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Pottery workshop.?
I have been invited to a pottery workshop to make a couple of pots. At end of cycle 1 of FCR. Feeling great, but.... I suspect too much of a risk, even with gloves and mask... thoughts?
I have been invited to a pottery workshop to make a couple of pots. At end of cycle 1 of FCR. Feeling great, but.... I suspect too much of a risk, even with gloves and mask... thoughts?
abikaasa
in
CLL Support
7 years ago
Ask the expert Ohio state talk. Slide 46. PFS for treatment naïve patients on imbruvica Vs TN FCR patients.
There were only 31 patience on the imbruvica group in blue. This group had mutated and unmutated patients combined. Two were 17 P deleted as well. Unfortunately one of the 17p patients progressed after 4 months but the other I think has not progressed. A few people came off the trial for other
There were only 31 patience on the imbruvica group in blue. This group had mutated and unmutated patients combined. Two were 17 P deleted as well. Unfortunately one of the 17p patients progressed after 4 months but the other I think has not progressed. A few people came off the trial for other
Hoffy
in
CLL Support
7 years ago
ITP
I have tried a lot of treatments from medication, infusions and
Rituximab
but unfortunately nothing is working, is anyone else having problems x
I have tried a lot of treatments from medication, infusions and
Rituximab
but unfortunately nothing is working, is anyone else having problems x
Manclady61
in
LUPUS UK
7 years ago
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too short of w & w
I will try and keep this short but need some advice on talking to our doctor. My husband Brett finished FCR 15 months ago, 6 months ago his BMB showed all clear now ending the happy story. About 5 months ago he had a swollen lymph node in his neck. Dr confirmed that yes he thought the CLL was active
I will try and keep this short but need some advice on talking to our doctor. My husband Brett finished FCR 15 months ago, 6 months ago his BMB showed all clear now ending the happy story. About 5 months ago he had a swollen lymph node in his neck. Dr confirmed that yes he thought the CLL was active
jules_c
in
CLL Support
7 years ago
Muscle Ache
I have given infusions of
Rituximab
recently but had these aches before that. Just wondered if the infusion will help settle this down. I have been told the infusion takes 12-16 weeks to take effect so it is still early days for that.
I have given infusions of
Rituximab
recently but had these aches before that. Just wondered if the infusion will help settle this down. I have been told the infusion takes 12-16 weeks to take effect so it is still early days for that.
Ellieellie
in
NRAS
7 years ago
Key questions to ask your consultant
What sort of treatments would be open to me (e.g. new ones like many discussed on the list - I even forget the name of the front line drugs now, I almost said ibuprofen ;-) As I cannot remember the spelling I cut and paste them:
Rituximab
(Rituxan) - Ibrutinib (Imbruvica)giving away my secrets.
What sort of treatments would be open to me (e.g. new ones like many discussed on the list - I even forget the name of the front line drugs now, I almost said ibuprofen ;-) As I cannot remember the spelling I cut and paste them:
Rituximab
(Rituxan) - Ibrutinib (Imbruvica)giving away my secrets.
Davdow
in
CLL Support
7 years ago
High Altitude and CLL: Risk?
I have monitored your support group for a while now and appreciate all the shared information that can be found here. It has been very helpful over the last couple of years. First time writing. My husband is 61 years of age, diagnosed with CLL officially Oct. 2014, but high white counts as far back as
I have monitored your support group for a while now and appreciate all the shared information that can be found here. It has been very helpful over the last couple of years. First time writing. My husband is 61 years of age, diagnosed with CLL officially Oct. 2014, but high white counts as far back as
AGreenwoods
in
CLL Support
7 years ago
Bendamustine vs FCR
He is suggesting that Bendamustine with
Rituximab
will be a better option for me than FCR because of some particular presentation of my condition. Does anyone have experience of Bendamustine to share? Thanks
He is suggesting that Bendamustine with
Rituximab
will be a better option for me than FCR because of some particular presentation of my condition. Does anyone have experience of Bendamustine to share? Thanks
Clovelly
in
CLL Support
7 years ago
1st week on venetoclax - WOW, not what we expected...
After reviewing jtaeross's post from 3 months ago I wanted to share our experience on venetoclax. My husband just stared venetoclax 20mg we are on day 6 after failing on Ibrutinib after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to
After reviewing jtaeross's post from 3 months ago I wanted to share our experience on venetoclax. My husband just stared venetoclax 20mg we are on day 6 after failing on Ibrutinib after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to
NMMP
in
CLL Support
7 years ago
Wondering
Well I had my second infusion of
Rituximab
on Thursday. Took six attempts to get the cannula in so am a bit bruised. I know they said it can take up to 12 weeks to see a difference. What they haven't said is what sort of difference.
Well I had my second infusion of
Rituximab
on Thursday. Took six attempts to get the cannula in so am a bit bruised. I know they said it can take up to 12 weeks to see a difference. What they haven't said is what sort of difference.
