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Experiences with
Munchausen's syndrome
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Child with HEDS
My 13 year old daughter has EDS, very hypermobile, suffers from headaches, aches and pains, partial joint dislocations, food allergies, low blood pressure/dizzy spells (probably undiagnosed POTS). She also has long slender fingers (she is average height and and looks normal) bruises easily, stretchy
My 13 year old daughter has EDS, very hypermobile, suffers from headaches, aches and pains, partial joint dislocations, food allergies, low blood pressure/dizzy spells (probably undiagnosed POTS). She also has long slender fingers (she is average height and and looks normal) bruises easily, stretchy
bex68
in
Ehlers-Danlos Support UK
6 years ago
Blood test
Hi all. Good morning, just wondering if any of you have had blood results of Connective Tissue Disease & what did your consultants say about the findings? My docs think Sjogren's & Lupus disease, but it's early days. Look forward to hearing from you x
Hi all. Good morning, just wondering if any of you have had blood results of Connective Tissue Disease & what did your consultants say about the findings? My docs think Sjogren's & Lupus disease, but it's early days. Look forward to hearing from you x
Angellealea1
in
LUPUS UK
6 years ago
What blood tests do i need?
I was diagnosed with post partum Thyroiditis and would like to know which blood tests I need to get checked tomorrow. Thanks!
I was diagnosed with post partum Thyroiditis and would like to know which blood tests I need to get checked tomorrow. Thanks!
Wgriffy
in
Thyroid UK
6 years ago
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Reassuring all the ladies with zero symptoms
Currently 8 weeks and 4 days pregnant with zero symptoms. Up until a week ago the only symptom I had was ever so slightly sore boobs off and on every few days and now nothing. I’m having scans every 5 days or so because of my history but baby is looking good with a strong heartbeat. After 6 pregnancy
Currently 8 weeks and 4 days pregnant with zero symptoms. Up until a week ago the only symptom I had was ever so slightly sore boobs off and on every few days and now nothing. I’m having scans every 5 days or so because of my history but baby is looking good with a strong heartbeat. After 6 pregnancy
Hidden
in
Fertility Network UK
6 years ago
Relapsing polychondritis
Hello, everyone. I was diagnosed with MPA ten years ago and have recently had a nasty flare which has been treated with Rituximab but this time does not seem to be working too well. I have had a very inflamed outer ear ( the pinna) which has been itchy and developed nodules along the edge of it. Did
Hello, everyone. I was diagnosed with MPA ten years ago and have recently had a nasty flare which has been treated with Rituximab but this time does not seem to be working too well. I have had a very inflamed outer ear ( the pinna) which has been itchy and developed nodules along the edge of it. Did
trebar
in
Vasculitis UK
6 years ago
Follow up appointment
Hi all you lovelies. I have my first follow up appointment with my clinic following my miscarriage this week. Just wondering what u think I could expect and what questions u feel I could ask maybe? Am fortunate (in some ways) that I have had one period and have ovulated since so hopefully that good
Hi all you lovelies. I have my first follow up appointment with my clinic following my miscarriage this week. Just wondering what u think I could expect and what questions u feel I could ask maybe? Am fortunate (in some ways) that I have had one period and have ovulated since so hopefully that good
Dreamingofbaby
in
Fertility Network UK
6 years ago
CBD oil
Hello all, Does anyone have any advice about which CBD oil to use? I went onto the CBD brothers site but there is a bewildering variety of products. I am currently on Lyrica and Tramadol having just come off the Neupro patch. This is helping but not 100%. I live in France but at the moment am in England
Hello all, Does anyone have any advice about which CBD oil to use? I went onto the CBD brothers site but there is a bewildering variety of products. I am currently on Lyrica and Tramadol having just come off the Neupro patch. This is helping but not 100%. I live in France but at the moment am in England
macewan13
in
Restless Legs Syndrome
6 years ago
No response to Clomid
Hey all, I am on a Clomid treatment due to anovulation (1.5 years!). In the beginning I had hope that this would solve my problem, but my body does not respond to this at all. I am already on an increased dose - without any success. I am so scared that my body will not produce any eggs at all, no matter
Hey all, I am on a Clomid treatment due to anovulation (1.5 years!). In the beginning I had hope that this would solve my problem, but my body does not respond to this at all. I am already on an increased dose - without any success. I am so scared that my body will not produce any eggs at all, no matter
sarahharas
in
Fertility Network UK
6 years ago
Sjorgens symptoms
Hi Im awaiting a lip biopsy testing for Sjorgen’s. I have all of the symptoms but blood test negative . I had a period of feeling well for about 10-12 days recently and noticed that my dry also improved (unfortunately this didn’t last and I’m feel unwell again and all symptoms have returned ) I suppose
Hi Im awaiting a lip biopsy testing for Sjorgen’s. I have all of the symptoms but blood test negative . I had a period of feeling well for about 10-12 days recently and noticed that my dry also improved (unfortunately this didn’t last and I’m feel unwell again and all symptoms have returned ) I suppose
Angelamarston1963
in
LUPUS UK
6 years ago
W4 done! Undecided about how glad I am about that.
