Search
Search
About
Log in
Join
Experiences with
Sialic acid storage disorders
Posts
Communities
15,911 public posts
Filter results
Alendronic Acid
It has been recommended that I take Alendronic Acid to protect my bones whilst taking Prednisone as I now have Osteoporosis. To be honest given the potential horrendous side effects of Alendronic Acid which on top of those of taking Prednisone and of course the impact of having GCA I am reluctant to
It has been recommended that I take Alendronic Acid to protect my bones whilst taking Prednisone as I now have Osteoporosis. To be honest given the potential horrendous side effects of Alendronic Acid which on top of those of taking Prednisone and of course the impact of having GCA I am reluctant to
Stellazero
in
PMRGCAuk
1 year ago
fatigue
i have been taking Firmagon for 3 months Since I started am Lucky i have no more pain or very little. My only problem is fatigue . I am supposed to start next week on Apalutamide. I am wondering it is a good combination . Also if my fatigue will get worse . Does anyone knows Thank you
i have been taking Firmagon for 3 months Since I started am Lucky i have no more pain or very little. My only problem is fatigue . I am supposed to start next week on Apalutamide. I am wondering it is a good combination . Also if my fatigue will get worse . Does anyone knows Thank you
Raminagrobis
in
Advanced Prostate Cancer
10 months ago
PCOS HASHIMOTOS FBC RESULTS ADVICE NEEDED
Hello,I'm a 26 years old woman with two young children aged 2 and 3. I've had Hashitmotos disease since 2017 and suffered from postpartum thyroiditis after both pregnancys. I also suffer eith PCOS for over 10 years. I've recently come off the contraceptive pill (progesterone only) I was only on it
Hello,I'm a 26 years old woman with two young children aged 2 and 3. I've had Hashitmotos disease since 2017 and suffered from postpartum thyroiditis after both pregnancys. I also suffer eith PCOS for over 10 years. I've recently come off the contraceptive pill (progesterone only) I was only on it
Serendipity97
in
PCOS UK (Verity)
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Help and advice needed (PCOS, hashimotos, blood results)
Hello,I'm a 26 years old woman with two young children aged 2 and 3. I've had Hashitmotos disease since 2017 and suffered from postpartum thyroiditis after both pregnancys. I also suffer eith PCOS for over 10 years. I've recently come off the contraceptive pill (progesterone only) I was only on it
Hello,I'm a 26 years old woman with two young children aged 2 and 3. I've had Hashitmotos disease since 2017 and suffered from postpartum thyroiditis after both pregnancys. I also suffer eith PCOS for over 10 years. I've recently come off the contraceptive pill (progesterone only) I was only on it
Serendipity97
in
Thyroid UK
4 months ago
Update- I no longer take Dipyridamole
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
WideBody
in
Restless Legs Syndrome
10 months ago
A Miracle
Hi Everyone, It's been a while and I pray that everyone is one step closer to healing. I'm back to share good news and hopefully offer a glimpse of hope to others. My husband has recovered from PMR! This community was so helpful, encouraging and supportive that I had to come back and share. Moreover
Hi Everyone, It's been a while and I pray that everyone is one step closer to healing. I'm back to share good news and hopefully offer a glimpse of hope to others. My husband has recovered from PMR! This community was so helpful, encouraging and supportive that I had to come back and share. Moreover
Popsca
in
PMRGCAuk
4 months ago
Latest blood test
I am currently on 112.5mcg levothyroxine and i take B complex, evening primrose oil, Three arrows iron, Vitamin C, Vitamin D3+K2, Magnesium, Omega 3, B12 spray once a week when i remember! My last bloodtest was in November and i should of had a re test in january but i had food poisoning so i cancelled
I am currently on 112.5mcg levothyroxine and i take B complex, evening primrose oil, Three arrows iron, Vitamin C, Vitamin D3+K2, Magnesium, Omega 3, B12 spray once a week when i remember! My last bloodtest was in November and i should of had a re test in january but i had food poisoning so i cancelled
catpurple7
in
Thyroid UK
4 months ago
What AI Says About Supplements and Off-Label Drug Use Regarding Prostate Cancer
Sure wish I had this tool over 2 years ago when I started reading up although you can't 100% trust the answers. The tools are getting smarter. I'm a software developer and have early access to Google's Gemini Pro 1.5 AI model that was relased Feb 15 2024 claiming to have better 'scores' than all the
Sure wish I had this tool over 2 years ago when I started reading up although you can't 100% trust the answers. The tools are getting smarter. I'm a software developer and have early access to Google's Gemini Pro 1.5 AI model that was relased Feb 15 2024 claiming to have better 'scores' than all the
jazj
in
Advanced Prostate Cancer
4 months ago
Lab results help & talking to doctor about med changes
I talked to my doctor before my lab work about possibly changing the dosage of my levothyroxine or even adding T3 because I still don't think I am optimal. She gave me a " we will see" response and said she doesn't want to mess with it too much because adding one thing can make something else wonky.
