Following my recent heart surgery which included an ablation I have been prescribed Bumetanide.
Is anybody else taking this diaretic . I am left with a very dry mouth, eyes and flaky skin and have noticed that it is affecting my gums. I frightened of losing my teeth! As well as everything else that's going on
Sorry Becks, I have no knowledge of Bumetanide but why not ring your dentist......hope you are recovering OK otherwise, best wishes
Ps. Dehydration is a major problem with heart issues. I’m not medically trained but wonder if you should be drinking more water but this needs to be checked with your doctor....bit of a chicken and egg situation!
Yes they have me on a water restriction but I fear I am turning into a snake shedding my skin! It is very much a chicken and egg situation. I will talk to my unfortunately named "heart failure nurse" and see whether things may improve.
How much water intake are you allowed per day. I have AF and HF and I found the amount allowed was not enough for me. I do not know the drug you refer to and I am lucky that I do not have much of a problem with fluid retention now. When I first was diagnosed, I ended up in hospital with fluid retention (over 2 stone in fluid) I was on furosemide daily but after a year I stopped it and now only take it when required, my cardio was against this and my HF nurse was for it! The reason I wanted to sop taking it daily is that furosemide does not entirely agree with me and tends to make my heart rate go up. I tend to drink regularly throughout the day, always have a glass of water close by or a bottle of water when out. As mentioned above perhaps contact your dentist to see if they can help. I was on Spiro(can not remember rest of it's name) a combined water and heart tablet, that gave me a very dry mouth and dry eyes. I had to stop that as I have Glaucoma and it was affecting my eyes badly.
Cassie
Thank you Cassie for your response. I am limited to 2 litres. I don't drink much in the way of tea or coffee but I sip water all day. I find it helps raise my otherwise low blood pressure. Like you I get dry eyes and mouth and my skin is flaking even with moisturiser. I hope I am not on it for too long but it is stopping the water retention in my feet legs and lungs.
I have been on a diuretic for about 8 years and Bumetanide for about 4. I have absolutely no restriction on liquid intake but I hate the diuretics as they play hell with QoL and with travelling. I now take it about every 3 days but more often if my oedaema flares up. Today is what I call a tablet day, so cant make phone calls that might last a long time, no visitors unless I know them well, no going out and the frequent toilet visits for about 6 hours.
Oh Barb thank you for your response. Whilst I appreciate that they are doing me the power of good I am taking 4 daily and all I seem to do day and night is pee. The hope of returning to work is slowly fading and as you say QOL is important and what is the alternative.
4 all at one go? How many mgs?
Two at eight and two at 12. I can't remember the dosage (I take so many tablets every dsy) I do need to go back in to have more done to the Mitral valve so hopefully after that I should be able to cut down.
We did try to lower the dose and just take 1 at 12 instead of 2 but my legs ankles and feet swelled too much.
I do hope that you can soon cut back. That's no life you have there. Please let your consultant know how its affecting you. I think that sometimes they don't consider that.
76 years old with A F
shortness of breath
3% Afib burden and proposed medication