Hot day today.  Mark it in your diary folks...a bank holiday without rain. So I got up really early to get my final week 4 run done before the heat of the day. Bleary eyed, I turned off my 10am alarm (that is early for a bank holiday right?), donned my shorts, running bra and calf stockings. And headed
Hot day today.  Mark it in your diary folks...a bank holiday without rain. So I got up really early to get my final week 4 run done before the heat of the day. Bleary eyed, I turned off my 10am alarm (that is early for a bank holiday right?), donned my shorts, running bra and calf stockings. And headed
Marvo69
Graduate
in
Couch to 5K
6 years ago
Oxycodone/Naloxone
My husband’s restless legs became severe about 2 months ago. He tried changing diet and several drugs- most recently the Neupro patch which offered some relief. He just had open heart surgery to repair a valve. For several days after surgery there was no restless leg. Now it has come back. I believe
My husband’s restless legs became severe about 2 months ago. He tried changing diet and several drugs- most recently the Neupro patch which offered some relief. He just had open heart surgery to repair a valve. For several days after surgery there was no restless leg. Now it has come back. I believe
texdeb6989
in
Restless Legs Syndrome
6 years ago
Lyrica?
I wrote a post recently about my severe rls. I visited my gp today and she wanted me to try this drug called lyrica (or pregabalin). I'm very anxious about trying this new medication (to me, it's always scary trying new drugs!). I'm hoping to hear if it has helped others with rls and fibromyalgia (for
I wrote a post recently about my severe rls. I visited my gp today and she wanted me to try this drug called lyrica (or pregabalin). I'm very anxious about trying this new medication (to me, it's always scary trying new drugs!). I'm hoping to hear if it has helped others with rls and fibromyalgia (for
mariannabelle
in
Restless Legs Syndrome
6 years ago
Second time applying for pip
hi guys, not sure if anyone can help me or not or just give me a bit of advice, basically i have suffered with mental health issues for a number of years now, depression, anxiety and borderline personality disorder. i was most recently diagnosed with fybromyalgia and awaiting a pain managment course
hi guys, not sure if anyone can help me or not or just give me a bit of advice, basically i have suffered with mental health issues for a number of years now, depression, anxiety and borderline personality disorder. i was most recently diagnosed with fybromyalgia and awaiting a pain managment course
keelie94
in
Fibromyalgia Action UK
6 years ago
Petition: Provide funding for biomedical research into Myalgic Encephalomyelitis (ME & CFS)
Myalgic Encephalomyelitis (ME) often referred to as Chronic Fatigue Syndrome (CFS) a debilitating chronic neuroimmune disease worsen after even minimal physical, emotional or mental activity causing many symptoms of which the main two are chronic pain and severe fatigue.It is estimated that 7 million
Myalgic Encephalomyelitis (ME) often referred to as Chronic Fatigue Syndrome (CFS) a debilitating chronic neuroimmune disease worsen after even minimal physical, emotional or mental activity causing many symptoms of which the main two are chronic pain and severe fatigue.It is estimated that 7 million
Admin_AFMCG
Administrator
in
Andover Fibromyalgia & ME Community Group
6 years ago
Fibromyalgia vs esa
Hi everyone new to the forum, currently been receiving esa support group for fibro and depression. Been 3 yrs now just received my renewal medical form to send back, am I likely to expect another medical face to face given my condition hasn't changed but more than anything gotten wrse! I really can't
Hi everyone new to the forum, currently been receiving esa support group for fibro and depression. Been 3 yrs now just received my renewal medical form to send back, am I likely to expect another medical face to face given my condition hasn't changed but more than anything gotten wrse! I really can't
H4nn4h786
in
Fibromyalgia Action UK
6 years ago
How longs a piece of string ?
