Search
Search
About
Log in
Join
Experiences with
Richter's syndrome
Posts
Communities
3,354 public posts
Filter results
Unable to sleep
Hello friends. Poor sleep quality is getting to me. I go to bed tired but am unable to get off to sleep for hours...Last night I only had about one hour. The quality of sleep is also not the same. It's a very superficial sort of sleep, unsatisfying and restless. I take 13 mg of pred in the morning and
Hello friends. Poor sleep quality is getting to me. I go to bed tired but am unable to get off to sleep for hours...Last night I only had about one hour. The quality of sleep is also not the same. It's a very superficial sort of sleep, unsatisfying and restless. I take 13 mg of pred in the morning and
AliDeJ
in
PMRGCAuk
6 years ago
Horrible Leg pain following Rituxan
Hi everyone I was wondering if anyone has had an issue with increased pain following their Rituxan infusions? I am in excruciating pain from my groin to my toes on the right side and my muscles are stiff. I don’t know what it is. I’ve taken my Tylenol ER, BC Arthritis, Dexamethasone today and nothing
Hi everyone I was wondering if anyone has had an issue with increased pain following their Rituxan infusions? I am in excruciating pain from my groin to my toes on the right side and my muscles are stiff. I don’t know what it is. I’ve taken my Tylenol ER, BC Arthritis, Dexamethasone today and nothing
Maat2002
in
NRAS
6 years ago
Lyrica
I have read some of your posts about Lyrica and am not feeling very positive about trying it. My neurologist suggested it since I’m to not able to tolerate pramipexole and sinemet. I need some feedback. One of the side effects I’ve had from DAs is extreme depression/anxiety. I am at the end of my
I have read some of your posts about Lyrica and am not feeling very positive about trying it. My neurologist suggested it since I’m to not able to tolerate pramipexole and sinemet. I need some feedback. One of the side effects I’ve had from DAs is extreme depression/anxiety. I am at the end of my
Yakester
in
Restless Legs Syndrome
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Opioids
I have been off pramipexole for close to two weeks. Then my (new) neurologist started me on carbadopa levodopa which caused extreme anxiety so only took for 4 days. I’m totally miserable. I am wondering what opioids are used and how much. I’m trying to gather information for doctors. Also, does
I have been off pramipexole for close to two weeks. Then my (new) neurologist started me on carbadopa levodopa which caused extreme anxiety so only took for 4 days. I’m totally miserable. I am wondering what opioids are used and how much. I’m trying to gather information for doctors. Also, does
Yakester
in
Restless Legs Syndrome
6 years ago
Bumetanide
Following my recent heart surgery which included an ablation I have been prescribed Bumetanide. Is anybody else taking this diaretic . I am left with a very dry mouth, eyes and flaky skin and have noticed that it is affecting my gums. I frightened of losing my teeth! As well as everything else that's
Following my recent heart surgery which included an ablation I have been prescribed Bumetanide. Is anybody else taking this diaretic . I am left with a very dry mouth, eyes and flaky skin and have noticed that it is affecting my gums. I frightened of losing my teeth! As well as everything else that's
Becksagogo
in
AF Association
6 years ago
Sore , dry throat
Hi, I'm hypo, on 100 mg Levo thyroxine, gluten free. I have be having sore, dry sensation in my throat when I've worked too much or am anxious, also brain fog. Is this anything to do with Hashimotos.🌻🌻🌻🌻🌻
Hi, I'm hypo, on 100 mg Levo thyroxine, gluten free. I have be having sore, dry sensation in my throat when I've worked too much or am anxious, also brain fog. Is this anything to do with Hashimotos.🌻🌻🌻🌻🌻
geegee888
in
Thyroid UK
6 years ago
Prostap 3 DCS
How’s everyone doing? Two weeks ago I took my first dose of the Prostap 3 DCS and I was told that my next cycle will come. Anyone experiencing mood swings and really bad pains in the stomach?
How’s everyone doing? Two weeks ago I took my first dose of the Prostap 3 DCS and I was told that my next cycle will come. Anyone experiencing mood swings and really bad pains in the stomach?
