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164 public communities
BASHH
21,261 members
The British Association for Sexual Health and HIV or BASHH for short is the UK's leading organisation dealing with all aspects of sexual health including Contraception, sexual infections and HIV. At present there is no one to actively monitor or moderate posts here. We advise that if you seek specific healthcare advice regarding sexual health you go to our website www.bashh.org Here you will find a wealth of information for the public - particularly patient information leaflets on a range of sexual infections: www.bashh.org/pils Other good sources of information include for both sexual infections and contraception include: www.sexwise.org.uk and www.nhs.uk
Aspergillosis and Rare Fungal Infection Support
3,858 members
Serious fungal infections are very rare but also very under-diagnosed and that has several consequences. 1) There are many more cases than we currently know about 2) People who are diagnosed can be very isolated and benefit from community support This community is intended to address these issues by informing and educating people in the UK about serious fungal infections, what to look out for, how to get diagnosed and where the expert help is in the UK. We also feel that informing patients is a great way to support their medical teams. The National Aspergillosis Centre (www.nationalaspergillosiscentre.org.uk), currently based in Manchester is the main UK centre for the serious fungal infections caused by Aspergillus (see aspergillosis.org) and is where admin of this community is based, so we have all we need t to advise you on aspergillosis - maybe even get you a referral to this centre if warranted. This is also the site of the Mycology Reference Centre in Manchester (http://mrcm.org.uk/) which is a big skill base for the identification of all pathogenic fungi, consequently, we can support the diagnosis and treatment of other rare fungal diseases like cryptococcal meningitis, Candida bloodstream infection, Pneumocystis pneumonia and more. Note that we only support people who can use the UK NHS and only for questions and conversation about serious rare fungal infections and NOT the very common infections that you should be consulting your GP or pharmacist about - we cannot replace your relationship with your medical team but we may be able to help them help you. Any entries that seem to us to be better dealt with by your medical team first will be deleted. Any non-UK questions will also be deleted - sorry, but we are funded by the UK taxpayer and they have to come first!
Brain health
1,261 members
This Brain Health community is a safe space for those affected by brain conditions to connect, share their experiences and offer support to others.
Meningioma Support
649 members
About Meningioma Support Welcome to The Brain Tumour Charity Meningioma peer support online community for anyone affected by a meningioma diagnosis. You can ask questions, get support from others and share your experiences, at any time of the day or night- you can be totally open. Or you can simply read people’s stories, knowing there are others right there with you. As a charity, we will share useful resources, information and charity news. The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. We’re set on finding new treatments, offering the highest level of support and driving urgent change. And we’re doing it right now. Because we understand that when you, or someone you love, is diagnosed with a brain tumour – a cure really can’t wait. If there is anything you would like to talk about with our Support team, please contact us at support@thebraintumourcharity.org, or call our Information and Support Line on 0808 800 0004.
Brain Aneurysm Support
803 members
We are a peer support community for people affected by brain aneurysms. Here we share our experiences, ask questions and support each other!
Survivors of Childhood Brain Tumours
90 members
Welcome to the Survivors of Childhood Brain Tumour Community Group, established by Success Charity. Success Charity is committed to enabling brighter futures for survivors of childhood brain tumours. We aim to support and empower survivors to live the lives they choose, and enable them to fulfill their true potential, post cure. Success is working to: • Assist: provide ‘joined up’ rehabilitative support services to address survivors’ ongoing clinical & therapeutic needs • Equip: provide direct access to better information, resources & key assessments • Connect & Empower: through distinct peer support networking programmes & events • Research: to better understand the consequences of brain injury acquired as a result of the tumour and treatment This community is for survivors, parents, carers and friends. Please join today to share your experiences, make new connections, ask questions, give and receive support to and from people who truly understand and can relate. We are all here to help.
