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Shingles and PMR
Hi All, after a couple of days of feeling quite ordinary, I developed a horrible rash which was raised and blistered . My immediate thought was Shingles. I was lucky enough to get an appointment when I booked this morning for today! Yes I know how lucky I am living in Tasmania and that some of you
Hi All, after a couple of days of feeling quite ordinary, I developed a horrible rash which was raised and blistered . My immediate thought was Shingles. I was lucky enough to get an appointment when I booked this morning for today! Yes I know how lucky I am living in Tasmania and that some of you
Louisa1840
in
PMRGCAuk
1 month ago
Flare after Shingrix shingles vaccine?
Hi Everyone, I received my second (recombinant) shingles vaccine yesterday. The first one caused a mild fever and malaise. This time my finger joints are stiff and pretty painful. Has anyone else had something similar and, if so, how long did it last? Thanks so much
Hi Everyone, I received my second (recombinant) shingles vaccine yesterday. The first one caused a mild fever and malaise. This time my finger joints are stiff and pretty painful. Has anyone else had something similar and, if so, how long did it last? Thanks so much
HGCCNM
in
NRAS
1 month ago
Shingles vaccine
Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I
Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I
allanah
in
NRAS
3 months ago
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Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
3 months ago
filgotinib and shingles,
hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within
hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within
Doodlereggie
in
NRAS
3 months ago
anti NMDA encephalitis
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
AntiNMDAWarriorWife
in
Headway
4 months ago
A Shingrix thank you
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Schubert1870
in
CLL Support
4 months ago
Shingles.
I have always posted about my Afib and cardioablation. And all you nice people have helped me immensely. But now I'm going through another matter. Thirteen days ago I came down with shingles. The rash started on my back around my left shoulder blade and moved under my arm and onto my left breast. I can
I have always posted about my Afib and cardioablation. And all you nice people have helped me immensely. But now I'm going through another matter. Thirteen days ago I came down with shingles. The rash started on my back around my left shoulder blade and moved under my arm and onto my left breast. I can
mlp3434
in
AF Association
5 months ago
shingles vax
I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?
I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?
Knarllyknees
in
PMRGCAuk
6 months ago
Shingles
Anyone else ever had Shingles .First time ever..its so painful. I did contact the Gp straight away and they prescribed antiviral medication..I took this straight away ..suffering nerve pain as well and Dr prescribed me some gabapentin. So it's a few more meds to add to the tablets I'm.already taking
Anyone else ever had Shingles .First time ever..its so painful. I did contact the Gp straight away and they prescribed antiviral medication..I took this straight away ..suffering nerve pain as well and Dr prescribed me some gabapentin. So it's a few more meds to add to the tablets I'm.already taking
heathermc
in
MPN Voice
6 months ago
Shingles Vaccine Update
Well I never!! I woke to a text message from our GP's surgery to say that I am eligible for a shingles vaccination with a link to book in with a nurse. My GP's obviously looked up the guidelines & though better of her decision! I'm just hoping that after the fight to get it I don't have any adverse
Well I never!! I woke to a text message from our GP's surgery to say that I am eligible for a shingles vaccination with a link to book in with a nurse. My GP's obviously looked up the guidelines & though better of her decision! I'm just hoping that after the fight to get it I don't have any adverse
Otto11
in
NRAS
7 months ago
Dog bite not on my Xmas list
So… today, while walking my Old English Sheepdog, three dogs escaped from their leashes and one of them bit my leg. They also tried to bite my dog but because most of her is fur they didn’t reach flesh. I, however, went home and did a cursory clean with hydrogen peroxide and went to urgent care. They
So… today, while walking my Old English Sheepdog, three dogs escaped from their leashes and one of them bit my leg. They also tried to bite my dog but because most of her is fur they didn’t reach flesh. I, however, went home and did a cursory clean with hydrogen peroxide and went to urgent care. They
CoCoLuna11
in
CLL Support
7 months ago
Shingles Vaccine
Hi just a quick question regarding the Shingles Vaccine. I spoke to a GP on the phone today & asked about having the Shingles Vaccine. She told me that she dosnt think im eligible. I told her I think I am. She said you don’t qualify just because your are on Methotrexate I told her I'm not on Methotrexate
Hi just a quick question regarding the Shingles Vaccine. I spoke to a GP on the phone today & asked about having the Shingles Vaccine. She told me that she dosnt think im eligible. I told her I think I am. She said you don’t qualify just because your are on Methotrexate I told her I'm not on Methotrexate
Otto11
in
NRAS
7 months ago
Viral meningitis
My 17 year old daughter was diagnosed with viral meningitis last weekend and this was confirmed on Monday. Initially she was given antiviral and antibiotics because they was unsure if it was bacterial meningitis. She had been unwell for 5 or 6 weeks. Permanent headache that painkillers didn't touch
My 17 year old daughter was diagnosed with viral meningitis last weekend and this was confirmed on Monday. Initially she was given antiviral and antibiotics because they was unsure if it was bacterial meningitis. She had been unwell for 5 or 6 weeks. Permanent headache that painkillers didn't touch
Sylv1969
in
Meningitis Now
8 months ago
Shingles vaccine?
