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INVOLVEMENT OPPORTUNITY: Have you been diagnosed with hepatitis C and interested in sharing your story? (England)
Have you been diagnosed with hepatitis C and would you be interested in sharing your story with the national press to promote an NHS campaign? The NHS has launched a new service for people to test at home for hepatitis C. To help make more people aware, we are looking for individuals in England who
Have you been diagnosed with hepatitis C and would you be interested in sharing your story with the national press to promote an NHS campaign? The NHS has launched a new service for people to test at home for hepatitis C. To help make more people aware, we are looking for individuals in England who
BritishLiverTrust1
Partner
in
British Liver Trust
2 months ago
QUICK TAPER; CRP RISING STEADILY; FLARING
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
Missus835
in
PMRGCAuk
2 months ago
Travel Vaccinations
Hi. I have already emailed my Rheumatology Team but thought I would also ask for others experiences. I am considering travelling to countries which recommend vaccinations for things like Polio, Diphtheria, Hep A and B, Cholera, Tetanus etc. Now, I have had some of these in the past but longer than 10
Hi. I have already emailed my Rheumatology Team but thought I would also ask for others experiences. I am considering travelling to countries which recommend vaccinations for things like Polio, Diphtheria, Hep A and B, Cholera, Tetanus etc. Now, I have had some of these in the past but longer than 10
grumpygirl
in
NRAS
2 months ago
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Live vaccine for dengue fever
My son lives in Bali. He is in the middle of a very severe bout of dengue fever. I am going to visit him for 3 weeks in July. He has suggested I should have a vaccine before I go. I can find that it is called a " live attenuated dengue tetravalent vaccine". Even the vaccine side effects can be pretty
My son lives in Bali. He is in the middle of a very severe bout of dengue fever. I am going to visit him for 3 weeks in July. He has suggested I should have a vaccine before I go. I can find that it is called a " live attenuated dengue tetravalent vaccine". Even the vaccine side effects can be pretty
Graham64
in
CLL Support
2 months ago
My husband still on sedation after 30 days going in for a peritonitis
Hello my husband went in the ER for stomach pains and could not really breath .He was admitted immediately with the diagnosis peritonitis which leaked in his stomach so he got surgery soon after surgery he started septic shock and next thing we knew he wasn't able to get off the ventilator and in the
Hello my husband went in the ER for stomach pains and could not really breath .He was admitted immediately with the diagnosis peritonitis which leaked in his stomach so he got surgery soon after surgery he started septic shock and next thing we knew he wasn't able to get off the ventilator and in the
CarlMc116
in
ICUsteps
2 months ago
Does asthma severity tend to reflect that of sinuses?
I wasn’t sure where to post this but please tell me if it’s out of place as I’l move it. Basically I’ve had chronic sinusitis with polyps for over a decade. It is more chronic inflammation that’s the issue, with meds the polyps are only small/secondary to the inflammation. I don’t have asthma but
I wasn’t sure where to post this but please tell me if it’s out of place as I’l move it. Basically I’ve had chronic sinusitis with polyps for over a decade. It is more chronic inflammation that’s the issue, with meds the polyps are only small/secondary to the inflammation. I don’t have asthma but
Unfocusedarrow
in
Asthma Community Forum
2 months ago
Vagal a fib
I listened to a cardiologist on utube. He mentioned vagal a fib. Does any one what this is? It seems to be a younger cohort but I presume it comes with the usual meds. How can you find out if you have it? I seem to be able to stop a fib attacks with vagal manoeuvres and sometimes my a fib is brought
I listened to a cardiologist on utube. He mentioned vagal a fib. Does any one what this is? It seems to be a younger cohort but I presume it comes with the usual meds. How can you find out if you have it? I seem to be able to stop a fib attacks with vagal manoeuvres and sometimes my a fib is brought
TillyBoss
in
AF Association
2 months ago
trauma after icu stay
hi in2020 I was rushed to kings hospital London with septic shock due to ulcers on my liver. I was in an induced coma for a week and in hospital for 5 weeks. During the last 3 months I have been having really bad nightmares about being in a coma, specifically that my doctor is trying to kill me (i really
hi in2020 I was rushed to kings hospital London with septic shock due to ulcers on my liver. I was in an induced coma for a week and in hospital for 5 weeks. During the last 3 months I have been having really bad nightmares about being in a coma, specifically that my doctor is trying to kill me (i really
ZoeH1974
in
ICUsteps
2 months ago
Has anyone had good success with Low Dose Naltrexone (LDN) for chronically reactivated EBV?
Has anyone had good success with Low Dose Naltrexone (LDN) for chronically reactivated EBV? Answered by Sebastian Denison, RPh https://youtu.be/ifWvF7Yz52Y
Has anyone had good success with Low Dose Naltrexone (LDN) for chronically reactivated EBV? Answered by Sebastian Denison, RPh https://youtu.be/ifWvF7Yz52Y
Shewulf
Administrator
in
LDN Research Trust
2 months ago
pneumonia vaccination
I have been told to get my pneumonia jab , i’m not worried about sore arm, but i’m just a bit concerned i might feel poorly after. I didn’t feel poorly after my flu jab or covid booster. Any reassurance would be appreciated. Thank you.
