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Peroxisomal acyl-CoA oxidase deficiency
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Confused, miserable and in so much pain :( :(
I had no gynaecological problems at all until around 2 years ago when my periods began to be erratic, I would have 2 periods per month and the bleeding was very heavy. I was sent for a scan which revealed I had several fibroids but none particularly large. First of all the GP tried to deal with it
I had no gynaecological problems at all until around 2 years ago when my periods began to be erratic, I would have 2 periods per month and the bleeding was very heavy. I was sent for a scan which revealed I had several fibroids but none particularly large. First of all the GP tried to deal with it
gibson1971
in
Healthy Happy Woman
7 years ago
Thursday
Just a quick catch up while still got franks internet. .I Have Just had my daily stomach injection and on a antibiotic that the nurse said they rarely use said I'm a Guinea pig it's called co-Trimoxazole can't make out what it's for I have also Been having a strange skin reaction last few days my skin
Just a quick catch up while still got franks internet. .I Have Just had my daily stomach injection and on a antibiotic that the nurse said they rarely use said I'm a Guinea pig it's called co-Trimoxazole can't make out what it's for I have also Been having a strange skin reaction last few days my skin
Time_2_drink
in
Lung Conditions Community Forum
7 years ago
Ropinirole not working
Hello everyone, I've been taking Ropinirole 0.25mg for 2 weeks for my rls. I have gradually increased my dose (now at 0.25mg x 3 per night). I haven't noticed any difference as yet and I have resorted (every 3 nights or so) to taking 2 x co-codamol 15/500mg at about 2 am as I am just desperate for sleep
Hello everyone, I've been taking Ropinirole 0.25mg for 2 weeks for my rls. I have gradually increased my dose (now at 0.25mg x 3 per night). I haven't noticed any difference as yet and I have resorted (every 3 nights or so) to taking 2 x co-codamol 15/500mg at about 2 am as I am just desperate for sleep
SheNew
in
Restless Legs Syndrome
7 years ago
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Problems with the Medical Profession
As the B12 provided by the UK NHS has proved to be totally inadequate for my wife's needs, we have been supplementing her with injections of 1mg Methylcobolamin every month. This is proved to be literally a life-saver. She still gets a B12 shot every 3 months per NICE guidelines. Her recent blood
As the B12 provided by the UK NHS has proved to be totally inadequate for my wife's needs, we have been supplementing her with injections of 1mg Methylcobolamin every month. This is proved to be literally a life-saver. She still gets a B12 shot every 3 months per NICE guidelines. Her recent blood
Johnathan
in
Pernicious Anaemia Society
7 years ago
Supplement advice please
I am finding my levels aren't improving on what I take? 800iu D3 for vitamin D deficiency, 5mg folic acid for folate deficiency and 210mg ferrous fumarate for iron deficiency? All are on prescription. Thanks Ferritin - 22 (30 - 400) Folate - 1.8 (2.5 - 19.5) Vitamin B12 - 203 (190 - 900) Total 25 OH
I am finding my levels aren't improving on what I take? 800iu D3 for vitamin D deficiency, 5mg folic acid for folate deficiency and 210mg ferrous fumarate for iron deficiency? All are on prescription. Thanks Ferritin - 22 (30 - 400) Folate - 1.8 (2.5 - 19.5) Vitamin B12 - 203 (190 - 900) Total 25 OH
Dominique116
in
Thyroid UK
7 years ago
Should I go to the physio for knee pain?
I finished couch to 5k in May and was averaging about 3.5K per run, but I had about a month's break after finishing the programme. Over these past 2 weeks I've started to run again, and managed to hit 4.3K last week. I've had knee pain for years and it definitely holds me back when I'm running. I get
I finished couch to 5k in May and was averaging about 3.5K per run, but I had about a month's break after finishing the programme. Over these past 2 weeks I've started to run again, and managed to hit 4.3K last week. I've had knee pain for years and it definitely holds me back when I'm running. I get
robertahenriques
in
Bridge to 10K
7 years ago
Update
Hi everyone As you know I've just joined the forum. My fibroscan was 21.8 kpa and my iqr/med 6.1%. I've had various health issues that have meant for the last decade I have been on paracetamol, codeine, ibuprofen, amitriptyline. I couldn't cope with statins although I tried a few. It was around that
Hi everyone As you know I've just joined the forum. My fibroscan was 21.8 kpa and my iqr/med 6.1%. I've had various health issues that have meant for the last decade I have been on paracetamol, codeine, ibuprofen, amitriptyline. I couldn't cope with statins although I tried a few. It was around that
19581979
in
British Liver Trust
7 years ago
Personal Trainer sessions
Hey everybody, My DR advised me that loosing weight and exercise will ''help'' with my fibro but due to my weight I struggle with self-esteem (Size 14/16). I lost a lot of weight previously going from a size 22 to a small size 10, but I've quickly chucked the weight back on which I feel is putting strain
Hey everybody, My DR advised me that loosing weight and exercise will ''help'' with my fibro but due to my weight I struggle with self-esteem (Size 14/16). I lost a lot of weight previously going from a size 22 to a small size 10, but I've quickly chucked the weight back on which I feel is putting strain
GeorgiaG95
in
Fibromyalgia Action UK
7 years ago
Hi Ive been researching.
