Neuropathy mobility

[Doogy]

Hi. I have peripheral neuropathy. It is very bad. I am experiencing muscle weakness in my legs. Especially on staits. My feet are numb. And of course nerve pain. How bad can neuropathy get as far as mobility. Anyones experiences qould be interesting.

[orange33]

Hello Doogy

I was diagnosed three years ago with this condition. I also have muscle weekness. My feet are poorly and fingers are very weak. My condition is very severe,however this maybe because I also have Rhumatiod Athritis although my RA was well under control.

I now have infusions of Ratuxamab to control PN.

I wish you well.

[Arc1941]

Same problem my neurologist said it likely not improve keep exercise going.

All the best.

[Karjade]

I have had peripheral neuropathy in my feet for nearly three years. It is getting worse and has progressed to my ankles and lower legs. I have been to the Pain Clinic and I have decided to try a Lidocaine infusion which hopefully will help with the severe burning. I am currently on a low dose of Gabapentin which does not really help and I do not like the side effects. It is very hard to live with so now I am desperate to try anything!

[Hopinggh in reply to Karjade]

Hello to you and to all!

So sorry to hear what you have and are feeling is so much as what i feel im feeling and going through. Through desperation, i feel im always trying something new

I just had two acupuncture sessions. I felt nothing from the first. However, yesterday i had a second session which has aggravated the neuropathy so much that i had severe burning feet all night. My feet usually simmer down when im sleeping. Had strange pain on each toe he jabbed too. New stabs all over my body last night and today and my right side has developed a muscle weakness from hips down thighs. Never had that before.

I just read it is recommended to get a diagnosis and an ok from a dr before you try acupuncture, which i did not do.

This time acupuncture included hot stones on top of a few needles and electric currents , whereby he clamped electric wire to a box with controls. The clamp fell off after a few minutes and i felt such startling pain, like electrocution. I screamed out. First hot stone insertion i jumped startled from the strong pain as well. I asked if it is normal to hurt. He said no and was surprised of my pain.

At this point, im.afraid to go back. I feel.worse.

A good take away from this experience is that i learned from the dr that INFRARED FOOT VIBRATORS are used to treat and heal circulation and neuropathy problems.

Im getting one delivered today.

Its a long hard journey...sometimes learning things the very hard way. I have not tried drugs. I have peripheral neuropathy for many years.

I tried Palmitolethanolamide for three months and stopped recently. My backache is coming back, which i believe It tookaway . My neuropathy is so much worse in.one daysince yesterday. I thought palmit. Wasnt working. Msybe it worked a little. Its hard to tell the difference between bad pain, very bad pain and excrutiating pain when you are always in pain. The palm . Made me extremly drowsy and sleepy and i gained 7pounds in three months from it.

Im thinking of medical.marijuana. but, im afraid i will be too tired and drowsy. Cbd did that to me too.

Maybe the foot vibrator will wake up my nerves and me too!

Take care. I hope you find relief.

I will post if i find the infrared foot vibrator works.

Infrared penetrates inches your body and facilitates blood cell movement where there is lack. Sounds great to me !

Have a nice day

And

Keep

Hopinggh

[Hopinggh in reply to Karjade]

Hi Karjade!

Im wishing you Happy Holidays and hope for a better , happier New Year !

The foot infrared vibrator is not showing any fast improvement, or anything at all except my feet nerves are jumping after a treatment. In researching further, i found out full body standon, or sit, platform vibrating machines are doing wonders for peoples health...it shakes up your whole body into a healthier state and is easy. I will be looking into it next year.

My family is now telling me to try Gabapentin. But, i am afraid to due to the negative reports it receives. My soon to be doctor, when i get Medicare in a few months, says it is what he prescribes and believes in and most people do well on it.

I have mostly read Gabapentin is disagreeable with people.

Are you still taking it ? What is your dose and what are your side effects ?

I hope you dont mind my asking and i do appreciate it and, also, totally understand if you dont feel like writing.

