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Rituximab
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Rituximab vs abatacept-- any thoughts?
She suggested changing to
rituximab
or abatacept. Anyone here have experience with this change? Did you have good results?
She suggested changing to
rituximab
or abatacept. Anyone here have experience with this change? Did you have good results?
shareasmile
in
LUPUS UK
7 years ago
Rituximab
I am on long term steroids at the moment because nothing else seems to work but I have just got a new Consultant and she wants to put me on
Rituximab
infusions. Does anyone know if these work and what are the side effects.
I am on long term steroids at the moment because nothing else seems to work but I have just got a new Consultant and she wants to put me on
Rituximab
infusions. Does anyone know if these work and what are the side effects.
Bakbre
in
LUPUS UK
7 years ago
Steroids Damage
I thought the
Rituximab
infusion had caused me serious damage however it is looking more likely the damage has been caused by steroids. I have severe lung tissue damage, vocal cord and voice box damage. My weight is getting uncontrollable. My confidence and self esteem is so low.
I thought the
Rituximab
infusion had caused me serious damage however it is looking more likely the damage has been caused by steroids. I have severe lung tissue damage, vocal cord and voice box damage. My weight is getting uncontrollable. My confidence and self esteem is so low.
LSurtees
in
LUPUS UK
7 years ago
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Facet joint injections and tramadol 🤞🏻🤞🏻
I don't think the
rituximab
has kicked in yet which has not helped and lymph nodes are enlarged again . In the meantime i have been to see the consultant about my bulging discs and he has recommended 4 facet joint injections under x-ray guidance which i am going to have on Friday.
I don't think the
rituximab
has kicked in yet which has not helped and lymph nodes are enlarged again . In the meantime i have been to see the consultant about my bulging discs and he has recommended 4 facet joint injections under x-ray guidance which i am going to have on Friday.
weathervane
in
LUPUS UK
7 years ago
FCR after failing B/R?
I am 5 months post treatment with B/R and my ALC is moving up. My oncologist mentioned the possibility of FCR at some point. I am 72 years old and in good health. My question is shouldn't FCR be first line? Would you take FCR or Imbruvica? What are your thoughts? Thank you for your reply. Sue Atlanta
I am 5 months post treatment with B/R and my ALC is moving up. My oncologist mentioned the possibility of FCR at some point. I am 72 years old and in good health. My question is shouldn't FCR be first line? Would you take FCR or Imbruvica? What are your thoughts? Thank you for your reply. Sue Atlanta
SueVG
in
CLL Support
7 years ago
Chest pain update
I recently had my
rituximab
infusions and I have an appt at st thomas' in November but I can't deal with this pain much longer !
I recently had my
rituximab
infusions and I have an appt at st thomas' in November but I can't deal with this pain much longer !
Charlottelauren
in
LUPUS UK
7 years ago
Elevated Lymphocyte Count 4 Months After Bendamustine/Rituxin
Hello Members: In mid-June I finished 6 months of Bendamustine/Rituxin. I saw my onc today and my lymph nodes are elevated (5.7) saw her last month and they were also elevated(5.0) She is suggesting that I may want to have FCR or Imbruvica when I need treatment again. Right now I am on hold until January
Hello Members: In mid-June I finished 6 months of Bendamustine/Rituxin. I saw my onc today and my lymph nodes are elevated (5.7) saw her last month and they were also elevated(5.0) She is suggesting that I may want to have FCR or Imbruvica when I need treatment again. Right now I am on hold until January
SueVG
in
CLL Support
7 years ago
uti, cough, fever and other virus related symptoms
I was diagnosed Stage 4 SLL in December 2014 and started FCR the following March in 2015. The gap was due to my oncologist suddenly dying. This combo put me in remission for a year and a half. Came back full force (CT scan) in early 2017 and started Imbruvica then nodes went away again. My question:
I was diagnosed Stage 4 SLL in December 2014 and started FCR the following March in 2015. The gap was due to my oncologist suddenly dying. This combo put me in remission for a year and a half. Came back full force (CT scan) in early 2017 and started Imbruvica then nodes went away again. My question:
springie
in
CLL Support
7 years ago
Advice on Rituximab Infusions?
Hello Been a while since I posted but would be really grateful for some advice from anyone who has experienced
rituximab
infusions.
Hello Been a while since I posted but would be really grateful for some advice from anyone who has experienced
rituximab
infusions.
