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Sialic acid storage disorders
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Ursodeoxycholic Acid (UDCA)
Anyone on here involved with the trial of Urso, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Anyone on here involved with the trial of Urso, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Furch
in
Cure Parkinson's
7 months ago
ADAA Personal Story: The Ebbs and Flows of My Mental Health Disorders
"The mental illnesses I have experienced in my life run the gamut from anxiety, panic disorder, depression, psychosis, possibly paranoid schizophrenia and/or bipolar depression to ADHD, and while some were officially diagnosed and others not, I lived through them. I cannot begin to cover the different
"The mental illnesses I have experienced in my life run the gamut from anxiety, panic disorder, depression, psychosis, possibly paranoid schizophrenia and/or bipolar depression to ADHD, and while some were officially diagnosed and others not, I lived through them. I cannot begin to cover the different
ADAATeamRachel
Partner
in
Anxiety and Depression Support
7 months ago
update
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Hidden
in
Restless Legs Syndrome
9 months ago
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High Dose CL ?
I am often puzzled by the high dose her neurologist/ movement specialist has her taking. I have not found anyone taking this high of dose: 8am: 25/100 CL x 3 11am: 25/100 CL x3 2pm: 25/100 CL x3 5pm: 25/100 CL x3 8pm: 25/100 CL x3 11pm: 25/100 CL x 1 but then a Rytary along with 3mg Melatonin.
I am often puzzled by the high dose her neurologist/ movement specialist has her taking. I have not found anyone taking this high of dose: 8am: 25/100 CL x 3 11am: 25/100 CL x3 2pm: 25/100 CL x3 5pm: 25/100 CL x3 8pm: 25/100 CL x3 11pm: 25/100 CL x 1 but then a Rytary along with 3mg Melatonin.
Furch
in
Cure Parkinson's
9 months ago
UPDATE: Finally, some progress with the back (only took 3 months). Now Week 6 on the bed.
Ater my 11 trips to ER (in Halifax), I got Dr. Das, who at this point, is my hero. He diagnosed 2 fragility fractures at L1, L2 and disc buldges at L4, L5, S1 from a CT scan of July 6th which no one had read. After calling Rheumatolgy Nursing Line on Monday last, for the first time ever, they returned
Ater my 11 trips to ER (in Halifax), I got Dr. Das, who at this point, is my hero. He diagnosed 2 fragility fractures at L1, L2 and disc buldges at L4, L5, S1 from a CT scan of July 6th which no one had read. After calling Rheumatolgy Nursing Line on Monday last, for the first time ever, they returned
Missus835
in
PMRGCAuk
11 months ago
Anxiety
Living with this condition is so hard. I struggle to find the good in any day, and it makes me loathe everything around me. I take good things and make them bad, and always think I’ve done something wrong. I check the stove top to make sure it’s off at least three times every morning to make sure
Living with this condition is so hard. I struggle to find the good in any day, and it makes me loathe everything around me. I take good things and make them bad, and always think I’ve done something wrong. I check the stove top to make sure it’s off at least three times every morning to make sure
cheerleadercoach
in
Anxiety Support
7 months ago
Do you have testicular pain after drinking coffee? What is the reason?
Have you ever had this experience? Tell you my opinion. Possible reasons include: 1. Caffeine allergy or allergic reaction: Some people may be allergic to caffeine, which can lead to uncomfortable symptoms, including testicular pain. 2. Urinary system issues: Caffeine is a diuretic that may lead to
Have you ever had this experience? Tell you my opinion. Possible reasons include: 1. Caffeine allergy or allergic reaction: Some people may be allergic to caffeine, which can lead to uncomfortable symptoms, including testicular pain. 2. Urinary system issues: Caffeine is a diuretic that may lead to
Henry0831
in
Pain Concern
9 months ago
My ADHD and BiPolar
i had this sent i was a kids. i struggling with it forever trying to find way to cope with them in different ways like taking walk ,hitting the punching bag ,talk to people , listening to headspace. any other help you can give me
i had this sent i was a kids. i struggling with it forever trying to find way to cope with them in different ways like taking walk ,hitting the punching bag ,talk to people , listening to headspace. any other help you can give me
RamieEaton22
in
Anxiety and Depression Support
7 months ago
Dexa scan results meaning
Hi Everyone I have finally managed to get a copy of the results of the above which I had done early March. I asked for the scan because I was automatically put on Alendronic acid at the same time as Pred although I had no likelyhood of osteoporosis. It wasn’t until I joined this site I realised the
Hi Everyone I have finally managed to get a copy of the results of the above which I had done early March. I asked for the scan because I was automatically put on Alendronic acid at the same time as Pred although I had no likelyhood of osteoporosis. It wasn’t until I joined this site I realised the
MrsPractical
in
PMRGCAuk
11 months ago
What is the difference in Cartizem verses Metopropol for tachy and afib?
