I'm new... advice needed!: Hello Apologies... - Endometriosis UK

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I'm new... advice needed!

Jadio profile image
2 Replies

Hello

Apologies for the long post, I will get to the point just bear with me! Much appreciated for anyone who can take the time to read this and advise me...

I'm 27 and this year finally had a laparoscopy to diagnose and remove Endo from my womb & both ovaries. I have suffered with pain since I was 14, which was misdiagnosed as appendicitis and I had that removed only to find it was only slightly inflamed and couldn't have been the cause of the pain I was having.

I have been on the pill most of the years since which have suppressed the pain as I had no periods, but the pill affected my moods and mental health so I decided to come off and have a copper coil fitted instead. This is when things started to get painful and after 3 ultrasounds I was finally referred to a Gynecologist who then did the laparoscopy and fitted me with a Mirena coil. I didn't get along with the Mirena either, and have tried all other forms of contraception so I went back to the copper coil but now the pain is back. I had an MRI when the copper coil was changed (literally the same week) so the Mirena has been in for the longest period of time and my insides would have looked their best (unlike me right now!) and since then things have only gotten worse. I had this done the end of September, and I have an appointment with my consultant in February next year to discuss results (!) so I requested my MRI results to go to my GP so I could at least see the results and go from there, the results show it is inside the tissue on my ovaries. GP scared me with the whole "well if you don't get on with any contraception and don't want kids then maybe you should consider hormones to induce early menopause?" Not what 27 year old me wants to hear, regardless of whether I want children...

So long story short (well, long) I have to wait until February for an MRI result which is already outdated as confirmed by my GP that my insides will show more Endo than they did in September, and I am in considerable more pain, hurts to be intimate with my boyfriend, hurts to go to the loo (is there any chance it may also be on my bladder/bowel or would this have shown up in the MRI?) and overall feeling pants, as I'm sure a lot of you also are! Is there anything I can do between now and then? I fear my appointment in Feb will achieve nothing, I might get sent for another MRI and that will be another 6 months wasted...

Thank you to those who made it to the end of my long winded story... <3

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Jadio
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Abigail16 profile image
Abigail16

Hey is there any way you can contact your surgeons secretary and ask for your appointment to be brought forward if you explain everything you’ve said here? Other than that I don’t have any suggestions sorry xx

Jadio profile image
Jadio in reply to Abigail16

I did go on the waiting list for any cancellation appointments but not heard anything... Thank you though! xxx

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