Galaxy2
in
Vasculitis UK
7 years ago
Port installed-Chemo Round1 starts Monday
Opted for the Portacath to receive my chemo (in Canada done via infusion) of FCR. The Port installation was done yesterday morning, so the afternoon was a little uncomfortable but today I am quite fine. I chose the Port after advice from my daughter, sisters and nieces (all nurses) when asking whether
Opted for the Portacath to receive my chemo (in Canada done via infusion) of FCR. The Port installation was done yesterday morning, so the afternoon was a little uncomfortable but today I am quite fine. I chose the Port after advice from my daughter, sisters and nieces (all nurses) when asking whether
Marie-54
in
CLL Support
7 years ago
Stay positive x
Predisolone no good, ivig no good , platelets at 9 .so starting
rituximab
, hopefully it will do the job. I want to get better for myself but more so for my husband and daughter who have been superb support. Anyway kind thoughts to you all and wish you a speedy recovery. X
Predisolone no good, ivig no good , platelets at 9 .so starting
rituximab
, hopefully it will do the job. I want to get better for myself but more so for my husband and daughter who have been superb support. Anyway kind thoughts to you all and wish you a speedy recovery. X
Olivia2812
in
ITP Support Association
7 years ago
Metojet dosage
I did have two sets of
Rituximab
infusions, but the improvement was minimal and I was completely wiped out for three months. I am now waiting for the funding to be approved for Tocilizumab. I have my concerns about that, but that's not what I'm leading up to here.
I did have two sets of
Rituximab
infusions, but the improvement was minimal and I was completely wiped out for three months. I am now waiting for the funding to be approved for Tocilizumab. I have my concerns about that, but that's not what I'm leading up to here.
Jora
in
NRAS
7 years ago
The Final Countdown
Hi All...tonight I accidentally stumbled onto this group. After reading several posts I didn't discover a post that mirrors my reality. On Labor Day September 2014, I noticed swelling on my chest. The touch was tender. I then made a visit to my primary care doctor. He examined my lumps and asked me
Hi All...tonight I accidentally stumbled onto this group. After reading several posts I didn't discover a post that mirrors my reality. On Labor Day September 2014, I noticed swelling on my chest. The touch was tender. I then made a visit to my primary care doctor. He examined my lumps and asked me
pilantd
in
CLL Support
7 years ago
Eltrombopag (responses in children ITP)
Prior to this she tried
rituximab
and prednisone with no success. Platelets had always been single figures since diagnosis in march 2015 (count was 12-16 with prednisone). Her platelet count has slowly increase over the months with her highest count being 44.
Prior to this she tried
rituximab
and prednisone with no success. Platelets had always been single figures since diagnosis in march 2015 (count was 12-16 with prednisone). Her platelet count has slowly increase over the months with her highest count being 44.
TayahC
in
ITP Support Association
7 years ago
Recovery time
My OH had his last (of 4) FCR treatments in August. He had not tolerated them well, so each session was less than the last. Haematologist says treatment has been 99% successful, and now just try to get on and live life as normal. He is definitely gaining in energy - back cycling regularly, needing
My OH had his last (of 4) FCR treatments in August. He had not tolerated them well, so each session was less than the last. Haematologist says treatment has been 99% successful, and now just try to get on and live life as normal. He is definitely gaining in energy - back cycling regularly, needing
Hidden
in
CLL Support
7 years ago
Starting FCR
as his WBC is high, so he's got to take the chemo tablets to lower them for next month so he's starting fludarabine and cyclophosphamide tomorrow morning via tablet at home, I was just wondering if this is normal that his
Rituximab
is delayed until next month?
as his WBC is high, so he's got to take the chemo tablets to lower them for next month so he's starting fludarabine and cyclophosphamide tomorrow morning via tablet at home, I was just wondering if this is normal that his
Rituximab
is delayed until next month?
Chelseaxx
in
CLL Support
7 years ago
FCR treatment
I've now received treatment, starting Dec 2016 for six rounds of FCR as part in a UK trial. I have been told I am in complete remission, which is great news, and a weight off my mind. I must have been more worried than I was able to admit, as I now feel able to get on with living again. Follow up in
I've now received treatment, starting Dec 2016 for six rounds of FCR as part in a UK trial. I have been told I am in complete remission, which is great news, and a weight off my mind. I must have been more worried than I was able to admit, as I now feel able to get on with living again. Follow up in
Barbarann
in
CLL Support
7 years ago
Ibrutinib & neuropathy?
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
Glees
in
CLL Support
7 years ago
DON'T FORGET TO GET YOUR FLU VACCINES & pneumococcal pneumonia or streptococcus pneumonia, Haemophilus influenza and staphylococcus aureus.
The new biologic medications (
rituximab
, orencia and Benlysta) can increase the risk of infection. Corticosteroids, including prednisone, increase the risk of infection. The higher the dose of corticosteroids you’re on, the longer you’re on the dose, the greater the risk of infection.
The new biologic medications (
rituximab
, orencia and Benlysta) can increase the risk of infection. Corticosteroids, including prednisone, increase the risk of infection. The higher the dose of corticosteroids you’re on, the longer you’re on the dose, the greater the risk of infection.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
"there has been a further reduction in the presence of the disease and limited evidence of any residual disease"
So said my consultant this week! 6 cycles of FCR totally worth it to get this news. No more blood thinning injections, and he also said that I would not need chemo again but would have Ibrutinib if I needed more treatment in the future. WBC still low so got to be careful, but definitely a good week.
So said my consultant this week! 6 cycles of FCR totally worth it to get this news. No more blood thinning injections, and he also said that I would not need chemo again but would have Ibrutinib if I needed more treatment in the future. WBC still low so got to be careful, but definitely a good week.
MattGGibson
in
CLL Support
7 years ago
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