I’m wondering if anyone else suffers pain across the shoulders which results in tingling / pins and needles all down the spine into arms and causes numbness to the extent that you drop anything you may be holding?
This is becoming more and more of a problem to the extent that I no longer trust my ability to even carry the smallest of objects. I have made an appointment to see my GP this morning, but know that this will be put down to fibromyalgia, and no solution, so am asking if any of you experience this, how you manage it .
Many thanks for any information, and best wishes to you all
Tina
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TeeDee63
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Do not accept that all symptoms are due to fibromyalgia. I did this for a long time but now undergoing more blood test after a visit to GP with numbness in legs. Pins and needles and numbness can signal many things so do get it checked out.
Thank you Chris. I’ve been to see GP who has changed me from amitriptyline to prevailing, and while she dies think it’s fibromyalgia has said that if the oregano in doesn’t help she will refer me to a neurologist.
Good luck with your tests, and pleased to hear your doctor is conducting further tests, as I do feel that once we are given the diagnosis of Fibromyalgia, a lot of health care professionals put everything down to it.
Yes TeeDee, I too get pain across the shoulders and also the pins and needles down the arm .My hands have also got very weak that i have even dropped a pen out of my fingers when I was trying to write.
When I went to my G.P a couple of weeks ago i saw a Locum Doctor. I only went there for some Antibiotics because of a Chest Infection. When he saw me, he said to me straight away .What on Earth are you doing down here, YOU SHOULD BE IN HOSPITAL. IT LOOKS LIKE YOU'VE HAD A STROKE .
Well anyway it wasn't a stroke but there is a definite weakness all the way down my right hand side even to the extent of dragging my leg and my right hand is very weak NOTHING TO DO WITH THE FIBROMYALGIA!!!!!!.
THE GPS are too quick blaming everything on the Fibro.
My young Neighbour came over our house last night. She always brings a Hot Dog over on Bonfire Night
Well 3 weeks ago she was playing with her Grandchildren' on the Trampoline and she fell off it and hurt her shoulder.
She went to the Doctors last week because she still had an ache there .She didn't tell him about falling off the Trampoline straight away.
He asked her how long she'd had the pain, and moved her arm around a bit.
But then he said to her .
( OH I THINK YOUVE GOT FIBROMYALGIA )
She couldn't believe it She said to him.
WELL NO I BLOODY WELL HAVEN'T GOT FIBROMYALGIA. I FELL OFF A TRAMPOLINE A FEW WEEKS AGO. AND ALL I WANTED WAS SOME CREAM TO RUB IN IT .....He
gave her some cream and she walked out.
She owns a small Restaurant in the Shopping Centre and obviously she's got to know a lot of people .
She told me that i would be surprised at how many people have gone in there and told her that they have just been diagnosed with Fibromyalgia...
She said she thinks to herself, Nay, you haven't got Fibromyalgia ..You wouldn't be able to do all of the things that you do. Doctors seem to be telling people that they've got Fibromyalgia because they just don't know what they have got.
IF ANYTHING!!!!!.
BUT I KNOW THAT WHEN I SAW THAT LOCUM DOCTOR, HE DIDN'T LIKE WHAT HE SAW, AND HE DIDN'T THINK IT WAS ANYTHING TO DO WITH FIBROMYALGIA EITHER.
I wish he was my proper Doctor and not a Locum .i haven't seen him since ..
That is not good that the doctor is just categorising a lot of people with fibromyalgia. For years I was told I had anxiety and depression for anything I went to the doctor for, then a newly qualified GP who believed in fibromyalgia referred me to a rheumatologist as she felt it was fibromyalgia and the rheumatologist confirmed it.
But no wonder we have a lot of cynicism when a doctor is quick to wrongly diagnose fibromyalgia just because they don’t want to investigate any further.
Did you actually get any answers as to your shoulder pain and numbness?
I’ve been told this morning that it’s very likely fibromyalgia ( surprise) and had medication switch from amitriptyline to pregablin. The doctor will see me in a month and if she feels it necessary will refer me to a neurologist.
I’m fed up with all my symptoms being put down to fibromyalgia, but like most of us on here have no other option but to deal with it the best I can.
My symptoms are getting worse,and I cried throughout my consultation as I feel so helpless, and depressed that my life has become what it has....enough of the self pity, I just wish there was more that the medical professionals could do for us.
Please go and see another doctor, ask for an immediate referral to a neurologist, they can’t refuse you as it’s your right to ask for a second opinion and referral. I have been suffering the same problems for years and it’s got to the point now where I am unable to use my right side properly, I can’t lift my arm above chest height, hold anything heavy, I struggle to lift a kettle so i have a hot water dispenser thingy. Most of the time I can’t even hold a mug of tea in my right hand, the amount of times I have dropped stuff. Even my newborn son, luckily it was only onto my bed, but it shook me up! I was under a neurologist for my migraines and they referred me for nerve conduction tests which showed that I had damage to the nerves in my wrist. It also showed that I had carpal tunnel in both wrists but I refused the operation because of having a newborn.
You could have an impinged nerves in your spine (I have two at the bottom and possibly one at the top too) you could have carpal tunnel, there are many reasons for it, so push for a referral and then ask for nerve conduction tests.
Don’t let them put everything down to FM either, I let them for years and my health has suffered so much because of it. It also worries me how quick doctors are to label anything they don’t understand or can’t find an answer for as fibromyalgia, it took years of tests and investigations before I was diagnosed, yet these days I know of several people who have gone to their GP’s and had a diagnosis within weeks or sometimes just one visit!! Yet it’s ‘supposed’ to be that only a rheumatologist is able to officially diagnose someone with FM!! I was diagnosed by my neurologist after being seen by almost every other specialist going, even then I was sent to the rheumy for it be official on my notes!!
Anyway enough ranting! I hope you get somewhere lovely- push for that referral, you have every right to be seen for a second opinion.
I'd go and see gp. Mine was tendonitis and bursitis in my shoulder. I saw a private gp who knew nothing about my fibromyalgia so had mri on my shoulder and neck because of the pain in my shoulder and neck. I also couldn't lift my arm above shoulder height and had pins and needles on my arm. I've now had a steroid injection and physiotherapy plus massage and it has eased it. I also do daily stretches and exercises.
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