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What is MPN/MDS overlap syndrome?
Hi, My diagnosis is MPN/MDS overlap syndrome but I know next nothing about it. My haematology appt. in May was cancelled. Apparently this was diagnosed after bone marrow biopsy in 2017 but not explained to me. Last November at a haematology appt. I asked what my diagnosis is and was then told the name
Hi, My diagnosis is MPN/MDS overlap syndrome but I know next nothing about it. My haematology appt. in May was cancelled. Apparently this was diagnosed after bone marrow biopsy in 2017 but not explained to me. Last November at a haematology appt. I asked what my diagnosis is and was then told the name
Rokeroar
in
MPN Voice
4 years ago
BLOOD TRANSFUSION
Hi ladies Having a blood transfusion 2moro how many bags do you have and how long does it take and how long before you see any benefit . Well that was a lot of hows lol xx Sending hugs to everyone
Hi ladies Having a blood transfusion 2moro how many bags do you have and how long does it take and how long before you see any benefit . Well that was a lot of hows lol xx Sending hugs to everyone
Nannymop
in
SHARE Metastatic Breast Cancer
4 years ago
Anyone using yellow dock tea for anemia? If so, how much per day
Hi all, I used yellow dock tea, prepared as a decoction, for anemia years ago (non-cancer-related). It was very helpful. Have any of you used it for anemia during chemo or other cancer treatment? I couldn't find it in the Sloan Kettering database, which surprised me as it's not an uncommon herb.
Hi all, I used yellow dock tea, prepared as a decoction, for anemia years ago (non-cancer-related). It was very helpful. Have any of you used it for anemia during chemo or other cancer treatment? I couldn't find it in the Sloan Kettering database, which surprised me as it's not an uncommon herb.
Barbara345
in
Advanced Prostate Cancer
4 years ago
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Question - please,and thanks to all for your support this week! Is BMB always necessary before starting treatment?
Good news all, husband back in hands of prior oncologist at Baptist. Treating the AIHA with blood transfusions and Rituximab. Discussed if need to treatment would be Venetoclax and Gazyva - hurray! However, since my one issue with this doctor is his desire to have often BMB's, can't the blood tests
Good news all, husband back in hands of prior oncologist at Baptist. Treating the AIHA with blood transfusions and Rituximab. Discussed if need to treatment would be Venetoclax and Gazyva - hurray! However, since my one issue with this doctor is his desire to have often BMB's, can't the blood tests
Palmetto
in
CLL Support
4 years ago
Mayo finds convalescent plasma safe for diverse patients with COVID-19.
Mayo Clinic researchers and collaborators have found investigational convalescent plasma to be safe following transfusion in a diverse group of 20,000 patients. The findings -- from the U.S. Food and Drug Administration’s Expanded Access Program for COVID-19 -- are reported in Mayo Clinic Proceedings
Mayo Clinic researchers and collaborators have found investigational convalescent plasma to be safe following transfusion in a diverse group of 20,000 patients. The findings -- from the U.S. Food and Drug Administration’s Expanded Access Program for COVID-19 -- are reported in Mayo Clinic Proceedings
2greys
in
Lung Conditions Community Forum
4 years ago
Stem cell transplant anniversary
It is now exactly 12 months almost to the minute since I watched the bag of stem cells slowly drain into the Hickman line. It's been a very eventful 12 months to say the least. Since my last post 9 months ago I had a difficult end to 2019. I was hospitalised for pneumonia in October which turned out
It is now exactly 12 months almost to the minute since I watched the bag of stem cells slowly drain into the Hickman line. It's been a very eventful 12 months to say the least. Since my last post 9 months ago I had a difficult end to 2019. I was hospitalised for pneumonia in October which turned out
Dodders
in
MPN Voice
4 years ago
Steroids and Intralipid Transfusion during COVID
Hi everyone, We were due to restart our 5th fresh cycle of ICSI last week but had it cancelled for a second time due to the COVID lockdown. We got the call from our clinic to say that we couldn’t go ahead with the planned steroid or intralipid treatment for NK cells so they suggested we delay our treatment
Hi everyone, We were due to restart our 5th fresh cycle of ICSI last week but had it cancelled for a second time due to the COVID lockdown. We got the call from our clinic to say that we couldn’t go ahead with the planned steroid or intralipid treatment for NK cells so they suggested we delay our treatment
Westielover16
in
Fertility Network UK
4 years ago
Imbruvica and low Hemoglobin
I started on Imbruvica April 13. After some weeks needed blood transfusion 3 bags to improve my hemoglobin which was at 66. Then I felt pretty good for some weeks and lately past few days don’t feel right . Kind of unsteady after a light activity . Today had my follow up and my hematologist said I need
I started on Imbruvica April 13. After some weeks needed blood transfusion 3 bags to improve my hemoglobin which was at 66. Then I felt pretty good for some weeks and lately past few days don’t feel right . Kind of unsteady after a light activity . Today had my follow up and my hematologist said I need
Kmegood
in
CLL Support
4 years ago
I'm New... Just want to know I'm not alone...
