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Sialic acid storage disorders
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Awful day
So yesterday was the worst day I’ve had in a long time. I’ve been bleeding almost constantly since February. I’ve been on zoladex and now Prostap for 18 months. No improvement, in fact seems worse on Prostap. I get the letter no one wants, your smear test is due. Oh great can’t do that in my state. But
So yesterday was the worst day I’ve had in a long time. I’ve been bleeding almost constantly since February. I’ve been on zoladex and now Prostap for 18 months. No improvement, in fact seems worse on Prostap. I get the letter no one wants, your smear test is due. Oh great can’t do that in my state. But
MrsPaddingtonBear
in
Endometriosis UK
1 year ago
Help with latest Blood Test
Hello, I’m hoping someone can give some advice on latest blood test please. I am on 100mgs Levothyroxine. I did trial T3 but didn’t notice much difference by taking T3really. Im not sure if this is because I wasn’t on a high enough dose of L4 at the start of trialing it. I have taken the D1o2 test
Hello, I’m hoping someone can give some advice on latest blood test please. I am on 100mgs Levothyroxine. I did trial T3 but didn’t notice much difference by taking T3really. Im not sure if this is because I wasn’t on a high enough dose of L4 at the start of trialing it. I have taken the D1o2 test
Bright-eyes
in
Thyroid UK
4 months ago
B12 made symptoms go away
Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and tremor feeling inside me. I took B12 sublingual for 2 or 3 weeks and the symptoms subsided. But then I stopped taking the B12 supplements and I have
Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and tremor feeling inside me. I took B12 sublingual for 2 or 3 weeks and the symptoms subsided. But then I stopped taking the B12 supplements and I have
MEguy
in
Pernicious Anaemia Society
10 months ago
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Red Light Therapy
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
Defiance
in
Cure Parkinson's
10 months ago
Any experiences of Lamotrigine for bipolar 2 depression?
I'm a 64 year old woman and got a diagnosis of bipolar 2 a couple of years ago. I haven't been on any meds until now, but am finally taking the plunge as the prolonged severe depressive episodes have made life untenable. I'm looking at options for meds and Lamotrigine seems to get good reviews for prevention
I'm a 64 year old woman and got a diagnosis of bipolar 2 a couple of years ago. I haven't been on any meds until now, but am finally taking the plunge as the prolonged severe depressive episodes have made life untenable. I'm looking at options for meds and Lamotrigine seems to get good reviews for prevention
bluebird59
in
Anxiety and Depression Support
9 months ago
Where do I go from here?
I've struggled with anxiety and panic attacks and depression since I was 4 years old. I thought I was doing better and then this week I started having unprovoked panic attacks again. I lost my ability to speak for 24 hours. It was terrifying. Should I look into IOP or PHP? Is outpatient just not enough
I've struggled with anxiety and panic attacks and depression since I was 4 years old. I thought I was doing better and then this week I started having unprovoked panic attacks again. I lost my ability to speak for 24 hours. It was terrifying. Should I look into IOP or PHP? Is outpatient just not enough
ChaoticEmu
in
Anxiety and Depression Support
6 months ago
Risedronate Update
Having had a long break after stopping Alendronic Acid, I started Risedronate on 2nd June 23. For the first few weeks I was fine. No noticeable side effects. (After the terrible time with AA you can appreciate I was overjoyed.) However about 3 weeks ago the same symptoms started creeping back.
Having had a long break after stopping Alendronic Acid, I started Risedronate on 2nd June 23. For the first few weeks I was fine. No noticeable side effects. (After the terrible time with AA you can appreciate I was overjoyed.) However about 3 weeks ago the same symptoms started creeping back.
Calamintha
in
Bone Health and Osteoporosis UK
1 year ago
Morning check in
Well the melatonin was a little bit of help bur still woke up every 2 hours ... talk to anxiety support contacted my doctor about using prescription sleep aid. He's starting me on trazadonne 50 MG..will take before bedtime any suggestions... also gonna get word search fill in books to help during
Well the melatonin was a little bit of help bur still woke up every 2 hours ... talk to anxiety support contacted my doctor about using prescription sleep aid. He's starting me on trazadonne 50 MG..will take before bedtime any suggestions... also gonna get word search fill in books to help during
jojo15210
in
Anxiety and Depression Support
8 months ago
Obeticholic Acid..weight gain
Has anyone noticed weight gain or not being able to lose weight since taking Ocaliva (Obeticholic Acid) please?
Has anyone noticed weight gain or not being able to lose weight since taking Ocaliva (Obeticholic Acid) please?
Oludeniz2017
in
British Liver Trust
1 year ago
40 years of RLS
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
Trish8433
in
Restless Legs Syndrome
10 months ago
update
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Hidden
in
Restless Legs Syndrome
10 months ago
Endometriosis changed my understanding
I was diagnosed with bowel endometriosis and two months I couldn't stand up and walk from pain. I had two surgeries for endometriosis and cysts removal in the past.I changed all my diet.I eat only turkey chicken and fresh fish and i mix fresh parsley basil and dill and I pure 1/4 of lactose free cream
I was diagnosed with bowel endometriosis and two months I couldn't stand up and walk from pain. I had two surgeries for endometriosis and cysts removal in the past.I changed all my diet.I eat only turkey chicken and fresh fish and i mix fresh parsley basil and dill and I pure 1/4 of lactose free cream
Alteja2009
in
Endometriosis UK
4 months ago
So many supplements!
