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My average day
Wake up approx 9 am then about 9.30 Pred and painkillers and cup of tea in bed. Sit looking at phone til 10.30. Up wash slowly dress slowly. Come downstairs, 3-4 times per week we go to cafe for breakfast change of scene ride around countryside for hour. Maybe into Morrisons if energy enough it’s my
Wake up approx 9 am then about 9.30 Pred and painkillers and cup of tea in bed. Sit looking at phone til 10.30. Up wash slowly dress slowly. Come downstairs, 3-4 times per week we go to cafe for breakfast change of scene ride around countryside for hour. Maybe into Morrisons if energy enough it’s my
Uglow
in
PMRGCAuk
2 years ago
Hospice Journey 12/24/21 - 12/31/21
Greetings everyone. This is Jim's third son, Chris, again. I am writing because Dad is in no longer in any condition to comprehensively express his experience. We have seen significant physical decline this week, to say the least. Further, his windows of lucidity are becoming shorter and sparser
Greetings everyone. This is Jim's third son, Chris, again. I am writing because Dad is in no longer in any condition to comprehensively express his experience. We have seen significant physical decline this week, to say the least. Further, his windows of lucidity are becoming shorter and sparser
JimBarringer
in
Advanced Prostate Cancer
2 years ago
Practical Advice for PWP. Teeth Grinding
Alot of us folks that have pd grind our teeth especially at night, often without realizing it. You might wake up with an unusually sore jaw etc. What i do is buy an otc mouth gaurd found in grocery stores otc med sections. They are 10$ and you can mold it to your mouth. These are, imo, a much better
Alot of us folks that have pd grind our teeth especially at night, often without realizing it. You might wake up with an unusually sore jaw etc. What i do is buy an otc mouth gaurd found in grocery stores otc med sections. They are 10$ and you can mold it to your mouth. These are, imo, a much better
beehive23
in
Cure Parkinson's
2 years ago
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Painkillers have burnt my oesophagus but I’m in so much pain without them?
What do we do when painkillers over the years have wrecked your insides and taking any more burns so bad? But my endo cramps are so intense I don’t know what to do 😭help.
What do we do when painkillers over the years have wrecked your insides and taking any more burns so bad? But my endo cramps are so intense I don’t know what to do 😭help.
Telli686
in
Endometriosis UK
2 years ago
Long term use of codeine as pain killer? I have been prescribed 30/500mgs of codeine co codamol for over 20 years severe pain.
I do know that should i have to stop this for any reason that i would experience a bad withdrawal BUT if my pain ever came to be under control without the use of these weak opiates how bad would the withdrawal be or have any of you came through it I know i am PHYSICALLY hooked on this - no doubt of
I do know that should i have to stop this for any reason that i would experience a bad withdrawal BUT if my pain ever came to be under control without the use of these weak opiates how bad would the withdrawal be or have any of you came through it I know i am PHYSICALLY hooked on this - no doubt of
Molefosey
in
Pain Concern
2 years ago
Calprotectin question
Hello everyone. Hope your bowels don't feel much festive and you all had pleasant and symptoms free Christmas! I'm 36y female with terrible IBS-M, have this for 20y and still learning to live with it. Life wasn't easy and stress is my main trigger. After my child came from school with stomach bug and
Hello everyone. Hope your bowels don't feel much festive and you all had pleasant and symptoms free Christmas! I'm 36y female with terrible IBS-M, have this for 20y and still learning to live with it. Life wasn't easy and stress is my main trigger. After my child came from school with stomach bug and
Wacca
in
Bowel Disease Support
2 years ago
Toe cramping and leg pain in Parkinson’s
My WWP experiences intense pain and discomfort that she finds difficult to describe in her legs, several times every day. Mostly accompanied by cramping, both upwards and downwards, of toes, which makes walking very difficult and sometimes impossible. She had DBS surgery 16 months ago, but this has not
My WWP experiences intense pain and discomfort that she finds difficult to describe in her legs, several times every day. Mostly accompanied by cramping, both upwards and downwards, of toes, which makes walking very difficult and sometimes impossible. She had DBS surgery 16 months ago, but this has not
paulalex1313
in
Cure Parkinson's
2 years ago
Unusual
VERY unusual!! I slept all night - no pain, no loo visits. Now 10am and am still pain free. Pick up pill box to realise I hadn't taken my pred OR pain killers last night. ????? Was this an "almost" New Year's gift? Has this happened to anyone else?
