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Helpless
My boyfriend couldn't cope so is at his flat till he calms down and I am here in my room crying, and trying to cope with a pain
seizure
and a fibromyalgia attack. I got offered three jobs last week which I am too disabled to do but the old me would have been brilliant at them.
My boyfriend couldn't cope so is at his flat till he calms down and I am here in my room crying, and trying to cope with a pain
seizure
and a fibromyalgia attack. I got offered three jobs last week which I am too disabled to do but the old me would have been brilliant at them.
Loopylou1411
in
Anxiety Support
11 years ago
Struggling with what's a symptom or a side effect!
Then down to 50mg - had a
seizure
so back sitting at 60mg. I seem to have become intolerant to just walking once round the shops before I get clammy, can't focus/concentrate, really really jittery and lots of other things too.
Then down to 50mg - had a
seizure
so back sitting at 60mg. I seem to have become intolerant to just walking once round the shops before I get clammy, can't focus/concentrate, really really jittery and lots of other things too.
Scoofiecoo
in
LUPUS UK
12 years ago
Inconclusive genetic testing?
Our son had a complex febrile
seizure
last May and this Saturday had his first non fever related
seizure
. This has raised our anxiety levels again that something else is going on. Has anyone else had an experience of inconclusive genetic testing? Thank you.
Our son had a complex febrile
seizure
last May and this Saturday had his first non fever related
seizure
. This has raised our anxiety levels again that something else is going on. Has anyone else had an experience of inconclusive genetic testing? Thank you.
Wendybob
in
Gorlin Syndrome Group
12 years ago
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Hello,not blogged for a while! and WELCOME any new members from over the last few weeks!
I have been very busy with both my children being very unwell, My daughter and her Lupus and suspected Hughes having endless
seizure
type episodes, and severe fatigue, driving her back to bed, and my young son, similar, so all the teaching of them at home, when too ill for school.
I have been very busy with both my children being very unwell, My daughter and her Lupus and suspected Hughes having endless
seizure
type episodes, and severe fatigue, driving her back to bed, and my young son, similar, so all the teaching of them at home, when too ill for school.
MaryF
Administrator
in
Hughes Syndrome APS Forum
11 years ago
Not really an epileptic
This makes me feel worse than having a
seizure
. The fact that my brain is being compromised. So I started taking less tablets, weaningmyself off. The docters will be shaking their heads. Tsk. But this is my life, and I want my brain and memory back.
This makes me feel worse than having a
seizure
. The fact that my brain is being compromised. So I started taking less tablets, weaningmyself off. The docters will be shaking their heads. Tsk. But this is my life, and I want my brain and memory back.
sumara
in
Epilepsy South Africa
12 years ago
Concerned Mom
My 19 year old daughter suffered an aneurysm at age 6, presented her first visible
seizure
age 9 at one stage she was having 4 - 5 grand mal seizures a day and was taking loads of medication so i researched epilepsy surgery during the tests we discovered she was born with an arterio venus malformation
My 19 year old daughter suffered an aneurysm at age 6, presented her first visible
seizure
age 9 at one stage she was having 4 - 5 grand mal seizures a day and was taking loads of medication so i researched epilepsy surgery during the tests we discovered she was born with an arterio venus malformation
survivoravm
in
Epilepsy South Africa
12 years ago
Undiagnosed...& new here!
Oh forgot to say have had one
seizure
(1 min tonic/clonic) when had pneumonia & high temp. Had a lot of migraines when working, not so many now.
Oh forgot to say have had one
seizure
(1 min tonic/clonic) when had pneumonia & high temp. Had a lot of migraines when working, not so many now.
AusBehcets
in
Behçet's UK
11 years ago
DRIVING: Raising the while flag, Part 2.
Well intentioned, he held me up from under my arm pits to stop from falling, but inadvertently caused my BP to drop so low it resulted in a grand mal
seizure
. Don't remember a thing about it except waking in an ER in Atlanta.
Well intentioned, he held me up from under my arm pits to stop from falling, but inadvertently caused my BP to drop so low it resulted in a grand mal
seizure
. Don't remember a thing about it except waking in an ER in Atlanta.
JudyJ
in
PSP Association
11 years ago
First blog, recently diagnosed with sle, Hughes and pots syndrome this year.
Anyway I hit another snag when 2 days after I was discharged after being in nearly 2 weeks again I had my first
seizure
. So back in the hospital (a different one since I was taken by ambulance) where they said it could have been a number of things. Head ct was clear however so that's good.
Anyway I hit another snag when 2 days after I was discharged after being in nearly 2 weeks again I had my first
seizure
. So back in the hospital (a different one since I was taken by ambulance) where they said it could have been a number of things. Head ct was clear however so that's good.
