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Pneumonia, empyema, pleural effusion and anaemia 8 months later
Hi, I’ve been reading on here and decided to post as not sure what else to do, beginning to feel like a nuisance to my doctors. I was diagnosed with pneumonia whilst in Lanzarote 31st Dec 2017 and was admitted to intensive care over there and treated with IV antibiotics. I wasn’t getting any better and
Hi, I’ve been reading on here and decided to post as not sure what else to do, beginning to feel like a nuisance to my doctors. I was diagnosed with pneumonia whilst in Lanzarote 31st Dec 2017 and was admitted to intensive care over there and treated with IV antibiotics. I wasn’t getting any better and
Momolly
in
Lung Conditions Community Forum
6 years ago
Lost a super best friend
Hi folks, It is very comforting to read your stories of how to cope with liver disease. My friend retired from teaching less than a year ago and discovered she has a genetic liver disease ( as do four of her sisters - one had received a transplant one year ago). I can't believe how fast she went. Her
Hi folks, It is very comforting to read your stories of how to cope with liver disease. My friend retired from teaching less than a year ago and discovered she has a genetic liver disease ( as do four of her sisters - one had received a transplant one year ago). I can't believe how fast she went. Her
smockler
in
British Liver Trust
6 years ago
Aneamia
Does anyone know why you have longterm aneamia with a decompensated liver? My dads had it for about 2 1/2 years now.its the worst its been at the moment. hes had loads of blood tests and scans galore.hes also had a crackly chest and cough for a year, which is inconclusive with a chest xray so is having
Does anyone know why you have longterm aneamia with a decompensated liver? My dads had it for about 2 1/2 years now.its the worst its been at the moment. hes had loads of blood tests and scans galore.hes also had a crackly chest and cough for a year, which is inconclusive with a chest xray so is having
Hidden
in
British Liver Trust
6 years ago
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I'm new here - normal (?) B12 levels but low folate - help, I don't know what to think...
I'm new here - normal (?) B12 levels but low folate - help I'm TOTALLY confused.... Having felt absolutely awful for ages and suspecting a thyroid problem I elected to have the Thyroid Ultra Test offered by Medichecks. I've had a problem with low ferritin levels, diagnosed 10 years ago after the birth
I'm new here - normal (?) B12 levels but low folate - help I'm TOTALLY confused.... Having felt absolutely awful for ages and suspecting a thyroid problem I elected to have the Thyroid Ultra Test offered by Medichecks. I've had a problem with low ferritin levels, diagnosed 10 years ago after the birth
gingermoo
in
Pernicious Anaemia Society
6 years ago
Aggressive IGA neuropathy
Hi all, on April 13, 2018 my daughter was diagnosed with an aggressive form of IGA. I started the donor process and was was ruled out due to red blood cells and protein on my 24 hour urine collections; so I'm not a quick fix for her. 😢 I'm very interested in connecting with others with a similar
Hi all, on April 13, 2018 my daughter was diagnosed with an aggressive form of IGA. I started the donor process and was was ruled out due to red blood cells and protein on my 24 hour urine collections; so I'm not a quick fix for her. 😢 I'm very interested in connecting with others with a similar
Lbw62
in
Kidney Disease
6 years ago
Rocco.... 💙💪🏻
So far.... Rocco is now on hourly feeds of 2mils and goes up every 24hours, he has had to have a blood transfusion as they are testing his blood so often. he’s had the line in his belly button taken out, he’s still off the insulin, they are reducing his ventilation and in the next few days taking him
So far.... Rocco is now on hourly feeds of 2mils and goes up every 24hours, he has had to have a blood transfusion as they are testing his blood so often. he’s had the line in his belly button taken out, he’s still off the insulin, they are reducing his ventilation and in the next few days taking him
Kitkat82
in
Fertility Network UK
6 years ago
Questioning lab results? Hoping someone can help!
I’m down to getting iron transfusions only monthly now along with b12 injections and don’t seem to have any more energy or I can’t seem to tell or feel any difference. I’m tired or if I sit down I’m out.. as long as I’m up I can do things.. I do most of the things here at home as fortunately I’m able
I’m down to getting iron transfusions only monthly now along with b12 injections and don’t seem to have any more energy or I can’t seem to tell or feel any difference. I’m tired or if I sit down I’m out.. as long as I’m up I can do things.. I do most of the things here at home as fortunately I’m able
Milescircus
in
Pernicious Anaemia Society
6 years ago
Low haemaglobin on ibrance
Hello ladies Had my bloods done today as neutrophils we’re down and I had to stop Ibrance Neutrophils acceptable now but haemaglobin has dropped again so can restart Ibrance 100 mg Oncologist may suggest a blood transfusion if drops more Have any of you ladies suffered with anaemia on Ibrance? Barb
Hello ladies Had my bloods done today as neutrophils we’re down and I had to stop Ibrance Neutrophils acceptable now but haemaglobin has dropped again so can restart Ibrance 100 mg Oncologist may suggest a blood transfusion if drops more Have any of you ladies suffered with anaemia on Ibrance? Barb
Crazydentist
in
SHARE Metastatic Breast Cancer
6 years ago
Kidney transplant update
I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with
I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with
Kidney05love
in
Kidney Transplant
6 years ago
Kidney transplant update
I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with
I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with
Kidney05love
in
Kidney Transplant
6 years ago
end stage MF
Can anyone advise me on what to expect from end stage MF My husband is getting worse and has now developed a heart problem which occurs during transfusions. He is presently having transfusions every week and has been told his condition worsening.
