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FISH TESTING - ‘Admin Edit’ - please read sad update on this post before replying.
I apologize if I am incorrect with the name of the testing results below. My husbands first CLL Dr 5 years ago had him on watch and wait. When he received the following results Tumor/ Prognostic Markers: CD38+ ZAP70+ Trisomy 12. IgVH unmutated, I researched the results which were very concerning to
I apologize if I am incorrect with the name of the testing results below. My husbands first CLL Dr 5 years ago had him on watch and wait. When he received the following results Tumor/ Prognostic Markers: CD38+ ZAP70+ Trisomy 12. IgVH unmutated, I researched the results which were very concerning to
Debcap61
in
CLL Support
6 months ago
PAF well controlled till I got covid
hi, I’m new to this forum and hope you can give me some hope. I’ve had PAF for 13 years, well controlled on propranolol 80mg slow release - other beta blockers seem to affect my chest/throat and give me dreadful indigestion and can’t tolerate the newer ones. However in November whilst on holiday in
hi, I’m new to this forum and hope you can give me some hope. I’ve had PAF for 13 years, well controlled on propranolol 80mg slow release - other beta blockers seem to affect my chest/throat and give me dreadful indigestion and can’t tolerate the newer ones. However in November whilst on holiday in
Clifflove
in
Atrial Fibrillation Support
6 months ago
Hepatic Peliosis (What is it?)
RE: Hepatic Peliosis (What is it?) Hi all, I have been diagnosed with Hepatic Peliosis of the liver. What is it? and is there any treatments please? Does anyone else have Hepatic Peliosis ? How are your dealing with this etc? Any information would be helpful. Thank you. Regards, Kevin Walker
RE: Hepatic Peliosis (What is it?) Hi all, I have been diagnosed with Hepatic Peliosis of the liver. What is it? and is there any treatments please? Does anyone else have Hepatic Peliosis ? How are your dealing with this etc? Any information would be helpful. Thank you. Regards, Kevin Walker
kevpwalker
in
British Liver Trust
5 months ago
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Dizzy
Good morning to you all.I've been diagnosed with fibomyaigia in 2020 But I am getting real dizzy it's lasted for a couple of weeks now at first I got up at night and couldn't walk at all in a straight line everything was spinning so scary. The doctor said I have Benign paroxysmal positional vertigo
Good morning to you all.I've been diagnosed with fibomyaigia in 2020 But I am getting real dizzy it's lasted for a couple of weeks now at first I got up at night and couldn't walk at all in a straight line everything was spinning so scary. The doctor said I have Benign paroxysmal positional vertigo
Chellelo
in
Fibromyalgia Action UK
8 months ago
On Venetoclax, lymph node appeared
Trying not to worry but a lymph node in my armpit swelled up. I feel fine, no colds, fevers or recent vaccinations. Even did a Covid test because I have had Covid totally asymptomatic but negative. Has anyone have this happen and it turned out to be nothing. Hoping this is just a fluke but it seems
Trying not to worry but a lymph node in my armpit swelled up. I feel fine, no colds, fevers or recent vaccinations. Even did a Covid test because I have had Covid totally asymptomatic but negative. Has anyone have this happen and it turned out to be nothing. Hoping this is just a fluke but it seems
Alex830
in
CLL Support
6 months ago
B1 Therapy #Case 2 *Andreia Peres
I've decided to write a series of posts about B1 therapy for a group of people I'm following. Most of them I met through Young Parkies Portugal, or they reached out to me on social media asking for guidance in applying this therapy. Some of these texts had already been published on social media, and
I've decided to write a series of posts about B1 therapy for a group of people I'm following. Most of them I met through Young Parkies Portugal, or they reached out to me on social media asking for guidance in applying this therapy. Some of these texts had already been published on social media, and
Markbit
in
Cure Parkinson's
8 months ago
Covid 19 vaccine UK
Hi there, I’d welcome any information you have on eligibility for Covid 19 vaccination in the U.K. I’ve looked at the .gov.uk website and in one place it includes epilepsy under neurological conditions, in another place it doesn’t. I did have an in invitation from my GP for flu, but not for Covid.
Hi there, I’d welcome any information you have on eligibility for Covid 19 vaccination in the U.K. I’ve looked at the .gov.uk website and in one place it includes epilepsy under neurological conditions, in another place it doesn’t. I did have an in invitation from my GP for flu, but not for Covid.
