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EGPA / Neuropathy?
I have a potential diagnosis of egpa, but only symptom has been lung infiltrates, now on 5mg pred and was doing ok, only suddenly got tingling in hands and feet and a feeling of cramp in my arm muscles - worried this is neuropathy, but could just be side effects steriods - any ideas? Had bloods done
I have a potential diagnosis of egpa, but only symptom has been lung infiltrates, now on 5mg pred and was doing ok, only suddenly got tingling in hands and feet and a feeling of cramp in my arm muscles - worried this is neuropathy, but could just be side effects steriods - any ideas? Had bloods done
Greytippy7
in
Vasculitis UK
5 years ago
Anyone familiar with Eosinophilic Fasciitis?
My dad, who is in his 60s, was diagnosed with Eosinophilic Fasciitis this past June. Apparently this auto immune disease is rare, and they don't know much about it. So far the medication they have tried on my dad has not had any real positive affects. One of which is called prednisone & and another is
My dad, who is in his 60s, was diagnosed with Eosinophilic Fasciitis this past June. Apparently this auto immune disease is rare, and they don't know much about it. So far the medication they have tried on my dad has not had any real positive affects. One of which is called prednisone & and another is
MAP5
in
Pain Concern
5 years ago
Hand Exercises [putty, ball, misc]
My Occupational Therapist writes: Exercise putty (Or "Theraputty") is commonly used to strengthen muscles within the hand. ... PlayDough is not the same as exercise putty so I'd recommend ordering some from online. Here's a link to exercise putty online through Amazon. There are four colors, each with
My Occupational Therapist writes: Exercise putty (Or "Theraputty") is commonly used to strengthen muscles within the hand. ... PlayDough is not the same as exercise putty so I'd recommend ordering some from online. Here's a link to exercise putty online through Amazon. There are four colors, each with
Pa-zzi69
in
Cure Parkinson's
5 years ago
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Not a good day with my pain
Hi all, Today isn't a good day for me, I am unable to put any weight on my feet. I have taken my meds and my doc say to just rest. The pain is constantly there, I have numbness in the majority of my foot but I have really bad pins and needles. Just needed to chat, as having a bad day x
Hi all, Today isn't a good day for me, I am unable to put any weight on my feet. I have taken my meds and my doc say to just rest. The pain is constantly there, I have numbness in the majority of my foot but I have really bad pins and needles. Just needed to chat, as having a bad day x
Edinhurgh_girl
in
Pain Concern
5 years ago
Limited time/options
Hi all, we’re waiting to hear results of a genetic test to see if Keytruda might be of help for my dad, who is almost 87. While on docetaxel, his PSA quadrupled ( from 6 to 24). We saw the urologist today. The oncologist was not very good about it, but had recently attempted to talk about end of life
Hi all, we’re waiting to hear results of a genetic test to see if Keytruda might be of help for my dad, who is almost 87. While on docetaxel, his PSA quadrupled ( from 6 to 24). We saw the urologist today. The oncologist was not very good about it, but had recently attempted to talk about end of life
Sea5
in
Advanced Prostate Cancer
5 years ago
Pain in arm after B12
Hi folks, Saw a post about pain in the arm after detoid injection in arm. Experienced severe pain. Could you contact me? I think its Nacapan but cant find it and in a rush! I have had an awful time since feb. thought it was something else and have had physio. Really think its B12" jab. Going for next
Hi folks, Saw a post about pain in the arm after detoid injection in arm. Experienced severe pain. Could you contact me? I think its Nacapan but cant find it and in a rush! I have had an awful time since feb. thought it was something else and have had physio. Really think its B12" jab. Going for next
EVMD
in
Pernicious Anaemia Society
5 years ago
Anyone on Otezla?
I recently went to Mayo for a 3rd opinion. I was diagnosed with BD about 5 years ago and have been on 1G Cellcept for about 4 years now. I have very low symptoms. The one that has been the most annoying has been in my legs. I have knots that come up like they are going to turn into erythema nodosum then
I recently went to Mayo for a 3rd opinion. I was diagnosed with BD about 5 years ago and have been on 1G Cellcept for about 4 years now. I have very low symptoms. The one that has been the most annoying has been in my legs. I have knots that come up like they are going to turn into erythema nodosum then
Miataman
in
Behçet's UK
5 years ago
Help :(
So I applied this lidocaine gel that I got prescribed to see if it would help my vaginal Itching. Well I woke up an hour later with the worst itching and sensitivity of my life. Then it turned into my vagina burning. But the part thats bothering me the most is I'm having bad clitoral discomfort, its
So I applied this lidocaine gel that I got prescribed to see if it would help my vaginal Itching. Well I woke up an hour later with the worst itching and sensitivity of my life. Then it turned into my vagina burning. But the part thats bothering me the most is I'm having bad clitoral discomfort, its
Ambernicole
in
Pelvic Pain Support Network
5 years ago
Loss of feeling in half of feet.
Hi, am experiencing loss of feeling...toes and balls of feet...no matter if feet are warm or cold. I just wondered if the secondary Raynauds [which goes with my Scleroderma] has caused nerve damage to my extremeties. It has been like this for a few months now and although I can move my toes...I can't
Hi, am experiencing loss of feeling...toes and balls of feet...no matter if feet are warm or cold. I just wondered if the secondary Raynauds [which goes with my Scleroderma] has caused nerve damage to my extremeties. It has been like this for a few months now and although I can move my toes...I can't
marilynmcl
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Neuropathy mobility
Hi. I have peripheral neuropathy. It is very bad. I am experiencing muscle weakness in my legs. Especially on staits. My feet are numb. And of course nerve pain. How bad can neuropathy get as far as mobility. Anyones experiences qould be interesting.
