I was diagnosed with endometriosis last year. I also had petit mal epilepsy which though was annoying didn’t cause me a great deal of distress but it wasn’t safe for me to go out on my own in case I had a seizure. Anyway, rightly or wrongly it was decided to deal with the epilepsy issue first and I had the part of the brain that was causing it removed in early September 2012. Unfortunately, during the operation I had a stroke which caused weakness in my left limbs leaving me unable to walk. (I can just about type this). I stayed in hospital for 4 months with rehabilitation which was very good and my walking improved enough for me leave just before Christmas.
Before I went into hospital my periods were erratic and during my stay they stopped with occasional spotting. I was in agony most of the time with period pain but no bleeding.
Now that I am home, I want to work on improving my muscle strength with the Physiotherapists who visit but have to turn them away because I am too tired most of the time as now I seem to be bleeding every other day. I also have constant all-over-body itchiness which blood tests have shown are due to low iron levels. This is driving me mad and keeping me awake at night.
I have been put on Zoladex and have had 2 courses so far but haven’t felt any benefit as yet. I am also supposed to be having a hysterectomy but the Gynaecologist wants to check with the Neurosurgeon that it would be safe for me to have another operation so soon after my last one. As I am sure you can imagine, I am not too keen on operations but feel as if I am going through hell. It’s like having PMS all the time. I was not fortunate to have had any children (I’ve had two miscarriages) and while I was in hospital I was constantly being asked if I had any children. With all the pain I was in it upset me very much. Of course at my age it would be too risky to get pregnant so I have had to come to terms with never being a mother or grandmother. This pain and fatigue is really getting me down and it is affecting my husband as I am so down and moody most of the time. This endometriosis is like ‘rubbing salt into the wound’