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Inhaler post pneumonia, awaiting lung scarring diagnosis?
Hi first time posting - hoping someone can help! I’m basically after some advice in knowing when to ask for an inhaler. 40 y old female fit and healthy until last September when I got severe pneumonia. One lung was a white out with atelectasis (bits inside the lung dying; they’re still dead) and the
Hi first time posting - hoping someone can help! I’m basically after some advice in knowing when to ask for an inhaler. 40 y old female fit and healthy until last September when I got severe pneumonia. One lung was a white out with atelectasis (bits inside the lung dying; they’re still dead) and the
SirCoughalot
in
Lung Conditions Community Forum
2 months ago
Pegasys Update 1.0
Finally getting around to sharing my experiences of starting Pegasys. First a little background. Diagnosed with ET JAK2+ in 2019 after a decade of scintillating scotomas with increasing frequency at almost weekly. Aspirin cut this to approx. 90 days! Over the next three years increasingly struggled with
Finally getting around to sharing my experiences of starting Pegasys. First a little background. Diagnosed with ET JAK2+ in 2019 after a decade of scintillating scotomas with increasing frequency at almost weekly. Aspirin cut this to approx. 90 days! Over the next three years increasingly struggled with
Crossefield
in
MPN Voice
4 months ago
Methotrexate and sinus/nasal issues
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
Gottarelax
in
NRAS
6 months ago
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D Mannose
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
RosaD
in
LUPUS UK
4 months ago
Covid and Myelofibrosis
hi I’ve just tested positive for Covid, I have post pv Myelofibrosis. I’m waiting on 111 to see whether I need to have some treatment. What are your thoughts and is this necessary now? I think it’s going to be a long wait, so it might be tomorrow. Thank you Mal
hi I’ve just tested positive for Covid, I have post pv Myelofibrosis. I’m waiting on 111 to see whether I need to have some treatment. What are your thoughts and is this necessary now? I think it’s going to be a long wait, so it might be tomorrow. Thank you Mal
Mal42
in
MPN Voice
4 months ago
dont give up the fight against Afib
I have been a member of this forum for some years and learned a few things from its members but up until now i have never posted anything but i thought my story may give some of you people a bit of hope. I first went into afib in 2018 sudenly without any warning my heart rate was 222 and the top line
I have been a member of this forum for some years and learned a few things from its members but up until now i have never posted anything but i thought my story may give some of you people a bit of hope. I first went into afib in 2018 sudenly without any warning my heart rate was 222 and the top line
Dikytiker
in
AF Association
4 months ago
Covid and Party
👋 Party is this coming Sat . I feel OK with going now after people's advice , so thank you all. Got my N95 mask. Will have sanitiser on me all the time . However I am now facing difficulties, flare up in both knees and one hip in agony and lower back , getting in and out of bed , turning in bed
👋 Party is this coming Sat . I feel OK with going now after people's advice , so thank you all. Got my N95 mask. Will have sanitiser on me all the time . However I am now facing difficulties, flare up in both knees and one hip in agony and lower back , getting in and out of bed , turning in bed
Stavrou1
in
CLL Support
4 months ago
Hair issues
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
Teddyboy17
in
NRAS
6 months ago
one year olds vaccines
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Mozart150
in
NRAS
6 months ago
latest results, confused, please advise!
My last results a month ago before treatment with 50 mcg were : Serum free t4 level. 10.2 pmo/L TSH level 7.28 IU/mL After a month of Levothyroxine my results are now:- serum free t4 level. 15.6 TSH 2.87 I asked for, and was told my T3 would be checked but I can’t see it on printout unless
My last results a month ago before treatment with 50 mcg were : Serum free t4 level. 10.2 pmo/L TSH level 7.28 IU/mL After a month of Levothyroxine my results are now:- serum free t4 level. 15.6 TSH 2.87 I asked for, and was told my T3 would be checked but I can’t see it on printout unless
Benjipuss
in
Thyroid UK
4 months ago
Will a COVID (or flu) vaccination affect my blood results?
