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Looking for guidance on RLS and Parkinson's Management
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
gardening57
in
Restless Legs Syndrome
11 months ago
Supplements for arthritis and rivaoxaban
Hi all My husband has paroxysmal AF and a pacemaker takes digoxin and Rivaoxaban. He has slight arthritis in both knees(too much playing hockey in his younger days!) and not bad enough to take painkillers all the time. Bothers him the most after sitting for a while and then moving again. Before his
Hi all My husband has paroxysmal AF and a pacemaker takes digoxin and Rivaoxaban. He has slight arthritis in both knees(too much playing hockey in his younger days!) and not bad enough to take painkillers all the time. Bothers him the most after sitting for a while and then moving again. Before his
Janau
in
AF Association
1 year ago
Advice please
on Rituximab (last single infusion Jan) and had a toe op yesterday to remove pins inserted years ago. Been sent home with painkillers. They obviously tell u the things that could happen post op…infection etc. I forgot to ask if mayb I should take antibiotics now…just in case. Of course its Bank
on Rituximab (last single infusion Jan) and had a toe op yesterday to remove pins inserted years ago. Been sent home with painkillers. They obviously tell u the things that could happen post op…infection etc. I forgot to ask if mayb I should take antibiotics now…just in case. Of course its Bank
Evie3
in
NRAS
1 year ago
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Do I still have Endometriosis?
This probably sounds bizarre and silly but I'm struggling with the concept that my endometriosis is back or never went away in the first place. I had excision surgery back in 2021 and was it success. Doctor said he got rid of it all and he wouldn't see me again. I took this to mean I had Endometriosis
This probably sounds bizarre and silly but I'm struggling with the concept that my endometriosis is back or never went away in the first place. I had excision surgery back in 2021 and was it success. Doctor said he got rid of it all and he wouldn't see me again. I took this to mean I had Endometriosis
Rock-Cat
in
Endometriosis UK
1 year ago
leg weakness with prolapse
Hi. I have been suffering from incontinence back pain, weak legs, very painful to have sex for years at least 12 if not more. I was always very fit. I have two sons who I played squash with swam 100 lengths of our local pool every morning before going to work in my full time job where I lifted heavy
Hi. I have been suffering from incontinence back pain, weak legs, very painful to have sex for years at least 12 if not more. I was always very fit. I have two sons who I played squash with swam 100 lengths of our local pool every morning before going to work in my full time job where I lifted heavy
01269JJ
in
Pelvic Pain Support Network
1 year ago
Support letter from rheumatologist, for ill health retirement for fibromyalgia and depression.
Hi , Im 56 years old and have had fibromyalgia for 20 years , I was diagnosed 11 years ago by a rheumatologist in Sheffield . I am a teacher and over the last 7 years I have had reasonable work adjustments made , in addition to reducing my working hours to 15 hours a week, 5 mornings only. Since the
Hi , Im 56 years old and have had fibromyalgia for 20 years , I was diagnosed 11 years ago by a rheumatologist in Sheffield . I am a teacher and over the last 7 years I have had reasonable work adjustments made , in addition to reducing my working hours to 15 hours a week, 5 mornings only. Since the
RaniM
in
Fibromyalgia Action UK
1 year ago
My first post: diagnostic laparoscopy didn't find anything but the horrible pain is still there
Since then my period had changed, less blood, less pelvic
pain
, but more back and sharp
rectal
pain
(Checked for hemorroids but nothing). I’d say though that the horrible pain went away. Then my gp sent me for a gynaecology visit which was only a chat not a visit.
Since then my period had changed, less blood, less pelvic
pain
, but more back and sharp
rectal
pain
(Checked for hemorroids but nothing). I’d say though that the horrible pain went away. Then my gp sent me for a gynaecology visit which was only a chat not a visit.
Drawing_82
in
Endometriosis UK
1 year ago
trying to get a diagnosis for fibromialgia
Hi I'm suffering with aches and pains daily .....doctors refuse to say I have fibromialgia I've even seen a specialist which told me I don't because I didn't have any pain when she lifted my leg that was all she did to come to that conclusion. I'm fed up with the pains etc I've been feeling down I go
Hi I'm suffering with aches and pains daily .....doctors refuse to say I have fibromialgia I've even seen a specialist which told me I don't because I didn't have any pain when she lifted my leg that was all she did to come to that conclusion. I'm fed up with the pains etc I've been feeling down I go
eggbox1970
in
Fibromyalgia Action UK
1 year ago
Stinging in outer foot area - Nerve pain
Hi, I have had this pain for all of this year, it starts whenever my foot isn't pressing on the ground, eg when I am relaxing in recliner with feet up or even sitting in a chair, it very rarely eases.I am a diabetic type 2, with year on dropping numbers but still needs improving. I am on full doses of
Hi, I have had this pain for all of this year, it starts whenever my foot isn't pressing on the ground, eg when I am relaxing in recliner with feet up or even sitting in a chair, it very rarely eases.I am a diabetic type 2, with year on dropping numbers but still needs improving. I am on full doses of
greekqueen
in
Pain Concern
1 year ago
any advice welcome…
I was diagnosed in January 2022, I had flares every couple of months. In December my pain started to get a lot worse I now have pain everyday in my hands and someday my knees, feet and shoulders. In somedays are a real struggle. I was given a steroid injection and prescribed hydroxychloroquine sulfate
I was diagnosed in January 2022, I had flares every couple of months. In December my pain started to get a lot worse I now have pain everyday in my hands and someday my knees, feet and shoulders. In somedays are a real struggle. I was given a steroid injection and prescribed hydroxychloroquine sulfate
Star307
in
NRAS
1 year ago
My PMR Journey so far
The condition started with a stiff neck and in early February I experienced a lot of pain in my upper arms, a great deal of stiffness and loss of energy and strength. It took a few weeks to get to see a GP and initially he only prescribed painkillers. I eventually got Prednisone prescribed after a second
The condition started with a stiff neck and in early February I experienced a lot of pain in my upper arms, a great deal of stiffness and loss of energy and strength. It took a few weeks to get to see a GP and initially he only prescribed painkillers. I eventually got Prednisone prescribed after a second
Cricket47
in
PMRGCAuk
1 year ago
ET related fatigue
Hi my husband is 50 and was diagnosed with ET in January 2023 due to high platelets (917). He is overweight a little but other than that he does not have any other risk factors. All other bloods have come back normal. He is taking daily aspirin. We live in the UK. Since around September 2022 (prior
Hi my husband is 50 and was diagnosed with ET in January 2023 due to high platelets (917). He is overweight a little but other than that he does not have any other risk factors. All other bloods have come back normal. He is taking daily aspirin. We live in the UK. Since around September 2022 (prior
Morris941
in
MPN Voice
1 year ago
Letterbox.
