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Fed up
So I’m going to see a neurologist on Sunday about some issues I’ve been having- numbness tingling and weakness in my arms and legs. I have fibromyalgia already and I’m constantly in pain So I don’t know what is what anymore :(
So I’m going to see a neurologist on Sunday about some issues I’ve been having- numbness tingling and weakness in my arms and legs. I have fibromyalgia already and I’m constantly in pain So I don’t know what is what anymore :(
Laurenjf
in
Fibromyalgia Action UK
7 years ago
Neurology
So I’m going to see a neurologist on Sunday about some issues I’ve been having- numbness tingling and weakness in my arms and legs. I have fibromyalgia already and I’m constantly in pain So I don’t know what is what anymore :(
So I’m going to see a neurologist on Sunday about some issues I’ve been having- numbness tingling and weakness in my arms and legs. I have fibromyalgia already and I’m constantly in pain So I don’t know what is what anymore :(
Laurenjf
in
Pain Concern
7 years ago
AFOs
It took a few weeks for my AFOs and orthotics to be fabricated. But yesterday was the day I went to pick them up. The professional recommended New Balance tennis shoes because they are well made and come in wide widths. I usually wear a medium width but purchased the wide and didn't wear them until I
It took a few weeks for my AFOs and orthotics to be fabricated. But yesterday was the day I went to pick them up. The professional recommended New Balance tennis shoes because they are well made and come in wide widths. I usually wear a medium width but purchased the wide and didn't wear them until I
beachwine
in
Charcot-Marie-Tooth UK
7 years ago
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Nerve Pain
I have been diagnosed with PA for 6 years now but missed my last B12 3 monthly injection and now have almost unbearable (nerve?) pain which is worse when I am sitting or lying down.Have to have some tests at the surgery in a cple of days to see if its neuropathic or vascular.Has anyone experienced this
I have been diagnosed with PA for 6 years now but missed my last B12 3 monthly injection and now have almost unbearable (nerve?) pain which is worse when I am sitting or lying down.Have to have some tests at the surgery in a cple of days to see if its neuropathic or vascular.Has anyone experienced this
cainburrows
in
Pernicious Anaemia Society
7 years ago
Highly positive AMA turning up now as Negative?
Hi All, Early on when first diagnosed with PBC I had a negative AMA which confused my doctor. Within a month or so I had my labs again in a few weeks and I was highly positive. I have been AMA positive for six years. But now, unexpectedly I am AMA negative. Does anyone have any idea how this happened
Hi All, Early on when first diagnosed with PBC I had a negative AMA which confused my doctor. Within a month or so I had my labs again in a few weeks and I was highly positive. I have been AMA positive for six years. But now, unexpectedly I am AMA negative. Does anyone have any idea how this happened
Q8Cooper
in
PBC Foundation
7 years ago
What ingredients in electrode gel are making it so skin reactive and painful?
I'm having same issue of itchy painful bumps, welts and sores from so called "hypoallergenic" gel electrodes with a tens unit. I've tried several brands with same results. Would like to know what ingredients are in gel that causes this allergic reaction. I have no other allergies. Need answers. Thanks
I'm having same issue of itchy painful bumps, welts and sores from so called "hypoallergenic" gel electrodes with a tens unit. I've tried several brands with same results. Would like to know what ingredients are in gel that causes this allergic reaction. I have no other allergies. Need answers. Thanks
tensuser
in
AF Association
7 years ago
Tapentadol - anyone been on this?
Hi everyone. My Gp took me off tramadol as I couldn't sleep on it and put me on tapentadol instead. My chemist had none in stock when i went for my repeat and had to wait 2 days for it which I got on Saturday. This weekend had been awful pain wise and energy wise. I waken to all my joints stiff and
Hi everyone. My Gp took me off tramadol as I couldn't sleep on it and put me on tapentadol instead. My chemist had none in stock when i went for my repeat and had to wait 2 days for it which I got on Saturday. This weekend had been awful pain wise and energy wise. I waken to all my joints stiff and
Jsudz
in
Fibromyalgia Action UK
7 years ago
Tiredness
Do you ever feel so tired that you don’t want to do anything? What with the Neuropathy and the RLS plus the meds I do. Then the other day my wife badly broke her leg and there is only me to help. I have found reserves of energy I didn’t know I had. So next time you are absolutely knackered think what
Do you ever feel so tired that you don’t want to do anything? What with the Neuropathy and the RLS plus the meds I do. Then the other day my wife badly broke her leg and there is only me to help. I have found reserves of energy I didn’t know I had. So next time you are absolutely knackered think what
martino
in
Restless Legs Syndrome
7 years ago
Relief and Hopeful
These symptoms have plagued me on & off since childhood. Sensitivity to cold, muscle cramps, tingling and numbness, sore from weak muscles. I experience very moody months, as of two years ago, nerve damage including sciatic nerve damage, minimal range of motion and recently heart slowed rate resting
These symptoms have plagued me on & off since childhood. Sensitivity to cold, muscle cramps, tingling and numbness, sore from weak muscles. I experience very moody months, as of two years ago, nerve damage including sciatic nerve damage, minimal range of motion and recently heart slowed rate resting
Panyariceholmes
in
Thyroid UK
7 years ago
Neuropathy.... but not from chemo
Hi Everyone, I had inquired a while back about neuropathy relief for myself. I searched the neuropathy sites also and found some supplements to try. I am not able to take lyrica, gabapentin. So I've been taking the supplement listed below and it has given me about 65 % - 75% relief......unless..
