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Great interview with Dr. Furman of Cornell. Important discussion of new treatments verse FCR. Very positive for all of us.
Watch at: https://youtu.be/-eJhDFbEIYY Sorry if this was shown before.
Watch at: https://youtu.be/-eJhDFbEIYY Sorry if this was shown before.
Hoffy
in
CLL Support
7 years ago
High WBC and it does matter to my doctor
I think perhaps I should print out Maggie_b's post from yesterday, "High WBC but it doesn't matter" to give to my hemo/oncologist (along with other similar posts, articles, & webinar material about high WBC). Then again given my experience for the past 5+ years with him when it comes to other's opinions
I think perhaps I should print out Maggie_b's post from yesterday, "High WBC but it doesn't matter" to give to my hemo/oncologist (along with other similar posts, articles, & webinar material about high WBC). Then again given my experience for the past 5+ years with him when it comes to other's opinions
gemit2000
in
CLL Support
7 years ago
Digestion
Hi, as I have recently posted I have just finished first session/week of FCR. I find this site extremely helpful and like having a friend who you can turn to for advice. I'm abit of an ignoramus as regards medication, I take what I'm told when I'm told. I have been having lots of nausea and awful
Hi, as I have recently posted I have just finished first session/week of FCR. I find this site extremely helpful and like having a friend who you can turn to for advice. I'm abit of an ignoramus as regards medication, I take what I'm told when I'm told. I have been having lots of nausea and awful
sallyplest
in
CLL Support
7 years ago
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Morning sickness .......
Hi all, I have Rheumatoid Vasculitis and am on sulfasalazine, prednisolone, hydroxychloroquine, gabapentin and
rituximab
infusions. I am still able to work but it takes me a good hour to get ready in the morning due to the aches and pains.
Hi all, I have Rheumatoid Vasculitis and am on sulfasalazine, prednisolone, hydroxychloroquine, gabapentin and
rituximab
infusions. I am still able to work but it takes me a good hour to get ready in the morning due to the aches and pains.
CHARLIE49
in
Vasculitis UK
7 years ago
Ibrutinib stopped - What treatment next ?
I am a 78 year old male living in the UK. Started treatment 3 years ago. Had two rounds of FCR which was stopped due to my bone marrow being wrecked. Managed to get on to Ibrutinib as a named patient via Dr Anna Schuh in Oxford. Now under the care of my local haematology consultant in Hereford. After
I am a 78 year old male living in the UK. Started treatment 3 years ago. Had two rounds of FCR which was stopped due to my bone marrow being wrecked. Managed to get on to Ibrutinib as a named patient via Dr Anna Schuh in Oxford. Now under the care of my local haematology consultant in Hereford. After
Haileybury
in
CLL Support
7 years ago
Doxycycline
I am on
rituximab
and having various frequent infections because of it, this one being a chest infection.
I am on
rituximab
and having various frequent infections because of it, this one being a chest infection.
joannebond360
in
LUPUS UK
7 years ago
At last!
It's been six weeks since my second infusion of
Rituximab
. I have now managed to stop taking painkillers as of the middle of last week. Seem to be improving daily.
It's been six weeks since my second infusion of
Rituximab
. I have now managed to stop taking painkillers as of the middle of last week. Seem to be improving daily.
Ellieellie
in
NRAS
7 years ago
Diagnosed with Panca Vasculitis, Rhumatoid, and Osteoarthritis
I took 3 treatments of cyclophosphamide and it caused nodules to pop up on my fingers so he stopped them and started me on the
Rituximab
. He gave me 2 treatments of it and then told me my Vasculitis was in remission.
I took 3 treatments of cyclophosphamide and it caused nodules to pop up on my fingers so he stopped them and started me on the
Rituximab
. He gave me 2 treatments of it and then told me my Vasculitis was in remission.
deebeau
in
Vasculitis UK
7 years ago
FCR, IBRUTINIB, VENETOCLAX what next...Stem Cell or CAR-T
Happy Easter everyone! So on this journey since Dec. 2010 and we can't seem to hit that remission "sweet spot" that we read about in the stats or trials - is it us or just the reality of how everyone's battle is unique in the world of CLL? We started V at the end of Feb. 2017 (as I posted our experience
Happy Easter everyone! So on this journey since Dec. 2010 and we can't seem to hit that remission "sweet spot" that we read about in the stats or trials - is it us or just the reality of how everyone's battle is unique in the world of CLL? We started V at the end of Feb. 2017 (as I posted our experience
NMMP
in
CLL Support
7 years ago
Trouble weaning off steroids
Then after several admissions into hospital, I was approved to go on biological infusion
Rituximab
back in October 2016. It has been about 4 months now since the infusions and blood tests show that
Rituximab
is working and so we have started weaning off the steroids again.
Then after several admissions into hospital, I was approved to go on biological infusion
Rituximab
back in October 2016. It has been about 4 months now since the infusions and blood tests show that
Rituximab
is working and so we have started weaning off the steroids again.