Living in the UK Cannabis or related Cannabis products are strictly illegal. I have asked my GP if there is any type of Cannabis that he could prescribe. He rudely told me no way. Online I have seen a website called CBD Brothers the site has a lot of positive reviews about how the capsules/oil can
Living in the UK Cannabis or related Cannabis products are strictly illegal. I have asked my GP if there is any type of Cannabis that he could prescribe. He rudely told me no way. Online I have seen a website called CBD Brothers the site has a lot of positive reviews about how the capsules/oil can
Heltadelta
in
Fibromyalgia Action UK
7 years ago
Iron etc
Hi what do results show please and do I need supplements thank you Ferritin 9 (15 - 400) Folate 2.3 (2.5 - 19.5) Vitamin B12 196 (190 - 900) Vitamin D 25.1 (25 - 50 deficiency) MCV 77.3 (80 -98) MCHC 386 (310 - 350) Iron 6.2 (6.0 - 26.0) Transferrin saturation 13 (10 - 30)
Hi what do results show please and do I need supplements thank you Ferritin 9 (15 - 400) Folate 2.3 (2.5 - 19.5) Vitamin B12 196 (190 - 900) Vitamin D 25.1 (25 - 50 deficiency) MCV 77.3 (80 -98) MCHC 386 (310 - 350) Iron 6.2 (6.0 - 26.0) Transferrin saturation 13 (10 - 30)
Chelsey6
in
Thyroid UK
7 years ago
Full blood count
FBC done recently, told to repeat in 4 weeks as lymphocyte count low...0.6 (range1.00-4.50) also hb estimation low... 114(range 115.11-165.00) All else normal. Is this anything to be worried about?. G.P. says borderline anaemic to eat as much iron rich foods as I can and see what next test shows
FBC done recently, told to repeat in 4 weeks as lymphocyte count low...0.6 (range1.00-4.50) also hb estimation low... 114(range 115.11-165.00) All else normal. Is this anything to be worried about?. G.P. says borderline anaemic to eat as much iron rich foods as I can and see what next test shows
foxglove
in
Pernicious Anaemia Society
7 years ago
In process of diagnosis, advice please?
Hi there. Am very new to the board but hoping I'm in the right place for a bit of advice. A specialist thinks I have this, but I don't think I have 'widespread pain', as seems to be the way it's described in much of the info I'm reading about symptoms. For a number of years I've been having pain in
Hi there. Am very new to the board but hoping I'm in the right place for a bit of advice. A specialist thinks I have this, but I don't think I have 'widespread pain', as seems to be the way it's described in much of the info I'm reading about symptoms. For a number of years I've been having pain in
Daisy-
in
Fibromyalgia Action UK
7 years ago
Fycocompa and Co-Codamol bad mix?
