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maybe not PMR!
hello - i saw my consultant rhematologist last week and he doesnt think i have PMR - or at least it’s atypical. If atypical then thats a management problem. So he says steroids are masking symptoms and also causes and im using them as painkiller so he's taking me off them over 6 weeks to see whats really
hello - i saw my consultant rhematologist last week and he doesnt think i have PMR - or at least it’s atypical. If atypical then thats a management problem. So he says steroids are masking symptoms and also causes and im using them as painkiller so he's taking me off them over 6 weeks to see whats really
JessJess21
in
PMRGCAuk
12 days ago
lower back pain
Had car accident in 2012 I had a prolapse disc, Always had pain but not bad 3 years ago this started more, went doctors give me pain killers and Pregbalin. 2023 July sent me to physio, I ended up telling them it just aggravates the problem,they were going to escalate the case, my wife says It’s like
Had car accident in 2012 I had a prolapse disc, Always had pain but not bad 3 years ago this started more, went doctors give me pain killers and Pregbalin. 2023 July sent me to physio, I ended up telling them it just aggravates the problem,they were going to escalate the case, my wife says It’s like
Abergele
in
Pain Concern
12 days ago
Final lap?
Four years on and grateful for that. Enzalutamide stopped working earlier in the year. PSA doubling. Lesion in spine led to pathological fracture and some pressure on the spinal cord. Radiation to spine and pain relieved. Docetaxel started but discontinued due to severe allergic reaction. Nothing for
Four years on and grateful for that. Enzalutamide stopped working earlier in the year. PSA doubling. Lesion in spine led to pathological fracture and some pressure on the spinal cord. Radiation to spine and pain relieved. Docetaxel started but discontinued due to severe allergic reaction. Nothing for
FortyWinks
in
Advanced Prostate Cancer
15 days ago
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Describing my Headache
Since my TBI 5 months ago I have just figured out what my headache feels like. I have struggled to describe it to my loved ones and consultants but Eating Fizzy sherbert is how it feels (but a painful version). This is everyday even with my pain medication. Has anyone had this and does it end?
Since my TBI 5 months ago I have just figured out what my headache feels like. I have struggled to describe it to my loved ones and consultants but Eating Fizzy sherbert is how it feels (but a painful version). This is everyday even with my pain medication. Has anyone had this and does it end?
ShareeRose
in
Headway
16 days ago
Migraine with brainstem aura
I am new here and would like to share my story with you all,it may be helpful to others with similar symptoms,you can ask questions if you wish to .February 2023 I experienced a strange sensation. I was at work and standing,when a loud ringing started in my ears,right side of my face felt numb,double
I am new here and would like to share my story with you all,it may be helpful to others with similar symptoms,you can ask questions if you wish to .February 2023 I experienced a strange sensation. I was at work and standing,when a loud ringing started in my ears,right side of my face felt numb,double
Hans23
in
Migraine Support
18 days ago
osteoarthritis & codeine
I was first diagnosed with spinal stenosis back in the mists of time when I was just 19. I now have diagnosed OA in my knees, lower spine, shoulders, hands and fingers. I was prescribed Codeine Phosphate. Not long after I was first prescribed, having read the enclosed leaflet, I discovered Codeine can
I was first diagnosed with spinal stenosis back in the mists of time when I was just 19. I now have diagnosed OA in my knees, lower spine, shoulders, hands and fingers. I was prescribed Codeine Phosphate. Not long after I was first prescribed, having read the enclosed leaflet, I discovered Codeine can
