Question for those with Endo on your bowels...

[Jadio]

Hi,

I've been told my Endo is on (and in) my ovaries and womb, but I'm concerned it's also on my bladder/bowels...

Apologies for TMI btw!

I find that I get pain when I need to go to the toilet, especially number 2, and sometimes its so painful to go, and then after I have a bruising sensation that feels uncomfortable after I have been, Is it possible I have Endo on my bowels/bladder? I've had a laparoscopy where they removed what they were able to see on my ovaries/womb and I had an MRI (when my insides were looking their best whilst on the Mirena I no longer have) which showed it inside my ovaries, but nothing has been mentioned anywhere else so I'm just wondering what your experiences are for those who have it on bowels/bladder. I've always had trouble with going to the toilet and been told it's irritable bowel syndrome which I think is nonsense because it's affected by my cycle. I also get pain from strange things such as when I sit down, it sends a pain up and through me and like I said when I need/go to the toilet.

Any info much appreciated!

Thanks

[Kazza331]

Hi Jadio

You have just described my symptoms exactly!

Sorry if I can’t help answer your questions but I would also like to know, if anyone else has this and how they manage it or what treatment they have had ?

I am now wheat, gluten and dairy free, which has helped with the endo pain and bloating.

I hope u get some helpful answers

[Jadio in reply to Kazza331]

Hi Kazza

Thanks for your response! I'm sorry to hear you are also going through the same thing, but at least we are not alone! If you do get any answers from your Dr's, would you mind sharing with me? I have an appointment with my surgeon in February to discuss my MRI results and what we are going to do going forward (I managed to get my results to my GP just so I had an idea what I was dealing with but they can't help) but he had mentioned in my previous appointment about being referred to a specialist team.

Do you have any intolerances to those food groups or are they just helpful with the pain? I am considering trying that as I seem to wake up with a really bloated gassy tummy and strange tummy pain that doesn't feel like the dull ache of Endo, more like an actual stomach ache but lower down...

I'm definitely coming back as a man next time!