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Sialic acid storage disorders
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Pramipexole RLS symptoms worse
Just started taking Pramipexole for RLS for the first night. Wow, didn’t know the symptoms would become totally overwhelming all over body too.is this normal, does it settle down? I have Fibromyalgia, which means I also take Duloxetine for the pain and am medication sensitive, but never thought it would
Just started taking Pramipexole for RLS for the first night. Wow, didn’t know the symptoms would become totally overwhelming all over body too.is this normal, does it settle down? I have Fibromyalgia, which means I also take Duloxetine for the pain and am medication sensitive, but never thought it would
Fra3021
in
Restless Legs Syndrome
8 months ago
Dietary Approaches to Improve Efficacy and Control Side Effects of Levodopa Therapy in Parkinson's Disease: A Systematic Review
I was researching supplement BCAA provided by my husband's functional medicine MD. I was surprised to find one of the ingredients was listed as a major contraindication with levodopa. L-Phenylalanine. Dug a little deeper and it related to protein and impact on levodopa. Found an interesting article
I was researching supplement BCAA provided by my husband's functional medicine MD. I was surprised to find one of the ingredients was listed as a major contraindication with levodopa. L-Phenylalanine. Dug a little deeper and it related to protein and impact on levodopa. Found an interesting article
Sydney75
in
Cure Parkinson's
7 months ago
K2 supplement
Having read on this forum that calcium/D3 is best supplemented with K2 to aid absorption, I've been taking it with my (prescribed) iCal D3 chewable tablets for some years. I had breast cancer in 2016 and was prescribed Letrozole, and as I had radiotherapy too, advised to take iCal and Alendronic Acid
Having read on this forum that calcium/D3 is best supplemented with K2 to aid absorption, I've been taking it with my (prescribed) iCal D3 chewable tablets for some years. I had breast cancer in 2016 and was prescribed Letrozole, and as I had radiotherapy too, advised to take iCal and Alendronic Acid
jools56
in
Bone Health and Osteoporosis UK
10 months ago
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Sleep studies and RLS
Hello everyone. What have been your experiences of sleep studies, and how useful have they been in managing your RLS? Have they actually contributed at all to resolving your RLS symptoms? Or is their benefit just to make you aware of which sleep disorders you have and which you don’t? I ask because
Hello everyone. What have been your experiences of sleep studies, and how useful have they been in managing your RLS? Have they actually contributed at all to resolving your RLS symptoms? Or is their benefit just to make you aware of which sleep disorders you have and which you don’t? I ask because
restlegs1
in
Restless Legs Syndrome
8 months ago
Got my bipolar 1 diagnosis!
Thank you everyone for giving me support every time I write here (which is a lot) I just got my bipolar 1 diagnosis and feel so relieved. Been desperate to know what’s wrong with me for years, passed around to many psychiatrists and now have it in writing. It was really important for me to know after
Thank you everyone for giving me support every time I write here (which is a lot) I just got my bipolar 1 diagnosis and feel so relieved. Been desperate to know what’s wrong with me for years, passed around to many psychiatrists and now have it in writing. It was really important for me to know after
Isabella5991
in
Action on Postpartum Psychosis
7 months ago
haematoma -update
As suggested, I got in touch with my haem who told me to go immediately to the hospital. I didn't see her face- to- face but was seen first by a junior doctor and then had a blood test. She reported back to the haem, sending photos. The outcome was I have a course (3 days) of Tranexamic Acid (2000 mg
As suggested, I got in touch with my haem who told me to go immediately to the hospital. I didn't see her face- to- face but was seen first by a junior doctor and then had a blood test. She reported back to the haem, sending photos. The outcome was I have a course (3 days) of Tranexamic Acid (2000 mg
Mwalimu
in
MPN Voice
11 months ago
update
I am now on 15mg norspan patch, this is keeping the leg at a bearable level. I still have to fight the tugging and pulling 24/7 but it is not so severe that I want to end it all when the patch is on. They seem to have given up now and not trying anything else. I have arranged nerve conduction studies
I am now on 15mg norspan patch, this is keeping the leg at a bearable level. I still have to fight the tugging and pulling 24/7 but it is not so severe that I want to end it all when the patch is on. They seem to have given up now and not trying anything else. I have arranged nerve conduction studies
Hidden
in
Restless Legs Syndrome
8 months ago
My story
I am a 24 old female from India. I am 5'6" and 85 kg. I have been struggling with my body image from child hold. I hai ne da lot of weight during last four years, Specially in covid. My clothes dont fit. Its hard to get outfits that look good on me. All I wear is indian, I like Indian outfits, but sometimes
I am a 24 old female from India. I am 5'6" and 85 kg. I have been struggling with my body image from child hold. I hai ne da lot of weight during last four years, Specially in covid. My clothes dont fit. Its hard to get outfits that look good on me. All I wear is indian, I like Indian outfits, but sometimes
Healthcupid
in
Weight Loss Support
8 months ago
Help. What can I do?
