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Rituximab
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Definitive diagnosis
The Haematologist did tell us that treatment may be some time away and the most likely first line treatment would be
Rituximab
. Back to watch and wait now until our next clinic appointment in three months time.
The Haematologist did tell us that treatment may be some time away and the most likely first line treatment would be
Rituximab
. Back to watch and wait now until our next clinic appointment in three months time.
Maryandallan
in
Non Hodgkin's Lymphoma Friends
7 years ago
Lupus nephritis
He was classed at a 4 for his kidneys and has been started on IV
rituximab
, had 3 pulses of IV methylpred and is on oral pred, mycopehalate, Adcal and ranitidine. His BP is roughly 90/45 average at the moment. His haemoglobing has risen to the dizzy heights of 77 from 70 on discharge!
He was classed at a 4 for his kidneys and has been started on IV
rituximab
, had 3 pulses of IV methylpred and is on oral pred, mycopehalate, Adcal and ranitidine. His BP is roughly 90/45 average at the moment. His haemoglobing has risen to the dizzy heights of 77 from 70 on discharge!
Deegraham
in
LUPUS UK
7 years ago
Imbruvica withdrawal Waldenstrom’s
Went through 5 cycles of chemo and
rituximab
. Had serious Allergic reaction’s to the ritux so got started on Imbruvica. I’ve had many side effects so the Dr. and I decided to try coming off to give my body a break. It’s been a week and have had tons of body aches and flu like symptoms.
Went through 5 cycles of chemo and
rituximab
. Had serious Allergic reaction’s to the ritux so got started on Imbruvica. I’ve had many side effects so the Dr. and I decided to try coming off to give my body a break. It’s been a week and have had tons of body aches and flu like symptoms.
Rmendez3
in
CLL Support
7 years ago
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The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults
Reimbursement for
rituximab
is limited to the NHS England 2013 Interim Clinical Commissioning Policy statement for
rituximab
in adult SLE patients (https://www.england.nhs.uk/wp-content/uploads/2013/09/a13-psa.pdf). SLE is a multisystem autoimmune disorder.
Reimbursement for
rituximab
is limited to the NHS England 2013 Interim Clinical Commissioning Policy statement for
rituximab
in adult SLE patients (https://www.england.nhs.uk/wp-content/uploads/2013/09/a13-psa.pdf). SLE is a multisystem autoimmune disorder.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
Just diagnosed
I don't what to think. The doctor said my FISH test is negative; no chromosomal damage. He is proposing FCR early treatment to the hospital tumor board based on my age of 55. I may lose my job and insurance soon. So if FCR is an option, I hope I can get it asap.
I don't what to think. The doctor said my FISH test is negative; no chromosomal damage. He is proposing FCR early treatment to the hospital tumor board based on my age of 55. I may lose my job and insurance soon. So if FCR is an option, I hope I can get it asap.
TXteacher
in
CLL Support
7 years ago
Golimumab (Simponi)
Has anyone got any recent experience with above biologic, I'm so desperate for it to work as my previous treatment (
rituximab
) had no effect. The information leaflet says it can take up to 12 weeks to work, has anyone had it work any quicker?
Has anyone got any recent experience with above biologic, I'm so desperate for it to work as my previous treatment (
rituximab
) had no effect. The information leaflet says it can take up to 12 weeks to work, has anyone had it work any quicker?
premierscfc
in
NRAS
7 years ago
Lenolidamide
Recently finished 5 months of Bendamustine/
Rituximab
infusions followed by 18 days of radiation. Oncologist is starting me on Lenalidamide (Revlamid) regimen in a week. Any information on side effects experienced with Lenalidamide would be very much appreciated.
Recently finished 5 months of Bendamustine/
Rituximab
infusions followed by 18 days of radiation. Oncologist is starting me on Lenalidamide (Revlamid) regimen in a week. Any information on side effects experienced with Lenalidamide would be very much appreciated.
Howie40
in
Lymphoma Canada
7 years ago
Venetoclax CLL 11q, Trisomy 12, MDS
Good day to everyone. I observed for a couple of weeks and felt the love. So I decided to post and share my story. Husband was Diagnosed with CLL with MDS in 2008. ( he’s now 50 ) WW until August 2011 FCR August 2011 -January 2012 - reached good #’s and he felt great until March 2015 when CLL came
Good day to everyone. I observed for a couple of weeks and felt the love. So I decided to post and share my story. Husband was Diagnosed with CLL with MDS in 2008. ( he’s now 50 ) WW until August 2011 FCR August 2011 -January 2012 - reached good #’s and he felt great until March 2015 when CLL came
Midgey_
in
CLL Support
7 years ago
Rituximab
Loads of things have failed, so having my first
Rituximab
infusion on Thursday, how should I expect to feel in the days following? I'm a big coward! Thanks in advance to the good folks out there.
Loads of things have failed, so having my first
Rituximab
infusion on Thursday, how should I expect to feel in the days following? I'm a big coward! Thanks in advance to the good folks out there.