Hi I’m sure many of you have been in the position I find my self in . Back in December I started with joint pain , fatigue etc - I’ve had fibro for many years and this just felt different . By Jan I couldn’t work more than 4/5 hrs a day and was making mistakes in my work . I’ve been off work ever since
Hi I’m sure many of you have been in the position I find my self in . Back in December I started with joint pain , fatigue etc - I’ve had fibro for many years and this just felt different . By Jan I couldn’t work more than 4/5 hrs a day and was making mistakes in my work . I’ve been off work ever since
Angelamarston1963
in
LUPUS UK
6 years ago
High NK cells question for friend
Hi lovely people please can anyone help. A friend of mine has had a few Ivf cycles that unfortunately were BFN's. She had testing done for high nk cells and the tests came back High. Her question is when should she re test after her last dose of intralipid? she has had 3 doses of Intralipid and prednisone
Hi lovely people please can anyone help. A friend of mine has had a few Ivf cycles that unfortunately were BFN's. She had testing done for high nk cells and the tests came back High. Her question is when should she re test after her last dose of intralipid? she has had 3 doses of Intralipid and prednisone
Blondyboo
in
Fertility Network UK
6 years ago
IVF abroad and the Beta HCG test on return
Hi Ladies, Husband and I have just returned from Turkey. we had 2 blastos transfered on wednesday moring. the doctor says Beta HCG test on day 10. ( would be this saturday) I found a nurse who will take my bloods and get the result the same day. Unfortunately I have to wait until tuesday to have my
Hi Ladies, Husband and I have just returned from Turkey. we had 2 blastos transfered on wednesday moring. the doctor says Beta HCG test on day 10. ( would be this saturday) I found a nurse who will take my bloods and get the result the same day. Unfortunately I have to wait until tuesday to have my
silvanti_78
in
Fertility Network UK
6 years ago
Help! I’ve been called in for a half way through assessment for my pip
Hi all, I’ve had pip now for a year and a half and had disability living allowance before that. Both pay for my hand controlled car that gives me the independence I need to still to get me to work part time and be me!! I was working full time when I came down with FND 7 years ago and have just finished
Hi all, I’ve had pip now for a year and a half and had disability living allowance before that. Both pay for my hand controlled car that gives me the independence I need to still to get me to work part time and be me!! I was working full time when I came down with FND 7 years ago and have just finished
lorettapalmer
in
Functional Neurological Disorder - FND Hope
6 years ago
gonorrhea Inconclusive twice?!?
Hello everyone, This is kinda embrassing more so that I have the most beige sex life ever and have been with the same man for 18 years. I have been having some tests as I am due to start IVF soon due to my very low AMH. My GP did some swaps for STDS and everything came back ok expect for the gonorrhea
Hello everyone, This is kinda embrassing more so that I have the most beige sex life ever and have been with the same man for 18 years. I have been having some tests as I am due to start IVF soon due to my very low AMH. My GP did some swaps for STDS and everything came back ok expect for the gonorrhea
Ebony1980
in
Fertility Network UK
6 years ago
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