional wisdom, both in the popular press and much of the scientific community that only CBD has medical benefits while THC merely makes one high, our results
This is the main conclusion from a recent meta study on medicinal cannabis. This has been a recurring question on this forum. "Despite the conventional wisdom, both in the popular press and much of the scientific community that only CBD has medical benefits while THC merely makes one high, our results
Madlegs1
in
Restless Legs Syndrome
5 years ago
Where to get help on diagnosing EDs.
Hi, Where can I go to get genetic testing done for Ehlers Danlos. I live in East Sussex in the UK. I am in my 50s but my 2 adult daughters have so many symptoms of EDs and one in particular is suffering severely with pain. Her g.p. has no interest and just tells her its in her head. She did see a Dr
Hi, Where can I go to get genetic testing done for Ehlers Danlos. I live in East Sussex in the UK. I am in my 50s but my 2 adult daughters have so many symptoms of EDs and one in particular is suffering severely with pain. Her g.p. has no interest and just tells her its in her head. She did see a Dr
honeybea22
in
Ehlers-Danlos Support UK
5 years ago
Found My Cure for RLS and Severe Night Cramps
Had a pre-op blood panel taken before having my pacemaker replaced. It showed potassium and magnesium deficiencies. Changed my diuretic to a potassium preserving type, increased my intake of potassium and magnesium rich foods, started taking magnesium glycinate supplements (not the kind that act as
Had a pre-op blood panel taken before having my pacemaker replaced. It showed potassium and magnesium deficiencies. Changed my diuretic to a potassium preserving type, increased my intake of potassium and magnesium rich foods, started taking magnesium glycinate supplements (not the kind that act as
mam6818
in
Restless Legs Syndrome
5 years ago
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