GillyA
in
Epilepsy Action
6 months ago
Personal insights into late stage PD thoughts
Gaslighting...(Don't gaslight yourself, dont allow others to gaslight you). (Gaslighting is a form of psychological abuse in which a person or group causes someone to question their own sanity, memories, or perception of reality. It is an insidious form of manipulation and psychological control. Victims
Gaslighting...(Don't gaslight yourself, dont allow others to gaslight you). (Gaslighting is a form of psychological abuse in which a person or group causes someone to question their own sanity, memories, or perception of reality. It is an insidious form of manipulation and psychological control. Victims
beehive23
in
Cure Parkinson's
8 months ago
Update after3years
I was in a covid coma 3years ago and posted in here to soon after I got home my brain was so hyper for a bout a month I felt so.guilty that I survived when ppl were loosing husband's wives children mum's dad's etc when I still do but I did survive I went to therapist who helped a lot and helped me
I was in a covid coma 3years ago and posted in here to soon after I got home my brain was so hyper for a bout a month I felt so.guilty that I survived when ppl were loosing husband's wives children mum's dad's etc when I still do but I did survive I went to therapist who helped a lot and helped me
Drewc
in
ICUsteps
6 months ago
Keep getting chest infections
hello I had open heart surgery in June to repair my mitral valve. The surgery was a great success, I’ve recovered well and I am back to working full time. However, whereas before surgery I very rarely got Ill , I now seem to pick up every big going 🤦🏻♀️ And end up quite poorly. I am on statins and
hello I had open heart surgery in June to repair my mitral valve. The surgery was a great success, I’ve recovered well and I am back to working full time. However, whereas before surgery I very rarely got Ill , I now seem to pick up every big going 🤦🏻♀️ And end up quite poorly. I am on statins and
Plum44
in
British Heart Foundation
6 months ago
Covid day four....U.K
Hi all. This sounds so stupid but I thought it was a regular cold. Just did a COVID test and it's positive. I think it maybe too late to access antivirals now? What should I do? Sorry, just a bit panicked. Thank you in advance.
Hi all. This sounds so stupid but I thought it was a regular cold. Just did a COVID test and it's positive. I think it maybe too late to access antivirals now? What should I do? Sorry, just a bit panicked. Thank you in advance.
Basil01
in
CLL Support
6 months ago
advice after surgery/ any advice on natural remedies or how to slow the regrowth of endo?
I had my surgery on Wednesday to investigate my bladder pain. Turns out my bladder is clear but I had a chocolate cyst inside my ovary, and my ovary was stuck to my pelvic wall. I had a different surgeon from before, who indicated that my surgery wasn’t performed properly last time. So I am unsure if
I had my surgery on Wednesday to investigate my bladder pain. Turns out my bladder is clear but I had a chocolate cyst inside my ovary, and my ovary was stuck to my pelvic wall. I had a different surgeon from before, who indicated that my surgery wasn’t performed properly last time. So I am unsure if
merlin-mimi
in
Endometriosis UK
6 months ago
Overactive thyroid and possibly Graves due to symptoms -not medically diagnosed.
Hi there , I am very new to this and I struggle at the moment as I’m falling apart. The whole of December I been basically bedridden and was wondering if you could give me some advice for when I see my doctor. I have an appointment on the 8th and I really want to understand what he is going to discuss
Hi there , I am very new to this and I struggle at the moment as I’m falling apart. The whole of December I been basically bedridden and was wondering if you could give me some advice for when I see my doctor. I have an appointment on the 8th and I really want to understand what he is going to discuss
Danathediva1
in
Thyroid UK
6 months ago
I could have PMR…
I posted back in September for some invaluable advice from you lovely people. I suspected I might have PMR but after being in hospital and treated for ‘infection’ which is what the doctors said I had I thought no more about it. I had high inflammation markers which were thought to be due to infection
I posted back in September for some invaluable advice from you lovely people. I suspected I might have PMR but after being in hospital and treated for ‘infection’ which is what the doctors said I had I thought no more about it. I had high inflammation markers which were thought to be due to infection
MsWhistledown
in
PMRGCAuk
6 months ago
Anyone here with cervical arthritis?
I recently found out that the pains I've been having in my neck, shoulders and arms is arthritis. Specifically c4-c5, c6-c7. I don't want ibuprofen, Tylenol isn't working and I'm allergic to sulfa drugs; I'm kinda concerned about all the drugs, but need something to help so I can continue to work. I
I recently found out that the pains I've been having in my neck, shoulders and arms is arthritis. Specifically c4-c5, c6-c7. I don't want ibuprofen, Tylenol isn't working and I'm allergic to sulfa drugs; I'm kinda concerned about all the drugs, but need something to help so I can continue to work. I
Fleur29
in
Osteoarthritis Action
6 months ago
Stopped Prednisone Completely
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Mansplainer101
in
PMRGCAuk
6 months ago
Do TENS machines help with endo pain?
Hi, I’ve been diagnosed with stage 4 Endrometriosis and have terrible symptoms before and during my periods. I’m trying different products to manage my pain, I wondered if anyone has used TENS machines? If yes, do they actually help with pain? Many thanks in advance!
Hi, I’ve been diagnosed with stage 4 Endrometriosis and have terrible symptoms before and during my periods. I’m trying different products to manage my pain, I wondered if anyone has used TENS machines? If yes, do they actually help with pain? Many thanks in advance!
Bubble-z
in
Endometriosis UK
6 months ago
I don't know what to do!!
Here is my situation. I have Atrial Tachycardia/SVT. I had a 14 day Holter that showed a 20% average burden of Supra ventricular Ectopy. I had an 11% burden of SVT. I had, on average, 20-30,000 ectopic beats every day, and 6-700 runs of SVT per day. Most of my episodes occur at night. From 10pm
Here is my situation. I have Atrial Tachycardia/SVT. I had a 14 day Holter that showed a 20% average burden of Supra ventricular Ectopy. I had an 11% burden of SVT. I had, on average, 20-30,000 ectopic beats every day, and 6-700 runs of SVT per day. Most of my episodes occur at night. From 10pm
MeganMN
in
AF Association
6 months ago
Latest re -Lupus and Covid?
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
BeeManShrop
in
LUPUS UK
6 months ago
New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
6 months ago
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