Epilepsy South Africa
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Coping with your Epilepsy

While treating epilepsy, it is important to pay attention to coping with the psychosocial aspects and not just the seizure control. The foremost factor in coping with the psychosocial aspects of epilepsy is getting accurate information. It is well documented by now, that the level of well-being is significantly related to possession of accurate information, in people living with epilepsy.

People with epilepsy who are better informed about the management and treatment of their condition, view themselves as being more in control and subsequently have better psychological profiles than those who are less informed. Historically, there has been a lack of information on epilepsy and how it affects people. A common person knows little about epilepsy. Resulting from the time when we did not know much about epilepsy, people tend to carry several misconceptions and stigmas that affect how they view epilepsy and those who live with this condition.

Currently research is ongoing about seizures, drugs to control them and their relationship with attention, activity level and behaviour. Doctors, parents, teachers, learning assistants, psychologists and others dealing with epilepsy, may not always have access to current information. Since epilepsy affects each individual in a unique way, obtaining information about your specific situation is crucial. Understanding epilepsy and how it is affecting you can demystify any beliefs you might have about your or your child's condition and help in the coping process.

Being part of a support group often helps people cope with epilepsy. Whether you are a parent of a child with epilepsy, or an individual who lives with epilepsy, it is important to find people in a similar situation and form a support group to share your experiences. Listening to others in a similar situation breaks the isolation. It helps you see "you are not alone" and that others are struggling with more or less the same issues. It provides an opportunity to learn from others and support others. You may gain an insight into your own ways of coping, when you listen to others deal with similar situations. If there is not a support group in your area, you may want to start one. You will be amazed how many people are interested. Many people have also found lasting friendships through support groups.

2 Replies

Well said. I joined this forum a couple of months ago and I feel so empowered.and I encouraged my husband and daughter to join in so that we are all on the same page.


Hi Mpasi, please feel free to make contact also with me on Facebook and send me a friend request... Lesley Donnelly. We have many Groups you can take part in both nationally and internationally and this will help you to find more friendships, more information and knowledge on epilepsy. Keep in touch with us and share your feelings and thoughts! Keep well, keep positive and keep happy!


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