Can anyone advise me on what to expect from end stage MF My husband is getting worse and has now developed a heart problem which occurs during transfusions. He is presently having transfusions every week and has been told his condition worsening.
ardpatrick
in
MPN Voice
6 years ago
Kivi
I am new here. I was treated for small cell lymphoma and raynauds ( two diseases) With rituxin, blood transfusions (warmed blood), steroids, I am good now around four years. This year ,now, I have bad balance. Shaking hands? Why?
I am new here. I was treated for small cell lymphoma and raynauds ( two diseases) With rituxin, blood transfusions (warmed blood), steroids, I am good now around four years. This year ,now, I have bad balance. Shaking hands? Why?
KaLoOM
in
Non Hodgkin's Lymphoma Friends
6 years ago
Kivi
I had Raynauds first. Camping, in asevere storm, pounding tent stakes in, I would have frozen shaking hands dripping blood. Then more shaking, larer small cell lymphoma. After warmed blood transfusions, steroids, rituxon, I was in remission. Shaking startedagain 4 later.
I had Raynauds first. Camping, in asevere storm, pounding tent stakes in, I would have frozen shaking hands dripping blood. Then more shaking, larer small cell lymphoma. After warmed blood transfusions, steroids, rituxon, I was in remission. Shaking startedagain 4 later.
KaLoOM
in
Non Hodgkin's Lymphoma Friends
6 years ago
My dads AML at 81 years
My dad of 81 years old has been diagnosed with AML and given 6 months to live. He is a very fit man and has no immediate symptoms. His Bond Marrow showed that he was losing 40 percent of his blood rapidly - he has chosen not to have treatment of Cybaratine injections at this point and wants to enjoy
My dad of 81 years old has been diagnosed with AML and given 6 months to live. He is a very fit man and has no immediate symptoms. His Bond Marrow showed that he was losing 40 percent of his blood rapidly - he has chosen not to have treatment of Cybaratine injections at this point and wants to enjoy
Meeawwww
in
Leukaemia Support
6 years ago
On my way
Hellloooooo, just a big thank you to all you survivor's out there, 6 week before I finally fly out domnican Republic, been a long year but yesssssss,, my gorgeous doctor has said I can go. I'm off to pick my grandkids up and bring them home to England. He actually laughed when he heard I was travelling
Hellloooooo, just a big thank you to all you survivor's out there, 6 week before I finally fly out domnican Republic, been a long year but yesssssss,, my gorgeous doctor has said I can go. I'm off to pick my grandkids up and bring them home to England. He actually laughed when he heard I was travelling
Linda3035
in
British Liver Trust
6 years ago
Excessive bleeding 1 week after birth
I was rushed to hospital a week after birth with excessive bleeding I lost around 4 litres of blood and had to have a blood transfusion and all sorts I’m now 7 weeks PP and still don’t actually know what happened! I’m so confused and worried as I could have died by the amount of blood I lost - has anyone
I was rushed to hospital a week after birth with excessive bleeding I lost around 4 litres of blood and had to have a blood transfusion and all sorts I’m now 7 weeks PP and still don’t actually know what happened! I’m so confused and worried as I could have died by the amount of blood I lost - has anyone
LGJune2018
in
Pregnancy and Parenting Support
6 years ago
MF, gastric varices, low platelets etc etc, anyone else with simlar set of problems?
I feel I'm in a bit of a pickle. I've secondary MF but also have gastric varices (ongiong treatment), portal hypertension, possible splanchnic thrombosis, anaemia, low platelets and splenomegaly. I've been on ruxolotinib since end last year, now on lowest possible dose. I was in line for a transplant
I feel I'm in a bit of a pickle. I've secondary MF but also have gastric varices (ongiong treatment), portal hypertension, possible splanchnic thrombosis, anaemia, low platelets and splenomegaly. I've been on ruxolotinib since end last year, now on lowest possible dose. I was in line for a transplant
Dodders
in
MPN Voice
6 years ago
Me being bizarre as usual!
Hi guys. I know I haven't been around my h for a while but i do keep an eye on you all lol. Thought I'd give you a giggle with my bizarre problem. My daughter's blood group is AB negative. Mine has always tested O positive. Nobody questioned it until I had to give details for her. I was informed I
Hi guys. I know I haven't been around my h for a while but i do keep an eye on you all lol. Thought I'd give you a giggle with my bizarre problem. My daughter's blood group is AB negative. Mine has always tested O positive. Nobody questioned it until I had to give details for her. I was informed I
mrsmerlin
in
British Liver Trust
6 years ago
Severe ITP problem..6 months baby
Hi, My baby suffer from ITP from last three months. My Baby born on 1st February 2018 with cesarean delivery. Birth time baby active no other side effects. After one and half months small red pumples came take treatment with skin doctor. They give lotion and cream. We applied and red pumples all are
Hi, My baby suffer from ITP from last three months. My Baby born on 1st February 2018 with cesarean delivery. Birth time baby active no other side effects. After one and half months small red pumples came take treatment with skin doctor. They give lotion and cream. We applied and red pumples all are
ArjunBangalore
in
ITP Support Association
6 years ago
T3 only advice please. Should I start adding NDT back? rT3 was elevated (I'm NEW here)
Hi Thank you for all the valuable patient feedback here! My first time posting.
WARNING: VERY long and detailed!
Summary:
I started on T3 only (Tertroxin) 20 mcg middle of June, slowly built up to 40mcg (which I took around 4.30 am a few times Ct3M), but now as soon as I wake up around
Hi Thank you for all the valuable patient feedback here! My first time posting.
WARNING: VERY long and detailed!
Summary:
I started on T3 only (Tertroxin) 20 mcg middle of June, slowly built up to 40mcg (which I took around 4.30 am a few times Ct3M), but now as soon as I wake up around
JuaE
in
Thyroid UK
6 years ago
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