I just stopped all cardizem a month ago, Dr. agreed . I got 115 beats per. minuts yesterday at 4:00pm, got scared as I am alone, and did NOT want to to hospital ER.. Kardi mobile said it was Tachycardia. I was to frightened to go through the night like that and I took A Cardizem 180 24 HR ER. took
I just stopped all cardizem a month ago, Dr. agreed . I got 115 beats per. minuts yesterday at 4:00pm, got scared as I am alone, and did NOT want to to hospital ER.. Kardi mobile said it was Tachycardia. I was to frightened to go through the night like that and I took A Cardizem 180 24 HR ER. took
scardycat
in
Arrhythmia Alliance
9 months ago
update on rls treatment
Gp has put me on 20mg Norspan patches and I am having acupunture and reflexology as well. Shumbah has suggested applying the sesame oil on troublesome leg....I have started that and will keep you informed....I have only been doing it for a week, but I think it is having some effect. The tugging, pulling
Gp has put me on 20mg Norspan patches and I am having acupunture and reflexology as well. Shumbah has suggested applying the sesame oil on troublesome leg....I have started that and will keep you informed....I have only been doing it for a week, but I think it is having some effect. The tugging, pulling
Hidden
in
Restless Legs Syndrome
9 months ago
Update on getting Cialis re https://healthunlocked.com/advanced-prostate-cancer/posts/149573740/wife-seeking-input-regarding-rt
Thank you all! My husband now has tadalafil. I sent his Uro the research provided by Tall_Allen and others (also gave RO the same). He prescribed 5mg tadalafil. Seems nothing is easy anymore. Safeway was back-ordered on 5mg until late July, however, they had 10mg. Back to Uro for prescription for 10mg
Thank you all! My husband now has tadalafil. I sent his Uro the research provided by Tall_Allen and others (also gave RO the same). He prescribed 5mg tadalafil. Seems nothing is easy anymore. Safeway was back-ordered on 5mg until late July, however, they had 10mg. Back to Uro for prescription for 10mg
Mtnhigh
in
Advanced Prostate Cancer
1 year ago
Osteoporosis meds
I've been taking a weekly Alendronic acid tablet plus daily calcium and vit D with no affect on my RLS.
I've been taking a weekly Alendronic acid tablet plus daily calcium and vit D with no affect on my RLS.
Allyp69
in
Restless Legs Syndrome
11 months ago
Any experiences of Lamotrigine for bipolar 2 depression?
I'm a 64 year old woman and got a diagnosis of bipolar 2 a couple of years ago. I haven't been on any meds until now, but am finally taking the plunge as the prolonged severe depressive episodes have made life untenable. I'm looking at options for meds and Lamotrigine seems to get good reviews for prevention
I'm a 64 year old woman and got a diagnosis of bipolar 2 a couple of years ago. I haven't been on any meds until now, but am finally taking the plunge as the prolonged severe depressive episodes have made life untenable. I'm looking at options for meds and Lamotrigine seems to get good reviews for prevention
bluebird59
in
Anxiety and Depression Support
7 months ago
I need help!
I suffered from ADHD and bipolar type 2,I have been change on mine medication several times due to side affect and some of the medication is not working for me anymore and make mine depression worsen;especially I am taking Zoloft right now and I can't control my mood and my sleep pattern.🫣, I need an
I suffered from ADHD and bipolar type 2,I have been change on mine medication several times due to side affect and some of the medication is not working for me anymore and make mine depression worsen;especially I am taking Zoloft right now and I can't control my mood and my sleep pattern.🫣, I need an
bluesky85
in
Anxiety and Depression Support
3 months ago
Sharing Info : Thorne Gut Test
Please note : This is not an endorsement. Wanted to share with everyone. Hope it helps you. ( Also, I am not a doctor and should not be considered and medical advice Given the recent news that there is high probability that PD starts in the gut and travels to the brain (Alpha Synuclein found
Please note : This is not an endorsement. Wanted to share with everyone. Hope it helps you. ( Also, I am not a doctor and should not be considered and medical advice Given the recent news that there is high probability that PD starts in the gut and travels to the brain (Alpha Synuclein found
John_morris71
in
Cure Parkinson's
9 months ago
Bunion operation
Hi, I am having a bunion operation and hammer toe correction next week (minimal invasive surgery). I'm currently on 3.75mg prednisone. Should I follow sick day rules, maybe increase to 5mg, or first discuss with surgeon and anaesthetist? Thank for this very helpful forum.
Hi, I am having a bunion operation and hammer toe correction next week (minimal invasive surgery). I'm currently on 3.75mg prednisone. Should I follow sick day rules, maybe increase to 5mg, or first discuss with surgeon and anaesthetist? Thank for this very helpful forum.
Nolsie
in
PMRGCAuk
9 months ago
No more spaghetti or jelly legs!
I recently posted a question just prior to my neurology visit about my gate being off and got some really good answers however after visiting my neurologist I was put on a medication called ampyra. You have to get it from a specialty pharmacy and my copay is 47$ a month but it is ms specific. It takes
I recently posted a question just prior to my neurology visit about my gate being off and got some really good answers however after visiting my neurologist I was put on a medication called ampyra. You have to get it from a specialty pharmacy and my copay is 47$ a month but it is ms specific. It takes
Mark1499
in
My MSAA Community
9 months ago
Morning check in
Well the melatonin was a little bit of help bur still woke up every 2 hours ... talk to anxiety support contacted my doctor about using prescription sleep aid. He's starting me on trazadonne 50 MG..will take before bedtime any suggestions... also gonna get word search fill in books to help during
Well the melatonin was a little bit of help bur still woke up every 2 hours ... talk to anxiety support contacted my doctor about using prescription sleep aid. He's starting me on trazadonne 50 MG..will take before bedtime any suggestions... also gonna get word search fill in books to help during
jojo15210
in
Anxiety and Depression Support
6 months ago
Upcoming cataract surgery
Hello, I am so grateful for this group and the information and advice I have gotten here. I hope someone can help me with this: I am having cataract surgery next week and wonder if any of the medications on this list, which they MAY use, would have an adverse effect on my RLS: ofloxacin (antibiotic
Hello, I am so grateful for this group and the information and advice I have gotten here. I hope someone can help me with this: I am having cataract surgery next week and wonder if any of the medications on this list, which they MAY use, would have an adverse effect on my RLS: ofloxacin (antibiotic
MountainWanderer
in
Restless Legs Syndrome
9 months ago
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