I talked to my doctor before my lab work about possibly changing the dosage of my levothyroxine or even adding T3 because I still don't think I am optimal. She gave me a " we will see" response and said she doesn't want to mess with it too much because adding one thing can make something else wonky.
spookyscaryskeletons
in
Thyroid UK
1 year ago
changed to aripiprazole
Hello ladies I hope you’re ok. I have recently changed from risperidone to aripiprazole and I have sooo much more energy. It’s made me realised how sedated I’ve been for three years on risperidone. I realise energy or aka thesis is a symptom of changed antipsychotics. I haven’t been able to sit still
Hello ladies I hope you’re ok. I have recently changed from risperidone to aripiprazole and I have sooo much more energy. It’s made me realised how sedated I’ve been for three years on risperidone. I realise energy or aka thesis is a symptom of changed antipsychotics. I haven’t been able to sit still
Isabella5991
in
Action on Postpartum Psychosis
9 months ago
Mirapex for depression
My mom is currently taking .250 mg of Mirapex once at night and once in the morning. Taking in the morning because it helps with anxiety to for her. Wanting to go up to .250 at night and keep .125 during the day. She seems to be building tolerance and not helping as much as initially did at the beginning
My mom is currently taking .250 mg of Mirapex once at night and once in the morning. Taking in the morning because it helps with anxiety to for her. Wanting to go up to .250 at night and keep .125 during the day. She seems to be building tolerance and not helping as much as initially did at the beginning
84withb12d
in
Anxiety Support
10 months ago
Curious
Hi wondering if anyone has had groin discomfort in their CLL journey, l have for a couple of weeks on and off,l do gardening when fatigue allows me too so could be a strain,thanks all.
Hi wondering if anyone has had groin discomfort in their CLL journey, l have for a couple of weeks on and off,l do gardening when fatigue allows me too so could be a strain,thanks all.
sun_flower
in
CLL Support
10 months ago
To Big Tow Arthritis
I have mild arthritis in my foot. I use Wiley's Wild Alaskan Fish oil 2300 MG, half a teaspoon daily and have no foot pain. If I forget it for a few days the pain returns. It's good for the heart and brain as high Omega 3. Apparently its stronger than other fish oils. Hope it helps.
I have mild arthritis in my foot. I use Wiley's Wild Alaskan Fish oil 2300 MG, half a teaspoon daily and have no foot pain. If I forget it for a few days the pain returns. It's good for the heart and brain as high Omega 3. Apparently its stronger than other fish oils. Hope it helps.
FyMyArt
in
Pain Concern
4 months ago
alpha-lipoic acid
hi all, can you take alpha-lipoic acid at anytime of the day away from thyroid meds? I’ve got burning mouth syndrome/metallic taste in my mouth and read the above can help (with vitamin c and L Lysine) but it can interfere with thyroid meds? Many thanks 🙏🏼
hi all, can you take alpha-lipoic acid at anytime of the day away from thyroid meds? I’ve got burning mouth syndrome/metallic taste in my mouth and read the above can help (with vitamin c and L Lysine) but it can interfere with thyroid meds? Many thanks 🙏🏼
Thyroid_mum
in
Thyroid UK
1 year ago
To see a neurologist or aps dr at lupus centre?