I have JME and take Fycompa and Lamictal for the epilepsy. Lamictal I have used for many years and I have never been a healthy bunny at the best of times, thus used co-codamol many times with it. I have a serious neuroma on my spine, so am using pain killers all the time. Recently I have found I have
I have JME and take Fycompa and Lamictal for the epilepsy. Lamictal I have used for many years and I have never been a healthy bunny at the best of times, thus used co-codamol many times with it. I have a serious neuroma on my spine, so am using pain killers all the time. Recently I have found I have
Adlon57
in
Healthy Evidence
7 years ago
Help with supplements
Hi here are results for other things. GP ordered B12 injections due to B12 deficiency and ferrous fumarate for iron deficiency anaemia. I take 1 iron tablet a day and 800iu D3 and 5mcg folic acid once a day thank you B12 148 (180 - 900) Folate 2.3 (2.5 - 19.5) Vitamin D 33.5 (25 - 50 deficiency) Ferritin
Hi here are results for other things. GP ordered B12 injections due to B12 deficiency and ferrous fumarate for iron deficiency anaemia. I take 1 iron tablet a day and 800iu D3 and 5mcg folic acid once a day thank you B12 148 (180 - 900) Folate 2.3 (2.5 - 19.5) Vitamin D 33.5 (25 - 50 deficiency) Ferritin
Amethyst85
in
Thyroid UK
7 years ago
Ropinirole
Hi everyone, I've just been prescribed Ropinirole for my RLS and was wondering what other people's experience of this has been. Up until now I've been taking Co-codamol 15/500mg x 2 at night which has helped but my GP wants me to stop this and start the Ropinirole. I am also hypothyroid for which
Hi everyone, I've just been prescribed Ropinirole for my RLS and was wondering what other people's experience of this has been. Up until now I've been taking Co-codamol 15/500mg x 2 at night which has helped but my GP wants me to stop this and start the Ropinirole. I am also hypothyroid for which
SheNew
in
Restless Legs Syndrome
7 years ago
remission gca?
Until I was diagnosed, by letter, and still no Endocrine appt, I was on 2mg Pred, and doing well. Along came the Synacthen test, and diagnosis of Addison's disease, and my world fell apart. Felt like I did, 12 years ago, when diagnosed GCA. It has been a rollercoaster ride. The stomach aches have settled
Until I was diagnosed, by letter, and still no Endocrine appt, I was on 2mg Pred, and doing well. Along came the Synacthen test, and diagnosis of Addison's disease, and my world fell apart. Felt like I did, 12 years ago, when diagnosed GCA. It has been a rollercoaster ride. The stomach aches have settled
karools16
in
PMRGCAuk
7 years ago
Low B12 with 'normal' MCV/MCH
I'm still trying to get to grips with the details of my issues, having finally see some possible light at the end of a long tunnel. I did search for a similar post, so apologies if I've missed one. As I understand what I'm reading, PA is a macrocytic anemia, so would normally result in a high MCV on
I'm still trying to get to grips with the details of my issues, having finally see some possible light at the end of a long tunnel. I did search for a similar post, so apologies if I've missed one. As I understand what I'm reading, PA is a macrocytic anemia, so would normally result in a high MCV on
GavinUK
in
Pernicious Anaemia Society
7 years ago
Aspirin and ibuprofen
Hi im new to ET and on low dose aspirin. I've just had gynae surgery and havw been taking co codamol and paracetamol for pain. I also suffer from arthritis in 1 of my knees and have in the past taken ibuprofen or naproxen forthis but have read that these could interfere with aspirin. I stopped them
Hi im new to ET and on low dose aspirin. I've just had gynae surgery and havw been taking co codamol and paracetamol for pain. I also suffer from arthritis in 1 of my knees and have in the past taken ibuprofen or naproxen forthis but have read that these could interfere with aspirin. I stopped them
ladydriva
in
MPN Voice
7 years ago
Ferritin up and b12 up - translation of blood tests, please?
Please could someone advise as to what these iron tests show? My ferritin level has gone up. B12 level has gone up and as I do not take any b12 supplements ( my last 3-monthly injection was 31/5) how can my levels go up when it is now longer since my last dose?? Concentration is still a main problem
Please could someone advise as to what these iron tests show? My ferritin level has gone up. B12 level has gone up and as I do not take any b12 supplements ( my last 3-monthly injection was 31/5) how can my levels go up when it is now longer since my last dose?? Concentration is still a main problem
Doubleblank
in
Pernicious Anaemia Society
7 years ago
Codeine
Hi everybody!May I ask you how much codeine do you need to calm your legs?My rls drives me crazy.I m on 0.18 of prami before bedtime.It helps very much.But my rls is severe during the day.Today it was the 1st time that i took a pill called lonarid which is o combo of paracetamol, codeine and caffeine.It
Hi everybody!May I ask you how much codeine do you need to calm your legs?My rls drives me crazy.I m on 0.18 of prami before bedtime.It helps very much.But my rls is severe during the day.Today it was the 1st time that i took a pill called lonarid which is o combo of paracetamol, codeine and caffeine.It
Katerina22
in
Restless Legs Syndrome
7 years ago
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