I do find this condition puzzling, you think you are getting a handle on it and then it jumps on you from another angle. Most of my difficulties with Osteoradionecrosis were associated with the right hand side of my jaw which I was finally starting to manage to a reasonable level of discomfort (I also
I do find this condition puzzling, you think you are getting a handle on it and then it jumps on you from another angle. Most of my difficulties with Osteoradionecrosis were associated with the right hand side of my jaw which I was finally starting to manage to a reasonable level of discomfort (I also
AncientMariner
in
PMRGCAuk
1 year ago
Off topic. In Wales visiting sister 😄
Well now on new pain killers and patch I decided time to go away. We are in chilly but sunny Wales visiting my sister. It's done us both a world of good! Menorca booked for end of may too! Last day today but we'll be back 😉😎😎
Well now on new pain killers and patch I decided time to go away. We are in chilly but sunny Wales visiting my sister. It's done us both a world of good! Menorca booked for end of may too! Last day today but we'll be back 😉😎😎
Haz58
in
NRAS
1 year ago
gardenergirl1947
Hello, having been previously fit and well, I was surprised to have a an ever increasing amount of severe pain in my shoulders,hips and wrists in July 2022. Blood tests showed high levels of Calcium and a diagnosis of Hyperparathyroidism was made. However pain increased despite very large painkiller
Hello, having been previously fit and well, I was surprised to have a an ever increasing amount of severe pain in my shoulders,hips and wrists in July 2022. Blood tests showed high levels of Calcium and a diagnosis of Hyperparathyroidism was made. However pain increased despite very large painkiller
Gardenergirl1947
in
PMRGCAuk
1 year ago
Consulting on next steps
As I am 10 months PSA undetectable and clear on basic bone scans I have started the process of consultation re staying on ADT (zoladex) and Apalutamide continuously or moving to intermittent (and what would that involve) or getting more treatment (J591 for example aimed at micromets). Following consult
As I am 10 months PSA undetectable and clear on basic bone scans I have started the process of consultation re staying on ADT (zoladex) and Apalutamide continuously or moving to intermittent (and what would that involve) or getting more treatment (J591 for example aimed at micromets). Following consult
Brysonal
in
Fight Prostate Cancer
1 year ago
Hysterectomy, Oophorectomy or neither?
Endo sufferer since forever. Have moderate/severe endo & significant adhesions from laps, c - section & appendectomy. Several laps later, mirena, decapeptyl treatment last year & yet here I am back to square 1 but now perimenopausal for real & in a dilemma. Have a 5cm endometrioma on left ovary with
Endo sufferer since forever. Have moderate/severe endo & significant adhesions from laps, c - section & appendectomy. Several laps later, mirena, decapeptyl treatment last year & yet here I am back to square 1 but now perimenopausal for real & in a dilemma. Have a 5cm endometrioma on left ovary with
AilsS
in
Endometriosis UK
1 year ago
update on flare versus muscle pain contd
Thank you everyone for your kind words. i will stay on 11mg pred for the time being. I am really struggling with the side effects of the various pain killers, blood pressure meds and water tablets; everything seems to list nausea, constipation and sleepiness as a side effect. The nausea in particular
Thank you everyone for your kind words. i will stay on 11mg pred for the time being. I am really struggling with the side effects of the various pain killers, blood pressure meds and water tablets; everything seems to list nausea, constipation and sleepiness as a side effect. The nausea in particular
sewinggranny
in
PMRGCAuk
1 year ago
cancer has invaded the bowel
Hello everyone, I wonder if anyone can help me. For months now I have been having runny poo and it doesn’t stop. I have also had bleeding. My oncologist has never given me a reason for this extremely uncomfortable and inconvenient problem. Recently cancerous nodules were found on my bladder wall and
Hello everyone, I wonder if anyone can help me. For months now I have been having runny poo and it doesn’t stop. I have also had bleeding. My oncologist has never given me a reason for this extremely uncomfortable and inconvenient problem. Recently cancerous nodules were found on my bladder wall and
Pippasandy
in
My Ovacome
1 year ago
heart palpitations anxiety
hey guys. Me again, sorry to bother and ramble on, the past 3 days I’ve been having a few heart palpitations a day. Now I did phone my doctors and they told me this didn’t sound serious and it was normal. They said if the palpitations were regular every few minutes it would be a concern. I get 2 or 3
hey guys. Me again, sorry to bother and ramble on, the past 3 days I’ve been having a few heart palpitations a day. Now I did phone my doctors and they told me this didn’t sound serious and it was normal. They said if the palpitations were regular every few minutes it would be a concern. I get 2 or 3
Littlechopsxo
in
Anxiety and Depression Support
1 year ago
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