Experiences with

Rituximab

Is this related to sjogrens or could it be due to rituximab infusions in January? Also should I just rest or contact out of hours doc ( we have a good service) . Ive no nausea I just feel weird- my husband says this is normal🙁

Is this related to sjogrens or could it be due to rituximab infusions in January? Also should I just rest or contact out of hours doc ( we have a good service) . Ive no nausea I just feel weird- my husband says this is normal🙁

As I have found when I have a cold, flu or any kind of infection I was floored for the weekend which I expected However, my worry is that I had Rituximab infusion in January (Even though it didn’t go to plan) and I am due to restart the treatment on Thursday.

It's hard to believe that 6 months have past by since Chemo... some days I feel nearly normal🤓 And don't give too much thought to CLL but other days it can be the burden that you carry around – On those days it feels as if i am on an isolated island, all by myself , trying to predict how long remission

I have primary sjogrens which has caused lymph node enlargement, muscle and joint pain , i have had two lots of rituximab. I don't think its costochonditis as ribs are ok . Do you think its the lymph nodes acting up again ? I didn't have sternum involvement before .

Hi, has anyone been given a combination of bendamustadine and rituximab as a maintenance treatment? I have read that this can prolong remission further than rituximab alone. I don't think this is available yet in UK as a standard treatment. However, I believe it may be under consideration.

This drug has been suggested to me today anybody on it ? Thoughts Course I googled it 😳

I am on rituximab and prednisilone 7.5mg. I'm worried encase it's lupus causing it. Recently had a chest infection but a lot better now and pulse still high 😔

HI I am in maintenance rituximab treatments every eight weeks until November or December of 2017 ( 24 months total). I was diagnosed with Follicular Lymphoma March of 2015 ( I think it was March anyway.) I have been in remission since November of 2015. YEAH !!

Im a flight attendant which is a very physical job .Long hours different time zones .Family were saying that I ought to give it up :-(After 20 years of doing what I loved I wasn't ready to throw in the towel .Simponi wasn't having any affect My rheumy suggested rituximab and leflunomide so last August

Well I was mentally prepared for my 2nd FCR on May 8th but not physically it seems. I had my blood tests today and my WBC was down from 149 to 1.9, fantastic! But my neutrophils are also 1 so I can't have it. I'd be really grateful for some neutrophils info as I'm fairly ignorant in this area. Should

Well, here we are - OH was diagnosed in August 2014, so W&W didn't last as long as we had hoped it would. Most figures have remained fairly stable, but platelet levels consistently around 80 for last 9 months, so FCR starting tomorrow. As he is pretty fit, we are hoping that 4 lots of treatment will

Well, after all kinds of advice and doing some serious research, I decided to go to OSU James Cancer Center for treatment. Dr. Byrd will give me FCR outpatient. I start Wed. May 3. I cant sleep or do much of anything. I am anxious but relieved to finally start treatment. I am trisomy 12 simple karotype

So here I am sitting on a bed having my first cycle of rituximab ( FCR ) . Wish me luck and thanks to all CLLers who have contributed over the past months. I will keep you guys posted. Cheers. Sandydog

My rheumy has suggested I go onto this biologic now (number 4), as Rituximab has not worked as it should. Would really appreciate any comments, good or bad. Many thanks 😊

I am due to start my first rituximab infusions soon (four over four weeks) and although not great timing have the opportunity to start a job working at home around the same time.

I had a diagnosis of MPA renal vasculitis nearly 3 years ago, admittedly, caught very early; I was treated according to the current protocol (cyclophosphamide; rituximab 2x; couple hits of high-dose steroids, then stop) followed by MMF (I don't tolerate Aza; this is next-best option for me & because

On the medication side it is possible I will be continuing with Rituximab AND Cyclophosphamide. This to be discussed in depth with Rheumatology. Although inflammation is present in the lungs it is recommended that there should be no increase in steroid dose so as not to compromise procedure.

Watch at: https://youtu.be/-eJhDFbEIYY Sorry if this was shown before.

I think perhaps I should print out Maggie_b's post from yesterday, "High WBC but it doesn't matter" to give to my hemo/oncologist (along with other similar posts, articles, & webinar material about high WBC). Then again given my experience for the past 5+ years with him when it comes to other's opinions