Epilepsy Research Institute | HealthUnlocked

To coincide with our first anniversary as the Epilepsy Research Institute, we are thrilled to launch our One in 100 campaign to raise awareness and secure...

Hey everyone. So I'll cut to the chase - I grew up with generalized epilepsy in my teens. Had a mix of focal and tonic clonics throughout the ages of 11-18....

Diagnosed in 1976 with tonic clinic epilepsy Treated with Phentoin Dilantin from age 16 years to 42 years. Have been on Levetriciam Keppra for 20 years...

Hello everyone, I’ll try and keep it brief as possible but currently feeling at a loss and not sure how to continue. Had my first tonic clonic seizure in...

I was seizure-free for 4.5 years until I got pregnant, and my medication was doubled as a result. I've now had my baby (almost 6 months ago) and am now...

I was diagnosed with epilepsy at 12 and am now 59. I have two daughters with fetal valproate spectrum disorder. I have coped fine with epilepsy, I was young...

my wife ( 69 yes old) is having episodes for four years, we have seen numerous neurologists including Mayo . Episodes include premonitions, increased heart...

Hi all , I’m Antonio and I’ve never really chatted with other people who have Epilepsy but now I feel I should as I’ve had my fair share of experiences...

hi Rachel, I was unfortunate enough to suffer third degree burns whilst having a seizure. I was aware of the seizure arriving and my departing thought was...

İ will be moving to uk soon and I am using lamictal for years. I do not know if I can buy lamictal there without prescription? Or what should I do to buy some...

My partner (45yo) has epilepsy which is not well controlled with medication. He has been offered VNS by King’s College Hospital (London). We are looking for...

Hi, hope everybody is keeping well. I have a young daughter who has epilepsy I was just wondering if anybody here uses a wrist alarm of some kind for tonic...

The UK Epilepsy Priority Setting Partnership is a landmark national survey gathering the views of the entire epilepsy community… and we need YOUR input! Find...

Not sure if this is allowed if not please delete. I am a university student studying my undergrad in psychology. Epilepsy plays a huge part in my family life...

Join us at midday on Tuesday 31st August for a Research Roundtable webinar on epilepsy surgery. We’ll hear how Epilepsy Research UK-funded projects have helped...

Someone please correct me if I’m wrong.... I’m sure that if you’re epileptic you’re entitled to bed padding via NHS??? I’m having trouble getting this on...

Join our #ALifeInterrupted campaign to: • Highlight the disruptive, interruptive impact of #epilepsy • Raise awareness of the inequalities in research...

Once again my husband & I saw the Consultant in the Stroke Clinic & once more he denied that I suffered 2 strokes plus 2 more minor strokes & went on to deny...

Does sodium valproate affect your sexual life. Does it stop you ejaculating?

Is it a good idea to switch from sodium valproate to Lamotrigine?

Had a letter from the doctor regarding another health matter & originally he said that I didn't have Epilepsy, but in a letter that he sent me a few days...

Anyone taking Zonisamide experience bad reactions of weakness and shacking?

Hi Has anyone had surgery for mesial sclerosis on the temporal lobe?

Last Sat my speech went really slow & I couldn't swallow easily plus use my right arm that well. I was rushed upto our local hospital & admitted to the Stroke...

The ERUK National Epilepsy Week line-up is as follows… Grant Award profiles each day: https://bit.ly/2020-grant-awards Epilepsy Quiz: https://bit.ly/2T63cwi...

On Tues I had a really bad seizure thanks to a virus I have round a friends which caused me to stop breathing & she had to do CPR, ended up in A&E with all the...

Hello, A few years ago I had extremely severe depression. Then one day I had a tonic/clonic seizure. Ever since being on Lamotrigine, my mood has completely...

Had my phone appointment with the Neurology dept yesterday & the doctor said that he doesn't reckon that all my night seizures are seizures, that some might be...

I have recently been suffering from double vision shortly after taking my medication, since having surgery on my stomach. Has anyone else suffered from this...

Hello, First of all I want to apologise for barging in on your group as I dont have epilepsy (I don't think so anyway!). Also if my question seems stupid or...