Experiences with

Nerve or brain infections

I’ve been told that due to my RA (diagnosed Aug) that it is recommended to have the shingles vaccination. As it’s not a live vaccination, it is no longer mandatory to come of methotrexate. However it is recommended to come of 1 week before 1 week after. I’ve only been on methotrexate for 6 weeks,

Hello I was wondering if anybody had any insight on what this rash could be? I am prone to shingles and on prophylactic antivirals as I am primary immunocompromised with my lupus.Suffering quite a bit of stress at the moment with a poorly dog so not sure if it's just a flare of lupus or what it is?

[i]Two of the common conditions associated with PBC are thyroid conditions and with those that cause anemia. This is because they both have shared genetic factors that affect our immune response. [/i] [i]An underactive thyroid is caused by an autoimmune response to the gland itself.[

Hi All, after a couple of days of feeling quite ordinary, I developed a horrible rash which was raised and blistered . My immediate thought was Shingles. I was lucky enough to get an appointment when I booked this morning for today! Yes I know how lucky I am living in Tasmania and that some of you

Hi Everyone, I received my second (recombinant) shingles vaccine yesterday. The first one caused a mild fever and malaise. This time my finger joints are stiff and pretty painful. Has anyone else had something similar and, if so, how long did it last? Thanks so much

Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I

So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.

hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within

Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have

Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After

I have always posted about my Afib and cardioablation. And all you nice people have helped me immensely. But now I'm going through another matter. Thirteen days ago I came down with shingles. The rash started on my back around my left shoulder blade and moved under my arm and onto my left breast. I can

Hi Peeps, I hope this post finds you as well as you can be today🫠 I seem to have acquired a new skill: shingles! I am immunosuppressed (have RA), have had an operation for breast cancer and radiotherapy back in May to July this year. Yes, I certainly know how to party! 🥳 I have been quite run down

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Hello everyone, I was deemed eligible for the shingles vaccine and will have it in early November. I’d appreciate any thoughts and expressions. I don’t know if I had chickenpox as a child. I was told this might be relevant. Many thanks

As anyone had the shingles vaccine and how was you ??? I am on Benepali weekly hopefully I will be ok

We saw the doctor for the first time after having shingles. Before shingles his Abs. Lymphs were 2.3 1000/mm3. Now 5 months later it is 3.5 1000/mm3. The Dr. was concerned. We were surprised that he started talking ( not now) about starting treatment. He stated that studies have shown it is better

Good morning has anyone had a bad reaction to their second shingles jab? First one was fine a slight sore arm but this time well I can’t tell you the reaction I had ….. muscle ache painful ears severe headache and a temperature anyone else suffered or was it just me!!! The arm didn’t hurt how ironic

I've previously learnt on here that live vaccines are not recommended whilst on long term steroid medication, and that in many situations, alternative vaccines are available... as with the shingles vaccination program. Well, yesterday, whilst trimming my Wisteria, I accidentally pruned the tip of my

I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?

Anyone else ever had Shingles .First time ever..its so painful. I did contact the Gp straight away and they prescribed antiviral medication..I took this straight away ..suffering nerve pain as well and Dr prescribed me some gabapentin. So it's a few more meds to add to the tablets I'm.already taking