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Richter's syndrome
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Food getting stuck, is this the start?
Hi all I’ve limited cutaneous systemic sclerosis, I have severe secondary Raynauds, Telangiectasia, acid reflux, slight tightening of the skin mostly my hands, but no internal involvement yet thank goodness! Whenever I’ve been asked about swallowing difficulties, I’ve always just thought they meant problem
Hi all I’ve limited cutaneous systemic sclerosis, I have severe secondary Raynauds, Telangiectasia, acid reflux, slight tightening of the skin mostly my hands, but no internal involvement yet thank goodness! Whenever I’ve been asked about swallowing difficulties, I’ve always just thought they meant problem
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Dr Marty Hinz amino acid protocol
Hi, has anyone tried amino acids for their restless leg syndrome? Or Dr. Hinz amino acid protocol? I have my son on some of his suggestions already but not all (Eg l dopa), but I’m interested in the urine testing he does for this Thanks!
Hi, has anyone tried amino acids for their restless leg syndrome? Or Dr. Hinz amino acid protocol? I have my son on some of his suggestions already but not all (Eg l dopa), but I’m interested in the urine testing he does for this Thanks!
Elizab32
in
Restless Legs Syndrome
6 years ago
Plastic surgery
15 years ago I had a breast augmentation. I had never even heard of Hughes back then or worried about my health. I was young healthy etc. I am now petrified as I know my implants need to be replaced ( they only have a certain shelf life). Has anyone on here had a surgical procedure done? I know it shouldn
15 years ago I had a breast augmentation. I had never even heard of Hughes back then or worried about my health. I was young healthy etc. I am now petrified as I know my implants need to be replaced ( they only have a certain shelf life). Has anyone on here had a surgical procedure done? I know it shouldn
Kittybaker
in
Hughes Syndrome APS Forum
6 years ago
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Hypothyroid b12 deficienct !!
Am 29 unmarried hypothyroid and on eltroxin 50 mcg , and my b12 blood report My value is 220 Normal : 211 - 911 pg/ml Doctor prescribed this tablet , Can it be taken ? Should I after food or before food ??? It's mentioned as shell contains parabens , am afraid pls reply...
Am 29 unmarried hypothyroid and on eltroxin 50 mcg , and my b12 blood report My value is 220 Normal : 211 - 911 pg/ml Doctor prescribed this tablet , Can it be taken ? Should I after food or before food ??? It's mentioned as shell contains parabens , am afraid pls reply...
Hidden
in
Pernicious Anaemia Society
6 years ago
God is good
Hi everyone i have other question I got good news about my father. We got a call from his doctor just the other day. Said good news your father is fully up and he is fully up he responds to me doctor asks him can u please move your Left hand and he did so doctor said good move your right hand and he
Hi everyone i have other question I got good news about my father. We got a call from his doctor just the other day. Said good news your father is fully up and he is fully up he responds to me doctor asks him can u please move your Left hand and he did so doctor said good move your right hand and he
Needgodshelp
in
ICUsteps
6 years ago
Eye fatigue
Does anyone else get heavy, fatigued eyes when not mediated correctly? It’s more than just dry eye, but heavy, sore, extremely fatigued and achy eyes that sometimes make you feel headachey? When they’re really bad they actually make me feel quite unwell. I’ve trief all the drops- natural etc to no avail
Does anyone else get heavy, fatigued eyes when not mediated correctly? It’s more than just dry eye, but heavy, sore, extremely fatigued and achy eyes that sometimes make you feel headachey? When they’re really bad they actually make me feel quite unwell. I’ve trief all the drops- natural etc to no avail
Dee8686
in
Thyroid UK
6 years ago
Worried and uncertain
Hi all. As some of u may know I am expecting to miscarry soon. I am heart broken but starting to come to terms with it ish. Def lot of ok and downs. What struggling with is the not knowing when it or if it may happen naturally. No signs at mo. Going away today too and so scared it may happen on journey
Hi all. As some of u may know I am expecting to miscarry soon. I am heart broken but starting to come to terms with it ish. Def lot of ok and downs. What struggling with is the not knowing when it or if it may happen naturally. No signs at mo. Going away today too and so scared it may happen on journey
Dreamingofbaby
in
Fertility Network UK
6 years ago
Interproximal gaps in teeth..side effect of dopamine drug?
