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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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where do I go from here, help from the experts please.
I have had advice from this forum which has really helped and I am greatly appreciated of that, but, things for me are not getting any better, in fact I feel I am back to square one again and I've just had enough of feeling like this and desperately need further advice. My neck has began to get stiff
I have had advice from this forum which has really helped and I am greatly appreciated of that, but, things for me are not getting any better, in fact I feel I am back to square one again and I've just had enough of feeling like this and desperately need further advice. My neck has began to get stiff
Peanut31
in
Thyroid UK
7 years ago
Does anyone get iron supplements on prescription?
I was prescribed a couple of boxes but they have run out now. I am going to ask to be retested to see if my stored iron is any better. What figure is a good one to aim for for someone with Hashimotos on Levothyroxine. Thanks in advance for your reply’s.
I was prescribed a couple of boxes but they have run out now. I am going to ask to be retested to see if my stored iron is any better. What figure is a good one to aim for for someone with Hashimotos on Levothyroxine. Thanks in advance for your reply’s.
Auntbessy
in
Thyroid UK
6 years ago
is being clogged up in throat with phelm a good sign eg that its all coming out ?
HI asthma was under control on montelukast 10mg and clencil 200mg (like i didnt have asthma apart from odd chest infection once a yr) but last may/june had an infection that took 2 doses of antibiotics and predislone to calm down, but I still felt like no air feeling . In December was changed from clenil
HI asthma was under control on montelukast 10mg and clencil 200mg (like i didnt have asthma apart from odd chest infection once a yr) but last may/june had an infection that took 2 doses of antibiotics and predislone to calm down, but I still felt like no air feeling . In December was changed from clenil
Polly44
in
Asthma Community Forum
6 years ago
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Cod liver oil & levothyroxine
Quick question- is there any reason I shouldn’t take my cod liver oil capsules with my levo?
Quick question- is there any reason I shouldn’t take my cod liver oil capsules with my levo?
Rennixon
in
Thyroid UK
6 years ago
Anemia making me feel like death
Iam a powerlifter how long before the b12 shots and iron tablets start to work this is killing me having no energy the doctors don't really care but to get so anemic all the time is horrible position ,,,,how long will it take for my hemoglobin to get up from 10.2 and I am a massive muscley man do you
Iam a powerlifter how long before the b12 shots and iron tablets start to work this is killing me having no energy the doctors don't really care but to get so anemic all the time is horrible position ,,,,how long will it take for my hemoglobin to get up from 10.2 and I am a massive muscley man do you
Tommy33
in
Pernicious Anaemia Society
6 years ago
I feel like Im never going to find the solution!!!
Hi Everyone Apologies for writing again but im in such a dilema After reading recent posts it appears alot of people are suffering with differetn symptoms and I really hope you find your treatment that will work for you I suffered with an ED for 14 years and noticed my stomach issues around 4 years ago
Hi Everyone Apologies for writing again but im in such a dilema After reading recent posts it appears alot of people are suffering with differetn symptoms and I really hope you find your treatment that will work for you I suffered with an ED for 14 years and noticed my stomach issues around 4 years ago
Sammy987
in
IBS Network
6 years ago
Caution about taking B12 supplements - article. By B12 deficiency research group.