Hi Everyone, I had inquired a while back about neuropathy relief for myself. I searched the neuropathy sites also and found some supplements to try. I am not able to take lyrica, gabapentin. So I've been taking the supplement listed below and it has given me about 65 % - 75% relief......unless..
erjlg3
in
Advanced Prostate Cancer
7 years ago
Does morphine work straight away?? Still not asleep 😯
Hi all So I got some sevredol 10mg I have taken 2 doses still got some pain enough to keep me up.Anyone know how long I have to wait to get better more effective relief? What are others experience s on them?
Hi all So I got some sevredol 10mg I have taken 2 doses still got some pain enough to keep me up.Anyone know how long I have to wait to get better more effective relief? What are others experience s on them?
Winniepooh1976
in
Pain Concern
7 years ago
Tamiflu = tummy phoo
Omg! I can’t figure out whether it’s the Tamiflu or the z pak or having to take both and believe me I’m grateful for both given how sick I was - BUT it’s destroying my stomach. I still have 5 days left to take - any suggestions to settle things down?
Omg! I can’t figure out whether it’s the Tamiflu or the z pak or having to take both and believe me I’m grateful for both given how sick I was - BUT it’s destroying my stomach. I still have 5 days left to take - any suggestions to settle things down?
SunnyCA
in
CLL Support
7 years ago
B12 testing
Hi, I'm new here and seriously ill and bed bound with nerve damage and fed Parenteral nutrition through a central line. I've recently had a total serum b12 test come back at 122 which i understand is defiecient but I've been told that the active b12 and mma homocysteine tests etc are more reliable tests
Hi, I'm new here and seriously ill and bed bound with nerve damage and fed Parenteral nutrition through a central line. I've recently had a total serum b12 test come back at 122 which i understand is defiecient but I've been told that the active b12 and mma homocysteine tests etc are more reliable tests
Chippy82
in
Pernicious Anaemia Society
7 years ago
Electric shock type pain.charcot marie tooth
Hi I'm diagnosed as having chariot marie tooth disease and peripheral neuropathy. I suffer terrible electric shock type pains when resting or in bed. These usually begin in my soles of feet. Feelining like a cattle prod is being forced through my skin , sending a shock right through me. This gives me
Hi I'm diagnosed as having chariot marie tooth disease and peripheral neuropathy. I suffer terrible electric shock type pains when resting or in bed. These usually begin in my soles of feet. Feelining like a cattle prod is being forced through my skin , sending a shock right through me. This gives me
Maz1961
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Marijuana treatment for epilepsy
This is by way of an addendum to my earlier post on peripheral neuropathy and hemp oil. I have read in the last couple of days that a medical marijuana company in Canada is working on a treatment for epilepsy in juveniles and in trials currently under way is having some success. The fact that gabapentin
This is by way of an addendum to my earlier post on peripheral neuropathy and hemp oil. I have read in the last couple of days that a medical marijuana company in Canada is working on a treatment for epilepsy in juveniles and in trials currently under way is having some success. The fact that gabapentin
geoff1940
in
Neuropathy Support
7 years ago
Peripheral Neuropathy/Hemp Oil
My father, who passed away just over a year ago at the age of almost 101, suffered from peripheral neuropathy for many years. It was very painful and the only treatment he received (in the UK) was gabapentin, which had severe unpleasant side effects. I am now 78, and I believe I have had progressive
My father, who passed away just over a year ago at the age of almost 101, suffered from peripheral neuropathy for many years. It was very painful and the only treatment he received (in the UK) was gabapentin, which had severe unpleasant side effects. I am now 78, and I believe I have had progressive
geoff1940
in
Neuropathy Support
7 years ago
B12 injections pains and numbness.
Hi Wonder if anyone can help. My father as PA he is 87. He is constantly complaining of pain in his lower legs, which seem to be worse about a month before he is due his injection. (12 weekly intervals). Also he is complaining of pins and needles and numbness in his hands and feet. Is this related to
Hi Wonder if anyone can help. My father as PA he is 87. He is constantly complaining of pain in his lower legs, which seem to be worse about a month before he is due his injection. (12 weekly intervals). Also he is complaining of pins and needles and numbness in his hands and feet. Is this related to
Daisy1991
in
Pernicious Anaemia Society
7 years ago
Acupuncture
Has anyone had acupuncture for severe back pain? I have had four lumbar spinal fusions, all failed, and now steroid injection has been suggested. I am very against this for many reasons but am a big fan of acupuncture for general health. Has anyone had needles down the spine and on the operation site
Has anyone had acupuncture for severe back pain? I have had four lumbar spinal fusions, all failed, and now steroid injection has been suggested. I am very against this for many reasons but am a big fan of acupuncture for general health. Has anyone had needles down the spine and on the operation site
Fyllida
in
Pain Concern
7 years ago
Rasagiline, azlect
I was diagnosed about a year ago and would like to stay off Meds as long as possible. But I am taking rasagiline as my dr says it protects my dopamine. Any opinions about that? I’m also taking SAMe for ease in joints and some macuna powder in my breakfast foods. Thanks, janet
I was diagnosed about a year ago and would like to stay off Meds as long as possible. But I am taking rasagiline as my dr says it protects my dopamine. Any opinions about that? I’m also taking SAMe for ease in joints and some macuna powder in my breakfast foods. Thanks, janet
Wolfepower22
in
Cure Parkinson's
7 years ago
Growing up in pain
Hi, I'm new here. I've just turned 19 and been diagnosed with Fibro. To be honest I can't remember a time where pain wasn't part of my life. According to my parents ive felt joint pain and allodynia since I was a baby. I was wondering if anyone else has any experiance with growing up in pain? I have
Hi, I'm new here. I've just turned 19 and been diagnosed with Fibro. To be honest I can't remember a time where pain wasn't part of my life. According to my parents ive felt joint pain and allodynia since I was a baby. I was wondering if anyone else has any experiance with growing up in pain? I have
elysiaj
in
Fibromyalgia Action UK
7 years ago
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