The Brain Tumour Charity
431 members
Welcome to The Brain Tumour Charity peer support online community for anyone affected by a brain tumour diagnosis. You can ask questions, get support from others and share your experiences, at any time of the day or night- you can be totally open. Or you can simply read people’s stories, knowing there are others right there with you. As a charity, we will share useful resources, information and charity news. The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. We’re set on finding new treatments, offering the highest level of support and driving urgent change. And we’re doing it right now. Because we understand that when you, or someone you love, is diagnosed with a brain tumour – a cure really can’t wait. If there is anything you would like to talk about with our Support team, please contact us at support@thebraintumourcharity.org, or call our Information and Support Line on 0808 800 0004.
Acoustic Neuroma Support
2,690 members
Welcome to The Brain Tumour Charity Acoustic Neuroma peer support online community for those affected by Acoustic Neuroma (Vestibular Schwannoma), a rare but invariably benign brain tumour. You can ask questions, get support from others and share your experiences, at any time of the day or night- you can be totally open. Or you can simple read people’s stories, knowing there are others right there with you. As a charity, we will share useful resources, information and charity news The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. We’re set on finding new treatments, offering the highest level of support and driving urgent change. And we’re doing it right now. Because we understand that when you, or someone you love, is diagnosed with a brain tumour – a cure really can’t wait. If there is anything you would like to talk about with our Support team, please contact us at support@thebraintumourcharity.org, or call our Information and Support Line on 0808 800 0004.
Pelvic Pain Support Network
19,404 members
This community is run by the Pelvic Pain Support Network, a registered charity. The community forum exists to support those who wish to share and learn from others who have abdominal and/or pelvic pain and to provide peer support in managing the pain. It is moderated by trustees and members of the charity who are volunteers with personal experience of pelvic pain. Pelvic pain can be caused by many conditions affecting the pelvis such as adenomyosis, adhesions, endometriosis, painful periods, bladder pain, pelvic nerve damage, pudendal neuralgia, irritable bowel syndrome. One or more of these may be present or the person may not have a diagnosis. Pain that exists for 6 months or more, either intermittently or constant, is a condition in its own right. This community forum exists to support those who have had pain in the abdomen/pelvis for 6 months or longer with or without a diagnosis.
Glioblastoma Support
575 members
Welcome to The Brain Tumour Charity Glioblastoma peer support online community for anyone affected by a Glioblastoma diagnosis. You can ask questions, get support from others and share your experiences, at any time of the day or night- you can be totally open. Or you can simply read people’s stories, knowing there are others right there with you. As a charity, we will share useful resources, information and charity news. The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. We’re set on finding new treatments, offering the highest level of support and driving urgent change. And we’re doing it right now. Because we understand that when you, or someone you love, is diagnosed with a brain tumour – a cure really can’t wait. If there is anything you would like to talk about with our Support team, please contact us at support@thebraintumourcharity.org, or call our Information and Support Line on 0808 800 0004.
Headway
10,509 members
Headway is the UK-wide charity that works to improve life after brain injury. Through a range of frontline services run from its Nottingham base and via a network of more than 100 groups and branches across the UK, it provides support, services and information to brain injury survivors, their families and carers, as well as to professionals in the health and legal fields. A brain injury can have devastating consequences for individuals and their families, affecting every aspect of life. Although we all think "it'll never happen to me", a brain injury can affect anyone at any time. When it does, we're here to help. Visit www.headway.org.uk to find out more, or contact our helpline on 0808 800 2244 or helpline@headway.org.uk for personal support.
Cavernoma Alliance UK
438 members
We are a community that supports those affected by cavernoma, otherwise known as cerebral cavernous malformations or cavernous angioma. What is a cavernoma? A cavernoma looks like a raspberry and are also known as cavernous angioma, cavernous haemangioma or cerebral cavernous malformation (CCM). A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord. Cavernomas can measure from a few millimetres to several centimetres. A cavernoma can get bigger, but this growth is not cancerous, and it does not spread to other parts of the body. Frequency 1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people – enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.
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