Hi, I haven't been on the site for a while because the RLS is better. However I have interproximal gaps at the top of and in-between my teeth. Does anyone know if this is a side effect ? I'm on Ropinerole, metoprolol, Xanax, Bupropion, Levothyroxine.Is it a side effect from a drug, overbite,grinding
Hi, I haven't been on the site for a while because the RLS is better. However I have interproximal gaps at the top of and in-between my teeth. Does anyone know if this is a side effect ? I'm on Ropinerole, metoprolol, Xanax, Bupropion, Levothyroxine.Is it a side effect from a drug, overbite,grinding
Tazmania1
in
Restless Legs Syndrome
6 years ago
I did it!
Having seen ep and being told to stop Nebivolol and being given 100 of Flecainide as a PIP, I immediately started having several episodes of AF at night. I was anxious about taking the Flecainide as nobody had said have the first tablet monitored. Last night AF started again and no point going to A
Having seen ep and being told to stop Nebivolol and being given 100 of Flecainide as a PIP, I immediately started having several episodes of AF at night. I was anxious about taking the Flecainide as nobody had said have the first tablet monitored. Last night AF started again and no point going to A
Hidden
in
AF Association
6 years ago
Casualty Episode, Saturday night!
The conditions of fibromyalgia, EDS, POTS, hypermobility all featured on prime time TV!! 💥
The conditions of fibromyalgia, EDS, POTS, hypermobility all featured on prime time TV!! 💥
sing123sleep
in
Ehlers-Danlos Support UK
6 years ago
My fibro story
Hello everyone! today is my first day here. I have fibromyalgia, spinal stenosis and degenerative disc disease. I'm really glad to have found this forum.
Hello everyone! today is my first day here. I have fibromyalgia, spinal stenosis and degenerative disc disease. I'm really glad to have found this forum.
ashimahimsa
in
Fibromyalgia Action UK
6 years ago
Pramipexole and connection of RLS to Parkinsons
I have taken ropinirole for a few years but now find that they don't work as well as they did and I frequently need to take more than the maximum dose daily. My GP has now prescribed pramipexole, after consulting with a neurologist. I am worried about the side effects, and also that I will only take
I have taken ropinirole for a few years but now find that they don't work as well as they did and I frequently need to take more than the maximum dose daily. My GP has now prescribed pramipexole, after consulting with a neurologist. I am worried about the side effects, and also that I will only take
Suebeloo
in
Restless Legs Syndrome
6 years ago
New here, PCOS, need supplementary medicine suggestions
Hi, I have PCOS, my OBGYN already put me on Metformin Hydrochloride 1 gm, Letrozole and Folic Acid. I want to start below supplementary medicines on top of what I'm already taking. Can anyone advice? 1. Paba 2. Myo-Inositol 3. D Chiro Inositol 4. Should I go for Pregnitude which contains Folic
Hi, I have PCOS, my OBGYN already put me on Metformin Hydrochloride 1 gm, Letrozole and Folic Acid. I want to start below supplementary medicines on top of what I'm already taking. Can anyone advice? 1. Paba 2. Myo-Inositol 3. D Chiro Inositol 4. Should I go for Pregnitude which contains Folic
beamom
in
Fertility Network UK
6 years ago
TRAMADOL
After reading many many posts on this site, I have formed the consensus that most of you are either taking or have taken Tramadol as a med for RLS. Unfortunately down here in Oz, the medical practitioners I have seen have been reluctant to prescribe this for me. Are there any people on this site from
After reading many many posts on this site, I have formed the consensus that most of you are either taking or have taken Tramadol as a med for RLS. Unfortunately down here in Oz, the medical practitioners I have seen have been reluctant to prescribe this for me. Are there any people on this site from
Phogan
in
Restless Legs Syndrome
6 years ago
Dipyridamole Treatment Update
