We are a charity dedicated to supporting those with epilepsy and others impacted by it. Read more
grow-19 days ago
I'm a 41year old female living with epilepsy from age 2. It has not deterred me from achieving my goals and achievements
I am only having ...
Living life to the fullest
NanaMay4 months ago
Hello Group, thank you for the encouragement since I joined in February this year, I have been living my life to the fully, but then this mo...
The Brain Damaged Baron
BaronC5 months ago
Trying to spread the word...
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Support Group Northern Cape or Free State
Zay19836 months ago
Hi my 9 year old son has recently been diagnosed with epilepsy. Would like to join a support group in Kimberley or Bloemfontein if nothing i...
Epileptic single mom 2 kids wanting support group and friends
DebzM7 months ago
Single mom 2 kids epileptic lives in cape town
Looking for epilepsy support groups in Cape Town
A_dam128 months ago
I am a parent of a 2 year old boy who has recently been diagnosed with Complex Focal seizures. my wife and I would like to join a su...
No help from epilepsy association for something so needed
Chetty8 months ago
Hello, can you please tell me how is it when you call the epilepsy association itself, and explain you have epilepsy and ask for help to fin...
Mpasi10 months ago
My epileptic daughter is now 19 turning 20 in September. she was attending special school in Bloemfontein. She is a down syndrome child. ...
Have epilepsy and need help for a residence.
Chetty10 months ago
Hello, I am living in Cape Town at the moment and looking for a residence myself as I have epilepsy and my parents are late and I cannot liv...
Ockert10 months ago
Been diagnosed with Epilepsy basically 2 years ago. I am 38.
after lots of tests and scary MRI's and what-nots, the neurologist prescribed...
binkiehb10 months ago
Hi everyone I need help, my daughter is 17yrs diagnosed with epilepsy from September 2015 because she had a seizure at school, she is in mat...
What to do
AlbertCPTa year ago
My cousin just moved in with me, he suffers from epilepsy (18 years old). Since he moved in with me, he had one seizure. What should ...
Epilepsy Research Task
NimiB2 years ago
My younger sister has focal epilepsy and in order to try and understand more about epilepsy, I have made it the topic of my Matric Life Scie...
Young Epilepsy Botswana
ithabeleng2 years ago
We successfully launched young epilepsy society on the 26th March here in Botswana,we will soon have a nation that understand Epilepsy.
FACEBOOK & TWITTER
Hidden2 years ago
To All Members,
I have had epilepsy for 41 years now and am 57 years of age!
If anyone wants to make contact with me through Facebook or Twit...
HAPPY CHRISTMAS AND ALL THE BEST FOR 2015!
Wishing you all a wonderful Christmas and all the best for 2015! May it be a great year ahead for all of us with epilepsy, and a better year...
Ilana2 years ago
I'm told when my CSF shunts/ETV quit and I'm in acute shunt/ETV failure I loose consciousness & T/Cs start, why does T/Cs happen when my shu...
Brain Ventricles & Brain Lobes - What's the Connection to T/Cs & High CSF
How are the ventricles linked to the 4 lobes of the brain & where is each lobe located in relation to the ventricles? Does the lobes &/or ve...
Epilepsy and Children:Epilepsy During the First Two Years
EpifriendSouthAfrica2 years ago
What do seizure look like in the first two years?
Babies engage in many random movements. Co-ordination is just beginning to develop. What o...
Care 4 Epilepsy: Btech practical project
sonic932 years ago
I am a 21 year old Graphic Design postgraduate student and although I am not epileptic, I have experienced effects of epilepsy through carin...
At a complete loss!
Catzj72 years ago
This is my first time posting on ANY forum. I desperately need some advice.
I am 31yrs old and was diagnosed with TLE in my teens. I have a s...
Assistance with homes for epileptic people
Chetty3 years ago
Hello, Can someone please help me with information for someone who is epileptic to go into a full time nursing/epileptic home. I am quiet ca...
Personal experiance if eyes (Bloodshot, big pupils) tell you anything about seizuring?
TEELEE3 years ago
I have noticed my sons size of pupils fluctuate alot and not in line with light level.
Also I have noticed when he is having a bad time with ...
Still struggling with what type of epilepsy my 9year old son has!
Hi all, well I posted in November that they found my son had very abnormal EEG and neuro diagnosed Absence seizures. He started on Epilim, b...
Hi, my 7 year old daughter was recently diagnosed with silent or Rolandic epilepsy and ADD. Does anyone else have a child with this?
IsobelK3 years ago
She is on 200mg Epilim every 12 hours, but how soon can we expect to see improvement in her concentration. And why does my child not displa...
Any idea of what is the best nutritional supplement or vitamin supplement for a chronic epileptic????
Kelsky3 years ago
Why would the gaverment not send me my medications?
nudnikid3 years ago
I live in Napier, 2 hours drive from Cape Town. I am not allowed to drive, but must every month with the help of other people fetch my medic...
Where can I find an au pair?
J30_D3 years ago
HI there. my son Andrew who is 2 turning 3 has been diagnosed with generalised epilepsy and has started the ketogenic diet which is hectic b...
Decreasing my medication with 1500mg
My medications was decreased with 1500mg. I was very,very afraid, but did as the docter told me to do. It was HELL!!!! I was flouting in spa...
Should a doctor decrees you medications if you are still having seizures?
I've had epilepsy now for +/-40 years. I have learned a lot about myself and know how to control the strange feelings I have before having a...
What are the most important services needed for you to funtion optimally from Epilepsy SA? (Select all that apply)
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