I have had a problem with a movement disorder for a few yrs now. I seen a local neurologist who don't think my movement disorder could be related to aps, why i don't know as it's a symptom of aps albeit rare I do know that. He has certainly never come across a person with aps and movement disorder. What
I have had a problem with a movement disorder for a few yrs now. I seen a local neurologist who don't think my movement disorder could be related to aps, why i don't know as it's a symptom of aps albeit rare I do know that. He has certainly never come across a person with aps and movement disorder. What
Charts
in
Hughes Syndrome APS Forum
10 months ago
Hello To You All
My husband and I continue to eat low carb, about 4 years now. Any one else continuing? Rather disappointing that low carb doesn't have a higher profile in many countries. Any idea why? My husband has also been looking into the omega 3 omega 6 ratio in our foods and the absolute intake of omega 6.
My husband and I continue to eat low carb, about 4 years now. Any one else continuing? Rather disappointing that low carb doesn't have a higher profile in many countries. Any idea why? My husband has also been looking into the omega 3 omega 6 ratio in our foods and the absolute intake of omega 6.
over61andstilltrying
in
Low-Carb High-Fat (LCHF)
4 months ago
osteoporosis and spinal fractures
Hello, I have been a member on health unlocked forums for many years due to other health conditions. I joined this bone health forum last year 2022, following three fractures out of the blue. (The first whilst cleaning my teeth and coughing) this was last February 14, happy Valentine’s Day lol 😂
Hello, I have been a member on health unlocked forums for many years due to other health conditions. I joined this bone health forum last year 2022, following three fractures out of the blue. (The first whilst cleaning my teeth and coughing) this was last February 14, happy Valentine’s Day lol 😂
jessielou
in
Bone Health and Osteoporosis UK
1 year ago
Pregnancy Multi Vits
Hello Just wondered if people could let me know what vitamins they took during their pregnancy. I am currently taking the below but wondering if I need to switch or add in anything additional - I haven’t taken a multi vit as wanted specific levels of certain things; Bare biology omega 3 with DHA,
Hello Just wondered if people could let me know what vitamins they took during their pregnancy. I am currently taking the below but wondering if I need to switch or add in anything additional - I haven’t taken a multi vit as wanted specific levels of certain things; Bare biology omega 3 with DHA,
Kate-92
in
Fertility Network UK - Pregnancy Support
4 months ago
Just looking for help like most of you.
I have been lurking here and on other sites, hoping to find some path to reduce or eliminate if possible my PLMD. I think I have had it for many years, but was officially diagnosed with it during an in lab sleep study I had recently. They found mild sleep apnea which is now well controlled with CPAP
I have been lurking here and on other sites, hoping to find some path to reduce or eliminate if possible my PLMD. I think I have had it for many years, but was officially diagnosed with it during an in lab sleep study I had recently. They found mild sleep apnea which is now well controlled with CPAP
stteb
in
Restless Legs Syndrome
10 months ago
Tiny Levo increase but FT4 well over range
Just got results back from MMH. I’ll add historical results for comparison but they may be irrelevant as I am where I am! I take Levo only. Ranges were 3.1-6 for FT3 and 12-22 for all tests. 2021 on 100mcg TSH 0.01 FT4 24.9=129% (12-22) FT3 6.5=91.89% (3.1-6.8) Note: insomnia much improved
Just got results back from MMH. I’ll add historical results for comparison but they may be irrelevant as I am where I am! I take Levo only. Ranges were 3.1-6 for FT3 and 12-22 for all tests. 2021 on 100mcg TSH 0.01 FT4 24.9=129% (12-22) FT3 6.5=91.89% (3.1-6.8) Note: insomnia much improved
Bearo
in
Thyroid UK
4 months ago
1
...
31
32
33
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Anxiety and Depression Support
3596 results
Anxiety Support
2542 results
Thyroid UK
779 results
View top 10 communities
Sort by
Most Relevant
Newest