MeshaW
in
Endometriosis UK
6 years ago
Restless legs after a total knee replacement
2014 I had a right total knee replacement about a year later I developed rls.I have never had rls before. Its been almost 4 years now since the surgery and really wish I would have never had it if I would have known what was to come.Ive read people do get rls after the surgery but it doesn't last 4 years.Is
2014 I had a right total knee replacement about a year later I developed rls.I have never had rls before. Its been almost 4 years now since the surgery and really wish I would have never had it if I would have known what was to come.Ive read people do get rls after the surgery but it doesn't last 4 years.Is
viviansmith
in
Restless Legs Syndrome
6 years ago
One more step closer to our dream.
We had an appointment today with the nurse in our clinic. We have decided to go with the CGT screening and will hopefully have it done in Spain when we go in Sept for my partner to 'deposit' his sample. The nurse thinks it could be cheaper over there 👍 My partner needs his blood tests to have been done
We had an appointment today with the nurse in our clinic. We have decided to go with the CGT screening and will hopefully have it done in Spain when we go in Sept for my partner to 'deposit' his sample. The nurse thinks it could be cheaper over there 👍 My partner needs his blood tests to have been done
Hope4usall
in
Fertility Network UK
6 years ago
Relief at last?
I am a 71 year old woman and have suffered from RLS since my 20s....when I was pregnant..but my mother also had RLS. I have tried everything..recently copper bracelets, giving up caffeine, alcohol-- taking Valerian, magnesium, lying down with legs up, exercises etc..Some days I am ok but others it is
I am a 71 year old woman and have suffered from RLS since my 20s....when I was pregnant..but my mother also had RLS. I have tried everything..recently copper bracelets, giving up caffeine, alcohol-- taking Valerian, magnesium, lying down with legs up, exercises etc..Some days I am ok but others it is
Allyp69
in
Restless Legs Syndrome
6 years ago
Tried EVERYTHING, and now...
EVERYTHING means just that, medication, body work, head trips...Just returned from a trip to Johns Hopkins Hospital where a Dr. Paul Allen's research showed excess glutamate in the thalamus of the brain is the etiology of the pathology of WED. Very SADLY the treatment from JHH is more pharmaceuticals
EVERYTHING means just that, medication, body work, head trips...Just returned from a trip to Johns Hopkins Hospital where a Dr. Paul Allen's research showed excess glutamate in the thalamus of the brain is the etiology of the pathology of WED. Very SADLY the treatment from JHH is more pharmaceuticals
auntiesioux
in
Restless Legs Syndrome
6 years ago
Need advice
Hi lovely people I just need some advice regarding my ultrasound which was done in end of June this year they found one 10 mm noudle on right side lobe and my thyroid is mildly enlarged radiologist confirmed thyroiditis again this is the 2nd time through ultrasound they said thyroiditis I had an appointment
Hi lovely people I just need some advice regarding my ultrasound which was done in end of June this year they found one 10 mm noudle on right side lobe and my thyroid is mildly enlarged radiologist confirmed thyroiditis again this is the 2nd time through ultrasound they said thyroiditis I had an appointment
Samy3
in
Thyroid UK
6 years ago
Black cohosh - have you tried it?
