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Peri-Menopause and Menorrhagia
Ok I'm at my wits end after six years of flooding through tampons in three minutes or no longer able to hold them in. I have moved on from night time pads to incontinence pads to incontinence pants and as an alternative toddlers nappies...many at the same time. I flood so much blood and huge huge clots
Ok I'm at my wits end after six years of flooding through tampons in three minutes or no longer able to hold them in. I have moved on from night time pads to incontinence pads to incontinence pants and as an alternative toddlers nappies...many at the same time. I flood so much blood and huge huge clots
juneann
in
NRAS
6 years ago
Dismissive surgeon, how can I change?
Hi all. I am struggling with very painful periods, plus a lot of discomfort in vaginal area, for over 7 years now. Also painful bowel movements all the time, which are getting progressively worse. Nothing wrong with the bowel though, colonoscopy came clean so I got an IBS diagnosis. Due to the other
Hi all. I am struggling with very painful periods, plus a lot of discomfort in vaginal area, for over 7 years now. Also painful bowel movements all the time, which are getting progressively worse. Nothing wrong with the bowel though, colonoscopy came clean so I got an IBS diagnosis. Due to the other
Lipton
in
Endometriosis UK
6 years ago
What’s it like coming off the Mirena coil after 5 years to try and conceive?
During a very successful laparoscopy I had the mirena coil fitted. This will be five years ago in April. The combination has made my endometriosis very manageable and I feel very lucky. I’m at a point in my life where me and my partner are starting to consider starting a family and with my Mirena coil
During a very successful laparoscopy I had the mirena coil fitted. This will be five years ago in April. The combination has made my endometriosis very manageable and I feel very lucky. I’m at a point in my life where me and my partner are starting to consider starting a family and with my Mirena coil
Jess_R
in
Endometriosis UK
6 years ago
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Mirena coil 3 months later...
Hi All, I had the mirena coil fitted early September 2018. My consultant wouldn't send me for another lap as I only had one last March, but I was in a lot of pain again and had constant periods. Whilst it has taken a while for my periods to stop, the last week or so they seem to have stopped completely
Hi All, I had the mirena coil fitted early September 2018. My consultant wouldn't send me for another lap as I only had one last March, but I was in a lot of pain again and had constant periods. Whilst it has taken a while for my periods to stop, the last week or so they seem to have stopped completely
rhia0901
in
Endometriosis UK
6 years ago
Sharp pains/First period/Mirena coil!
Hey! It's been a while since I've wrote on here..I'm now 5/6 weeks post lap (which they found endo on my ovaries and womb) and am currently experiencing my first period since having the Lap and Mirena Coil put in. To be honest I've been losing stuff since the Lap..When I went for my coil check last
Hey! It's been a while since I've wrote on here..I'm now 5/6 weeks post lap (which they found endo on my ovaries and womb) and am currently experiencing my first period since having the Lap and Mirena Coil put in. To be honest I've been losing stuff since the Lap..When I went for my coil check last
L-Nebula-Sea
in
Endometriosis UK
6 years ago
After surgary on the 30th november
I had a op yesterday i have endometriosis also had a cyst burst and a biopy taken from my uterus all so found out i have adenomyosis and have had the marina coil fitted i have been in pain on a constant basis since i was 14 i am 33 now n not really taking it well i feel like my hips r broke apperently
I had a op yesterday i have endometriosis also had a cyst burst and a biopy taken from my uterus all so found out i have adenomyosis and have had the marina coil fitted i have been in pain on a constant basis since i was 14 i am 33 now n not really taking it well i feel like my hips r broke apperently
Kirendo
in
Adenomyosis Advice Association
6 years ago
Zoladex and Tibolone
Hi, I’ve had endo for 20 years plus, had 2 ops was treated using Mirena but that doesn’t seem to work anymore so and am about to have my first Zoladex injection combined with taking Tibolone. I’m pretty nervous about it after reading others experiences. Any reassuring advice welcome.
