I am a caregiver for my wife who has follicular lymphoma. In November 2011, at the age of 65, my wife was diagnosed with follicular lymphoma Stage 4, Grade 3A. She had 50% bone marrow involvement. She is one of the 20% of follicular lymphoma patients who progress rapidly after treatments. In 3 years she progressed after R-CHOP (6 cycles), bendamustine/rituximab (6 cycles), and Ibrutinib (12 months). Then she took Idelalisib/rituximab as her fourth treatment. It worked great for 14 months then a PET scan showed she progressed again. She is now in an NIH CAR-T trial NCT02659943 was infused on March 2, 2016. She has been in complete remission for 13 months. Current CAR-T clinical trial data shows that once a follicular lymphoma patient achieves a complete remission they stay in complete remission.
CAR-T Clinical Trial: I am a caregiver... - Understanding Cli...
CAR-T Clinical Trial
![wmay13241 profile image](https://images.hu-production.be/avatars/d14f47ddf579160ff686f7facc9d2346_small@2x_100x100.jpg)
![](https://images.hu-production.be/post/post_4eccdbccedd1465aa8897bd4e36ff2c9_636285402601988000.jpg)
Written by
![wmay13241 profile image](https://images.hu-production.be/avatars/d14f47ddf579160ff686f7facc9d2346_small@2x_100x100.jpg)
wmay13241
To view profiles and participate in discussions please or .
Read more about...
1 Reply
•
![ciscrp_official profile image](https://images.hu-production.be/avatars/d80959c3c9f7f00f461cd3c1df269eff_small@2x_100x100.jpg)
ciscrp_officialPartner
Hi wmay13241 thank you for sharing your story! So glad to hear the good news regarding your wife's condition.
Not what you're looking for?
You may also like...
Four years & 70 anti-PD-1 infusions on clinical trial
Hey all - just finished my 70th anti-PD-1 infusion over 4 years on the KEYNOTE-002 trial; although...
Who pays for bad outcomes with Clinical Trials?
Most people who participate in clinical trials do so for either of the following reasons (or some...
Reservations about participating in Clinical Trials...
After reading the book "Bad Pharma" I developed some concerns about participating in Clinical...
stem cell
hi. my name is sue and I am 60 years old and live in the uk. I have bronchiectasis and am...
Cabozantinib Clinical Trial
Hi,
I'm a 60 yo male with Advanced PC. Diagnosed in 2012. Underwent Proton Therapy at MD...