2018 Dec - Took a life threatening haemorrhage from the abdomen as I lost all my blood in the process, yet I'm still weak in my arms and legs, strength wise. Whenever I see a doctor I'm always asking them "should I still be this weak?" and they say "Yes." They don't even look surprised I'm still weak
2018 Dec - Took a life threatening haemorrhage from the abdomen as I lost all my blood in the process, yet I'm still weak in my arms and legs, strength wise. Whenever I see a doctor I'm always asking them "should I still be this weak?" and they say "Yes." They don't even look surprised I'm still weak
Lotus-Blossom
in
Pelvic Pain Support Network
4 years ago
Chemo port leading to emergency. Can we remove it during severe anemia?
My mother in law is 60year old and was diagnosed with a stage1- 1inch malignant lump with h1+ in her right breast. We moved forward and had her right mastectomy done within 2weeks of detection. After one month we started chemo with docetaxel, carboplatin and trastuzumab as suggested by medical oncologist
My mother in law is 60year old and was diagnosed with a stage1- 1inch malignant lump with h1+ in her right breast. We moved forward and had her right mastectomy done within 2weeks of detection. After one month we started chemo with docetaxel, carboplatin and trastuzumab as suggested by medical oncologist
Saipb
in
Breast Cancer India
4 years ago
Low Hemoglobin, New to MPN
Hi everyone, It's been few months since I'm reading your posts and this really helped me to reduce my stress. So thank you all . My father has been diagnosed with MDS but it's unclear about which type of disease he got exactly. (He lives in France) At the moment his Hemoglobin is really low he is
Hi everyone, It's been few months since I'm reading your posts and this really helped me to reduce my stress. So thank you all . My father has been diagnosed with MDS but it's unclear about which type of disease he got exactly. (He lives in France) At the moment his Hemoglobin is really low he is
Ket9255
in
MPN Voice
4 years ago
Unknown diagnosis no time
Wanting some input on my mother. She’s 66 and has started losing weight for over a year with little appetite and slight lapses in memory but not super debilitating. She was able to live independently and did not affect her day to day really just couldn’t remember some words every now and then. This was
Wanting some input on my mother. She’s 66 and has started losing weight for over a year with little appetite and slight lapses in memory but not super debilitating. She was able to live independently and did not affect her day to day really just couldn’t remember some words every now and then. This was
Helpless_daughter
in
British Liver Trust
4 years ago
Ibutrinib plus venetoclax?