Caution note about the use of B12 (sublingual) tablets, sprays and patches About oral supplementation: We see a big problem whenever oral B12 supplementation is discussed and in this way we would like to make a contribution with information for our foreign website visitors: Important note
Caution note about the use of B12 (sublingual) tablets, sprays and patches About oral supplementation: We see a big problem whenever oral B12 supplementation is discussed and in this way we would like to make a contribution with information for our foreign website visitors: Important note
eddie1952
in
Thyroid UK
6 years ago
Lower abdomen pain
Hi ladies I have been having cramps in my left lower abdomen and back since last Saturday and the pain has got unbearable. I went to the doctors yesterday and she thinks I may have a ovarian cyst and has referred me to have an ultrasound done. This morning I have woken up with pains in the tips of my
Hi ladies I have been having cramps in my left lower abdomen and back since last Saturday and the pain has got unbearable. I went to the doctors yesterday and she thinks I may have a ovarian cyst and has referred me to have an ultrasound done. This morning I have woken up with pains in the tips of my
RebeccaL
in
Endometriosis UK
6 years ago
New lab results
Hi, havent written on here in a while but was wondering if someone could help me by explaining maybe whats going on? I have new lab results. Also back story, last month found out I have hashimotos due to my TGAB being over 900. Ihave changed my diet to AIP so this could he possibly be influencing
Hi, havent written on here in a while but was wondering if someone could help me by explaining maybe whats going on? I have new lab results. Also back story, last month found out I have hashimotos due to my TGAB being over 900. Ihave changed my diet to AIP so this could he possibly be influencing
JennaShi
in
Thyroid UK
6 years ago
pains in hands and generally everywhere!
I have been diagnosed with pernicious anaemia, had loading doses then next jab 10 weeks later instead of 12 due to pains, doc did say could possibly have fibromyalgia too - think that's her explanation for these pains, been taking two co-codamol most days, today hurt lots including hands and lower right
I have been diagnosed with pernicious anaemia, had loading doses then next jab 10 weeks later instead of 12 due to pains, doc did say could possibly have fibromyalgia too - think that's her explanation for these pains, been taking two co-codamol most days, today hurt lots including hands and lower right
Trace-67
in
Pernicious Anaemia Society
6 years ago
How long for iron to replenish ferritin levels?
Diagnosed iron deficient in 2011 with iron anaemia and this was when I started ferrous fumarate (3x a day), please advise. Only taking 1 ferrous fumarate now. All results below. Nov 2011 Ferritin 27 (30 - 400) abnormal pls contact patient Jan 2012 Ferritin 49 (30 - 400) normal no action Aug 2013 Ferritin
Diagnosed iron deficient in 2011 with iron anaemia and this was when I started ferrous fumarate (3x a day), please advise. Only taking 1 ferrous fumarate now. All results below. Nov 2011 Ferritin 27 (30 - 400) abnormal pls contact patient Jan 2012 Ferritin 49 (30 - 400) normal no action Aug 2013 Ferritin
WestonJ
in
Thyroid UK
6 years ago
Timing of tests - Iron, B12 and Folate
Hi I've bought this test from Medichecks. Does it matter what time of the day I do the blood test? And should it be a fasting test? Thank-you
Hi I've bought this test from Medichecks. Does it matter what time of the day I do the blood test? And should it be a fasting test? Thank-you
mb008
in
Thyroid UK
6 years ago
Long term pain killers for Fibromyalgia is to be only Paracetamol what a joke.
Hi ever body i have 'nt been on here for a while been so fed up with life. It is so hard to get to see a doctor where i live you have to go through a triage now and if your lucky you get a call back from the doctor otherwise its from the nurse or receptionist. They don't seem at all interested in how
Hi ever body i have 'nt been on here for a while been so fed up with life. It is so hard to get to see a doctor where i live you have to go through a triage now and if your lucky you get a call back from the doctor otherwise its from the nurse or receptionist. They don't seem at all interested in how
tasha2
in
Fibromyalgia Action UK
6 years ago
Lumbar fusions
Hello all. Have had three lumbar fusions in five years. Now no more surgery as they did not last. The last obe in 2015 lasted 2 years. Now the pain is really bad. Morphine and Tramadol (allergic) bad reactions and don’t work. Been referred to a pain clinic. They could only suggest steroid injections
Hello all. Have had three lumbar fusions in five years. Now no more surgery as they did not last. The last obe in 2015 lasted 2 years. Now the pain is really bad. Morphine and Tramadol (allergic) bad reactions and don’t work. Been referred to a pain clinic. They could only suggest steroid injections
Fyllida
in
NRAS
6 years ago
Moderate risk of interaction - Apixaban and fish oil
I got a bit of a shock at this information - thanks to Kingsley09 for the heads up. https://www.drugs.com/drug-interactions/apixaban-with-fish-oil-3438-0-1749-3873.html I’m still researching if there is a safe amount to take with anticoagulants but I’ve taken my last cod liver oil capsule, that’s for
I got a bit of a shock at this information - thanks to Kingsley09 for the heads up. https://www.drugs.com/drug-interactions/apixaban-with-fish-oil-3438-0-1749-3873.html I’m still researching if there is a safe amount to take with anticoagulants but I’ve taken my last cod liver oil capsule, that’s for
Finvola
in
AF Association
6 years ago
Iron deficiency, how to treat?