VERY unusual!! I slept all night - no pain, no loo visits. Now 10am and am still pain free. Pick up pill box to realise I hadn't taken my pred OR pain killers last night. ????? Was this an "almost" New Year's gift? Has this happened to anyone else?
Constance13
in
PMRGCAuk
2 years ago
Heartburn and endo
For the last month or so I've been suffering with terrible heartburn. I have a had a few bad endo days where the pain has been horrendous so have taken iburopben aswell as the normal painkillers. The heartburn is only at night and doesn't seem to be triggered by food. It might not even be linked to the
For the last month or so I've been suffering with terrible heartburn. I have a had a few bad endo days where the pain has been horrendous so have taken iburopben aswell as the normal painkillers. The heartburn is only at night and doesn't seem to be triggered by food. It might not even be linked to the
AMJ88
in
Endometriosis UK
2 years ago
knee pain
my wife has pain to the back of her left knee tryed pain killers no good can/t think what to doe any idear thamks
my wife has pain to the back of her left knee tryed pain killers no good can/t think what to doe any idear thamks
cchris01
in
Pain Concern
2 years ago
Paracetamol and co-codamol
Hi all, I have significant osteoarthritis in my hip. I have been prescribed co-codamol 2 capsules at night and to take paracetamol in the daytime. As yet I have only taken 1 tablet at night and 2 paracetamol in the day. Not really helping a lot. I am not keen on taking too many painkillers as I also
Hi all, I have significant osteoarthritis in my hip. I have been prescribed co-codamol 2 capsules at night and to take paracetamol in the daytime. As yet I have only taken 1 tablet at night and 2 paracetamol in the day. Not really helping a lot. I am not keen on taking too many painkillers as I also
cmjoyce
in
Arthritis Action
2 years ago
Freaking out
Sorry loads of posts like this and I don’t know what I’m looking to gain - maybe just venting! Have had lower abdominal pain intermittently for nearly 2 years with some mucous in my stool every now and then - bloods all normal as was calprotectin in stool - GP has only just sent off for a FIT test -
Sorry loads of posts like this and I don’t know what I’m looking to gain - maybe just venting! Have had lower abdominal pain intermittently for nearly 2 years with some mucous in my stool every now and then - bloods all normal as was calprotectin in stool - GP has only just sent off for a FIT test -
Sherah
in
IBS Network
2 years ago
not sure if endo has came back or just a period?
hi everyone, this is my first post here. so i was diagnosed in march 2021 and i had a laparoscopy and a mirena coil fitted. everything was okay until about october time. i had a really bad flare up which made me nauseous and really struggle at work so had to take the day off. then this passed and only
hi everyone, this is my first post here. so i was diagnosed in march 2021 and i had a laparoscopy and a mirena coil fitted. everything was okay until about october time. i had a really bad flare up which made me nauseous and really struggle at work so had to take the day off. then this passed and only
percypiglover
in
Endometriosis UK
2 years ago
Introducing my brief journey in life and experience with PMR
Hi Everyone, I am a new member and it’s a great to be part of the community .I am 61years old and from the Far East.This is my brief journey in life and experience with PMR :I studied and worked in London from 1981 till 1998 in the NHS.Then worked in Ireland in the Health Service Executive and retired
Hi Everyone, I am a new member and it’s a great to be part of the community .I am 61years old and from the Far East.This is my brief journey in life and experience with PMR :I studied and worked in London from 1981 till 1998 in the NHS.Then worked in Ireland in the Health Service Executive and retired
Hidden
in
PMRGCAuk
2 years ago
Is pain which lasts for a month usual with endometriosis? (Waiting for scans, going insane with the pain!)