Hi. I have peripheral neuropathy. It is very bad. I am experiencing muscle weakness in my legs. Especially on staits. My feet are numb. And of course nerve pain. How bad can neuropathy get as far as mobility. Anyones experiences qould be interesting.
Doogy
in
Neuropathy Support
5 years ago
Peripheral Neuropathy in PBC
I have PBC stage 2 just diagnosed with PN started with numb tingling painful toes feet legs fingers hands. Curious if anyone else here has these symptoms?
I have PBC stage 2 just diagnosed with PN started with numb tingling painful toes feet legs fingers hands. Curious if anyone else here has these symptoms?
Michiganpbc
in
PBC Foundation
5 years ago
Anyone know anything about Excel Diagnostics in Houston?
We visited with nuclear medicine yesterday and instead of doing radium 223 at this time she referred us to Excel Diagnostics for possible trials. In the meantime we have emailed Technical University in Munich about My 177 treatments and the place in Houston about trials. also scheduled for, you guessed
We visited with nuclear medicine yesterday and instead of doing radium 223 at this time she referred us to Excel Diagnostics for possible trials. In the meantime we have emailed Technical University in Munich about My 177 treatments and the place in Houston about trials. also scheduled for, you guessed
Dalipup
in
Advanced Prostate Cancer
5 years ago
Methylating
Hi I have just been to a private GP regarding my PA as my NHS GP will not give me injections more frequently than once every 8 weeks despite neuropathy in my feet and legs. She gave me a shot immediately and I noticed the difference almost straight away. She asked me to get my folate tested as she thought
Hi I have just been to a private GP regarding my PA as my NHS GP will not give me injections more frequently than once every 8 weeks despite neuropathy in my feet and legs. She gave me a shot immediately and I noticed the difference almost straight away. She asked me to get my folate tested as she thought
Bluegeranium
in
Pernicious Anaemia Society
5 years ago
New to asking for help
Hi, I was diagnosed with B12 deficiency in May. Not told anything about it except my number was quite low (128) I was given the six loading dose and then on to three monthly injections. I also have peripheral neuropathy which may or may not be connected for which I’m taking gabapentin. My GP hasn’t said
Hi, I was diagnosed with B12 deficiency in May. Not told anything about it except my number was quite low (128) I was given the six loading dose and then on to three monthly injections. I also have peripheral neuropathy which may or may not be connected for which I’m taking gabapentin. My GP hasn’t said
MissKota
in
Pernicious Anaemia Society
5 years ago
Teva Levothyroxine or Mercury Brand
Hi,I am on Teva 75 mg and have been having lots of symptoms, I was wondering could it be the brand Teva that i'm allergic to, Hope you are all hanging on in there Thank you Bubba
Hi,I am on Teva 75 mg and have been having lots of symptoms, I was wondering could it be the brand Teva that i'm allergic to, Hope you are all hanging on in there Thank you Bubba
bubbatetley
in
Thyroid UK
5 years ago
Could the genetic variation MTHFR be behind many of these weird problems sjorgrens
Anyone had luck with
naturopathy
Chinese medicine or other alternatives . Interested to hear
Anyone had luck with
naturopathy
Chinese medicine or other alternatives . Interested to hear
Aquamarine88
in
The Australian Sjögren's Syndrome Association
5 years ago
Big thank you
I can't remember who to thank (Madlegs, maybe?) I've taken gabapentin for close to 30 years for unrelated nerve pain. About 5 years ago I was hospitalized and in the course of things, told that I had a magnesium deficiency and to supplement. So I have been taking magnesium. No one ever even mentioned
I can't remember who to thank (Madlegs, maybe?) I've taken gabapentin for close to 30 years for unrelated nerve pain. About 5 years ago I was hospitalized and in the course of things, told that I had a magnesium deficiency and to supplement. So I have been taking magnesium. No one ever even mentioned
Whippetmama
in
Restless Legs Syndrome
5 years ago
Pain across shoulders resulting in numbness
Good morning everyone, I’m wondering if anyone else suffers pain across the shoulders which results in tingling / pins and needles all down the spine into arms and causes numbness to the extent that you drop anything you may be holding? This is becoming more and more of a problem to the extent that I
Good morning everyone, I’m wondering if anyone else suffers pain across the shoulders which results in tingling / pins and needles all down the spine into arms and causes numbness to the extent that you drop anything you may be holding? This is becoming more and more of a problem to the extent that I
TeeDee63
in
Fibromyalgia Action UK
5 years ago
Chronic burning and numbness
Hi There I have been diagnosed with vasculitis and rheumatoid arthritis. I B also have very very severe phariphreial neuropathy. I am still in treatment almost 2 years later. Very tired at this time.
Hi There I have been diagnosed with vasculitis and rheumatoid arthritis. I B also have very very severe phariphreial neuropathy. I am still in treatment almost 2 years later. Very tired at this time.
Sunshine3853
in
Neuropathy Support
5 years ago
thank you
Ahh, just wanted to say thank you to all of you that are so knowledgeable about the thyroid. I am always amazed at what you know and how you analyse it. I am Hashi and though I have tried to understand it, the chemistry bemuses me and I try and learn from this forum. There are so many amazing people
Ahh, just wanted to say thank you to all of you that are so knowledgeable about the thyroid. I am always amazed at what you know and how you analyse it. I am Hashi and though I have tried to understand it, the chemistry bemuses me and I try and learn from this forum. There are so many amazing people
db16
in
Thyroid UK
5 years ago
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