Scoofiecoo
in
LUPUS UK
12 years ago
Our child(aged 12) started taking absence seizures about a year ago and the paediatrition put her on Lamictal. She now gets seizures which
Tonight she had a very bad
seizure
and we are at our wits end. Legally if we request an emergency appointment with a paediatrition what is the time scale for being seen. And has any other parent experianced their child having more seizures with Lamictal.
Tonight she had a very bad
seizure
and we are at our wits end. Legally if we request an emergency appointment with a paediatrition what is the time scale for being seen. And has any other parent experianced their child having more seizures with Lamictal.
AR176
in
Epilepsy Action
12 years ago
Aura
I have an Aura feeling before i have a
seizure
. This gives me a slight warning to be able to get help. Does anyone know if you take medication does it take the Aura away? thks
I have an Aura feeling before i have a
seizure
. This gives me a slight warning to be able to get help. Does anyone know if you take medication does it take the Aura away? thks
beverleysblue
in
Epilepsy Research Institute
12 years ago
what happenned to me?
i was in ICU in 2009 or 10, i had an epilepsy
seizure
and was taken to central middx hospital (park royal).
i was in ICU in 2009 or 10, i had an epilepsy
seizure
and was taken to central middx hospital (park royal).
coady
in
ICUsteps
12 years ago
Food Poisoning/NoroVirus accompanied by severe amounts of partial and complex seizures - HELP!
I've definitely had food poisoning/stomach bug from shellfish, but, along with these nasty symptoms, severe migraines, cravings, tender breasts, a major alteration in periods etc, increased
seizure
count, (and by increased, I'm talking going from around about 4 per year, to around about 36 in 4 weeks
I've definitely had food poisoning/stomach bug from shellfish, but, along with these nasty symptoms, severe migraines, cravings, tender breasts, a major alteration in periods etc, increased
seizure
count, (and by increased, I'm talking going from around about 4 per year, to around about 36 in 4 weeks
karlyt
in
LUPUS UK
12 years ago
Coping with your Epilepsy
While treating epilepsy, it is important to pay attention to coping with the psychosocial aspects and not just the
seizure
control. The foremost factor in coping with the psychosocial aspects of epilepsy is getting accurate information.
While treating epilepsy, it is important to pay attention to coping with the psychosocial aspects and not just the
seizure
control. The foremost factor in coping with the psychosocial aspects of epilepsy is getting accurate information.
EpifriendSouthAfrica
in
Epilepsy South Africa
12 years ago
Hallucinations and seizures?
Does this sound like a
seizure
as I can't link it to anything else, I have never had seizures before and nobody in my family has epilepsy so it's totally bizarre.
Does this sound like a
seizure
as I can't link it to anything else, I have never had seizures before and nobody in my family has epilepsy so it's totally bizarre.
Hidden
in
Anxiety Support
12 years ago
Feel Like I'm Going Through Hell Again
I also had petit mal epilepsy which though was annoying didn’t cause me a great deal of distress but it wasn’t safe for me to go out on my own in case I had a
seizure
.
I also had petit mal epilepsy which though was annoying didn’t cause me a great deal of distress but it wasn’t safe for me to go out on my own in case I had a
seizure
.
EndofTether
in
Endometriosis UK
12 years ago
DLA
Am not in any pain , had a
seizure
( episode because waiting fir MRI scan) earlier today slept for a couple if hours then just managed to make done pancakes for my daughter . My wrist hurts Dnt know if its fibro or it's because it was bent funny when I went into the episode .
Am not in any pain , had a
seizure
( episode because waiting fir MRI scan) earlier today slept for a couple if hours then just managed to make done pancakes for my daughter . My wrist hurts Dnt know if its fibro or it's because it was bent funny when I went into the episode .
jjojay
in
Fibromyalgia Action UK
12 years ago
Any experiences with ATOS needed
The 24 year old, who suffered from severe epilepsy, appealed, but was worried and depressed about how to pay his rent or buy food. [3] Three months after seeing ATOS he died from a major
seizure
.
The 24 year old, who suffered from severe epilepsy, appealed, but was worried and depressed about how to pay his rent or buy food. [3] Three months after seeing ATOS he died from a major
seizure
.
Angeldancea812
in
Fibromyalgia Action UK
12 years ago
Anybody experienced barriers with their work?
I am training as a psychologist and can count the amount of times i have had a
seizure
at work. Any chat/relatedness to prob would be really helpful.
I am training as a psychologist and can count the amount of times i have had a
seizure
at work. Any chat/relatedness to prob would be really helpful.
Fifi74
in
Epilepsy Research Institute
12 years ago
Had a preterm labor with lots of clots, and now a blood clot in arm. Possible APS?
I wonder if the topamax caused this or do you all think with what happened with my labor and delivery and
seizure
like episodes I should look into APS?
I wonder if the topamax caused this or do you all think with what happened with my labor and delivery and
seizure
like episodes I should look into APS?
Jen_1984
in
Hughes Syndrome APS Forum
12 years ago
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