Hi ladies :)I posted here once before and got some very useful and helpful replies, so thank you all! So ... I'm still on the waiting list for an ultrasound, though I'm unsure how much that will show and if it will confirm my suspicions that this endo. My question is the longevity of this pain. It's
Hi ladies :)I posted here once before and got some very useful and helpful replies, so thank you all! So ... I'm still on the waiting list for an ultrasound, though I'm unsure how much that will show and if it will confirm my suspicions that this endo. My question is the longevity of this pain. It's
CaledoniaSloth91
in
Endometriosis UK
2 years ago
Endo surgery list!
Hello everyone! Hope you are all keeping well! So I finally have a laprascopy surgery date for the 7th of January for diagnosis of endo! I’m currently self isolating due to high rise of covid in my area. I don’t want to risk catching it and not able to have my surgery. During my time I’ve made a list
Hello everyone! Hope you are all keeping well! So I finally have a laprascopy surgery date for the 7th of January for diagnosis of endo! I’m currently self isolating due to high rise of covid in my area. I don’t want to risk catching it and not able to have my surgery. During my time I’ve made a list
Chloe_neal
in
Endometriosis UK
2 years ago
Anal fissures
Have been having severe pain with anal fissures for well over a year. Has anyone had surgery for this? I’m being told the surgery is even more painful and that anal fissures can just return. My quality of life is definitely suffering. Anyone have any experiences to share?
Have been having severe pain with anal fissures for well over a year. Has anyone had surgery for this? I’m being told the surgery is even more painful and that anal fissures can just return. My quality of life is definitely suffering. Anyone have any experiences to share?
Greenwithpain
in
IBS Network
2 years ago
Just been diagnosed - Endometriosis
Hi all - new here & first post.. Just went for an internal scan at the hospital after 'normal' blood test results. Nurse said she's pretty much certain I have endometriosis & would write to my doctor. I asked about what happens next & she said I'd need to push my doctor for anything and mentioned they're
Hi all - new here & first post.. Just went for an internal scan at the hospital after 'normal' blood test results. Nurse said she's pretty much certain I have endometriosis & would write to my doctor. I asked about what happens next & she said I'd need to push my doctor for anything and mentioned they're
BlueLabrador2702
in
Endometriosis UK
2 years ago
Is this my first period?
Hi, I’m 5 weeks post laparoscopic endometriosis surgery and myomectomy procedure. I’ve not had a period since the 4th of November. I’ve been having all the pms symptoms for the last week and today I had a very light pink-orange discharge. Is this my period? I have no pain and no heavy flow so far. I
Hi, I’m 5 weeks post laparoscopic endometriosis surgery and myomectomy procedure. I’ve not had a period since the 4th of November. I’ve been having all the pms symptoms for the last week and today I had a very light pink-orange discharge. Is this my period? I have no pain and no heavy flow so far. I
miha
in
Endometriosis UK
2 years ago
MBC Baggage
Excited off to Gretna Green in Scotland tomorrow to take our renewal of wedding vows before Christmas. We had to laugh at our baggage and oh how it has changed since our honeymoon baggage there many moons ago. My suitcase now exists of Ibrance, Adcal and painkillers if needed, hopefully not. My newTricia
Excited off to Gretna Green in Scotland tomorrow to take our renewal of wedding vows before Christmas. We had to laugh at our baggage and oh how it has changed since our honeymoon baggage there many moons ago. My suitcase now exists of Ibrance, Adcal and painkillers if needed, hopefully not. My newTricia
debbiedo2063
in
SHARE Metastatic Breast Cancer
2 years ago
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