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Hairy cell - 3 weeks after chemo
So here I am 3 weeks after my cladribine subcutaneous chemo finished. Am having weekly blood tests, had a phone chat with my haematologist this morning who is happy the way my platelets and neutrophiles are recovering - plats up to 138 and neuts 0.6, both doubled from a week ago. The main problem is
So here I am 3 weeks after my cladribine subcutaneous chemo finished. Am having weekly blood tests, had a phone chat with my haematologist this morning who is happy the way my platelets and neutrophiles are recovering - plats up to 138 and neuts 0.6, both doubled from a week ago. The main problem is
frankmok
in
Leukaemia Support
3 years ago
Shocking letter from cardiology
I’ve just had a shocking letter from the cardiology department of my local hospital which has really shocked and upset me. It was from a telephone conversation I had with them some weeks ago having been transferred to their care after having a mitral valve replacement on the 7th of October 2020 At Barts
I’ve just had a shocking letter from the cardiology department of my local hospital which has really shocked and upset me. It was from a telephone conversation I had with them some weeks ago having been transferred to their care after having a mitral valve replacement on the 7th of October 2020 At Barts
Darkshades
in
British Heart Foundation
3 years ago
First ten days in hospice
Another update on our journey... (Brief background: after over a year of failing multiple treatments to control his cancer, my husband decided in April that he did not wish to continue pursuing treatments other than palliative care. On May 27 we were accepted into a Medicare hospice program.) So far
Another update on our journey... (Brief background: after over a year of failing multiple treatments to control his cancer, my husband decided in April that he did not wish to continue pursuing treatments other than palliative care. On May 27 we were accepted into a Medicare hospice program.) So far
WildRose6
in
Advanced Prostate Cancer
3 years ago
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Have you Needed Blood Transfusions?
Hello from Down Under! Well, June marks 2 years from my diagnosis with Ovarian /Peritoneal cancer. It seems like 6 months! I insisted that my oncologist tell me the facts in regard to life span. Being a a retired RN. I wanted to know. She suggested about 3 years. In my mind, I had this idea that it
Hello from Down Under! Well, June marks 2 years from my diagnosis with Ovarian /Peritoneal cancer. It seems like 6 months! I insisted that my oncologist tell me the facts in regard to life span. Being a a retired RN. I wanted to know. She suggested about 3 years. In my mind, I had this idea that it
Jenjill47
in
My Ovacome
3 years ago
ITP after COVID vaccine
I've had CLL for about 11 years without issues. I received the first shot of Moderna on 28 January and have been dealing with ITP ever since. They dropped from 110K to 6K. Prednisone, platelet transfusion, IVIG, dexamethasone and now I'm looking at Rituximab. This almost seems worse than CLL!
I've had CLL for about 11 years without issues. I received the first shot of Moderna on 28 January and have been dealing with ITP ever since. They dropped from 110K to 6K. Prednisone, platelet transfusion, IVIG, dexamethasone and now I'm looking at Rituximab. This almost seems worse than CLL!
DoNorth
in
ITP Support Association
3 years ago
Update on AMG 509 immunotherapy
I get transfusions every Thursday. I have been tolerating treatment quite well and feel good. I drove an hour and played 18 holes of golf last Friday, one day after treatment. It was a bit risky as I have experienced muscle cramping for 24-48 hours from the beginning. That is less of an issue each week
I get transfusions every Thursday. I have been tolerating treatment quite well and feel good. I drove an hour and played 18 holes of golf last Friday, one day after treatment. It was a bit risky as I have experienced muscle cramping for 24-48 hours from the beginning. That is less of an issue each week
Philly13
in
Advanced Prostate Cancer
3 years ago
Has anyone had an iron transfusion privately?