If I have a blood test 3 or 7 days after a COVID (or flu) vaccination - will it affect my blood results? Should I perhaps make the vaccination after the blood test, so that there is no potential issue interpreting my blood results? If the vaccination affects blood results - how many days after the vaccination
If I have a blood test 3 or 7 days after a COVID (or flu) vaccination - will it affect my blood results? Should I perhaps make the vaccination after the blood test, so that there is no potential issue interpreting my blood results? If the vaccination affects blood results - how many days after the vaccination
mantana
in
CLL Support
4 months ago
stomach acid
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
fiftyone
in
Thyroid UK
6 months ago
Calcified tendonitis
Has anyone experienced calcified tendinitis? I have been diagnosed with this after 6 months of excruciating shoulder pain. GP kept just prescribing painkillers then I saw the physio who advised me to have an X-ray. I am now having a steroid injection in my shoulder followed by physio, and hopefully this
Has anyone experienced calcified tendinitis? I have been diagnosed with this after 6 months of excruciating shoulder pain. GP kept just prescribing painkillers then I saw the physio who advised me to have an X-ray. I am now having a steroid injection in my shoulder followed by physio, and hopefully this
FLS1
in
NRAS
4 months ago
Current SUPERNOVA Clinical Trial for Reformulated EVUSHELD for preventing COVID-19 infection for immune-impaired individuals
A Phase II sub-study of SUPERNOVA clinical trial (2023) is currently operating to test the efficacy and safety of AZD3152 as a component of a reformulated version of EVUSHELD mAbs prophylaxis for immune-impaired individuals who cannot mount antibody responses to COVID-19 vaccines. Study Understanding
A Phase II sub-study of SUPERNOVA clinical trial (2023) is currently operating to test the efficacy and safety of AZD3152 as a component of a reformulated version of EVUSHELD mAbs prophylaxis for immune-impaired individuals who cannot mount antibody responses to COVID-19 vaccines. Study Understanding
Classicaljazz
in
CLL Support
4 months ago
⭐️⭐️my COVID journey ⭐️⭐️
⭐️covid survivors let’s keep on fighting, let’s help each other & spread awareness of the real impact & life changing difficulties we face❤️❤️ Ladysurvivor1 profile image Ladysurvivor1 2 days ago•0 Replies 🧏🏽♀️My COVID Journey: A Tale of Resilience and Hope (Part 1) In the depths of January
⭐️covid survivors let’s keep on fighting, let’s help each other & spread awareness of the real impact & life changing difficulties we face❤️❤️ Ladysurvivor1 profile image Ladysurvivor1 2 days ago•0 Replies 🧏🏽♀️My COVID Journey: A Tale of Resilience and Hope (Part 1) In the depths of January
Ladysurvivor1
in
ICUsteps
4 months ago
Finally failed at side-stepping the “rona”
Well I guess sooner or later it had to happen. Four years of avoiding covid and now I caught it whilst traveling for work in the Far East. Started with a cold and a general malaise, then a few days later, last night, I had a slight temperature so I thought I’d check (had packed some tests just in
Well I guess sooner or later it had to happen. Four years of avoiding covid and now I caught it whilst traveling for work in the Far East. Started with a cold and a general malaise, then a few days later, last night, I had a slight temperature so I thought I’d check (had packed some tests just in
Aldebaran25
in
MPN Voice
4 months ago
Worried About (Possible) Recent Diagnosis of PMR.
Around 3 months ago I became aware of increasing aches and pains in my arms and legs and an overwhelming exhaustion. I’m normally a fit and active 73 year old. My neck felt stiff but I put that down to wear and tear as I also have worn discs in my lower spine which I manage with Pilates. GP sent me
Around 3 months ago I became aware of increasing aches and pains in my arms and legs and an overwhelming exhaustion. I’m normally a fit and active 73 year old. My neck felt stiff but I put that down to wear and tear as I also have worn discs in my lower spine which I manage with Pilates. GP sent me
GlesgaGal
in
PMRGCAuk
4 months ago
Interesting article about the effects of Covid19 on your blood
Having caught Covid19 a short time after my allo SCT and with my anaemia ongoing, I was interested to see this article. This is not CLL specific but worth a read. "[i]Several studies have reported, in COVID-19 patients, hematological abnormalities. Most of these alterations are associated with a higher
Having caught Covid19 a short time after my allo SCT and with my anaemia ongoing, I was interested to see this article. This is not CLL specific but worth a read. "[i]Several studies have reported, in COVID-19 patients, hematological abnormalities. Most of these alterations are associated with a higher
Jm954
Administrator
in
CLL Support
4 months ago
covid vaccine and prostate cancer
I was surprised that the post about the covid vaccine was abruptly terminated as if the subject was closed and the answer is settled. That is not true in my opinion. This is a brand new technology that was only tested for about a year. No definitive study has been done about the long term impact (if
I was surprised that the post about the covid vaccine was abruptly terminated as if the subject was closed and the answer is settled. That is not true in my opinion. This is a brand new technology that was only tested for about a year. No definitive study has been done about the long term impact (if
Schwah
in
Advanced Prostate Cancer
4 months ago
upping steroids short term to boost recovery?
writing on behalf of my mum who is getting over a respiratory tract infection (or not getting over it to be precise). She has long PMR (getting on 40 yr) and is constantly trying to reduce pred. I recall reading in this forum a recommendation to temporarily increase dose when ill / having surgery etc
writing on behalf of my mum who is getting over a respiratory tract infection (or not getting over it to be precise). She has long PMR (getting on 40 yr) and is constantly trying to reduce pred. I recall reading in this forum a recommendation to temporarily increase dose when ill / having surgery etc
Gottarelax
in
PMRGCAuk
6 months ago
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