Dec 2017 Ferritin 28 (15 - 150) Iron 7.2 (6.0 - 26.0) Transferrin saturation 13 (12 - 45) RBC 4.41 (3.8 - 5.8) WBC 7.13 (4 - 11) Haemoglobin 116 (115 - 150) Haematocrit 0.41 (0.37 - 0.47) MCV 80.2 (83 - 98) MCHC 378 (310 - 350) I can't tolerate tranexamic acid for my heavy periods. The tablets make
Dec 2017 Ferritin 28 (15 - 150) Iron 7.2 (6.0 - 26.0) Transferrin saturation 13 (12 - 45) RBC 4.41 (3.8 - 5.8) WBC 7.13 (4 - 11) Haemoglobin 116 (115 - 150) Haematocrit 0.41 (0.37 - 0.47) MCV 80.2 (83 - 98) MCHC 378 (310 - 350) I can't tolerate tranexamic acid for my heavy periods. The tablets make
katriona_d2018
in
Thyroid UK
6 years ago
Leggings
Had my usual co codamol and pre gabalin last night and about an hour later in bed legs started. Got up and used some massage oils and then put on some thin leggings and that did help
Had my usual co codamol and pre gabalin last night and about an hour later in bed legs started. Got up and used some massage oils and then put on some thin leggings and that did help
Smiffyliz
in
Restless Legs Syndrome
6 years ago
I'v been on Co-Codamol 30mg/500mg for years
I have been taking co-codamol 30/500 for many years for my back ,hip and hands pain which work well I am allowed 8 x a day sometimes I may need this amount but sometimes I dont take as many ,I have had times Iv been pain free for a good few days so I know I am not addicted but my doctor will only give
I have been taking co-codamol 30/500 for many years for my back ,hip and hands pain which work well I am allowed 8 x a day sometimes I may need this amount but sometimes I dont take as many ,I have had times Iv been pain free for a good few days so I know I am not addicted but my doctor will only give
Bambiwaskilled
in
Action on Pain
6 years ago
Joint and bone aching pain
I have Joint Hypermobility Syndrome and intermittently have had joint and bone pain for 17 years, but have generally managed to live an active, happy life. Since early Jan this year after a minor fall on ice I have had particularly more pain - mainly in shoulders, elbows and knees. Yesterday I woke with
I have Joint Hypermobility Syndrome and intermittently have had joint and bone pain for 17 years, but have generally managed to live an active, happy life. Since early Jan this year after a minor fall on ice I have had particularly more pain - mainly in shoulders, elbows and knees. Yesterday I woke with
Stobs
in
Pain Concern
6 years ago
Ferritin etc
Hi I feel tired all the time, energy feeling like it's going down as time goes on, cold feet and been breathless. Any of below results indicate anything. Thank you Ferritin 26.6 (15 - 150 ng/L) MCV 80.2 (83 - 98 fL) MCHC 376 (310 - 350) Haemoglobin 145 (110 - 150) Red blood cell count 4.41 (3.80 - 5.80
Hi I feel tired all the time, energy feeling like it's going down as time goes on, cold feet and been breathless. Any of below results indicate anything. Thank you Ferritin 26.6 (15 - 150 ng/L) MCV 80.2 (83 - 98 fL) MCHC 376 (310 - 350) Haemoglobin 145 (110 - 150) Red blood cell count 4.41 (3.80 - 5.80
Mei80
in
Thyroid UK
7 years ago
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