I take so many supplements now that sometimes i feel like i'm going to rattle! 😂 I keep adding more and more so i wanted to check that i'm not messing up with timings and supplements taken together. The timings of the ones i take during the day are because of my breaks at work, so i tend to try and
I take so many supplements now that sometimes i feel like i'm going to rattle! 😂 I keep adding more and more so i wanted to check that i'm not messing up with timings and supplements taken together. The timings of the ones i take during the day are because of my breaks at work, so i tend to try and
catpurple7
in
Thyroid UK
4 months ago
High Dose CL ?
I am often puzzled by the high dose her neurologist/ movement specialist has her taking. I have not found anyone taking this high of dose: 8am: 25/100 CL x 3 11am: 25/100 CL x3 2pm: 25/100 CL x3 5pm: 25/100 CL x3 8pm: 25/100 CL x3 11pm: 25/100 CL x 1 but then a Rytary along with 3mg Melatonin.
I am often puzzled by the high dose her neurologist/ movement specialist has her taking. I have not found anyone taking this high of dose: 8am: 25/100 CL x 3 11am: 25/100 CL x3 2pm: 25/100 CL x3 5pm: 25/100 CL x3 8pm: 25/100 CL x3 11pm: 25/100 CL x 1 but then a Rytary along with 3mg Melatonin.
Furch
in
Cure Parkinson's
10 months ago
Night sweats etc.
I am tapering down from 30mg pred since April 2022 and I am now down to 3mg (4mg alternate days). I am finding I am having a lot of night sweats. Has anyone found else had this problem and if so how long it lasts for? I have to add that I have recently been diagnosed with osteoporosis, and didn't know
I am tapering down from 30mg pred since April 2022 and I am now down to 3mg (4mg alternate days). I am finding I am having a lot of night sweats. Has anyone found else had this problem and if so how long it lasts for? I have to add that I have recently been diagnosed with osteoporosis, and didn't know
Washingup
in
PMRGCAuk
1 year ago
Vitamins for cognition
Hello, my adult son has cognitive/short term memory difficulties following a TBI. He takes omega 3, B12, vitamin D and magnesium supplements and it's difficult to know if they are helping or not. I wondered if any of you could advise which supplements have been helpful to you. Lions mane and ashwaganda
Hello, my adult son has cognitive/short term memory difficulties following a TBI. He takes omega 3, B12, vitamin D and magnesium supplements and it's difficult to know if they are helping or not. I wondered if any of you could advise which supplements have been helpful to you. Lions mane and ashwaganda
Loveblue123
in
Headway
4 months ago
Do you have testicular pain after drinking coffee? What is the reason?
Have you ever had this experience? Tell you my opinion. Possible reasons include: 1. Caffeine allergy or allergic reaction: Some people may be allergic to caffeine, which can lead to uncomfortable symptoms, including testicular pain. 2. Urinary system issues: Caffeine is a diuretic that may lead to
Have you ever had this experience? Tell you my opinion. Possible reasons include: 1. Caffeine allergy or allergic reaction: Some people may be allergic to caffeine, which can lead to uncomfortable symptoms, including testicular pain. 2. Urinary system issues: Caffeine is a diuretic that may lead to
Henry0831
in
Pain Concern
10 months ago
K2 supplement
Having read on this forum that calcium/D3 is best supplemented with K2 to aid absorption, I've been taking it with my (prescribed) iCal D3 chewable tablets for some years. I had breast cancer in 2016 and was prescribed Letrozole, and as I had radiotherapy too, advised to take iCal and Alendronic Acid
Having read on this forum that calcium/D3 is best supplemented with K2 to aid absorption, I've been taking it with my (prescribed) iCal D3 chewable tablets for some years. I had breast cancer in 2016 and was prescribed Letrozole, and as I had radiotherapy too, advised to take iCal and Alendronic Acid
jools56
in
Bone Health and Osteoporosis UK
1 year ago
suicidal ideation TW
Trigger warning suicidal thoughts due to medication, I think. Hello, I have a very long list of mental health problems including pme and being on bipolar spectrum. I have recently had to change to aripiprazole from risperidone because Ris was affecting my health. Aripiprazole has been a whirlwind
Trigger warning suicidal thoughts due to medication, I think. Hello, I have a very long list of mental health problems including pme and being on bipolar spectrum. I have recently had to change to aripiprazole from risperidone because Ris was affecting my health. Aripiprazole has been a whirlwind
Isabella5991
in
Action on Postpartum Psychosis
9 months ago
Test result help (please)
Ask
Please can I get a view from experienced users of what I should be suggesting to my endo consultant the next time I see him. He is very open to what I have to say but I am currently feeling a bit lost as to what to do. My main problem at this stage is my weight. I have put on 2 stone in
Ask
Please can I get a view from experienced users of what I should be suggesting to my endo consultant the next time I see him. He is very open to what I have to say but I am currently feeling a bit lost as to what to do. My main problem at this stage is my weight. I have put on 2 stone in
flohal
in
Thyroid UK
4 months ago
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