Kidney transplant update : I am awaiting... - Kidney Transplant

Kidney Transplant

3,688 members2,119 posts

Kidney transplant update

Kidney05love profile image
3 Replies

I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with p Anca vasculitis as the disease that caused my kidneys to both go. As a young child I was treated with cytoxan,diyalisis and many other life saving drugs. My creatine is running around 4.1 to 3.85 right now . I am on the border of diyalisis and learning all about the options again, sense I was such a little girl last time I was on it. I had a potential donor lined up, but it ended up not working out cause we're not the same blood type. I am suffering from severe anemia and will potentially need a blood transfusion. As I am having weakness all over , and pain in my legs in arms . I'm awaiting results to that blood test

Written by
Kidney05love profile image
Kidney05love
To view profiles and participate in discussions please or .
Read more about...
3 Replies
rabbit01 profile image
rabbit01

Hello. Your levels are about the same as mine. I too am not yet on dialysis and am going through all the tests to see if I am able to get on the transplant waiting list. Last month I attended the local dialysis centre to discuss the various types and pros and cons of each one. I wish you all the best.

Kidney05love profile image
Kidney05love in reply torabbit01

Thanks for your kinda words. I Will pray and keep in touch for your well being.

KelliC_NKF profile image
KelliC_NKF

I'm sorry to hear you are facing needing a kidney and potentially dialysis. Here are some great videos to learn about your treatment options: youtube.com/playlist?list=P...

All the best to you! Keep us updated on how things go for you!

Not what you're looking for?

You may also like...

Refused a kidney transplant

Hi Everyone, it’s been quite while since I have posted anything, but what I just went through...
Socky profile image

angry about kidney transplant?

I received a kidney transplant about a year ago. I was donated a live one. However, I was very...
Asertfev profile image

Sudden rise in creatinine 6 mos. post-transplant

I went for my six month check-up, and we noticed my creatinine had risen significantly over the...
ILMA54 profile image

BK virus after kidney transplant

I'm three weeks post transplant, everything looks good and I'm feeling good, no obvious side...
Colin_CX profile image

Had my third kidney transplant

Hello everyone:) Happy Holidays! 2 weeks ago I received the phone call that they had a kidney for...
Calebzztop profile image

Moderation team

See all
JessicaJ_NKF profile image
JessicaJ_NKFAdministrator
Cap21_NKF profile image
Cap21_NKFPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.