We are a charity dedicated to supporting those with epilepsy and others impacted by it. Read more
Epilepsy Forum or Association
HarperMary23 days ago
Is there any forum one could belong to to support Epilepsy? For example events happening fund raising or how we could raise funds for this c...
Be the first to reply1 Like
Benign Tumour 4 Year old Focal seizures
My daughter has a benign tumour and this is causing her to have focal seizures. It's been two years and now they are scheduling her to be mo...
Support Group in Klerksdorp
SamanthaBrink25 days ago
Hi, my brother aged 34 has had epilepsy since he was 10 years old - caused by encephalitis. He lives in Klerksdorp and could really benefit ...
Hiddena month ago
Had epilepsy since 1990, lots of medication, electro-shock therapy, removal of tumor in hippo-campus region, partial lobotomy and more medic...
Work in Gauteng
SimmyWallisa month ago
Are there any centers or organisations that assist people with epilepsy to find jobs?
B1-ra month ago
Hi I am on 5 different anti epileptics. I can't loose weight. I don't eat much but sleep a lot. Advice please 😀
Epilepsy Support and Advice
Tdevilliersa month ago
I am a person, 56 years old, and have had Epilepsy since the age of 12. My condition is well controlled. Mainly, in my teens to mid-twenties...
3 Replies1 Like
Recent diagnosis, really looking for guidance.
FANAROUXa month ago
Beginning of January I started my new job ended up only beeing there a day as the following day I started having seizures. So I'm still in t...
Any toddlers with multifocal epilepsy
Gezybabea month ago
My daughter is 17 months and has been diagnosed as having multifocal epilepsy. Any other moms with a toddler with epilepsy I have a lot of q...
retzy2 months ago
Im compiling a bucket list of things to do before this year ends. I know a lot of things are restricted from people with epilepsy so what t...
Be the first to reply
Epilepsy with age
zeeZee7862 months ago
Hi I 47 now was diagnosed with left side of the brain epilepsy. With age it developed into bipolar 2 .anxiety chronic depression low blood ...
Epilepsy conditioned Life is a special Life
emzin3 months ago
It is so amazing how are was born as my mother had told me , the doctors predicted that when I reach teenage years something will happen tha...
4 Replies2 Likes
Any Encephalitis patients?
ronaldm3 months ago
Hi All. My brother had gotten a viral encephalitis and now is on medication due to seizures arising due to post Encephalitis. Does anyone k...
LDonnelly3 months ago
We have just completed the editing process of Epinews, our bi-annual magazine with personal stories of people with epilepsy... Contact Epile...
6 Replies3 Likes
Chefmark093 months ago
Hello to all I am epileptic since the age 10 years old I am now 34 years I have learnt to live with it there is those days that are harder t...
1 Reply2 Likes
EPILEPSY SOUTH AFRICA
Hi to All,
Epilepsy South Africa will always be with me no matter where I am based.
Thank you all for the wonderful years of membership, love ...
Stevent5 months ago
Hi was diagnosed with a right frontal lobe brain tumor in 2013. This was removed and now I have scarring on my brain. I suffer from epilepsy...
Son just diagnosed with Epilepsy... have some questions.
TheK5 months ago
After a series of "episodes" such as, withdrawing from the room to lie down because things were too bright, loud - saying strange t...
retzy5 months ago
I might have epilepsy but the epilepsy doesnt have me. I have to be positive so I can encourage people that epilepsy is not the end of the w...
2 Replies6 Likes
Living with epilepsy
Hey Im rezy
Living with epilepsy is like having a tattoo that we have to embrace. Always be positive because anxiety and negative thoughts ca...
2 Replies3 Likes
Is a better life possible?
JAY685 months ago
My name is Johan and I have a brother with epilepsy. He was kind of diagnosed age 7. He turned 31 this year.
Why I’m writing you is beca...
Sasekile6 months ago
My name is Beauty. I am 26 years old. I live with my nephew who is 16 years old. late last year, he started experiencing involuntary jerking...
10 Replies1 Like
Walk With The Baron For Brain Injury
BaronC6 months ago
I have an idea to put to you that I've been mulling over for a while.
I'm thinking of putting together an 'event' one day next year.
Question re treatment
SusanStuart7 months ago
i have been diagnosed with temporal lobe epilepsy in 1994, im currently not on any meds. with the epilepsy i have the symptoms of d...
4 Replies1 Like
Unsure what was triggering light jerks during the day...
BoytjieD7 months ago
I'm new here. I was diagnosed with epilepsy age 11, after light jerks of my arms started at a very young age and caused serious worries to m...
retzy7 months ago
So I was diagnosed with epilepsy from a young age. I hated having epilepsy at a young age because i felt different as i usually had my seizu...
Be the first to reply2 Likes
LitchiLee8 months ago
Hi, diagnosed with TLE about 8 to 10 years ago (abnormal EEG reading). Did not believe the diagnosis and after a 2nd opinion went off my me...
What are the most important services needed for you to funtion optimally from Epilepsy SA? (Select all that apply)
Start a Community