I have been told to get my pneumonia jab , i’m not worried about sore arm, but i’m just a bit concerned i might feel poorly after. I didn’t feel poorly after my flu jab or covid booster. Any reassurance would be appreciated. Thank you.
Collie4
in
Lung Conditions Community Forum
2 months ago
What does adhesion pain and scarring pain feel like?
Hi, I've been getting pelvic pain due to tubo ovarian abscess for past year. Sometimes it develops into infection with fever vomiting etc. However recently it's pelvic pain that comes on really suddenly without fever, some nausea. I've been reading up and was wondering if anyone can describe what their
Hi, I've been getting pelvic pain due to tubo ovarian abscess for past year. Sometimes it develops into infection with fever vomiting etc. However recently it's pelvic pain that comes on really suddenly without fever, some nausea. I've been reading up and was wondering if anyone can describe what their
Hannah818
in
Pelvic Pain Support Network
2 months ago
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory, a key cognitive process often impaired in PD. https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awad433/7513222?login=false
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory, a key cognitive process often impaired in PD. https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awad433/7513222?login=false
nednedned
in
Cure Parkinson's
4 months ago
News on functional cure for chronic Hep B?
May be of interest to those on anti-virals for chronic Hep B https://liverdiseasenews.com/news/gsks-hepatitis-b-candidate-bepirovirsen-wins-fda-fast-track-designation/
May be of interest to those on anti-virals for chronic Hep B https://liverdiseasenews.com/news/gsks-hepatitis-b-candidate-bepirovirsen-wins-fda-fast-track-designation/
Tiger800xrt
in
British Liver Trust
2 months ago
Itraconazole.
is anybody having problems with Itraconazole. I first found I had Aspergillosis after a bout of pneumonia. I went into hospital for a couple of days. I kept telling the Drs I couldn’t breathe first thing in the morning after I returned home. They didn’t really acknowledge it until one morning I passed
is anybody having problems with Itraconazole. I first found I had Aspergillosis after a bout of pneumonia. I went into hospital for a couple of days. I kept telling the Drs I couldn’t breathe first thing in the morning after I returned home. They didn’t really acknowledge it until one morning I passed
Mavary
in
Lung Conditions Community Forum
2 months ago
PID abcess laposcopy adhesiolysis
In November I had severe pelvic pain and back pain and I went to my GP where they said they suspected I had kidney stones. That evening the pain was so severe my Husband called 999 who told him to take me to A&E. There again I was sent home shortly after saying I was fine, and they booked me in for a
In November I had severe pelvic pain and back pain and I went to my GP where they said they suspected I had kidney stones. That evening the pain was so severe my Husband called 999 who told him to take me to A&E. There again I was sent home shortly after saying I was fine, and they booked me in for a
Busy23
in
Pelvic Pain Support Network
2 months ago
I’m Back
it has been quite a while since I have been on this message board, life just happens as we all know with Lupus. Many changes have occurred from multifocal, pneumonia, aspergillus in my lung and tumor in my lung upper right lobe… however, it is benign right now and they’re just going to watch it. I
it has been quite a while since I have been on this message board, life just happens as we all know with Lupus. Many changes have occurred from multifocal, pneumonia, aspergillus in my lung and tumor in my lung upper right lobe… however, it is benign right now and they’re just going to watch it. I
SunflowerYiayia
in
LUPUS UK
2 months ago
Struggling with antibiotics on chemo
Hi all, following chemo last week I then started with cellulitis infection in my leg. I began taking co-amoxiclav antibiotics but found i couldn’t take them orally due to sickness. On Saturday ended up in a &e having injectable antibiotics. They sent me home with the same pills and told me to take
Hi all, following chemo last week I then started with cellulitis infection in my leg. I began taking co-amoxiclav antibiotics but found i couldn’t take them orally due to sickness. On Saturday ended up in a &e having injectable antibiotics. They sent me home with the same pills and told me to take
Lyndy
in
My Ovacome
2 months ago
When on a weekly dose of Pegasys is it ok to occasionally alter the day you inject?
Hi everyone, I’m about to try Pegasys in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection. I forgot to ask my haematologist at my appointment
Hi everyone, I’m about to try Pegasys in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection. I forgot to ask my haematologist at my appointment
Na56
in
MPN Voice
2 months ago
Help me! behcet syndrome with tuberculosis
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hulusi
in
Behçet's UK
3 months ago
Bile acid malabsorption
I got diagnosed with bam over a year ago taking colesevelam for it i take 1 or 2 a day but it has my bowel movements all over the place its all or nothing and usually in a formed mush and sticky i try to eat healthy but just wondering if any one else has bowel movements like this i have ibs aswell and
I got diagnosed with bam over a year ago taking colesevelam for it i take 1 or 2 a day but it has my bowel movements all over the place its all or nothing and usually in a formed mush and sticky i try to eat healthy but just wondering if any one else has bowel movements like this i have ibs aswell and
Netbet22
in
IBS Network
3 months ago
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