I unknowingly (until after) had shingles in March 2023 which I believe, triggered first episode of Afib. Now thinking about having the vaccine, concerned that it will trigger Afib. What are people's experiences of having the vaccine? Do I need it yet. Maybe still have antibodies in my system? Will
I unknowingly (until after) had shingles in March 2023 which I believe, triggered first episode of Afib. Now thinking about having the vaccine, concerned that it will trigger Afib. What are people's experiences of having the vaccine? Do I need it yet. Maybe still have antibodies in my system? Will
sunlovah
in
Atrial Fibrillation Support
10 months ago
Is Low Dose Naltrexone (LDN) effective for Lyme disease?
Is Low Dose Naltrexone (LDN) effective for Lyme disease? Pharmacist Stephen Dickson, LDN Specialist https://youtu.be/teTB13xQsq0?si=twYmXSvKO6YlNElO
Is Low Dose Naltrexone (LDN) effective for Lyme disease? Pharmacist Stephen Dickson, LDN Specialist https://youtu.be/teTB13xQsq0?si=twYmXSvKO6YlNElO
Shewulf
Administrator
in
LDN Research Trust
6 months ago
Yes, You CAN have the Shingles Vaccine
Hi Everyone, I'm writing this just in case there is anyone out there who thinks they can't have the shingles vaccine because they are on pred. I believed this and refused the vaccine. I later found It was only true if you were on over 20mgs of pred (which I am not). Last October, a new vaccine
Hi Everyone, I'm writing this just in case there is anyone out there who thinks they can't have the shingles vaccine because they are on pred. I believed this and refused the vaccine. I later found It was only true if you were on over 20mgs of pred (which I am not). Last October, a new vaccine
Louisa1840
in
PMRGCAuk
4 days ago
Is it safe to renew my tetanus injection with being on 8mg Pred?
My tetanus injection needs to be topped up. I have an allotment in London which used to be part of a railway embankment and wondered if it is wise to take the injection or to wait till I have tapered down to under 5 mg? The same goes for the Hepatitis which is due? Any advice would be appreciated
My tetanus injection needs to be topped up. I have an allotment in London which used to be part of a railway embankment and wondered if it is wise to take the injection or to wait till I have tapered down to under 5 mg? The same goes for the Hepatitis which is due? Any advice would be appreciated
Motida
in
PMRGCAuk
18 days ago
Hyberbaric Oxygen Therapy
I have a friend who contracted Lyme disease and recently underwent a series of hyperbaric oxygen therapy sessions. The treatment has completely transformed him and he is now his old self. I have read that this therapy helps Fibromyalgia and other autoimmune diseases and was wondering if anyone knew
I have a friend who contracted Lyme disease and recently underwent a series of hyperbaric oxygen therapy sessions. The treatment has completely transformed him and he is now his old self. I have read that this therapy helps Fibromyalgia and other autoimmune diseases and was wondering if anyone knew
Lassie2
in
PMRGCAuk
24 days ago
shingles jab anyone?
I had a very bad bout of shingles three years ago. Yesterday my doctors surgery rang to say I qualified for a jab! I tried to ask if it was worthwhile for someone who had already had shingles and was told she was the receptionist! Fair enough but then you can’t speak to a medic anymore Any thoughts
I had a very bad bout of shingles three years ago. Yesterday my doctors surgery rang to say I qualified for a jab! I tried to ask if it was worthwhile for someone who had already had shingles and was told she was the receptionist! Fair enough but then you can’t speak to a medic anymore Any thoughts
Green230461
in
NRAS
1 month ago
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