LydiaG
in
LUPUS UK
7 years ago
Rituximab infusion on Monday
Anyhow, on Monday I am having my first
Rituximab
infusion. ..it's a biologic drug. They are hoping it might save me a transplant in the future. At the moment my body attacks itself &is working it's way around organs.
Anyhow, on Monday I am having my first
Rituximab
infusion. ..it's a biologic drug. They are hoping it might save me a transplant in the future. At the moment my body attacks itself &is working it's way around organs.
madonbrew
in
Early CKD Support
7 years ago
Onwards and upwards
I started my first injection of
Rituximab
in early February. My skin has been very dry and this injection seemed to exacerbate it but it has now gone back to normal. I have no other symptoms and am now feeling like my old self.
I started my first injection of
Rituximab
in early February. My skin has been very dry and this injection seemed to exacerbate it but it has now gone back to normal. I have no other symptoms and am now feeling like my old self.
Hidden
in
Non Hodgkin's Lymphoma Friends
7 years ago
Chronic sinusitis following FCR?
My husband was diagnosed with CLL 6 years ago, Trisomy 12, a middle of the road but not common form. A year later he had FCR with great results but the remission lasted only 3 1/2 years. For the last year and a half he has had chronic sinusitis and for the last several months it has been serious. He
My husband was diagnosed with CLL 6 years ago, Trisomy 12, a middle of the road but not common form. A year later he had FCR with great results but the remission lasted only 3 1/2 years. For the last year and a half he has had chronic sinusitis and for the last several months it has been serious. He
Jls123
in
CLL Support
7 years ago
FCR and Bladder irritation
Hello All, I just thought I would pose a quick question to ask if these symptoms I have are common place or unrelated to FCR. I have just finished my 6th (and last) cycle of FCR just over a week ago. This last weekend I have started to need to go to toilet (pee) more often. I feel as
Hello All, I just thought I would pose a quick question to ask if these symptoms I have are common place or unrelated to FCR. I have just finished my 6th (and last) cycle of FCR just over a week ago. This last weekend I have started to need to go to toilet (pee) more often. I feel as
Rich316
in
CLL Support
7 years ago
Flying with Lupus/ITP
I was diagnosed with ITP and Lupus but as my medication is working for the Lupus and after having
rituximab
for the ITP last year I've now been discharged by the haematology department but I'm still seeing my specialist for Lupus.
I was diagnosed with ITP and Lupus but as my medication is working for the Lupus and after having
rituximab
for the ITP last year I've now been discharged by the haematology department but I'm still seeing my specialist for Lupus.
Sami1982
in
LUPUS UK
7 years ago
2nd episode of ITP - Question about speed of onset.
My current platelet count is a little over 200, initially it was 1 and then had prednisone, platelets, IVG and then a 4 week course of
Rituximab
administered.
My current platelet count is a little over 200, initially it was 1 and then had prednisone, platelets, IVG and then a 4 week course of
Rituximab
administered.
garyjacksteer
in
ITP Support Association
7 years ago
FCR lite for relapsed SLL
After having CR for 5 years, oncologist decided to start treatment in next few days. Primary driver is node size and weight loss. My 1st line of treatment was 6 cycles of FCR. Ibrunitib is available but it's very expensive. Probably this medicine will be in reach for common man in 2-3 years time. Finally
After having CR for 5 years, oncologist decided to start treatment in next few days. Primary driver is node size and weight loss. My 1st line of treatment was 6 cycles of FCR. Ibrunitib is available but it's very expensive. Probably this medicine will be in reach for common man in 2-3 years time. Finally
mag1309
in
CLL Support
7 years ago
Post FCR - stopping Aciclovir
I finished FCR just over 3 months ago. I actually only had 5 sessions as I had responded so well. For the first 6 weeks or so, I was on cloud nine, but then all my muscles started aching. I felt like an old woman when getting out of bed in the morning, or getting up from a chair. My GP said lots
I finished FCR just over 3 months ago. I actually only had 5 sessions as I had responded so well. For the first 6 weeks or so, I was on cloud nine, but then all my muscles started aching. I felt like an old woman when getting out of bed in the morning, or getting up from a chair. My GP said lots
Grannajan
in
CLL Support
7 years ago
Feeling worse after FCR treatment.
Anyone here had FCR treatment? I have post chemo questions. I have a question...post-chemo question. Did you feel mentally different? Some days I feel so down and so blah, it's hard to explain. I don't feel like myself. Like I strain to smile and put so much energy into smiling and it feels fake but
Anyone here had FCR treatment? I have post chemo questions. I have a question...post-chemo question. Did you feel mentally different? Some days I feel so down and so blah, it's hard to explain. I don't feel like myself. Like I strain to smile and put so much energy into smiling and it feels fake but
sunflwerchild
in
CLL Support
7 years ago
Bilimumab infusions
Starting bilimumab infusions soon for my SLE.Was having
rituximab
infusions but kept getting neutropenic after it.Anyone else having bilimumab?
Starting bilimumab infusions soon for my SLE.Was having
rituximab
infusions but kept getting neutropenic after it.Anyone else having bilimumab?
englishrose67
in
LUPUS UK
7 years ago
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