Wishing you peace, love, joy and less pain in the New Year and always,

Have a nice day,

Hopinggh

[Karjade in reply to Hopinggh]

Hi. Happy Christmas and a great 2020. I have stopped the Gabapentin as it did not help. I was on 300 mg per day and the doctors wanted me to increase it but I did not want to. I am not taking anything at the moment but I am returning to the Pain Clinic on the 10th January and will have a chat about a Lidocaine infusion. I was tempted to try amitriptyline again as the burning in my feet is waking me up and amitriptyline does help you sleep. Not sure what to do but I do know I need something to help me as suffering with anxiety now because of the awful burning and numbness in my feet. Have you tried Amitriptyline? All these sort of drugs have side effects as they work on the brain especially for people with epilepsy. I really hope you find some sort of relief and let us know if you do xx

[Hopinggh in reply to Karjade]

Hi ! Happy Christmas and New Years to you too !!!

Thank you so much for your reply and response !

I have never tried Amytriptyline, but i might. The drawback on that is that it eventually causes dementia. BUT, sleeping pills i read eventually does that too. The whole world is in the same boat !

Maybe good to.switch things up after a while, no long term anything , if its risky.

My brother has epilepsy his whole life . It and the epilepsy drugs affected his mind because he started as a baby.. He has mind of a child and emotional problems. He cant think clearly, acts good as a robot...has ravenous hunger all the time. I heard it makes you gain alot of weight. He has good energy though. He has no neuropathy.

From what i gathered, gabapentin needs to to upped in dosage very much consistently. For some, its good for a certain amount of years only...then, its back to square one, but you need to go through a dangerous withdrawal before you can start up.with something else.

I just vacuumed. Took three breaks...feet throbbing, pulsing in burning pain with searing waves of massive pins of electric bursts of pain. You probably have very similar. Only a fellow sufferer truly understands. Im.wiped out resting and will gather strength to walk my dog soon.

Im.back on Palmitoyethanolamide, also known as p.e.a. i took it for three months, 1200 day total. It made me very drowsy, dizzy unable to function normally. It lessened up.in that respect a bit after five weeks but still gave those effects. Im back on it because my pain seems heightened. Im waking up with worse pain, when that was the time it was the least before i even started p.e.a .

Its a battle.

Im going to be trying the stand on platform vibrator next year. We need to get vibrations going in the whole body..my bp is always very low and too low...

Neuropathy can lower blood pressure i read.

Im going to work this machine of a body with a machine.

Im.going to be 65 and hope i can make the last stretch a better quality of health . If i can have ten good years on drugs and get dementia later, it might be worth it.

There are no guarantees.

We just keep.on trying to find the majical solution.

I will let you know if i find one and i hope you find relief in the things you try and please let us know what has helped !

Please ket me know about the lidocaine too. !

I very much appreciate it !

Have a happy, merry holiday !

Never giving up,

Hopinggh

[Karjade in reply to Hopinggh]

I will let you know how I get on with the Lidocaine infusion and it does seem to have some good results but just a bit worried about the side effects. I will know more when I go back to the Pain Clinic so will let you know then xx

[Hopinggh in reply to Karjade]

Thank you ! And, i wish you the very best luck and success there could be !

XxHopinggh

[Hopinggh]

Hello Doogy !

Im sorry for our mutual affliction of peripheral neuropathy.

It just seems to swallow up my whole life now. But, im.still fighting it after many years.

I walk my dog four times a day for 15 minutes to almost half an hour slow walking. I have to lay down right afterwards from increased pain till it simmers down a bit. I do minor stretches a few minutes a day.

There are specific pn exercises on youtube i started watching with some good easy tips to get your feet and leg muscles stronger to avoid falling. Simple up and down ankle movements help the calves which in turn control the foot. Appears that the calves need to be in good tone to support the feet well and decrease fall risk. Ankle exercises also increase circulation, very much neeeded.

There are more exercises for pn explained and performed on youtube.

There are foot vibrators, infrared foot vibrators and stand on platform vibrators which will increase circulation and tone up muscles. Im trying an infrared foot vibrator now. It is making my nerves jump more for a while afterwards. I think i set the mode of operation too high, too aggressive.

I m seriously thinking of full body vibration and setting it on low and work myself up.from there.

Good luck and Happy Holidays !

Have a nice day !

Hopinggh