Just that really. I'm considering one but the consultation alone is £200 plus the transfusion if it's deemed necessary, is almost £500 so it's a lot of money and I just wondered if anyone would recommend it? I'm veggie so it's much harder to get enough iron to increase my ferritin. I take 3 iron tablets
Just that really. I'm considering one but the consultation alone is £200 plus the transfusion if it's deemed necessary, is almost £500 so it's a lot of money and I just wondered if anyone would recommend it? I'm veggie so it's much harder to get enough iron to increase my ferritin. I take 3 iron tablets
Hidden
in
Thyroid UK
3 years ago
Loxo 305 + Venetoclax trial MRD Negative but with extras ....
Despite this being my 3rd treatment I’m usually quite well, however I’ve been feeling really unwell since March with Chronic Sinusitis, which developed into a bacterial infection, pneumonia and beginnings of sepsis. (Trial treatment was stopped for a week whilst I was in hospital) My Haematologist
Despite this being my 3rd treatment I’m usually quite well, however I’ve been feeling really unwell since March with Chronic Sinusitis, which developed into a bacterial infection, pneumonia and beginnings of sepsis. (Trial treatment was stopped for a week whilst I was in hospital) My Haematologist
Billarina
in
CLL Support
3 years ago
MF and platelet transfusions
He will be on weekly
platelet
transfusions
from now on. Fortunately, his symptoms have been mild / controlled by the ruxolitinib - he is not in pain and sleeps and eats well although he is fatigued.
He will be on weekly
platelet
transfusions
from now on. Fortunately, his symptoms have been mild / controlled by the ruxolitinib - he is not in pain and sleeps and eats well although he is fatigued.
dnsn
in
MPN Voice
4 years ago
Off label use of Mekinist (Trametinib)
I came across this in chapter 43 of the Dr Mark Sholz book The Key to Prostate Cancer. It's only anecdotal evidence of course. Anybody considering taking it, should do it with agreement of their MO. Mekinist is a Mek inhibitor and used to treat melanoma, thyroid cancer and non small lung cancer. Patient
I came across this in chapter 43 of the Dr Mark Sholz book The Key to Prostate Cancer. It's only anecdotal evidence of course. Anybody considering taking it, should do it with agreement of their MO. Mekinist is a Mek inhibitor and used to treat melanoma, thyroid cancer and non small lung cancer. Patient
Graham49
in
Advanced Prostate Cancer
3 years ago
Cirrhosis diagnosis
Hi everyone Quick recap for people new to this forum. Diagnosed with Hep C last year. Got it from a blood transfusion in 1986. Had the treatment and happily have since been cleared. Bad news is I am left with liver damage. I have been approved for stage 1 compensation from the infected blood scheme
Hi everyone Quick recap for people new to this forum. Diagnosed with Hep C last year. Got it from a blood transfusion in 1986. Had the treatment and happily have since been cleared. Bad news is I am left with liver damage. I have been approved for stage 1 compensation from the infected blood scheme
Ruby1960
in
British Liver Trust
3 years ago
Update, after ending treatments
I posted about a month ago, soon after my husband decided to end all cancer treatments. I thought I'd post an update as some might find our experience helpful. We decided not to do any more imaging as it wouldn't really tell us anything that we don't already know: that the cancer is progressing rather
I posted about a month ago, soon after my husband decided to end all cancer treatments. I thought I'd post an update as some might find our experience helpful. We decided not to do any more imaging as it wouldn't really tell us anything that we don't already know: that the cancer is progressing rather
WildRose6
in
Advanced Prostate Cancer
3 years ago
Whoa
So I’m 52… have always been told that I was disgustingly healthy. Active mother of two. Then in 2016, I almost bled to death was hospitalized, blood transfusions and had an emergency hysterectomy. 2018 on annual blood test noticed platelets were in 800,000’s. Doctor looked at 2017 test and platelets
So I’m 52… have always been told that I was disgustingly healthy. Active mother of two. Then in 2016, I almost bled to death was hospitalized, blood transfusions and had an emergency hysterectomy. 2018 on annual blood test noticed platelets were in 800,000’s. Doctor looked at 2017 test and platelets
Bug68
in
MPN Voice
3 years ago
Neonatal jaundice and Phototherapy at home
Hello, I am working about jaundice and write article about phototherapy at home, hospital and blood transfusion. I also have a daughter that had jaundice at 3 day old of life that got phototherapy at home and was treated quickly. I'm one of writers that publish articles on https://www.niniyellow.com
Hello, I am working about jaundice and write article about phototherapy at home, hospital and blood transfusion. I also have a daughter that had jaundice at 3 day old of life that got phototherapy at home and was treated quickly. I'm one of writers that publish articles on https://www.niniyellow.com
niniyellow
in
Yellow Alert
3 years ago
Blood Transfusion
I posted two days ago and received no replies! Am I the only person out there that can't stand the thought of a blood transfusion?