Wondering if anyone has tried black cohosh to promote ovulation /pregnancy either with or without clomid. I'm hoping to start clomid in a months time but will black cohosh do me any harm /good in trying it this month? I know not to take it after ovulation because its harmful to pregnancy but have read
Wondering if anyone has tried black cohosh to promote ovulation /pregnancy either with or without clomid. I'm hoping to start clomid in a months time but will black cohosh do me any harm /good in trying it this month? I know not to take it after ovulation because its harmful to pregnancy but have read
FakeHappy
in
Fertility Network UK
6 years ago
New medication
Hi there, I’ve recently been prescribed Glyceryl Trinitrate (Deponit) patches & Hydroxychloroquine (tablets) for my limited cutaneous systemic sclerosis after various previous meds not working. Has anyone else used these? Any success? Many thanks in advance for your replies 😊
Hi there, I’ve recently been prescribed Glyceryl Trinitrate (Deponit) patches & Hydroxychloroquine (tablets) for my limited cutaneous systemic sclerosis after various previous meds not working. Has anyone else used these? Any success? Many thanks in advance for your replies 😊
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Holiday concerns
Hello All, i am new here and I am after a little adviceplease. I have been eating flaxseed everyday for the last 7 weeks and after suffering years of constipation have finally got my bowels into regular rhythm.... each week just gets better and better! I also eat a good amount of fruits and vegetables
Hello All, i am new here and I am after a little adviceplease. I have been eating flaxseed everyday for the last 7 weeks and after suffering years of constipation have finally got my bowels into regular rhythm.... each week just gets better and better! I also eat a good amount of fruits and vegetables
C316
in
IBS Network
6 years ago
Returning to work advice
Dear all I’m looking for some advice I’ve been off work since Feb 2018 with fatigue , joint pain , nerve pain , dry eyes & mouth . I’ve had numerous test and have seen a Rheumatologist privately . He ruled out lupus as all blood NAD . He suggested I had Sjogrens . I’m currently awaiting the results
Dear all I’m looking for some advice I’ve been off work since Feb 2018 with fatigue , joint pain , nerve pain , dry eyes & mouth . I’ve had numerous test and have seen a Rheumatologist privately . He ruled out lupus as all blood NAD . He suggested I had Sjogrens . I’m currently awaiting the results
Angelamarston1963
in
LUPUS UK
6 years ago
Long protocol
Hi all I am due to start long protocol later this month, having had an unsuccessful short protocol/FET in 2017. I am somewhat concerned about the impact of medication (Prostap and Norethisterone) on me, before I go on to ovarian stimulation (Bemfola/Menopur), and the general ups and downs of the treatment
Hi all I am due to start long protocol later this month, having had an unsuccessful short protocol/FET in 2017. I am somewhat concerned about the impact of medication (Prostap and Norethisterone) on me, before I go on to ovarian stimulation (Bemfola/Menopur), and the general ups and downs of the treatment
Esme78
in
Fertility Network UK
6 years ago
Restart pramipexole?
I have an appointment next week with a neurologist. I have just weaned off pramipexole due to augmentation. I'm a mess. 2 hours sleep last night. My backup drug, hydrocodone is not working. I don’t want to overdose on that. Should I take some pramipexole tonight and/or any night until my appointment
I have an appointment next week with a neurologist. I have just weaned off pramipexole due to augmentation. I'm a mess. 2 hours sleep last night. My backup drug, hydrocodone is not working. I don’t want to overdose on that. Should I take some pramipexole tonight and/or any night until my appointment
Yakester
in
Restless Legs Syndrome
6 years ago
Horizant
How much horizant is usually given. Just tried my 1st night with it. Saw no improvement....does it take awhile for good results to kick in? I'm still on 6mg ropinirole as well. Finally got an appt at mass general with a dr winkleman..... not until march!! Busy, popular specialist but i need help before
How much horizant is usually given. Just tried my 1st night with it. Saw no improvement....does it take awhile for good results to kick in? I'm still on 6mg ropinirole as well. Finally got an appt at mass general with a dr winkleman..... not until march!! Busy, popular specialist but i need help before
tweedy66
in
Restless Legs Syndrome
6 years ago
Vascular EDS and Angina Bullosa Haemorrhagica
I have recently read that there is a connection between Angina bullosa haemorrhagica and vascular EDS. All I know so far is that I've been getting loads of ABH and I'm hypermobile in many joints, along with other EDS symptoms present. Does anyone have any information on this at all please? Thank you.
I have recently read that there is a connection between Angina bullosa haemorrhagica and vascular EDS. All I know so far is that I've been getting loads of ABH and I'm hypermobile in many joints, along with other EDS symptoms present. Does anyone have any information on this at all please? Thank you.
Saassii
in
Ehlers-Danlos Support UK
6 years ago
1
...
97
98
99
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1497 results
Fertility Network UK
360 results
PMRGCAuk
137 results
View top 10 communities
Sort by
Most Relevant
Newest