phoebesmum
in
PMRGCAuk
22 days ago
Help please
I was diagnosed in late May year. Since taking Steroids and other meds been getting on OK. Tapered down to 10 mg due to taper to 9 later in August. I continued with some discomfort in left hand but the last few days I have developed pain, with pain in both hands, shooting pains, wrists now knees and
I was diagnosed in late May year. Since taking Steroids and other meds been getting on OK. Tapered down to 10 mg due to taper to 9 later in August. I continued with some discomfort in left hand but the last few days I have developed pain, with pain in both hands, shooting pains, wrists now knees and
Jakey67
in
PMRGCAuk
22 days ago
side effects of tapering
I reduced successfully from 7 to 6mg a year ago and have been trying to reduce a bit further recently. My 6mg was split into 5mg in the morning and 1mg at night. I decided to split the 1mg tablet every few days and got down to alternate days. Going lower wasn’t a success however; I tried once a week
I reduced successfully from 7 to 6mg a year ago and have been trying to reduce a bit further recently. My 6mg was split into 5mg in the morning and 1mg at night. I decided to split the 1mg tablet every few days and got down to alternate days. Going lower wasn’t a success however; I tried once a week
Jackie_boy
in
PMRGCAuk
23 days ago
root canal work while on zoledronic acid infusions
I have 6 monthly dental checkups, and for years all has been well. I had my first zoledronic acid infusion 28th December 2023. My last dental checkup was in March. A week ago I started getting intermittent pains in the right side of my jaw, both bottom and top. GP ruled out PMR and recommended I visit
I have 6 monthly dental checkups, and for years all has been well. I had my first zoledronic acid infusion 28th December 2023. My last dental checkup was in March. A week ago I started getting intermittent pains in the right side of my jaw, both bottom and top. GP ruled out PMR and recommended I visit
Angel_doll
in
PMRGCAuk
23 days ago
can someone explain please
During a conversation with my husband concerning my PMR, l told him that l was in pain that day. He asked why l didn’t request some stronger/more effective pain meds from the GP. So l made the statement that PMR does not respond particularly to painkillers. My hubby seemed to think that what l had
During a conversation with my husband concerning my PMR, l told him that l was in pain that day. He asked why l didn’t request some stronger/more effective pain meds from the GP. So l made the statement that PMR does not respond particularly to painkillers. My hubby seemed to think that what l had
Legsandmore
in
PMRGCAuk
24 days ago
Nerve pain in foot
Does anyone else get what is more than likely nerve pain in the feet? It comes and goes like a shooting pain but has been a lot more frequent recently and it's not nice. At the moment it's like above my little toe. But it moves around both feet - and usually it was in the middle towards the upper part
Does anyone else get what is more than likely nerve pain in the feet? It comes and goes like a shooting pain but has been a lot more frequent recently and it's not nice. At the moment it's like above my little toe. But it moves around both feet - and usually it was in the middle towards the upper part
On_porter
in
LSN
24 days ago
Leg cramps
I drink a lot of Matcha tea with honey, also squash. One coffee breakfast but I still get cramp. My feet feel as they try to curl under, legs then feel heavy and cramp up to my hips. Last night both went very quickly and getting out of bed was very painful. Standing and trying to walk was laughable.
I drink a lot of Matcha tea with honey, also squash. One coffee breakfast but I still get cramp. My feet feel as they try to curl under, legs then feel heavy and cramp up to my hips. Last night both went very quickly and getting out of bed was very painful. Standing and trying to walk was laughable.