Hi, I’ve had endo for 20 years plus, had 2 ops was treated using Mirena but that doesn’t seem to work anymore so and am about to have my first Zoladex injection combined with taking Tibolone. I’m pretty nervous about it after reading others experiences. Any reassuring advice welcome.
Dahlia_D
in
Endometriosis UK
6 years ago
I’m so fed up :(
Background story - diagnosed with endo 4 years ago after 7/8 years of pain. Minimal endo found and lazered by general gynaecologist. Went back a year later as still in loads of pain, another op with no endo found and Mirena coil fitted. Mirena helped for 8 months then all of the pain returned so had
Background story - diagnosed with endo 4 years ago after 7/8 years of pain. Minimal endo found and lazered by general gynaecologist. Went back a year later as still in loads of pain, another op with no endo found and Mirena coil fitted. Mirena helped for 8 months then all of the pain returned so had
MegVarny
in
Endometriosis UK
6 years ago
Severely anaemic.
After seeing my GP on Thursday following 23 days of flooding (aged 56) I had blood taken on Friday at 10:15am expecting my results available online by Monday or Tuesday next week. Five hours later a partner at the practice called me to say the hospital had called my results straight through as my haemaglobin
After seeing my GP on Thursday following 23 days of flooding (aged 56) I had blood taken on Friday at 10:15am expecting my results available online by Monday or Tuesday next week. Five hours later a partner at the practice called me to say the hospital had called my results straight through as my haemaglobin
juneann
in
NRAS
6 years ago
Trying to conceive with Endo stage 4 and worried about my chances
I've never posted anything, anywhere before, but I just need to talk. Sorry if this is an essay but I don't know what to leave out and what to include! I was diagnosed 3 years ago with stage 4 Endo, after first suspecting I had it over 10 years ago. I was told that I would most likely have troubles conceiving
I've never posted anything, anywhere before, but I just need to talk. Sorry if this is an essay but I don't know what to leave out and what to include! I was diagnosed 3 years ago with stage 4 Endo, after first suspecting I had it over 10 years ago. I was told that I would most likely have troubles conceiving
Hidden
in
Endometriosis UK
6 years ago
Period?
Hey! It's been a while since I posted..I was 4 weeks post lap on Tuesday just gone and am yet to have a period! I was told by my consultant to expect at least 3 periods as it would take a while for my body to get used to the coil..So I've stocked up and everything i would need and nothing! Still getting
Hey! It's been a while since I posted..I was 4 weeks post lap on Tuesday just gone and am yet to have a period! I was told by my consultant to expect at least 3 periods as it would take a while for my body to get used to the coil..So I've stocked up and everything i would need and nothing! Still getting
L-Nebula-Sea
in
Endometriosis UK
6 years ago
What stage would you say this is?
So I had my lap earlier in the year and the surgeon said it was removed off both ovaries and my womb and believed it was everything. No diagnosis of what stage endometriosis it was, but still in pain. Was sent for an MRI when I was on a Mirena coil which calmed things down a lot and it showed a 25mm
So I had my lap earlier in the year and the surgeon said it was removed off both ovaries and my womb and believed it was everything. No diagnosis of what stage endometriosis it was, but still in pain. Was sent for an MRI when I was on a Mirena coil which calmed things down a lot and it showed a 25mm
Jadio
in
Endometriosis UK
6 years ago
Could I possibly be pregnant?
Let me first of state the fact that I am on the Mirena coil. A girl in my work spooked me about this as she got pregnant on the same coil herself. I’ll be 6 days late with my period tomorrow and no sign yet of it, I know eventually the coil makes your periods very nonexistent but I’ve only been on
Let me first of state the fact that I am on the Mirena coil. A girl in my work spooked me about this as she got pregnant on the same coil herself. I’ll be 6 days late with my period tomorrow and no sign yet of it, I know eventually the coil makes your periods very nonexistent but I’ve only been on
Lucy23_
in
Pregnancy and Parenting Support
6 years ago
Really painful periods!
