When I returned to the hospital again on Monday the doctors are now urging me to begin treatment fairly soon. My WBC doubled from 68 in April 2016 to 118 in October and then 206 a few weeks ago. I don't remember my other blood numbers but no other concerns were mentioned. She said if we leave it another 6 months and it doubles again there could be serious consequences. I am 52, pretty fit and apart from swollen lymph nodes my health is fine no B symptoms at all. She has booked another CT scan and bone marrow biopsy then told me to think about two possible treatment options before I return in two weeks to discuss things further.
The two options they have given me are FCR and a trial which is Rituximub with Ibrutinib. I would be grateful for any thoughts or information on which one would be better for me.
The other thing that is worrying me is whether I am going to be able to work. I am lucky in some ways as I am self employed just a couple of days a week at the moment so will probably be able to work around my treatment. As I work in schools I get school holidays which means I could go the first round of treatment without working. The problem about schools is the doctor has advised me not to work with young children because of the risk of infection. I cannot afford to not work at all as I have a family to support but obviously health will have to come first. As I am a therapist I only work 1 to 1 with a 3 or 4 kids a day and I have my own room. I am wondering if I am really careful about cleanliness and not working with any poorly kids if I will be able to do it. I have kids of my own so am just as likely to catch bugs off them?
One more thing. Neil you said I should get a second opinion re treatment. How do I do this? will I go to another hospital via my GP. My current Hematology ward is MRI Manchester.
Thanks again everyone. Any input has always been helpful on here. Once I have had my first round of Chemo i'll hopefully be in a position to give advice to someone else in my position.