mag123ben
in
MPN Voice
27 days ago
Should I try the 5 mg of prednisone increase for few days
well I have told my story few times over last months, most recently over 3 weeks ago have severe groin pain and moves around, hip joint front thigh and same side achy leg, had MRI on back about 6 weeks ago, ortho dr also ordered MRI for left hip( this was to check if tears tjat happened in Jan in gluteus
well I have told my story few times over last months, most recently over 3 weeks ago have severe groin pain and moves around, hip joint front thigh and same side achy leg, had MRI on back about 6 weeks ago, ortho dr also ordered MRI for left hip( this was to check if tears tjat happened in Jan in gluteus
arvine
in
PMRGCAuk
29 days ago
advice for adenomyosis
Hi all. I have endometriosis, diagnosed in 1999 and adenomyosis, diagnosed in 2018. I’m 44 years old now. I am under the care of a gynaecologist but maybe I should get another opinion..? I suffer with severe pain during my period but then right after bleeding stops, I suffer with a burning pain for
Hi all. I have endometriosis, diagnosed in 1999 and adenomyosis, diagnosed in 2018. I’m 44 years old now. I am under the care of a gynaecologist but maybe I should get another opinion..? I suffer with severe pain during my period but then right after bleeding stops, I suffer with a burning pain for
cantdeal
in
Endometriosis UK
1 month ago
The hidden dangers ... the many routes to the IC ... beware of the cheese ... 🧀
It's the early hours of day 11 of my trip to Switzerland with my father. Ironically I can't sleep, so got up for a hot drink and a banana (after reading IP's chat post this week). I know screen time is not the answer, but I suspect I'm done for the night anyway. It's been an eventful week leading to
It's the early hours of day 11 of my trip to Switzerland with my father. Ironically I can't sleep, so got up for a hot drink and a banana (after reading IP's chat post this week). I know screen time is not the answer, but I suspect I'm done for the night anyway. It's been an eventful week leading to
linda9389
Administrator
in
Fun Beyond 10K & Race Support
1 month ago
Costochondritis after heart attack
Hi all, so about 6 weeks after my heart attack and stent placement I started to get a lot of sharp pains in my chest, ribs and shoulder blade, which is now up into my shoulder neck that creates headaches at times. I passed my stress test, CT scan, full blood test and X-rays. All tests clear and
Hi all, so about 6 weeks after my heart attack and stent placement I started to get a lot of sharp pains in my chest, ribs and shoulder blade, which is now up into my shoulder neck that creates headaches at times. I passed my stress test, CT scan, full blood test and X-rays. All tests clear and
Angina42
in
British Heart Foundation
1 month ago
hand and foot scan question
I have a letter telling me to stop taking pain medication for four weeks Before my hand and foot scan. Im taking liquid naproxen as it takes the edge off, however I’m unable to even manage a day with out pain relief Have you had a hand foot scan and told not to take and meds for four weeks till
I have a letter telling me to stop taking pain medication for four weeks Before my hand and foot scan. Im taking liquid naproxen as it takes the edge off, however I’m unable to even manage a day with out pain relief Have you had a hand foot scan and told not to take and meds for four weeks till
Beachwalk
in
NRAS
1 month ago
Leeches
Leeches - Has anyone had any experience with Parkinson's? Here a naturopath describes the therapy: About leeches The healing powers of leeches were already known and used in ancient times. Famous doctors such as Galen and Avicenna, later Hufeland, Morawitz, Bottenberg and many others used the
Leeches - Has anyone had any experience with Parkinson's? Here a naturopath describes the therapy: About leeches The healing powers of leeches were already known and used in ancient times. Famous doctors such as Galen and Avicenna, later Hufeland, Morawitz, Bottenberg and many others used the
PDTom
in
Cure Parkinson's
1 month ago
Rebound migrane
Hi I've just returned from a holiday, where I had to take a lot of painkillers just to survive the 2 weeks, without spoiling it for everyone. I'm now trying to reduce the triptans and cocodamol, but it's very hard going without painkillers. Does anyone know how long it takes to get them out of your system
Hi I've just returned from a holiday, where I had to take a lot of painkillers just to survive the 2 weeks, without spoiling it for everyone. I'm now trying to reduce the triptans and cocodamol, but it's very hard going without painkillers. Does anyone know how long it takes to get them out of your system
Mary1959
in
National Migraine Centre
1 month ago
Some experiences on cardiac symptoms
After a stroke ten years ago I had an ASD closure. I was born with a mitral valve prolapse. My regurgitation currently is estimated to be moderate to severe. No surgery on the cards. About three months ago I was shopping when I experienced a severe pain in my upper back and left arm. My arm felt
After a stroke ten years ago I had an ASD closure. I was born with a mitral valve prolapse. My regurgitation currently is estimated to be moderate to severe. No surgery on the cards. About three months ago I was shopping when I experienced a severe pain in my upper back and left arm. My arm felt
SlothOnSpeed
in
British Heart Foundation
1 month ago
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