I posted a few weeks ago that I was going to try this drug following a small study which found it helpful for RLS sufferers. Previously I was using pregabalin (200mg) and Kratom to treat my rls. Although I got sleep on that regime, I felt really dopey and ‘druggy’ during the day. I titrated up gradually
I posted a few weeks ago that I was going to try this drug following a small study which found it helpful for RLS sufferers. Previously I was using pregabalin (200mg) and Kratom to treat my rls. Although I got sleep on that regime, I felt really dopey and ‘druggy’ during the day. I titrated up gradually
involuntarydancer
in
Restless Legs Syndrome
6 years ago
Feeling frustrated and I feel lazy
Hi all, I feel I am being so lazy. I can't stay awake in the day. I try and try to stay awake but nod off. I don't get dressed until the afternoon and feel I am being lazy. I have no energy whatsoever. When I do feel a bit more lively, I go for a walk to a park with my friend but suffer afterwards. I
Hi all, I feel I am being so lazy. I can't stay awake in the day. I try and try to stay awake but nod off. I don't get dressed until the afternoon and feel I am being lazy. I have no energy whatsoever. When I do feel a bit more lively, I go for a walk to a park with my friend but suffer afterwards. I
Mandypandy1969
in
Fibromyalgia Action UK
6 years ago
Chronic fatigue trial results 'not robust', new study says
Just seen this article on the BBC News site - I imagine there will be similar on other sites.
[i]Chronic fatigue trial results 'not robust', new study says[/i]
[i]Fresh analysis of a controversial study, which recommended exercise and psychological therapy for people with chronic fatigue syndrome
Just seen this article on the BBC News site - I imagine there will be similar on other sites.
[i]Chronic fatigue trial results 'not robust', new study says[/i]
[i]Fresh analysis of a controversial study, which recommended exercise and psychological therapy for people with chronic fatigue syndrome
helvella
Thyroid UK
in
Thyroid UK
6 years ago
Wean off of Ropinirole?
Hello, I'm new here.....I just happened to find this website today, and it appears to be a helpful one! I have quite a few health issues, but the most recent one has been extreme dryness of the lips, mouth, nasal passages, and throat. It started back around Nov 1, 2017. At first I thought it was
Hello, I'm new here.....I just happened to find this website today, and it appears to be a helpful one! I have quite a few health issues, but the most recent one has been extreme dryness of the lips, mouth, nasal passages, and throat. It started back around Nov 1, 2017. At first I thought it was
jase318
in
Restless Legs Syndrome
6 years ago
New medication with itching side effects!!
Hello. I’ve recently been given Dihydrocodeine for my restless leg,I was on co codamol,had tried Amitriptyline which had made it worse and have been given quinine. Last night was a bad night again! I’ve been prescribed 30mg Dihydrocodeine 4 times a day when required. Had to take the full 4 over time
Hello. I’ve recently been given Dihydrocodeine for my restless leg,I was on co codamol,had tried Amitriptyline which had made it worse and have been given quinine. Last night was a bad night again! I’ve been prescribed 30mg Dihydrocodeine 4 times a day when required. Had to take the full 4 over time
Kells22
in
Restless Legs Syndrome
6 years ago
Antidepressant to wean off Pramipexole???
I saw my GP yesterday to discuss help with weaning off Pramipexole. I gave her a list of the various meds I had tried over the last few years with no success! She had given me Tramadol before but it does nothing for me...it does not help with pain nor RLS for me. I asked if I could try Methadone as
I saw my GP yesterday to discuss help with weaning off Pramipexole. I gave her a list of the various meds I had tried over the last few years with no success! She had given me Tramadol before but it does nothing for me...it does not help with pain nor RLS for me. I asked if I could try Methadone as
lbrosa
in
Restless Legs Syndrome
6 years ago
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