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Personal Sleep PR
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
WideBody
in
Restless Legs Syndrome
10 months ago
Ibrance/Letrozole Fail
Been through the wringer and back over the past month. Scans showed progression. Had bone only mets and now showing inflammation in my lungs. Had more scans and genomic testing for mutations and it turns out I have no mutations that have been studied yet. My oncologist is putting me on Xeloda and says
Been through the wringer and back over the past month. Scans showed progression. Had bone only mets and now showing inflammation in my lungs. Had more scans and genomic testing for mutations and it turns out I have no mutations that have been studied yet. My oncologist is putting me on Xeloda and says
CTGirl1962
in
SHARE Metastatic Breast Cancer
5 months ago
Scared my AFib will come back due to very nasty cough.
i had an Ablation in September and have developed this horrendous cough, that’s causing me to nearly throw up. My AFib started in 2014, when I had a nasty coughing virus, so I’m scared this coughing virus will bring it back. This one seems much worse. Has anyone else had this horrible cough. ? Any tips
i had an Ablation in September and have developed this horrendous cough, that’s causing me to nearly throw up. My AFib started in 2014, when I had a nasty coughing virus, so I’m scared this coughing virus will bring it back. This one seems much worse. Has anyone else had this horrible cough. ? Any tips
Sixtychick
in
AF Association
6 months ago
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Hepatitis B
It started with yellow eyes and went south very quickly. I have had 2 weeks of hell and been very unwell. It was confirmed that I had Hep B and it really has turned my life upside down. It would be good to know others experiences.
It started with yellow eyes and went south very quickly. I have had 2 weeks of hell and been very unwell. It was confirmed that I had Hep B and it really has turned my life upside down. It would be good to know others experiences.
HepBHelp
in
British Liver Trust
10 months ago
liver concerns
I had clear cell ovarian cancer and had debulking surgery and hysterectomy a year ago. I recently had sudden right side and back pain and had a scan with blood work. Everything came out ok except my liver numbers (ast and alt) were super high. Could this indicate the start of a reoccurrence? Has
I had clear cell ovarian cancer and had debulking surgery and hysterectomy a year ago. I recently had sudden right side and back pain and had a scan with blood work. Everything came out ok except my liver numbers (ast and alt) were super high. Could this indicate the start of a reoccurrence? Has
Marieck
in
My Ovacome
5 months ago
Mucus back again
Hi all. As some may remember I suffer from ongoing mucus discharge from rectum. I had a colonoscopy done year and 3/4 ago and clear. All tests.I went gluten dairy free. It worked and did stop it happening everyday but for some weird reason past 3 weeks I've had all my symtoms back again with vengeance
Hi all. As some may remember I suffer from ongoing mucus discharge from rectum. I had a colonoscopy done year and 3/4 ago and clear. All tests.I went gluten dairy free. It worked and did stop it happening everyday but for some weird reason past 3 weeks I've had all my symtoms back again with vengeance
mal444
in
IBS Network
4 months ago
low hemoglobin
my dad has a hemoglobin of 10. He has been dizzy, and had a rash(Unclear if the two are related- - PCP said possibly ). Also low appetite. Just completed radiation Jan 3 and started the Lupron end of November. Radiation was done to prostate and to met on hip bone. Anyone have insight into what
my dad has a hemoglobin of 10. He has been dizzy, and had a rash(Unclear if the two are related- - PCP said possibly ). Also low appetite. Just completed radiation Jan 3 and started the Lupron end of November. Radiation was done to prostate and to met on hip bone. Anyone have insight into what
alysona828
in
Advanced Prostate Cancer
5 months ago
Restarting RA meds after having Covid
Hi allI had Covid and took antivirals. I tested positive on the 12th October and first tested negative on the 17th October. The nurse said I can have my Tocilizimab injection now. I am just questioning if it's too soon. I have a lot of catarrh it is clear, no infection. I am also extremely tired, getting
Hi allI had Covid and took antivirals. I tested positive on the 12th October and first tested negative on the 17th October. The nurse said I can have my Tocilizimab injection now. I am just questioning if it's too soon. I have a lot of catarrh it is clear, no infection. I am also extremely tired, getting
Mouseling
in
NRAS
9 months ago
Hello
Hi everyone, I've been Stage IV mbc since December 2019, on Ibrance / Letrozole but now facing a change. Those drugs (with some off label drugs and naturopathic treatments/supplements) kept me stable for nearly 4 years. Now some update on my left femur, sternum and new tumors in my liver. Curious
Hi everyone, I've been Stage IV mbc since December 2019, on Ibrance / Letrozole but now facing a change. Those drugs (with some off label drugs and naturopathic treatments/supplements) kept me stable for nearly 4 years. Now some update on my left femur, sternum and new tumors in my liver. Curious
Bella_mum
in
SHARE Metastatic Breast Cancer
5 months ago
Hanging on
Remarkably mum is still hanging on through sheer grit we think.She's very weak and frail, had another couple of falls. Been in hospital with pneumonia before xmas and had pneumonia again 2 weeks ago. The care home are great but the frustration is the loss of speech for over 2 years now, no way to communicate
