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Gorlin Syndrome Group

Safe in the Sun Survey

In the survey we carried out in July, we found that although most people with Go...

Life insurance For Gorlin Goltz patients

Hi. First time poster,long time GG patient. Have tried unsuccessfully to get lif...

Gorlins and Erivedge

Hi, unsure if I have Gorlin's syndrome because I haven't been tested but I've ha...

Gorlin's Syndrome and hypogammglobulienemia

Hi, I'm 54yrs old, diagnosed in my teens w/Gorlin's Syndrome. Having a rare dis...

4 year old sone

Hi. We had our some diagnosed at the beginning of January. I am grateful he has...
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About us

The Gorlin Syndrome Group is a support network offering guidance and information to individuals, their familie... Read more
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