As I told you my brother is in the rump up with venetoclax. Now he is in 100 mg now. This month he start relapsing his treatment with imbruvica monotherapy. He was 18 months with very good results with imbruvica, but as I said his cll start relapsing. And his doctors consider add venetoclax. He put
As I told you my brother is in the rump up with venetoclax. Now he is in 100 mg now. This month he start relapsing his treatment with imbruvica monotherapy. He was 18 months with very good results with imbruvica, but as I said his cll start relapsing. And his doctors consider add venetoclax. He put
Cgr2018
in
CLL Support
4 years ago
Thank you from Barb
Hi ladies I want to express my thanks to you all who have helped me through the last few days...without you I think I would have gone into a deep depression Had my transfusion Friday...took 4 hours!!... thank goodness I had a book to occupy me...not sure if I feel much difference but I did do a yoga
Hi ladies I want to express my thanks to you all who have helped me through the last few days...without you I think I would have gone into a deep depression Had my transfusion Friday...took 4 hours!!... thank goodness I had a book to occupy me...not sure if I feel much difference but I did do a yoga
Barbteeth
in
SHARE Metastatic Breast Cancer
4 years ago
Spleen removal
Had my surgery scheduled for Tuesday afternoon. My platelets were at 35, which my wife and I were concerned with, I had a endplate injection on a Friday before and they really did not bounce back. They gave me a 6 pack transfusion and went ahead with surgery. It was supposed to be a easy minimal evasive
Had my surgery scheduled for Tuesday afternoon. My platelets were at 35, which my wife and I were concerned with, I had a endplate injection on a Friday before and they really did not bounce back. They gave me a 6 pack transfusion and went ahead with surgery. It was supposed to be a easy minimal evasive
Lawcomo
in
ITP Support Association
4 years ago
Struggling
7 days today since came into hospital and I’m loads worse than I was when I arrived , bloods worse than ever possible blood transfusion tomorrow 😢 nose dive off 6th floor sounds better
7 days today since came into hospital and I’m loads worse than I was when I arrived , bloods worse than ever possible blood transfusion tomorrow 😢 nose dive off 6th floor sounds better
Daz2310
in
Mental Health Support
4 years ago
Hysterectomy and zolodex
Hi after having a total hysterectomy for adenomyosis in 2016 but kept overies lost blood so had post transfusion and developed post infections so readmitted to hospital then 2 weeks after had family bereavement so couldn't rest. Developed lower right pelvic pain that turned out to be a cyst on my overy
Hi after having a total hysterectomy for adenomyosis in 2016 but kept overies lost blood so had post transfusion and developed post infections so readmitted to hospital then 2 weeks after had family bereavement so couldn't rest. Developed lower right pelvic pain that turned out to be a cyst on my overy
MissAJ
in
Endometriosis UK
4 years ago
Practical guidance for the prevention of thrombosis and management of coagulopathy and disseminated intravascular coagulation of patients in
Practical guidance for the prevention of thrombosis and management of coagulopathy and disseminated intravascular coagulation of patients infected with COVID-19
Prof Beverley Hunt OBE
Dr Andrew Retter
Dr Claire McClintock
25th March 2020
Background
[
Practical guidance for the prevention of thrombosis and management of coagulopathy and disseminated intravascular coagulation of patients infected with COVID-19
Prof Beverley Hunt OBE
Dr Andrew Retter
Dr Claire McClintock
25th March 2020
Background
[
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Carboplatin
I am fortunate enough to be 2 years out from stage 3 ovarian cancer. I did receive very aggressive weekly treatment with Carboplatin and taxol and I wanted to stop treatment right from the beginning due to difficult to manage side effects ie needing blood and plasma transfusions, neuropathy, loss of
I am fortunate enough to be 2 years out from stage 3 ovarian cancer. I did receive very aggressive weekly treatment with Carboplatin and taxol and I wanted to stop treatment right from the beginning due to difficult to manage side effects ie needing blood and plasma transfusions, neuropathy, loss of
Mele2222
in
SHARE Ovarian Cancer Support
4 years ago
Shielding, update
I'm JAK2+ PV under control... I got my letter 5 weeks ago and have been staying in besides walking my dog in remote fields etc, keeping well away from humans. This morning I decided to write to my consultant asking for confirmation re shielding, this was his reply.. "No, according to our Departmental
I'm JAK2+ PV under control... I got my letter 5 weeks ago and have been staying in besides walking my dog in remote fields etc, keeping well away from humans. This morning I decided to write to my consultant asking for confirmation re shielding, this was his reply.. "No, according to our Departmental
shiftzz
in
MPN Voice
4 years ago
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