Hi all, I'm new here and have recently been diagnosed with PCOS and the sister of endometriosis - 'Adenomyosis'. I had the mirena coil put in a last month but really struggled with the pain and as a result went to A&E and had it removed straight away! Not a good option 😔 anyway, since that experience
Hi all, I'm new here and have recently been diagnosed with PCOS and the sister of endometriosis - 'Adenomyosis'. I had the mirena coil put in a last month but really struggled with the pain and as a result went to A&E and had it removed straight away! Not a good option 😔 anyway, since that experience
Equestrian18
in
Endometriosis UK
6 years ago
Anyone worse a day after intense work outs?
Hey ladies , Does anyone suffer really badly after exercise? I had excision surgery (endo found in uteral sacral ligaments and around ovaries) and Mirena fitted in January, but I just feel like pain is coming back! :( .. I’m in agony lately with pain after intense exercise/intercourse but it seems
Hey ladies , Does anyone suffer really badly after exercise? I had excision surgery (endo found in uteral sacral ligaments and around ovaries) and Mirena fitted in January, but I just feel like pain is coming back! :( .. I’m in agony lately with pain after intense exercise/intercourse but it seems
KatieA12
in
Endometriosis UK
6 years ago
My stomach is constantly pained
Hi everyone i am 33 years old and i have endometriosis stage 3 i have had endometriosis since i was 14 n have had one lapascopy and it removed but i suffered up to the age of 23 i had my first op after my 2nd daughter i am back with my surgeon and is awaiting another op this month as it has attached
Hi everyone i am 33 years old and i have endometriosis stage 3 i have had endometriosis since i was 14 n have had one lapascopy and it removed but i suffered up to the age of 23 i had my first op after my 2nd daughter i am back with my surgeon and is awaiting another op this month as it has attached
Kirendo
in
Endometriosis UK
6 years ago
Mirena coil pain
Hi I'm Lynne new to this I've had mirena coil put in yesterday but on the right side off under my tummyit very painful has anyone had the same or similar xx
Hi I'm Lynne new to this I've had mirena coil put in yesterday but on the right side off under my tummyit very painful has anyone had the same or similar xx
Lin73
in
Endometriosis UK
6 years ago
Post Lap period
I had my first Lap 4 weeks ago and I’m having my first post-op period. I wasn’t sure what to expect because I also have Fibromyalgia which also is painful, but I’ve been experiencing pain around where they treated endo, and cramping pains too. I have a Mirena coil fitted now and was told it can take
I had my first Lap 4 weeks ago and I’m having my first post-op period. I wasn’t sure what to expect because I also have Fibromyalgia which also is painful, but I’ve been experiencing pain around where they treated endo, and cramping pains too. I have a Mirena coil fitted now and was told it can take
Maya23
in
Endometriosis UK
6 years ago
Question for those with Endo on your bowels...
Hi, I've been told my Endo is on (and in) my ovaries and womb, but I'm concerned it's also on my bladder/bowels... Apologies for TMI btw! I find that I get pain when I need to go to the toilet, especially number 2, and sometimes its so painful to go, and then after I have a bruising sensation that feels
Hi, I've been told my Endo is on (and in) my ovaries and womb, but I'm concerned it's also on my bladder/bowels... Apologies for TMI btw! I find that I get pain when I need to go to the toilet, especially number 2, and sometimes its so painful to go, and then after I have a bruising sensation that feels
Jadio
in
Endometriosis UK
6 years ago
I'm new... advice needed!
Hello Apologies for the long post, I will get to the point just bear with me! Much appreciated for anyone who can take the time to read this and advise me... I'm 27 and this year finally had a laparoscopy to diagnose and remove Endo from my womb & both ovaries. I have suffered with pain since I was 14
Hello Apologies for the long post, I will get to the point just bear with me! Much appreciated for anyone who can take the time to read this and advise me... I'm 27 and this year finally had a laparoscopy to diagnose and remove Endo from my womb & both ovaries. I have suffered with pain since I was 14
Jadio
in
Endometriosis UK
6 years ago
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