Gorlin Syndrome Group

Life insurance For Gorlin Goltz patients

Hi. First time poster,long time GG patient. Have tried unsuccessfully to get lif...

Gorlins and Erivedge

Hi, unsure if I have Gorlin's syndrome because I haven't been tested but I've ha...

Gorlin's Syndrome and hypogammglobulienemia

Hi, I'm 54yrs old, diagnosed in my teens w/Gorlin's Syndrome. Having a rare dis...

4 year old sone

Hi. We had our some diagnosed at the beginning of January. I am grateful he has...

Just to say Hello

Hi, I have just joined. I have had Gorlings for over 30yrs first starting off wi...
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About us

The Gorlin Syndrome Group is a support network offering guidance and information to individuals, their familie... Read more
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