Dear all
I’m looking for some advice
I’ve been off work since Feb 2018 with fatigue , joint pain , nerve pain , dry eyes & mouth . I’ve had numerous test and have seen a Rheumatologist privately . He ruled out lupus as all blood NAD . He suggested I had Sjogrens . I’m currently awaiting the results of the lip biopsy (although I’m unsure why they call it that as they actually remove silivary glands !)
I have been feeling much better over recent weeks and now feel well enough to return to work (albeit a phased return )
It was agreed with HR last week that I would see the OH Dr before my return on 4th September . At this meeting I thought I would have lip biopsy results by then . At the hospital appt on Friday I was told there was a 6-8 week wait for results (due to a backlog) I informed my HR dept and they now want to postpone my OH drs appt until I get the results - I’m upset by this and wondered if anyone here has had a similar problem when returning to work before a diagnosis is given ?
My thoughts are that my feeling much better , no fatigue (increase in thyroxine and addition of Vit D ) , joint pain now well managed with tramadol , nerve pain gone with using CBD oil .sleeping pattern much improved . Eye drops & extra fluoride toothpaste etc - should be the main reason why I’m fit for work not a diagnosis !! . I’m certain my HR department don’t understand the nature of auto immune conditions especially about flares but um struggling to convince them that I’m fit to work .
The delay in the lip biopsy results looks like I won’t be able to Return to work until end sept/Oct now - and then the is the wait for OH dr appt , notes to get from GP to them etc - and after all that I may still not have a diagnosis !! - I think this is very unfair especially as I’m now out of sick pay .
Any comments, suggestions or advice would be welcome