Peterborough67
in
NRAS
7 years ago
Have Relapsed From FCR and looking for best choice for Round Two
Was diagnosed cll 6 yrs ago. At age 49 first time Id ever been to doctor in my life. Living in Canada. Never went back to Doctor for 4 yrs didn't want to take any non natural treatments. Finally heart pounding in ears so loud couldn't watch Tv without sound cranked up. Spleen so large I looked 8 months
Was diagnosed cll 6 yrs ago. At age 49 first time Id ever been to doctor in my life. Living in Canada. Never went back to Doctor for 4 yrs didn't want to take any non natural treatments. Finally heart pounding in ears so loud couldn't watch Tv without sound cranked up. Spleen so large I looked 8 months
CLLCOLIN
in
CLL Support
7 years ago
Update
Anyway I was started on
rituximab
treatment and had to continue with the steroids. Anyway all done consultant felt I may need one a week for six weeks. She booked four weeks to start with. Well low and behold, my platelets are at 64 ! So not having anymore ritux.
Anyway I was started on
rituximab
treatment and had to continue with the steroids. Anyway all done consultant felt I may need one a week for six weeks. She booked four weeks to start with. Well low and behold, my platelets are at 64 ! So not having anymore ritux.
Olivia2812
in
ITP Support Association
7 years ago
Monthly injections
But he is amazing and I'm feeling so much better despite being on loads of tablets and weekly
rituximab
infusions. My question is I notice that most people seem to be on 3 monthly injections, where as I have had the loading dose and now I am on monthly injections.
But he is amazing and I'm feeling so much better despite being on loads of tablets and weekly
rituximab
infusions. My question is I notice that most people seem to be on 3 monthly injections, where as I have had the loading dose and now I am on monthly injections.
HFox
in
Pernicious Anaemia Society
7 years ago
Belimumab?
HI all, i have been on
rituximab
for the past 2 years for lupus nephritis, but im still leaking protein. I have seen my rheumatologist today and she is going to see if i can have Belimumab. Ive read about it and there is some really scary side effects!
HI all, i have been on
rituximab
for the past 2 years for lupus nephritis, but im still leaking protein. I have seen my rheumatologist today and she is going to see if i can have Belimumab. Ive read about it and there is some really scary side effects!
Rach459
in
LUPUS UK
7 years ago
Avacopan trial update.
I have had the last of my weekly
Rituximab
infusions.... As I have lost 8kg in 6 weeks I decided I would celebrate with KFC!!
I have had the last of my weekly
Rituximab
infusions.... As I have lost 8kg in 6 weeks I decided I would celebrate with KFC!!
HFox
in
Vasculitis UK
7 years ago
Enlarged spleen
Quick update since my last post about spleen pain. I went for an ultrasound and my spleen size and weight has basically doubled. They've taken more bloods for profiling and prognosis, also getting a CT scan done on the 22nd. It's looking more likely I'll be getting treatment pretty soon, probably FCR
Quick update since my last post about spleen pain. I went for an ultrasound and my spleen size and weight has basically doubled. They've taken more bloods for profiling and prognosis, also getting a CT scan done on the 22nd. It's looking more likely I'll be getting treatment pretty soon, probably FCR
Daveyo
in
CLL Support
7 years ago
Post FCR treatment 3 months blood test just taken results lower then expected
Hi everyone! I am new to this site. I completed a 6 month cycle of FCR and I am now 3 months post treatment. I have been feeling good but have to make sure I do not over do it. Yesterday I went for my 3 month check up and had blood work. It did not go as well as expected. My white count is 1.3
Hi everyone! I am new to this site. I completed a 6 month cycle of FCR and I am now 3 months post treatment. I have been feeling good but have to make sure I do not over do it. Yesterday I went for my 3 month check up and had blood work. It did not go as well as expected. My white count is 1.3
Lindyver
in
CLL Support
7 years ago
Post-treatment results
My OH had 4 FCR treatments, each one reduced from the previous one because of his reactions (low platelets, fatigue). Last treatment was early August. Subsequent monthly blood tests show haemoglobin and platelet levels continuing to drop (10.3 down this month from 11.6; platelets 49 down from 52).
My OH had 4 FCR treatments, each one reduced from the previous one because of his reactions (low platelets, fatigue). Last treatment was early August. Subsequent monthly blood tests show haemoglobin and platelet levels continuing to drop (10.3 down this month from 11.6; platelets 49 down from 52).
Hidden
in
CLL Support
7 years ago
My Itchy skin
Hi I have CLL since Feb. 2015 and had 6 cycles of FCR . I was in remission for about a year . Ever since my second treatment of chemo I had all kind of skin issues like really itchy skin easy bruising rash that looks like shingles and ant bites that leaves a scar. Anybody have this symptom I want to
Hi I have CLL since Feb. 2015 and had 6 cycles of FCR . I was in remission for about a year . Ever since my second treatment of chemo I had all kind of skin issues like really itchy skin easy bruising rash that looks like shingles and ant bites that leaves a scar. Anybody have this symptom I want to
uncle2015
in
CLL Support
7 years ago
Rituximab vs abatacept-- After Enbrel fails
She suggested changing to
rituximab
or abatacept. Anyone here have experience with this change? Did you have good results?
She suggested changing to
rituximab
or abatacept. Anyone here have experience with this change? Did you have good results?
shareasmile
in
NRAS
7 years ago
Avacopan Trial
I have had
rituximab
which I have to have every Thursday for 4 weeks, and then I am either taking Avacopan or Prednisolone. I don't know which!!
I have had
rituximab
which I have to have every Thursday for 4 weeks, and then I am either taking Avacopan or Prednisolone. I don't know which!!
HFox
in
Vasculitis UK
7 years ago
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