I have a relative who is anorexic and in recovery. I buy in calorie laden food for them and am trying to lose weight, live alone and am struggling with this problem. Can anyone suggest what to do as I keep the food in a cupboard away from the kitchen but still eat it and my weight is going up not down
I have a relative who is anorexic and in recovery. I buy in calorie laden food for them and am trying to lose weight, live alone and am struggling with this problem. Can anyone suggest what to do as I keep the food in a cupboard away from the kitchen but still eat it and my weight is going up not down
Missionwoman
Restart Sept 2023
in
Weight Loss Support
8 months ago
antipsychotic withdrawal
Hello, sorry, me again. I have recently been taken off aripiprazole due it causing obsessive suicidal thoughts, all day every day. Coming down helped and then off helped a lot, the thoughts were way less. I am still on sertraline. A week later I feel very depressed, I have been low and trying not
Hello, sorry, me again. I have recently been taken off aripiprazole due it causing obsessive suicidal thoughts, all day every day. Coming down helped and then off helped a lot, the thoughts were way less. I am still on sertraline. A week later I feel very depressed, I have been low and trying not
Isabella5991
in
Action on Postpartum Psychosis
7 months ago
really panicking over infusions, please help
Hi everyone, I am a 62 year old woman and 103lbs (lost a lot of weight during the pandemic) who was diagnosed with osteoperosis in 2020. About a year ago(7/26/2022) I did a dexascan with following results:
Lumbar spine (L1-L4):
BMD 0.766g/cm2 Z Score -1.9 T Score -2.6 Interval Change (%)
Hi everyone, I am a 62 year old woman and 103lbs (lost a lot of weight during the pandemic) who was diagnosed with osteoperosis in 2020. About a year ago(7/26/2022) I did a dexascan with following results:
Lumbar spine (L1-L4):
BMD 0.766g/cm2 Z Score -1.9 T Score -2.6 Interval Change (%)
Cavey-girl
in
Osteoporosis Support
11 months ago
Orphenadrine
My hwp had been using ophenadrine some time ago and stopped because of fears around using anticholinergics. However, his unrelenting battle with sciatica has me wondering if it might not be worth taking the risk. He is a well person in every other way, but the pain has him battling to do exercise. He
My hwp had been using ophenadrine some time ago and stopped because of fears around using anticholinergics. However, his unrelenting battle with sciatica has me wondering if it might not be worth taking the risk. He is a well person in every other way, but the pain has him battling to do exercise. He
ghoegap
in
Cure Parkinson's
7 months ago
Flare? Or has biologic stopped working?
I am on COSENTYX and MTX and had been doing ok. The consultant said I needed to start Alendronic acid as my bone density borderline. Within a few weeks my arthritis symptoms started to flare. I had a depo injection, but little or no effect. I have been taking celecoxib which wasn't doing enough so now
I am on COSENTYX and MTX and had been doing ok. The consultant said I needed to start Alendronic acid as my bone density borderline. Within a few weeks my arthritis symptoms started to flare. I had a depo injection, but little or no effect. I have been taking celecoxib which wasn't doing enough so now
Gilliancheche
in
NRAS
11 months ago
Excess Iron In The Brain Of PwP And The Role Of Thiamine, Melatonin And Hesperidin In Alleviating This Issue
Excess iron in the brain is thought to be a contributing factor to PD and is known to damage the brain. Iron increases in the brain with age, but even more so in PD. Symptoms of too much iron in the brain include progressive dystonia (a movement disorder resulting in muscular spasms, twisting, and repetitive
Excess iron in the brain is thought to be a contributing factor to PD and is known to damage the brain. Iron increases in the brain with age, but even more so in PD. Symptoms of too much iron in the brain include progressive dystonia (a movement disorder resulting in muscular spasms, twisting, and repetitive
chartist
in
Cure Parkinson's
11 months ago
Attacks
Am I in the right group? I had been diagnosed by a psychiatrist as being bipolar . My therapist writes down that I have General Anxiety Disorder . So am I posting to the right group? Also, what is the difference between a anxiety attack and a panic attack?
Am I in the right group? I had been diagnosed by a psychiatrist as being bipolar . My therapist writes down that I have General Anxiety Disorder . So am I posting to the right group? Also, what is the difference between a anxiety attack and a panic attack?
82467
in
Anxiety and Depression Support
2 months ago
B12 made symptoms go away
Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and tremor feeling inside me. I took B12 sublingual for 2 or 3 weeks and the symptoms subsided. But then I stopped taking the B12 supplements and I have
Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and tremor feeling inside me. I took B12 sublingual for 2 or 3 weeks and the symptoms subsided. But then I stopped taking the B12 supplements and I have
MEguy
in
Pernicious Anaemia Society
9 months ago
Brutal Panic/Anxiety
Can anyone provide some advice?? I've dealt with severe anxiety and depression for 30+ years. I had it under control up until 3 weeks ago. Out of nowhere, my anxious stomach came roaring back and is worse than ever. It's 24/7. My Dr just put me on Vilazodone Any advice/help??
Can anyone provide some advice?? I've dealt with severe anxiety and depression for 30+ years. I had it under control up until 3 weeks ago. Out of nowhere, my anxious stomach came roaring back and is worse than ever. It's 24/7. My Dr just put me on Vilazodone Any advice/help??
Goinboating
in
Anxiety and Depression Support
2 months ago
Red Light Therapy
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
Defiance
in
Cure Parkinson's
9 months ago
Another Cialis Question
I think this is in my profile, but: Gleason 8 (4+4), RP done 5/2022 showed ECE and a positive lymph node. PSA rising by 6 weeks post-op. ADT started 8/2022 and he had radiation 9-11/2022. After some ups and downs with his liver values, he is currently taking Orgovyx, Abiraterone, and Prednisone. PSA
I think this is in my profile, but: Gleason 8 (4+4), RP done 5/2022 showed ECE and a positive lymph node. PSA rising by 6 weeks post-op. ADT started 8/2022 and he had radiation 9-11/2022. After some ups and downs with his liver values, he is currently taking Orgovyx, Abiraterone, and Prednisone. PSA
Tigger2022
in
Advanced Prostate Cancer
1 year ago
40 years of RLS
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
Trish8433
in
Restless Legs Syndrome
9 months ago
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