Ellieellie
in
NRAS
7 years ago
Chemotherapy vs Ibrutinib for CLL Frontline Treatment - Dr Susan O'Brien. 12 to 24% of FCR patients effectively cured 6 years after FCR
Anyone interested in the pros and cons of chemotherapy vs non-chemotherapy treatment should watch this 10 minute video by Dr Susan O’Brien, MD, University of California Irvine Medical Center, where [i]'she discusses frontline treatment options for patients with newly diagnosed chronic lymphocytic leukemia
Anyone interested in the pros and cons of chemotherapy vs non-chemotherapy treatment should watch this 10 minute video by Dr Susan O’Brien, MD, University of California Irvine Medical Center, where [i]'she discusses frontline treatment options for patients with newly diagnosed chronic lymphocytic leukemia
AussieNeil
Administrator
in
CLL Support
7 years ago
Immunoglobulin Replacement
I have gpa and am treated with
rituximab
every six months. Thanks for your input! Charlotte
I have gpa and am treated with
rituximab
every six months. Thanks for your input! Charlotte
DevonLottie
in
Vasculitis UK
7 years ago
Secondary BR Treatment
After being diagnosed in Jan 2013 went through immediate FCR which lasted eight months. This led to a three year remission after which the disease was again detected. Disease progression has been gradual but my Oncologist says further treatment with Retuxin/Bendamustine is very likely soon (he has been
After being diagnosed in Jan 2013 went through immediate FCR which lasted eight months. This led to a three year remission after which the disease was again detected. Disease progression has been gradual but my Oncologist says further treatment with Retuxin/Bendamustine is very likely soon (he has been
plett1234
in
CLL Support
7 years ago
Arthroscopy of the knee?
At the moment I am stable on
rituximab
and steroids, but I don't know if this will be something that worries the surgeon.
At the moment I am stable on
rituximab
and steroids, but I don't know if this will be something that worries the surgeon.
BronteM
in
Vasculitis UK
7 years ago
Infusion hurrah!
In the day unit connected up to
rituximab
!! I wasn't sure if it would be happening today but came prepared with kindle, warm cardigan , eydrops and lipsil . I hope i it has a good effect again.
In the day unit connected up to
rituximab
!! I wasn't sure if it would be happening today but came prepared with kindle, warm cardigan , eydrops and lipsil . I hope i it has a good effect again.
weathervane
in
LUPUS UK
7 years ago
Oxford update
Hi All I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh My Bloods were ok but I am now early stage B still all that means is more fundraising and still a way to go, Dr Schuh mentioned when I asked about the new treatments that in the next 2-3 years the will look to move away
Hi All I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh My Bloods were ok but I am now early stage B still all that means is more fundraising and still a way to go, Dr Schuh mentioned when I asked about the new treatments that in the next 2-3 years the will look to move away
TheFlyer
in
CLL Support
7 years ago
B-Cell Depletion
As further trials are carried out on M.E treatment using
Rituximab
by Fluge and Mella it is of some interest how the same treatment is providing useful options within a similar autoimmune neurological condition MS http://www.nejm.org/doi/full/10.1056/NEJMe1614717?rss=searchAndBrowse&
As further trials are carried out on M.E treatment using
Rituximab
by Fluge and Mella it is of some interest how the same treatment is providing useful options within a similar autoimmune neurological condition MS http://www.nejm.org/doi/full/10.1056/NEJMe1614717?rss=searchAndBrowse&
readerlist
in
Ramsays Disease
7 years ago
Yippee! Just had confirmed 2 more health related talking points; with which, I can bore the pants off everyone I meet. How lucky is that?
First off, be assured that although I post rarely, I do regularly read and digest the all the posts here. I have benefited from the wealth of knowledge found within the threads. Much as I would like to indulge in relating the nitty gritty of my new talking points. I will restrain myself and try to stick
First off, be assured that although I post rarely, I do regularly read and digest the all the posts here. I have benefited from the wealth of knowledge found within the threads. Much as I would like to indulge in relating the nitty gritty of my new talking points. I will restrain myself and try to stick
Bribin
in
CLL Support
7 years ago
Reducing lyrica?
I am with the rheumy on Friday and I hope to get 2nd
rituximab
infusion. Should i also ask about stopping/reducing my lyrica? I take 100mg twice a day and it has really helped muscle pain from sjogrens. I haven't noticed any side effects so should i stick with what is working??
I am with the rheumy on Friday and I hope to get 2nd
rituximab
infusion. Should i also ask about stopping/reducing my lyrica? I take 100mg twice a day and it has really helped muscle pain from sjogrens. I haven't noticed any side effects so should i stick with what is working??
weathervane
in
LUPUS UK
7 years ago
Problems with RA
I am on methotrexate and
rituximab
infusions. I have tried apple cider vinegar and ibukeve gel to no avail.
I am on methotrexate and
rituximab
infusions. I have tried apple cider vinegar and ibukeve gel to no avail.
Brenda1952
in
NRAS
7 years ago
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