I posted two days ago and received no replies! Am I the only person out there that can't stand the thought of a blood transfusion?
kitty7
in
My OCD Community
3 years ago
Primary Peritoneal- My mother
Hi there - my mother was last week diagnosed with PPC. We have had over a year of tests and she had a negative colonoscopy, and then the doctors didn’t test anything else. She had reflux, diarrhoea 3 times a day, stomach cramps and they kept prescribing ant acids. Eventually when my father pushed as
Hi there - my mother was last week diagnosed with PPC. We have had over a year of tests and she had a negative colonoscopy, and then the doctors didn’t test anything else. She had reflux, diarrhoea 3 times a day, stomach cramps and they kept prescribing ant acids. Eventually when my father pushed as
sha120
in
OvaCare
3 years ago
Has anyone had to have a blood transfusion?
I'm having such a difficult time right now. My level of hemoglobin is so low that my doctor wants me to have a blood transfusion. I told the doctor it has to be the last resort. How would you feel if it was your problem?
I'm having such a difficult time right now. My level of hemoglobin is so low that my doctor wants me to have a blood transfusion. I told the doctor it has to be the last resort. How would you feel if it was your problem?
kitty7
in
My OCD Community
3 years ago
Portal hypertension
Hi, I’m new. 5 years ago I developed sepsis due to infected gallbladder. I had developed clots in my portal,mesenteric and splenic veins. Saw vascular specialist and put on blood thinners for 2 months. 6 months after sepsis got my gallbladder removed. During surgery varix was cut and I required a plasma
Hi, I’m new. 5 years ago I developed sepsis due to infected gallbladder. I had developed clots in my portal,mesenteric and splenic veins. Saw vascular specialist and put on blood thinners for 2 months. 6 months after sepsis got my gallbladder removed. During surgery varix was cut and I required a plasma
PiperAlfie
in
British Liver Trust
3 years ago
RLS Boston Harvard MGH Research Scientists Sleep Lab Infusions Pepper163
We have all been trying, with little success, to find professionals who understand and can help us with our RLS. Pepper163 has recently posted an excellent suggestion (note MGH=Massachusetts General Hospital, one of several Harvard Medical School teaching hospitals): "IRON INFUSIONS AND GABAPENTIN
We have all been trying, with little success, to find professionals who understand and can help us with our RLS. Pepper163 has recently posted an excellent suggestion (note MGH=Massachusetts General Hospital, one of several Harvard Medical School teaching hospitals): "IRON INFUSIONS AND GABAPENTIN
2islandboy
in
Restless Legs Syndrome
3 years ago
IRON INFUSIONS AND GABAPENTIN HAS ELIMINATED MY RLS
I have suffered from RLS for 15 years. I have augmented on ROPINEROLE. I was referred to DR. Winkelstein at MGH in boston. He is a Sleep Specialist who specializes in treating RLS My Ferritin levels were very low. I have received 2 Iron transfusion and started on Gabapentin...I HAVEN'T HAD ANY RLS
I have suffered from RLS for 15 years. I have augmented on ROPINEROLE. I was referred to DR. Winkelstein at MGH in boston. He is a Sleep Specialist who specializes in treating RLS My Ferritin levels were very low. I have received 2 Iron transfusion and started on Gabapentin...I HAVEN'T HAD ANY RLS
Pepper163
in
Restless Legs Syndrome
3 years ago
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