Remarkably mum is still hanging on through sheer grit we think.She's very weak and frail, had another couple of falls. Been in hospital with pneumonia before xmas and had pneumonia again 2 weeks ago. The care home are great but the frustration is the loss of speech for over 2 years now, no way to communicate
MRSYafffle
in
PSP Association
6 months ago
Covid - Beware Getting Treatment - Don’t Test Positive on a Friday - Some Answers
Well I said I would update you all regarding the ordeal I had had regarding my previous posts on this subject. Don’t want to bore you all but some may be interested in what I have managed to find out. I laid out to the NHS what I needed answers to and what they were doing about it to prevent it happening
Well I said I would update you all regarding the ordeal I had had regarding my previous posts on this subject. Don’t want to bore you all but some may be interested in what I have managed to find out. I laid out to the NHS what I needed answers to and what they were doing about it to prevent it happening
Investigator1
in
Vasculitis UK
9 months ago
Effect of Covid on Platelets
I’ve had thrombocythaemia for many years and it’s been well controlled initially by Hydroxycarbamide and in more recent years by Hydroxycarbamide and Anagrelide together. At the beginning of September I developed covid and tested positive over a period of twenty days. Early in October during a face
I’ve had thrombocythaemia for many years and it’s been well controlled initially by Hydroxycarbamide and in more recent years by Hydroxycarbamide and Anagrelide together. At the beginning of September I developed covid and tested positive over a period of twenty days. Early in October during a face
AnneMargaretMary
in
MPN Voice
9 months ago
Thoughts on Lignosus
Hello, I have just been in hospital for a week with a bad case of pneumonia, which came out of nowhere. I am only 44 and have no history of respiratory problems. The CT scan also showed mild bronchiectasis, which I am now finding out lots more about thanks to forums like this.I am now being bombarded
Hello, I have just been in hospital for a week with a bad case of pneumonia, which came out of nowhere. I am only 44 and have no history of respiratory problems. The CT scan also showed mild bronchiectasis, which I am now finding out lots more about thanks to forums like this.I am now being bombarded
PuzzlePuff
in
Lung Conditions Community Forum
6 months ago
Home now
Hi I would like to share what I've encountered the last 6 months and would love some feedback from anyone I fell ill back in late June 23 It seemed like a cold or flu coming on which turned into pneumonia in both lungs followed by a anti resistant bacterial infection baumanni that led to ards sepsis
Hi I would like to share what I've encountered the last 6 months and would love some feedback from anyone I fell ill back in late June 23 It seemed like a cold or flu coming on which turned into pneumonia in both lungs followed by a anti resistant bacterial infection baumanni that led to ards sepsis
Gl76
in
ICUsteps
6 months ago
mixing meds
if my husband and i have a cold--virus temperature we take lemsips xxx
if my husband and i have a cold--virus temperature we take lemsips xxx
Tut7iFru7i
in
AF Association
6 months ago
Online Ordering of COVID LFTs to Stop in November
COVID 19 Lateral Flow test kits are to be collected from a community pharmacy if the pharmacy chooses to sign up for the service from November 6th. From this date LFTs will no longer be available to order online or through the NHS 119 service.
COVID 19 Lateral Flow test kits are to be collected from a community pharmacy if the pharmacy chooses to sign up for the service from November 6th. From this date LFTs will no longer be available to order online or through the NHS 119 service.
MickUK
in
CLL Support
9 months ago
PMR & COVID Vaccine Link?
In another thread which I began on a different subject, the possibility of a link between PMR and COVID vaccine came up. In that thread, for the first time I saw something other than idle speculation that the vaccine and PMR might be l inked: [i]A study published[/i][u][i] in the journal Rheumatology
In another thread which I began on a different subject, the possibility of a link between PMR and COVID vaccine came up. In that thread, for the first time I saw something other than idle speculation that the vaccine and PMR might be l inked: [i]A study published[/i][u][i] in the journal Rheumatology
Mansplainer101
in
PMRGCAuk
9 months ago
Possible lung metastasis
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
Bettyxxx
in
My Ovacome
5 months ago
blood test whilst with a cold?
due for a blood test later today, which I would normally have before my Rheumy visit (scheduled for next week) Come down with a blooming cold, started a few days ago - I’ve been reasonably lucky to have by passed most doing the rounds of our office 😬 - just done a COVID test to make sure and it’s come
due for a blood test later today, which I would normally have before my Rheumy visit (scheduled for next week) Come down with a blooming cold, started a few days ago - I’ve been reasonably lucky to have by passed most doing the rounds of our office 😬 - just done a COVID test to make sure and it’s come
Cfmad298601
in
PMRGCAuk
9 months ago
Spinal mets.
Got a MRI report back from my new MO...several spine mets which just confirmed my Psma pet. Everything else is structurally good. Not good at comprehending these reports. Not a medical kind of guy...If I couldn't stop the bleeding or couldn't drain the hose that was about the only time I went to a
Got a MRI report back from my new MO...several spine mets which just confirmed my Psma pet. Everything else is structurally good. Not good at comprehending these reports. Not a medical kind of guy...If I couldn't stop the bleeding or couldn't drain the hose that was about the only time I went to a
APK3
in
Advanced Prostate Cancer
5 months ago
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